Celiac question - Osteoporosis Message Board

osteoblast · 04-09-2007, 10:40 PM

Thyme2b-you have done so much research on celiac that I thought you might have a thought about my situation. I just got lab results showing

Gliadin Ab IgA-negative
Transglut IgA-negative
Endomysial Ab IgA-negative

Gliadin Ab IgG-positive

My D levels and iron are quite low.

Given the above the dr. has ordered a small bowel endoscopy. I have the highest level of confidence in the dr. but I am wondering if you saw anything about negatives on several of the tests with a positive on Gliadin Ab IgG along with the low levels of D and iron?? Also you were making a distinction between celiac and gluten sensitivity- would that be relevant here? Thank you for any thoughts on this situation.

osteoblast · 04-10-2007, 03:46 PM

DesertBloom and others- when you had the celiac blood tests did the dr. order the four indicated above or did you have only two of the four like I did when I was first tested about 8 months ago ? The dr. that ordered my first test did not include the gliadins.

Apparently celiac is so much more common than previously thought and celiac does cause bone loss so I am posting this information on my celiac journey in hopes it will help someone else. I have read different figures for incidence of celiac 1in 130 and 1in 200 something. I will have the endoscopy soon. Whatever way it turns out I am very glad my current dr. wants to get to the bottom of my serious bone loss. Even if I do not have celiac, we will have checked it out.

It has been my experience that I have had to be exhaustingly proactive about all of this. Thankfully I have now found an extremely intelligent endocrinologist who is also a real healer- she believes in treating her patients with loving care. I truly feel better already although my situation -very low bone density is the same.

To others out there , don't give up.

DesertBloom · 04-10-2007, 04:52 PM

Hi Osteo: I looked at my test again, and I swear this is the most confusing readout I've ever seen. It looks like 3 tests but I'm not sure. One of the tests say's it wasn't performed.

Here it is again:

Endomysial antibody screen (IGA) with reflex to titer endomysial antibody screen (IGA)= Negative

Tnp-Screening test = Negative

Titer not performed

Antigliadin Antibody panel Gliadin Antibody (IGA)= 7

Gliadin Antibody (IGG) = 10

(reference range on both is negative <11 positive >17 U/ml)

I'm glad you like your Dr; hopefully this will take some of the stress off of you, and you can concentrate on getting better instead of double checking how the Dr is treating you and if it's correct, oh and you also get to talk and ask questions!!!

I hope you're feeling better, good luck on the diet and endoscopy. Hopefully, with the correct treatment, your score will go way up. Oh I forgot to tell you that I had the 2nd NTx done last week and will get the results of it and the last one, I lost

on the 20th and will post it.

morrisun · 04-10-2007, 05:15 PM

I had all of those tests done as well, the only one that came back positive for me was the Gliadin Antibody, I also had very low iron levels that required an iron supplement.

My Dr. said that because I had such an immediate, drastic improvement on the gluten free diet that it was up to me whether or not to do the endoscopy. Since that would mean eating gluten again, I declined. The positive response to my change in diet was good enough for me.

It's been 2 years of eating gluten-free and I feel so much better now, I honestly feel like a new person.

Good luck!

osteoblast · 04-10-2007, 05:51 PM

DesertBloom-I am glad for you that the celiac test turned out negative. I went back and checked the incidence numbers- at univ of maryland medical site they noted that results of recent research done showed incidence of 1 in 133. That seems like an epidemic. Although to put it in perspective , I heard on the news that 1in3 women will get cancer-that's a plague!I hope I heard wrong. We have got to clean up all the *%&#@ toxins and start eating food that is real food again.

To clear up somethings that we had bouncing around-

my new ca tests both total and ionized came back in range (though high)so dr. and I didn't discuss much ,pth normal, she said she is not concerned now about hypercalcemia or hyperpara

regarding ntx tests -she thinks there are alot of problems with the test and didn't order it. But I sure hope you get encouraging news.

bump on hand nothing too nasty just the ganglion cyst. dr. aspirated and it may come back-if so then surgical removal. But he said this is nothing to get worried about.

I am to maintain on current diet until endoscopy completed.

And you-have you had any news to lighten any of your health concerns . You are such a bright light on this board, you must know we are all rooting for you.