there are a lot of treatments being offered for the treatment of osteoporosis all promising wonderful cures, the traditional doctors push bisphosphonates and underestimate the side effects and then theres ezorb, vit D, K2,calcium , forteo, algaecal, strontium and all sorts of miraculous minerals at a cost of course, not to mention the experts contradicting each other on what is the best method of treatment ..I have tried actonel (side effects) algaecal caused me to lose bone, vit k2 is too expensive so I am at present just on vit D3 and calcium....my question is has anyone actually had success with any given treatment ?
I've had some success with stontium. After 9 months the DEXA I had last week did show improvement in both total hip and lumbar spine. I posted my results in a lower thread...DEXA results...while i don't know if the scores i got are truley accurate even if the are partially right there is still improvement. It's an option i can live with that has shown no side effects and has proven to me it effectiveness. I also take calcium and magnesium supplements, a multvitamini for women over 50 and omega complex. I walk daily, lift weights and for the summer am taking a water aeorbic class. Between the stronium, supplements and exercise i feel i am doing what i can to help my bones stay as healthy as i can for as long as i can.. take care...phyllis
Last edited by phylwill1152; 06-22-2007 at 07:00 AM.
I can only tell you my experience. After 4 1/2 years of treatment for osteoporosis I have, basically, the same T scores as when I started. This is with 3 1/2 years on Fosamax, walking and doing resistance exercises, taking calcium citrate daily plus dietary calcium and taking 50000units of Vitamin D.
I have read everything available to try and find out why nothing has helped and there are no clear answers. I have come to the conclusion my T scores were always like this and it's just me. I've never broken a bone and haven't lost height. Last visit to the dentist he told me my jaw bone looks great with no bone loss.
I think I'm going to try the strontium (sp) next just to see what effect it has. This whole osteoporosis thing has become an industry from the VERY expensive meds to the doctor bills. (I go to an endocrinologist.) The readings from DEXA scans are suspect,too.
I'm not buying into the hype anymore and didn't take the recomended Forteo when Rx'd. I don't have Rx insurance and wasn't anxious to pay out $800 a month for very little improvement in my scores. I am 62 so I am passed the time where you lose most of the bone anyway. When I told my doctor this she warned me I was still losing bone even at a small rate. It's all scare tactics. And the BOTTOM LINE is: THEY JUST DON'T KNOW HOW TO TREAT THIS AND, IF ANY OF THE TREATMENT HELPS.
We should start a thread where we put our starting T scores in and then the T scores after 3-5 years of treatment. It would be interesting to see just how much improvement is made. (And , now, we find out that the improvement might not be strengthening the bones but making them more brittle!)
Ok, just ranting. I'm still upset I even took the darn Fosamax when it wasn't doing anything and may have made matters worse.
We have to really think about all this and decide for ourselves, without fear, what action, if any, we take.
Turquoise, I continually applaud you for your posts. You say it straight up and you say it very well. I totally, totally agree with you. I have read and read everything I can and I do think that this is a disease that is totally over hyped. I read an article by a very good bone specialist who asked the question - If so many women have such brittle bones then why aren't they just breaking apart in the streets!!! And, don't you wonder about our parents and grandparents? They weren't continually breaking bones and these drugs were not available to them. I admit to having broken two bones in the last five years - a wrist and a small bone in my hand. The doctors were, of course, pushing more than ever taking the drugs. Yet, no one could explain to me why I, as a dance teacher, had kids come to class with broken bones every year with falls very similar to mine - hard impact. And, mine healed within the normal six week time frame and I have read horrific stories of women with broken bones who did not heal until going off of the drugs. There is a very simple reason for that - for bones to heal, bones must create new bone, and these drugs stop that process. Scary thought!
I rant too, but I think it is so important if we can make women take notice and think and research for themselves. I totally believe that each woman must decide for herself, and what is right for one may not be right for another. But, I so wish women would learn before doing and then make the right choices. I have posted on another topic here that I am in a tooth mess. So many dentists are now refusing to treat patients who have used these drugs. And, why, why did not one doctor ask about my dental history before prescribing and pushing these drugs?? Thank goodness I did my homework, for I would be in a far greater mess than I am.
Keep talking Turqoise and keep researching. You do a great service to others.
And... I, too, agree with Turquoise and Glowing 4, and not just about the osteo hype, but most of what we get from allopathic medicine. I use them for diagnostics, which they are good at, and then go and research alternative information and treatments.
It's been said many times here, but for all who have not seen the posts - read The Myth of Osteoporosis by Gillian Sanson for some straight talk about osteo.
Hi Myth...i take strontium citrate, the natural form. Strontium renalate isn't available in the United States and won't be till the FDA says so. Strotinium has been studied for a long time and has shown to be a safe effective option. I so agree with the others in what they've said about the osteo industry. They have taken our desire to stay active and healthy and ran with it. They think they are giving us the magic pill to stong healthy bones and what they have given instead is alot of suffering to a lot of poeple. Now the studies are showing that the hard casted bones they create are too hard and prone to breaking..and this is supposed to be good for us? In the futrue they are going to find they cause more harm than good and will be forced to find safer alternatives.
Hi tourqiuoise...did your ead the results i posted about the DEXA i had. After being on strontium for 9 months it showed an increse of 3.6 % increase in the total hip and a 3.5% increase in the lumbar spine. I know the nubers aren't truly accure but even if they are partially right it still shows a definate improvement in the BMD. When you see your endo take a copy of the DR. Hoffman article i posted with you, its a good one.
it is true that there is a lot of hype about osteoporosis and pharmaceutical companies are getting rich selling dangerous drugs that artificially elevate our bmd that looks good on the dexa test which by the way is a very crude method of measuring bone density & it cannot measure the quality of bone,
I have had some falls which in theory should have resulted in a break,but didnt. however even normal xrays show my bones to be very thin and I have stress fractures ,curveture of the spine & dowagers hump so theres no denying that my bones are in need of help , naturally I want to preserve what there is.Im in Australia & strontium ranelate is available & being promoted as the new wonder drug to build bone but having researched it I find it also has side effects .. blood clots for one ..so if its on prescription ..STAY AWAY FROM IT ..because the pharmaceutical companys cannot patent anything natural they have to change its molecular structure in the laboratory & what you end up with is far removed from the natural form. ...I will definately look into strontium citrate ..thanks againfor your help
Hi Myth...i think you have hit the nail on the head..the pharmacuetical companies are making tons of money on the drugs they suggest the drs. use to treat osteo. Artifically increase BMD, good way to put it...the drugs cast the bone which makes them look denser, while strontium actually builds new bone. I too am waiting for a test that will tell us our bone strength..i beileve that even with diminished bone denstiy if the bone you have is stong that gives protection from fractures.
I've read about the blood clot risk form strontium renalate, but from what i've read it isn't a common side effect. Like any drug they list all possilbe side effects even tho most won't be affected by them. With the exception of the osteo drugs (everyone i know who takes them has had some side effect) i know very few people that have had side effects from their medications.
You mention that you have a curve in your spine..is it in the lumbar area? I was just dx (spondylolisthesis) with an 8mm. curve in the L5 S1 area.. Did you dr. tell you to do anything special about it? Mine just told me to keep up the exercise and walking and if it got worse he'd send me to a specialist. take care..phyllis
hi phylwill..I had been seeing an endocrinologist who told me as little as possible, I know I have kyphosis & a side ways curveture of the spine & according to the tests the bones of a 90 year old ,Im 56 ...and with the loss of height ,it was straight onto actonel , calcium, vit D3 .and walk 20 minutes a day ..that was all.
after the side effects of actonel I am reluctant to use anything unnatural anymore & even more reluctant to see anymore doctors.
I cannot find strontium citrate in Australia (not on the net anyways) but am willing to give it a go even if I have to import it myself.
Hi Myth... I haven't been able to find it in any strores here either, so online is where i buy it. Do a search for strontium sitrate and many sites will come up where you can buy it. there are several brands to look for...AOR, Dr. Best, NSI (which i take and order from vitacost). There are many brands but these are the ones i'm familar.
I understand your leariness about taking medications, its really weighing the how good it is for you against the how bad it is. I've been lucky and haven't had adverse effects from any of the meds i take now. It was after my eyes got very dried out and i felt a small lump in my throat that i stopped taking actenol after 2 months. From the beginning i was nervous about taking it so stopping it was the right thing for me to do. It was during the time i was taking it that i started reading about strontium and decided that that would be my way of treating the osteo. Thats the trick of all this, finding what works for you and feeling good about your decison. Have a good day...take care...phyllis
hi phyllis ...thanks, you have been a tremendous help
interesting what you said about the lump in your throat ..I was on actonel for near 3 years and in that time I slowly developed nodules on my thyroid, cant help but wonder if that isnt yet another side effect of that drug.we may never know
thanks again Myth
HI Myth..the great thing about this board is all the sharing of info and support we give each other. I think the lump i felt was in my esophogus (sp?). I have graves disease and had my thyroid destroyed almost 4 years ago. To be honest i don't know if its still there or went away after treament. I'll have to ask about that...in my mind if it doesn't work its not there...hahaha. Do you now have a thyroid conditon from the nodules? I know that being hyperthyroid is hard on the bones, as well as not getting the proper dose of medication. I believe that my osteo came from being hyper prior to treament since i don't have any of the other risk factors. take care...phyllis
hi Phyllis my osteoporosis was diagnosed long before the thyroid nodules I had to push my endo to test for that as I was having classic hyper symptoms but the endo kept treating me for menopause instead(duh) it wasnt until the nodules appeared that the endo conceeded there is a thyroid issue involved.
the endos conclusion is that I have subclinical hyperthyroidism & take the wait and see approach.(no treatment)..even tho the thyroid is responsible for the bone loss.
I have seen other doctors & they all tell a different story regarding the thyroid,my conclusion is that they just dont know ..I am presently treating myself with lemon balm & selenium, which helps..but still looking for a doc that actually knows what hes talking about.
and yes this board has been a big help to me..just knowing that you are not alone is enough