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Old 02-09-2008, 06:59 PM   #1
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Hypocalcemia and Fosomax

20 years ago I had a total thyroidectomy due to benign tumors. My parathyroid was injured and my blood calcium levels were very low. After 6 days of IV Calcium and high doses of Vitamin D therapy I was able to leave the hospital and take oral drugs for another 3 months. Then 3 calcium tablets a day has kept me sustained in normal levels since then. Until .... I started Fosomax 6 months ago, was reluctant because of my history, but my doc didn't seem concerned since my blood levels had been normal for so long. This week I got the results of my blood test and my calcium serum levels are down to 7.4. At first I thought it was the Vegan diet I had been following since whole grains, beans and tofu are high in phosphorus. My doc sent me to the lab for parathyroid tests. But now I am thinking it could be the Fosomax. I take the weekly dose of 70. I would love to have your thoughts on this.

 
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Old 02-11-2008, 01:47 PM   #2
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Re: Hypocalcemia and Fosomax

Hi Sunny~~I have hypercalcemia and know that bisphos's are suppose to lower your calcium level, but when I took them it didn't lower mine. How's your PTH level now? Unfortunately I don't have a solution for you, but I understand what you are dealing with.

What are the drs plans? Will they take you off of the fosamax? The package insert on Actenol say's that it can lower your calcium level, so hopefully your dr is aware of this, and fosamax is the same thing. Let us know what you find out, and if the med is the cause or if it's something else. In my case they can't figure out why my calcium is slightly high. If my calcium had only been outside of normal a couple of times they wouldn't think much of it, but I've had over 15 out of range readings but they still have no idea what the cause is after tons of different tests. Good luck... I haven't had much luck figuring my situation out even with a specialist.

Last edited by DesertBloom; 02-11-2008 at 01:49 PM.

 
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Old 02-11-2008, 06:27 PM   #3
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Re: Hypocalcemia and Fosomax

Quote:
Originally Posted by DesertBloom View Post
Hi Sunny~~I have hypercalcemia and know that bisphos's are suppose to lower your calcium level, but when I took them it didn't lower mine. How's your PTH level now? Unfortunately I don't have a solution for you, but I understand what you are dealing with.

What are the drs plans? Will they take you off of the fosamax? The package insert on Actenol say's that it can lower your calcium level, so hopefully your dr is aware of this, and fosamax is the same thing. Let us know what you find out, and if the med is the cause or if it's something else. In my case they can't figure out why my calcium is slightly high. If my calcium had only been outside of normal a couple of times they wouldn't think much of it, but I've had over 15 out of range readings but they still have no idea what the cause is after tons of different tests. Good luck... I haven't had much luck figuring my situation out even with a specialist.
Hi desertbloom - thanks for the thoughts. I don't know what my doc's plans are yet but I know what mine are: stop Fosomax and fight the osteoporosis (which isn't severe...yet) with diet and weight lifting. I know HYPOcalcemia can paralize you and kill you - but does HYPERcalcemia affect your kidneys? I don't know much about that - I wish you could transfer me some of your calcium! I appreciate your response. I live in New Mexico - do you live in the desert, too?

 
Old 02-11-2008, 07:21 PM   #4
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Re: Hypocalcemia and Fosomax

Hi again Sunny~~I forgot to welcome you to the board, so WELCOME... I'm not sure if the kidneys are highly involved with either hypo/hypercalcemia, but I do know that if you become very high in calcium you have to watch for dehydration, and drink water so your kidneys will excrete more calcium out. There's a good explanation of both these disorders, and how calcium works at Merck's online Encyclopedia. It mentions on that site about using bisphosphonates to lower calcium. The symptoms of both of these disorders are very similar, the few that worry me is the brain dysfunction, heart probs, stroke and coma that they see in "really" high cal, but low cal is about the same since our organs rely on the correct amount of calcium to function properly. If you have to much or too little cal, all of your organs have trouble surviving, but this happens in severely low or high levels which mine aren't at. They've been testing me for different types of cancer, but luckily haven't found any!!! If I were you I would have them repeat that cal test, and if it comes back low again, find out what they will do because that is *too low* it could be a mistake, so have them recheck it, and make sure they watch it closely.

I'm glad your osteo isn't severe, do you know your t-score? A lot of people go with vitamins/exercise/diet instead of the bone meds if they have a low osteopenia score, so I hope that's the range you're at. It sounds like you've gone through a lot with the thyroid/parathyroid, so this would complicate things for you, but hopefully they can figure out what's going on.

I live in the So CA desert, and I'll be happy to give you all the calcium you want I love NM, it's so beautiful there. Again let us know what you find out about your cal and pth. Does the vegan diet have a low calcium amount? I don't know much about it.

Good luck...

 
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