I received my dexascan report yesterday, and after taking boniva once a month, and calcium, dieting, and exercising, I was told my osteoporosis was worst coming in at -3.5 in the spine.. who should i be talking to?? to get help.
This is a great place to talk to people. One thing that helped me was reading the book "The Myth of Osteoporosis." It helped calm my fears and gave me another perspective on treatment options. My advice (for what it is worth) is continue to take the calcium, eat healthy and continue to exercise. Are you having any problems due to the osteoporosis? Hang in there. I hope some of the regulars on this site post back to you. They are very encouraging.
thank you tex....its very frustrating being that since i was diagnosis 5 years ago.. i seem to be getter worse.. than better...and I am doing all the things your suppose to be doing. and yes..I get spinal pain. and hip pain...and it worries me that maybe my doctor is not being aggressive enough.. I am not one to sit and wait..But its discouraging to think of what the future holds if the spine is shot.. thankyou for the encouragement.. and i will keep reading onthe board.
LUrbo, I can understand your frustration with trying to increase bone density. My T scores were close to yours and I was put on the medication Forteo, started taking calcium supplements along with increasing dietary calcium and continuing weight bearing exercise and my bone density improved but not close to being normal. It takes years to grow bone back and catch up. Rght in the middle of all this I went through menopause which is like trying to gain bone in an uphill struggle because of less hormones in the body.
Be careful not to fall or get in situations where you could have a bone fracture otherwise just live your life normally. I don't think I have pain from the osteoporosis but I asked for a spine xray which showed I have spinal fractures. So my doctor put me back on Forteo again and I've got about 10 more months to go with treatment. The fractures are minimal so no recommendation for surgery.
You may want to be seen by an endocrinologist, rheumatologist or Gyn specialist rather than just by a PCP.
thank you Taape, for the information. I have been seeing an endocrinolgist for almost 4 years..maybe 5 now. and thats the frustration. I have always taken care of myself...been on boniva for sometime now and when i was just seeing results in the spine from -3.1 that dropped to -2.9 . is was very discouraging to have a new test and find that I went back to-3.6 in the spine. The calcium is not staying in my bones. but yet the urine test does not show it leaving my body.. So its frustrating. and yes my bones do hurt at times. I have been through several surgeries the last one with the neck where the disc was gone in the 5-6 area. I am in full menopause so i seem to be fighting an up hill battle. But its one i really would like to win. I realize i will never get my bones back to what they were but something that does not have all the side affects would be nice to help out. They are putting me through another urine test i think for minerals in the bones. And then looking to do one of the drugs by shots. So hopefully this will help. thank you so much for the advice. I truly appreciate it and very happy to have found this website..