are these forteo side effects? - Osteoporosis Message Board

snowflake11 · 04-12-2007, 08:53 PM

i've been taking forteo since dec 2006. since then i've been having stomach burning pain above my belly button - in that hollow between/at the bottom of your ribs. i was on fosamax for 10 years prior to this without any side effects or stomach pain. (i went to a gi doc a few months ago for the pain who did an acid reflux test and said i don't have it - he said i have dyspepsia?)

also, this past week 'both' my knees are hurting badly when i walk. never had any problem with them before. does anyone else having burning stomach pain, or knee joint pains since taking forteo? is this a side effect and should i stop the forteo? thanks.

trail · 04-12-2007, 10:11 PM

Hi Snowflake
I have been on Forteo for almost 2 years now and have never had either of the two things you are experiencing. Sorry you are having a bad time.
Trail

snowflake11 · 04-13-2007, 10:12 AM

thanks Trail, I called the company this morning and she told me that 20% of the people in the trials experienced body pain - but it wasn't broken down specifically. she said that wasn't much higher than the placebo group. I guess I shouldn't stop the Forteo then. I don't know what to attribute these new symptoms to. that's the only med I take.

DesertBloom · 04-13-2007, 11:35 AM

Hi Snowflake: I've been on forteo for one year and I've never had those side effects, in fact I haven't had any.

I've read those trials so many times on the side effects, and it always blows my mind that the placebo group had just about the same percentage of symptoms.

So many things could cause your symptoms, I have a similar prob, but it started before the forteo and I still haven't figured out what's causing it. I'm doing a lactose intolerance trial to see if it's the milk etc that I drink. We'll see... If you want to read the literature on the trials here it is.

[url]http://pi.lilly.com/us/forteo-pi.pdf[/url] (page 16)

Good luck with the forteo, and hope you find the solution to your problem.

snowflake11 · 04-13-2007, 02:07 PM

hi desert,

(pretty nickname!)

Thanks for your feedback. I had a blood test last week to test my calcium and vit D levels. my calcium was okay but my D was low - 19. He wants me to take 800 IU of Vit D. Anyhow, I wonder if that is causing my symptoms. I'll let you know if they improve with supplementation. I did some looking and found that low Vit D can cause pseudohyperparathyroid - since I also take Forteo which is adding PTH, I wonder if the PTH is too high (because the D is too low). Maybe if I correct the D, then the symptoms will go away ? Anyhow, I will let you know. thanks for your help.

BTW, what blood tests should I be getting while on Forteo? What blood tests did your doctor order?