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Old 09-14-2010, 07:37 AM   #1
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News is reporting osteo drugs are unsafe

My Mom told me that last night the news was reporting that all the osteo drugs aren't safe, including Boniva (I bet Sally Field doesn't really use it), but we already knew that. The doctors should be ashamed of themselves for pushing these harmful drugs on women, one doctor tried very hard to push Actonel on me for osteopenia a few years back, I'm glad I knew better because of the intelligent posters on this board, so thank you all.

Last edited by jacal5; 09-14-2010 at 07:39 AM.

 
Old 09-14-2010, 06:06 PM   #2
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Re: News is reporting osteo drugs are unsafe

It's about time they realized that the drugs were dangerous and doing more harm than good. Maybe now they will look deeper and harder into safer alternatives like strontium and Vitamin K2. take care...phyllis
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Old 09-25-2010, 04:22 PM   #3
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Re: News is reporting osteo drugs are unsafe

I am scared to death of those meds - all of them, that are used for osteo; but the osteo in my spine is getting worse, although hip is the same and osteopenia in my Cervical spine; drugs like Actonel and Fosamax have so many bad side effects that become more evident as the years of people taking these drugs go on. i take Calcium, Magnesium and Vit D but I I know it doesn't help develop new or better bone; maybe it keeps it from getting worse; i know this; i am terrified of falling. we are between a rock and a hard place for sure.

 
Old 09-25-2010, 04:34 PM   #4
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Re: News is reporting osteo drugs are unsafe

Despite taking Didrocal for 7 years for osteopenia, my recent bone density test changed my diagnosis to osteoporosis. My GP asked me to research the more potent osteoporosis drugs on the internet before discussing medication options with her, stating I'd find some "pretty scary stuff". At my next appointment, I expected to get some resistance from her after deciding I didn't want to take any of these medications, but preferred to try to manage my condition naturally. Instead, she completely supported my decision, saying she was "on the fence" about this entire class of meds. She specifically mentioned necrosis of the jaw and esophageal cancer. I'm now taking Strontium as recommended by several on this forum. And, I'm looking into vibration therapy -- something my doc thought might be helpful.

 
Old 09-25-2010, 05:54 PM   #5
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Re: News is reporting osteo drugs are unsafe

Quote:
Originally Posted by Sensitivo View Post
Despite taking Didrocal for 7 years for osteopenia, my recent bone density test changed my diagnosis to osteoporosis. My GP asked me to research the more potent osteoporosis drugs on the internet before discussing medication options with her, stating I'd find some "pretty scary stuff". At my next appointment, I expected to get some resistance from her after deciding I didn't want to take any of these medications, but preferred to try to manage my condition naturally. Instead, she completely supported my decision, saying she was "on the fence" about this entire class of meds. She specifically mentioned necrosis of the jaw and esophageal cancer. I'm now taking Strontium as recommended by several on this forum. And, I'm looking into vibration therapy -- something my doc thought might be helpful.
i can't do the vibration therapy because i get motion sick; i am aware that some people are using strontrium- have you had any side effects?

 
Old 09-26-2010, 12:33 AM   #6
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Re: News is reporting osteo drugs are unsafe

Sensitivo: it sounds like you are very lucky to have found a great doctor who is on your side instead of the drug companies, I need a gyno, maybe I'll look for a female doc this time who shares the same problems as us and maybe I'll get a happier doctor/patient relationship, I didn't like my male gyno. He panicked me over a breast fibroadenoma (benign) that showed up on my mammogram, even though the mammogram said it was decreasing in size, and I had no suspicious calcifications. He kept calling it a tumor, saying I needed to undergo further testing, etc., he was practically yelling at me over the phone to get further testing, I got so upset that I haven't had a mammogram since, and that was 2 years ago, but I recently had a breast exam by another doctor and he said he felt no lumps, I will eventually get a sonogram, I believe the reports which say the mammogram can cause breast cancer in 8 out of 1,000 women. He is the same male gyno who was pushing Actonel on me and panicking me about osteoporosis (I have osteopenia in hips only), saying once I lost bone, I'll never get it back. When I told him about the research I did on osteo drugs and I prefer not to take them, he didn't sound happy, he made a sarcastic comment and hung up the phone on me.

My neighbor has calcifications in her breasts, her female doc talked her into a right breast biopsy, no cancer was found, but when I told my neighbor that I researched and found that biopsies put a female at higher risk of breast cancer and cause scar tissue that need to be mammogrammed every six months, my neighbor got so angry and called her doc and yelled at her for doing the biopsy (she has biopsy scars on her skin besides), now my neighbor refuses to go for any more mammograms, and is refusing a biopsy on her left breast calcifications.

I read that very few women over 50 go for mammograms any longer; due to fear of getting cancer from the machine, or fear of the machine finding cancer.

Hi pyllwyll !!!!!

Last edited by jacal5; 09-26-2010 at 12:45 AM.

 
Old 09-26-2010, 10:15 AM   #7
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Re: News is reporting osteo drugs are unsafe

filly1,

I've only been taking Strontium for a week, but so far haven't noticed any side effects. To be effective it must be taken on an empty stomach, at least two hours before or after eating. I've chosen to take mine just before bed with a full glass of water.

 
Old 09-26-2010, 10:25 AM   #8
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Re: News is reporting osteo drugs are unsafe

jacal5,

You're right, I feel so fortunate to have such an excellent doctor. She really listens, gives considerable weight to my reported experiences before making her recommendations, and never rushes appointments (never less than 20 minutes, and up to 40 minutes -- as long as it takes to discuss just about every concern).

I can really relate to your frustration with the "yelling gyno". I'm currently in the same boat with a rude, condescending, arrogant rheumatologist (also a male). My doctor has referred me to a female rheumy with better manners, so I don't have to deal with him much longer (only a couple of months). Good luck.

 
Old 09-26-2010, 10:28 PM   #9
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Post Re: News is reporting osteo drugs are unsafe

Hi Sensitivo,

I have a question for you. Where can I get "Strontium"? I have 2 health food stores around where I live. I am 60 years young and have had Osteopenia for 3 years. It might even be Osteoporosis by now. Anyway, I had a fracture of my T12 last November from the Osteoporosis and recently I had major back surgery on my lower back from 2 disc that had ruptured. I had a cage and bone stimulator implanted. The Orthopedic surgeon said I have soft bones. I had that surgery back in July and I'm recovering slowly in that area, but still in allot of pain. I had an infusion of Reclast 1 1/2 months ago and I have been having bad side effects. The most major one is in my ankles and feet and legs with swelling and joint pain. Also, when I get out of bed in the morning I hurt so bad in the joints that I have to take pain meds. You were talking about your GP doctor, and I was wondering if I should go to a Gynecologist for the Osteoporosis or stay with my GP. My Ortho Dr. and my GP talked with me about the Reclast and said that it was going to be difficult for me to grow new bone even with the bone stimulator unless we got a handle on the Osteoporosis. They didn't force me to get the infusion, they just told me my options. My GP is an older man, but I feel there is more that can be done with all the things I'm going through. I would still have him as my GP, but wonder if I should see someone separate. Any ideas or suggestions? I am going to my GP on Tuesday as I need some immediate help.

 
Old 09-27-2010, 08:02 AM   #10
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Re: News is reporting osteo drugs are unsafe

Precious55,

I'm not aware of any medical specialist that deals specifically with Osteoporosis. Perhaps the more experienced posters on this forum can answer that question. If you have a good relationship with your GP, you could consider asking him.

I purchased Strontium at a local health food store. They had only one choice -- a brand named AOR -- so it seems not to be a very common supplement. I'm using a number of supplements for various other medical conditions and have started ordering them from on-line sources. My Canadian suppliers won't be of much use to you, but I'm sure there are many excellent US suppliers. I usually try one bottle of a supplement, purchased locally, before ordering on-line. Then, once I know I don't experience side effects, I purchase on-line from the company that offers the best price. The savings are usually 25 - 35 percent -- well worth it. Good luck.

 
Old 09-27-2010, 02:44 PM   #11
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Re: News is reporting osteo drugs are unsafe

i think endocrinologists deal with osteoporosis; i know i went to one when I was diagnosed several years ago.

 
Old 09-27-2010, 02:46 PM   #12
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Post Re: News is reporting osteo drugs are unsafe

Thank you all for the replies

 
Old 09-27-2010, 05:28 PM   #13
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Re: News is reporting osteo drugs are unsafe

The physician whom I have found to be best informed on osteoporosis is an orthopedist specializing in bone metabolism issues. Not an easy specialty to locate outside of a large urban area (or even inside, for that matter). Endocrinologists are usually pretty well informed on the subject. Some gynecologists can be helpful. Most generalists seem inclined to push the bisphosphonates at you with the first sign of osteopenia.
Good luck!

 
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