Hello! I'm a new member here.
I just joined today. I am 64 years young and was diagnosed with Osteoporosis several years ago. Maybe 8 yrs. ago. I started out with Fosamax. Couldn't take that due to a swallowing problem.
Then I began Actonel. My insurance decided they wouldn't pay for that. So I've been on Boniva for about two years. I'll admit I haven't taken it real regularly. I also haven't taken my Calcium+D on a rigid regular schedule either. I am still on my HRT and will continue to take it.
I also have Rheumatoid Arthritis and have been on meds for that for 30+ years with excellent results. No steroids now in about 15 years. Although I'll always believe the steroids is why I have Osteoporosis in the first place.
Prior to Thanksgiving this year I noticed my left ankle hurting really bad. It got where I could hardly walk. I figured it was my arthritis and just kept plugging along. With the holidays so close I declined to go to my doctor. Mid January I knew my ankle was more than just arthritis. Xray revealed a Fibula (little bone in leg) fracture with a small hole in the bone. In other words the bone was not broke like you think of a broken bone. I saw the Orthopedic a week later and he said the fracture would have normally healed itself by now as long as it had been. But it was not healing. I had to have surgery that included putting in a rod, plate, and screws plus a bone graph for the hole. My biopsy came back normal thank goodness. It only showed an unhealed fracture/hole in bone.
I am trying to find out why this happened to me. My Ortho doc does not know why this happened either. He said RA and Osteoporosis go hand in hand and I can understand that. But he did not have an answer for this weird ordeal.
I have done some research online pertaining to Boniva, Fosamax, and Actonel.
All three of these drugs have Biphospates that can cause necrosis. I called the pharmaceutical company that makes Boniva and asked if they had had any patients that had had the jaw bone deteriation and they said yes. But she said the patients that had been diagnosed with that problem were all taking medicines for cancer and their immune system was very low. When I told her that I took two medicines for RA that lowered my immune system she wanted my Ortho doc's address.
I am in such a confused state over this. Until I know more about Boniva I will not take it any longer. I am most certainly taking my calcium+D regularly now.
My last bone density test in Oct. was not good. It had gone down since last years check up in 06.
Have any of you ever heard of a situation like this?? I'm wondering if the Boniva could have caused my leg bone to deteriate like it did.
I look forward to hearing from any of you. If you have any knowledge of a situation like this please post so I can read.