Anyone with a bowel disease develop osteoporosis or osteonecrosis? - Osteoporosis Message Board

AVNMom08 · 03-31-2008, 07:43 AM

Hi everyone,
I'm new to this board, but am so glad I've found you! I've read through many of the other threads with the same condition and already feel like it's nice to be able to talk to those who've walked through this fire. A little background:

My daughter (21) was recently diagnosed with AVN/ON of both knees and her right elbow. I've contacted a doctor who specializes in protecting the joints before they collapse, contrary to what most docs do it seems. He wants to get additional xrays/MR's of both shoulders and hips just to be sure.

About a year an a half ago, she had a sudden, vicious onset of Ulcerative Colitis that eventually resulted in a total colectomy with continent reconstructive surgery. During that time, she was on steroids to try to bring it under control, which is where the AVN has come from. I'm so devastated by this and am so angry I just feel like I'm going to implode sometimes.

Has anyone here with AVN tried to bring legal action against the drug company for lack of disclosure? When she was put on Prednisone, I feel like I did my homework and consumed all the info in the product monograph that came from the pharmacist. I also read an entire book on it and nothing in there said she may get AVN/ON...it did say a risk of osteoporosis, but in my book, these are two different issues. Even the NIH webpage and the official Prednisone website does not talk about this. It's only when you link Prednisone and AVN together when you do a search that you come up with this risk. I'd love to hear from others and if you have any information to pass on, I'd greatly appreciate it!

cartner · 03-31-2008, 09:19 AM

Hi,

I can't answer you question but I'm sure that it will be answered, the members of these boards are very active. All what I can say that it's great to see someone who really cares about her family. Jesus help you and I hope she will find a good doctor, good luck. I just wanted to welcome you to these great boards.
Michael

AVNMom08 · 03-31-2008, 07:04 PM

Thank you Michael, I look forward to hearing from other members! I think I have found a good doctor, but he's very far away, and if surgery is involved, I'd like to find someone closer. I'm in the Panhandle of Florida, so if anyone has anyone here has had an experience with good docs in Florida, I'd appreciate the information! I'm going to check with the doc that I've found and he might have someone closer that he networks with. Thank you for welcoming me to the boards!

TaterbugTwins · 04-04-2008, 07:14 PM

Hi, I have idiopathic osteonecrosis of my right ankle. We do not know the cause of mine, so no, I have not looked to the drug companies. I really need to do more research on that part of it. I have been on steroids on and off over the years, but not in any large amount.

AVNMom08 · 04-05-2008, 07:59 AM

Hi Taterbugs,

After doing alot of research, I've come across some studies that show a possible link between even short courses of steroids to cause AVN. If you don't mind me asking, what were the steroids prescribed for? Do you have it anywhere else?