It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Osteoporosis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 03-17-2007, 08:25 AM   #1
Senior Member
(female)
 
Join Date: Sep 2006
Location: Ferndale, MI USA
Posts: 101
thyme2b HB User
Help with questions for Cleveland Clinic doctor

I would appreciate your help with my list of questions.

I'm going to a new doctor at the Cleveland Clinic where they have a good osteoporosis clinic. The doctor, Dr. Licata has published about Forteo, which is why I'm going there. There is some travel expense and time off work involved, so I want to make the visit count.

I've put together an extensive list of questions to ask (maybe too extensive, but I hoping that this is a doc who likes to communicate). If you have any other questions, I'd appreciate your input. Or if you think one needn't be asked, or changed or added to, let me know that too. I plan to hand a copy of the list to the doctor and go over them with him. This is a rough draft. The bracketed items are notes to myself that won't go in the final copy as they are.

Perhaps you all can come up with more questions. I promise to post the answers to these questions for everyone's edification when I return. So if you have questions of your own, post them and if it seems to fit my case, I'll ask them too. I'd be most grateful for any insights.

CONTRIBUTING FACTORS

1. Family Hx? Both mother and father with osteoporosis. Both grandmothers. Iím assuming there is a mix of genes and multiple contributing factors. One brother like father has started breaking bones ďfor no reason at allĒ before the age of 60. [Does this have a testosterone connection?] Iím wondering about gluten sensitivity. The 3 of us have horrible GERD, but osteo started before the GERD treatments.

2. Gluten sensitivity? I read that that this is not primarily an absorption issue, but that there are anti-bone antibodies. What more might you know about this? [Print out these articles].

3. PPIs? and any other medications that might contribute. I take the max dose of Aciphex 2Xday. I had stage 2 GERD.

4. Causes/contributing factors?

FORTEO

5. Breaks in taking Forteo? I read something that said that these did not impact treatment. Iíve had several breaks due to travel. Long weekend to 10 days (flying home from Oregon took 12 hours due to flight delays). What is best?

SUPPLEMENT/MEDICATION W/FORTEO

6. Hypercalcemia risk? I had one slightly elevated serum calcium reading while on Forteo. Iíve cut my calcium intake, but am concerned that this will not maximize the Forteo. How do I discover the optimal dose of calcium? Should I take frequent blood calcium tests? What is the risk of not taking enough calcium? [Look at hx of blood calcium tests going back to beginning of my records before FORTEO . What was the average?]

7. Vitamin D? I currently take quite a bit of vitamin D though lower dose calcium. My last calcium test was ok.

8. Low dose hormones? Currently taking estrogen, testosterone days 1-25 in a.m. and progesterone days 1-11 in p.m. How might we determine whether this is negatively impacting the Forteo or enhancing it? [Can I find any research one way or the other? If not is there a theoretical risk due since both have anti-resorptive action].

9. Zinc? Is zinc 50-65 mg taken mid day a problem? I take Forteo before bedtime.

10. Strontium? What do you think about strontium ranelate if/when it gets approval in the U.S. What is your opinion of strontium citrate as a supplement?

11. Other supplements? I take other supplements that may help with osteoporosis, like Mg and Vitamin K. Anything that may be a problem? Anything that you recommend?

TESTING

12. The iDEXA: Have you used it? Do you recommend it? Do you know where I might go to get it? Do you know if BC/BS pays for it? Might I get a referral for it?

13. N-Teleopeptide test? It was used in the research on FORTEO. Iíd like something more than a yearly dexascan. Is this useful? What are its limits? Other tests you recommend with this, or instead of it other than DEXA?

14. Others?

EXERCISE/EQUIPMENT

15. Elliptical machine? It is weight bearing? Is light running on a treadmill ok for someone with my profile? Bouncing on a minitrampoline with a stabilizing bar? (to shock the bones slightly).

16. The vibrating platform device? Any experience with it?

 
Sponsors Lightbulb
   
Old 03-17-2007, 09:59 AM   #2
Senior Veteran
(female)
 
Join Date: Oct 2006
Location: u.s.
Posts: 1,679
osteoblast HB User
Re: Help with questions for Cleveland Clinic doctor

Thyme2B-now that you have stated that you are an avid researcher on the ntx thread , I have a suggestion for your Cleveland Clinic prep work. If you ****** on "osteoporosis and bone physiology" you will get to a site set up by Dr. Susan Ott , a bone metabolism specialist at the University of Washington.There is a significant amount of information there that would better inform you on controversial points etc. when speaking with the dr. Check out the section on treatment and then experimental/breakthrough treatments. There is mention of Mg with study results that have spooked me a bit off of Mg. Also mention of diuretic and K etc. ( I think Dr. Ott is very good, I wish I could see her but it turned out to be impossible. She really came out strong in the professional journals with her concerns about the risks of bisphosphonates-in my book, this is very much to her credit. She seems like a patient -centric dr.)
Take a look at the section on rank ligand inhibitors-denosumab. I read on the net a few weeks ago a press release from Amgen that denosumab would be the gold standard in osteo treatment by 2010. Yes, it was the co's self-serving statement but when I have questioned 2 specialists regarding what was coming down the pike- they showed no interest in strontium r. and big interest in denosumab. This would be one of my suggestions for a good question for the CC doctor.

Also your question on calcium intake -not too much so you don't go hypercalcemic but enough to support forteo bone building is of great interest to me because I too have this going on.

 
Old 03-17-2007, 10:59 AM   #3
Senior Member
(female)
 
Join Date: Sep 2006
Location: Ferndale, MI USA
Posts: 101
thyme2b HB User
Re: Help with questions for Cleveland Clinic doctor

Thanks, Osteoblast. Dr. Susan Ott's work looks really good to me. She has a lot of information on celiac (gluten probs) that also looks valuable given my recent test results.

Last edited by HBMod07; 03-19-2007 at 09:07 AM. Reason: Please use Quicky Reply when directly responding to a post.

 
Old 03-17-2007, 11:44 AM   #4
Senior Veteran
(female)
 
Join Date: Jan 2005
Location: California
Posts: 2,704
taape HB Usertaape HB User
Re: Help with questions for Cleveland Clinic doctor

I don't know if the breaks in the Forteo make a diffeernce or not. But I always took the Forteo with me so not to interrupt treatment. My Forteo was shipped in a cooler with great ice packs that last 24 hours. I traveled many places with the Forteo no problem, even on a long plane trip. It's a little bit of a hassle but not that much.

 
Old 03-17-2007, 05:14 PM   #5
Senior Veteran
(female)
 
DesertBloom's Avatar
 
Join Date: Aug 2006
Location: CA, USA
Posts: 1,484
DesertBloom HB UserDesertBloom HB User
Re: Help with questions for Cleveland Clinic doctor

Hi Thyme2be: Wow, it really looks like you've covered all of the questions that pertain to your particular circumstances with osteo, and the secondary causes as well. I hope you can get some good info on the relative relationship between celiac disease, and all the other concerns you have. I'm still waiting on the results of my test, the lab claims they faxed the celiac results to the gastro dr and of course they can't find it, so I'm still waiting for that to be resolved, and actually get it.

The only question I can think of right now, which doesn't pertain to you, is if this dr would ever recommend stopping cal entirely on an osteo patient with elevated serum ionized cal. It's no big deal if you can't ask this and I realize it would be tough to try and present it as a question that would apply to you, so don't worry about it if it's out of the question. My serum ion cal has only been normal once, but all others (pth, t3, t4, total serum cal, urinary cal, scarcoidosis, cancer etc etc) is always normal. I'll have to wait and see if the current mamo cyst that was found could explain the cal level, which is a likely possibility, but only if it is malignant, which I really doubt. Well enough about me, and let's really hope this dr is condusive to answering questions without any hesitation. I hope you get to see him/her more than once so you could cover anything that might come up after the first visit.

I noticed the conversation between you and osteoblast and ran across another mention about estrogen and forteo in the Univ of WA link that I constantly post by Susan Ott. I'll post the link to the page below, but it's only a one sentence or para about estrogen retarding the resorptive effects of PTH. If they can make this statement then I would think it has to be based on some study, even though my dr said there wasn't any. I'm still looking for some study, and will let you know if I find it. The statement is the last para on the page. Since I post the Univ WA/Dr Ott link adnauseum, I hope I'm not putting other posters off from reading the entire *course* because it is very long and I'm guessing over 100 pages or more, but very informative. This link has an email add if you ever wanted to try and contact her. I would suggest reading the following page re: estrogen as well, but it primarily talks about raloxefene taken with PTH, but the interesting point is the comment that says it's the *only* antiresorptive that works synergistically with PTH. This is what my min met dr wants me to take post forteo, provided nothing better comes along, and she doesn't think much of Stron. Ran. either and really doesn't like the citrate version at all, but for all who are on this, remember this is just "her opinion". Loma Linda is currently doing some research on new drugs, but I can't get much out of her on it since it's still in the animal and rat modeling stage. You can look it up, but the info is still pretty thin, in my opinion. The dr in charge of this is dr David Baylink who did a lot of the NASA testing on osteo and astronauts for many years.

One last thing, and that is my min met dr feels that the n-telopeptide test is good for determining if a drug is working, but it has it's flaws (mainly many types of lab mishandling probs or collecting it wrong, by the patient). I "don't want" to let this put anyone off from getting it, but it's not a dexa which is the definitive test for checking bmd progress. You mentioned having serum NTx tests, so wouldn't this really change the reference ranges compared to the 2 hr urine NTx and the 24 hr urine NTx?? Reference ranges for urinary and serum vary quite a bit. I'll post both of mine as soon as I have the 2nd test, I'm still trying to figure out if I should discontinue the low dose hormone before the test or not, since it will "definitely" effect the score, and will be very hard to compare to my baseline test with the presence of estrogen. I'm hoping that since I'm on the lowest dose manufactured, and only taking it every 3 days, hopefully the impact of it will be minimal. And of course my min met, doc said that it may not effect the (forteo) at all, but theorectically it should. I hate it when they leave the decision up to me.

[url]http://courses.washington.edu/bonephys/esteffects.html[/url]

Good luck with your appt I hope it goes very well!!! I'll be sending you my prayers and good wishes. Do we have a few more days to add to your list or are you leaving immediately. Most of my good question come to me when I'm asleep strange huh.

Last edited by DesertBloom; 03-17-2007 at 06:02 PM. Reason: additional info...

 
Old 03-17-2007, 07:02 PM   #6
Senior Member
(female)
 
Join Date: Sep 2006
Location: Ferndale, MI USA
Posts: 101
thyme2b HB User
Re: Help with questions for Cleveland Clinic doctor

Thanks for pointing out the Ott reference, DesertBloom. I think that she is referring to regular PTH in that article. Forteo is "intermittant" PTH. As I understand it there is a big difference. People who are given regular PTH due to things like removal of the parathyroid gland do develop hypercalcemia and also osteoporosis. It hurts rather than helping the bones. So, it would make sense to give them raloxifene. However, forteo which is "intermittant PTH" or "pulsed PTH" functions differently. It is somewhat paradoxical in that it somehow jars the bones to breakdown and this forces them to remodel. (I know this is not a very eloquent way of explaining it, but it's the closest I can get since I heard a Dr talk about it and don't have a reference to look at). I may be misreading this, but that's how I understand it.

This still doesn't solve the problem of knowing whether or not to take forteo and other things like hormones together.

I have till Tuesday to get the list together. Thanks for asking

I get my best ideas in the morning, which is when I wrote the list. By the evening, which is when I generally post online, I'm pretty brain dead.

Sorry to hear that they lost your tests. Which ones did they do? I got approved for the gene tests for gluten, so will get the test done when I can get to the lab. I plan to call first to make sure they have all the right stuff. Otherwise you can wait and wait while they get it together. More time taken off work. . .

Last edited by thyme2b; 03-17-2007 at 07:03 PM.

 
Old 03-18-2007, 02:05 PM   #7
Senior Veteran
(female)
 
DesertBloom's Avatar
 
Join Date: Aug 2006
Location: CA, USA
Posts: 1,484
DesertBloom HB UserDesertBloom HB User
Re: Help with questions for Cleveland Clinic doctor

Quote:
Originally Posted by thyme2b View Post
Which ones did they do? I got approved for the gene tests for gluten, so will get the test done when I can get to the lab. I plan to call first to make sure they have all the right stuff. Otherwise you can wait and wait while they get it together. More time taken off work. . .
Thanks for the clarification on PTH... On the Celiac test, I believe he ordered an IgA and IgG antibody test, does that sound right? This dr (gastroenterologist) is new to me, and his hand writting was really bad, so I think that's what it said. The lab claims to have faxed the results twice to him, so we'll see what I hear this coming week.

 
Old 03-18-2007, 02:36 PM   #8
Member
(female)
 
Join Date: Feb 2007
Location: Wisconsin,USA
Posts: 61
osteopenia1 HB User
Re: Help with questions for Cleveland Clinic doctor

I would be interested in the doctor's opinion as to the best calcium for strong bones. Calcium carbonate causes constipation for me. I am currently on E-Zorb. Also is vitamin K necessary?

 
Old 03-18-2007, 03:21 PM   #9
Junior Member
(female)
 
Join Date: Oct 2006
Location: Dunsmuir, California, USA
Posts: 24
Helen C. HB User
questions for doctors - frustrating to me

I have asked my doctor many of these same important questions. It's frustrating because I don't get a lot of well informed answers. For instance, my doctor knows nothing about strontium and is not even curious. I get almost all my information and helpful advice about osteoporosis from my own research and posters here on the message board. I will be very interested in the answers you get and bring back to us! Thank you. Helen

 
Old 03-28-2007, 06:41 PM   #10
Senior Member
(female)
 
Join Date: Sep 2006
Location: Ferndale, MI USA
Posts: 101
thyme2b HB User
Re: Help with questions for Cleveland Clinic doctor

Hello Everyone,

Here's my report of the Cleveland Clinic trip: Well worth the trip. I was amazed that he spent so much time with me. I had whittled down my questions, but he answered all of the ones I did bring. He listened and responded! I liked him a lot. So, here are the questions and what he said as best as I can remember. His responses are in italics.


CONTRIBUTING FACTORS

1. Family Hx? Both mother and father with osteoporosis. Both grandmothers. I’m assuming there is a mix of genes and multiple contributing factors. One brother like father has started breaking bones “for no reason at all” before the age of 60. [Does this have a testosterone connection?]

He did say that the causes in men are usually different than in women. He also emphasized that with the types of treatments now available I had a much better chance than family members in the past.

2. Gluten sensitivity? I read that that this is not primarily an absorption issue, but that there are anti-bone antibodies. What more might you know about this?

He didn't address this much. He knew about celiac, but not gluten sensitivity.

3. PPIs? and any other medications that might contribute. I take the max dose of Aciphex 2Xday. I had stage 2 GERD.

We didn't discuss this much, since at this time, I have to take these meds or the GERD comes back.

4. Causes/contributing factors?
He seemed to think mine were mostly my genes.

FORTEO

5. Breaks in taking Forteo? I read something that said that these did not impact treatment. I’ve had several breaks due to travel. Long weekend to 10 days (flying home from Oregon took 12 hours due to flight delays). What is best?

He said that there was not a problem with not taking Forteo with me when I travel which is just a few times a year at best, that this would not disrupt the treatment. (I don't travel all the time, mind you.)



SUPPLEMENT/MEDICATION W/FORTEO

6. Hypercalcemia risk? I had one slightly elevated serum calcium reading while on Forteo. I’ve cut my calcium intake, but am concerned that this will not maximize the Forteo. How do I discover the optimal dose of calcium? Should I take frequent blood calcium tests? What is the risk of not taking enough calcium?

He recommends cutting the calcium intake because of the hypercalcemia problems (I think this is just for people with high readings like mine, not necessarily everyone). He said it would be ok not to supplement calcium at all, just to have what I got from food. I asked if the amt in my daily multivitamin was ok (400 mg taking 1/3 at a time). He said that should be ok, too. The reason for this is that the Forteo makes much more efficient use of the calcium that is already there. This was the main question I'd initially had, the question that prompted me to go to the Cleveland Clinic.

7. Vitamin D? I currently take quite a bit of vitamin D though lower dose calcium. My last calcium test was ok.

He said that my current intake (2000-4000 i.u. of Vitamin D) was ok to do with the Forteo. I indicated that I work with a doctor who monitors these levels. Again, this was one of my main questions.

8. Low dose hormones? Currently taking estrogen, testosterone days 1-25 in a.m. and progesterone days 1-11 in p.m. How might we determine whether this is negatively impacting the Forteo or enhancing it?

He said that taking hormone replacement with Forteo was fine, there was no reason not to do it. I asked him this twice, just to make sure. This also was good news for me, since I'm very interested in continuing this when I go off the Forteo.

9. Zinc? Is zinc 50-65 mg taken mid day a problem? I take Forteo before bedtime.

He did not see zinc as a problem.

10. Strontium? What do you think about strontium ranelate if/when it gets approval in the U.S. What is your opinion of strontium citrate as a supplement?

Again, this was a very helpful answer. He said that he did not recommend strontium citrate. I asked him about strontium ranelate. He said that if it were available in the U.S., he would be recommending it as one possible followup therapy for Forteo if a person could not tolerate bisphosphanates. He indicated that the ranelate portion of the drug is an important component and that it was not the same as stronitum citrate or the other supplemental types of strontium. I asked him if he thought strontium ranelate would be approved by the FDA anytime soon. He said that he didn't see that happening.

11. Other supplements? I take other supplements that may help with osteoporosis, like Mg and Vitamin K. Anything that may be a problem? Anything that you recommend?

He didn't see any problem with the ones I'm taking. He didn't recommend any either.

TESTING

12. The iDEXA: Have you used it? Do you recommend it? Do you know where I might go to get it? Do you know if BC/BS pays for it? Might I get a referral for it?

He wasn't too keen on yearly DEXA scans and thought every two years was enough. He didn't comment on the iDexa.

13. N-Teleopeptide test? It was used in the research on FORTEO. I’d like something more than a yearly dexascan. Is this useful? What are its limits? Other tests you recommend with this, or instead of it other than DEXA?

He did think the NTX test was useful, but indicated that a person needed to have a baseline test before starting Forteo to give helpful information. Having that baseline was a key component and he thought this woudl be a useful way to assess progress periodically. I think about every six months or a year, I can't remember exactly.

EXERCISE/EQUIPMENT

15. Elliptical machine? It is weight bearing? Is light running on a treadmill ok for someone with my profile? Bouncing on a minitrampoline with a stabilizing bar?

He didn't see a problem with this, but I've never had a fracture, just very low density for my age.
16. The vibrating platform device? Any experience with it?

He did not think this was useful. He said that they'd explored various other mechanical devices that were better than this one but that even those weren't good enough to recommend.

Last edited by thyme2b; 03-28-2007 at 06:43 PM.

 
Old 03-29-2007, 02:03 PM   #11
Senior Veteran
(female)
 
DesertBloom's Avatar
 
Join Date: Aug 2006
Location: CA, USA
Posts: 1,484
DesertBloom HB UserDesertBloom HB User
Re: Help with questions for Cleveland Clinic doctor

Hi Thyme: I'm so glad your appt went so well!!! It must take a lot of stress off to find out what your doing is correct according to someone who would know in this field.

I sure hope the Forteo is increasing your bmd greatly and like he said, your chances of fighting this disease are much greater than your parents etc since the treatment is so incredibly different. I know my grandmothers weren't given *any* treatment and both had many many fractures.

It's also interesting that this is the first Dr I heard from, so to speak, that is on the *exact* same page as my Dr. I've been getting a lot of grief from my Endo about the calcium issue, but when I finally put him on the spot, I ask who should I listen to him or the mineral meta Dr (that HE sent me to) about the calcium, and of course he deferred to her saying she's the professor and expert.

I know that the experts say to take calcium with Forteo, but I've never heard that calcium supplementation was crucial for Forteo to work. It makes sense to take it for your bones, but I never felt like it was essential component with Forteo, just something you should do in addition to all the rest. My mineral metabolism Dr always said that the amount of calcium I have is enough, but that we have to watch for hypercalcemia. I get calcium from my food and also took calcium for 40 some years daily, that I think a respite is okay.

The hormone issue issue was interesting as well since we're both still on it. My Dr left that decision up to me saying it probably wouldn't hurt, and said to always weigh the risk v benefit when trying to decide on anything. For now the hormones are helping a lot, but if I reach a point where they become detrimental I'll have to stop. I think you would have to use the same logic on your PPI's, Vit D etc since you need to take them and they are a great benefit.


I have never discussed celiac with my Dr so I don't know what she thinks, but I did get the results back and they were negative.

I'm sure you've read the article by Dr Licata about supplementing with Vit D while on Forteo during a calcium elevation in the NEJM. I finally just got the full text on it and basically it says what he told you plus some other things.

My Dr feels the same about Strontium, but expressed it a little differently about the citrate portion, and some other OTC issues.

You should feel really good right now and I hope it helps a lot having made the trip. Are you going back, at any time? If not it sounds like you covered all that you needed to.

Good luck with everything and glad your trip was such a success.

 
Old 03-29-2007, 04:44 PM   #12
Member
(female)
 
Join Date: Mar 2007
Location: Ojai, CA, USA
Posts: 74
Rosegarden HB User
Re: Help with questions for Cleveland Clinic doctor

Thyme2b--I admire your organization and the way you have educated yourself about your health issue. I'm new here and am not as well informed as most, however, you were asking about taking vitamin D. Wouldn't a blood test confirm whether or not you should be taking more, less or whatever? Also blood levels might indicate more or less of other supplements.

 
Old 03-29-2007, 05:24 PM   #13
Senior Member
(female)
 
Join Date: Sep 2006
Location: Ferndale, MI USA
Posts: 101
thyme2b HB User
Re: Help with questions for Cleveland Clinic doctor

Quote:
Originally Posted by DesertBloom View Post
Hi Thyme: I'm so glad your appt went so well!!! It must take a lot of stress off to find out what your doing is correct according to someone who would know in this field.
DesertBloom, it was a great success It took a lot off my mind!

I will look for that article, thanks for the info. I think I saw the reference, but not full text. The Cleveland Clinic Journal of Medicine has some good articles by him, too.

Here's one discussing DEXAs:
Cleve Clin J Med) 2006 May; 73(5): 473-6
Diagnosing primary osteoporosis: it's more than a T score (I think that this is what previous docs have done).

One that discusses testing in Forteo
J Bone Miner Res) 2005 Jun; 20(6): 962-70
Early changes in biochemical markers of bone formation predict BMD response to teriparatide in postmenopausal women with osteoporosisI wish I had read this prior to starting Forteo, since there are some useful tests but you need a baseline, so you should first get it before starting forteo.

Osteoporosis, teriparatide, and dosing of calcium and vitamin D.
(N Engl J Med) 2005 May 5; 352(18): 1930-1
This is the one you mentioned, DesertBloom and I will certainly get it from my library.

I just read the abstracts but when I have time I plan to get them and read them. I thought others here might want to see if their libraries had them, either in electronic or print versions.

I'm glad to hear that you don't have gluten problems. It is very, very time consuming to have. But I'm hoping it will be worth it.

I'm also glad to hear what your bone mineral doctor said, it's always nice to hear a second person that agrees. I've taken calcium for a long time, so it's kind of ingrained. I will continue to get tested periodically, though.

I have to say that I'm not totally convinced about the strontium citrate, since I think conventional doctors have at least a bit of a bias toward non conventional medicines. I understand why, but I'm willing to experiment if it's safe, after the Forteo is done. I am half convinced, but will get the NTX and other tests to see. Perhaps the hormones will work, too.

I will probably go back to see him near the end of the Forteo. I'll keep everyone posted when I get more tests done. Right now I'm spending all my time getting info about gluten and living gluten free. If I find out more about this and bone density, I'll let everyone know that, too.

P.S. DesertBloom, do you mind if I ask what tests were done for the gluten?

Last edited by thyme2b; 03-29-2007 at 05:27 PM.

 
Old 03-29-2007, 05:30 PM   #14
Senior Member
(female)
 
Join Date: Sep 2006
Location: Ferndale, MI USA
Posts: 101
thyme2b HB User
Re: Help with questions for Cleveland Clinic doctor

Quote:
Originally Posted by Rosegarden View Post
Thyme2b--I admire your organization and the way you have educated yourself about your health issue. I'm new here and am not as well informed as most, however, you were asking about taking vitamin D. Wouldn't a blood test confirm whether or not you should be taking more, less or whatever? Also blood levels might indicate more or less of other supplements.
Rose, it just takes time and after a while you will get more informed. Welcome!

I do get the blood levels for vitamin D since I'm on high doses. The calcium test is a blood test (or a urine one), but it is the blood calcium that's important with Forteo. There are also blood levels for other things like B-12, but harder to convince docs to order them. I have two that are pretty good about the tests but not always.

 
Old 03-29-2007, 06:05 PM   #15
Senior Veteran
(female)
 
DesertBloom's Avatar
 
Join Date: Aug 2006
Location: CA, USA
Posts: 1,484
DesertBloom HB UserDesertBloom HB User
Re: Help with questions for Cleveland Clinic doctor

Thyme: The only tests I had were IGa and IGG antibodies. The print isn't real good on the fax but that's what it looks like. I was seriously thinking about using Strontium Citrate post Forteo, but haven't made any decisions even though I agree conventional medicine always has a different view on alternative meds. I have another 13-14 mos before I have to make a decision anyway. However, it seems to me that this Dr has nothing to gain or lose by making the statement about Strontium since he can't prescribe it anyway. I don't remember where I read this, but the jist of it was that the ranelate portion of the Strontium was the reason they saw good results, but who knows at this point, I would need to know what ranelate does in particular in combo with Stron. to make a decision, about the differences from citrate. Thanks for the article names, I'll get to them soon.

Congrats again, and kudos to all your hard work !!!

Last edited by DesertBloom; 03-29-2007 at 06:18 PM.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Is Cleveland Clinic the best place for CFS diagnosis? WCMF Chronic Fatigue 1 07-04-2011 06:33 PM
Help with psoriatic arthritis, Sacroiliitis, and pain meds please! absmom Arthritis 18 06-15-2011 01:16 PM
HELP: I need a new back dr. in cleveland, ohio nyantek Back Problems 11 10-25-2010 09:49 AM
Please help me reach my health goals. flpete88 General Health 1 03-02-2010 08:18 AM
symptoms help chiaripatient Brain & Nervous System Disorders 6 10-26-2008 09:23 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



phylwill1152 (22), turtlelady (8), Piano0105 (7), taape (4), Titchou (3), Precious55 (3), Arggg (3), Sensitivo (3), dorri (2), Millard (2)

Site Wide Totals

teteri66 (1180), MSJayhawk (1013), Apollo123 (909), Titchou (856), janewhite1 (823), Gabriel (763), ladybud (755), midwest1 (670), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 03:17 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!