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Old 10-08-2001, 12:52 PM   #1
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HalleyJ HB User
Post rib pain with Osteoporosis

I was diagnosed with Osteoporosis of the hips and Osteopenia of the spine. I was on Evista for little over a year and retested. I was told spine improved some and hips got worse so I will switch to 70mg Fosomax tomorrow. MY QUESTION IS: Has anyone with osteoporosis experienced severe side rib pain? I've been going to doctors for over a year now and have had everything I can think of checked (lungs, heart, digestive system). I've been to spine specialist that sent me to physical therapy. When her treatment didn't work, she referred me to a physiatrist. During brief exam, he could not find anything unusual. He did look at some rib xrays I had taken July 2000 and said he could see signs of osteoporisis in my ribs. Thank you for anyone who responds. In pain and desperate for answers.

 
Old 01-02-2005, 11:08 AM   #2
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Re: rib pain with Osteoporosis

Hi holly,
I have also been diagnosed with osteopinia in 2000, but it became worse, and just was put on fortero injections in Octorber of 2004. The doctor said I should feel some difference in 3 months, and I have. My main complaint was rib pain, back and hip pain. My rib pain is just about gone! My mother also had rib pain, but unfortunetly she passed before fortero was used. Maybe you could speak to your doctor about this injections.
Hope I helped!

Lulu

 
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Old 01-02-2005, 12:54 PM   #3
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Re: rib pain with Osteoporosis

Tha is so interesting to me as I also have frequent rib pain and I cannot lay on my stomach as I feel as if my ribs are going to be crushed. They are feeling a little bit stronger as I now do yoga but I have had three rib fractures in the past and feel I have to be so careful. Nice to know I am not alone, I really feel it at night when I lay on my side to go to sleep. It is not real pain, just discomfort. Laying on my stomach gives me real discomfort so I avoid that altogether. I don't feel the "cage" is protecting me like it should be, that is for sure!! T-scores in my spine are bad, hips only in the osteopenia range.... good luck!!

 
Old 01-03-2005, 06:48 AM   #4
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LPOWMACBACK HB User
Re: rib pain with Osteoporosis

There is a condition called costochondritis where the cartilage around the ribs and sometimes sternum becomes inflamed and causes pain. I too have these symptoms, in addition to scoliosis and osteoporosis. I'm sure it's all interrelated in some way!

 
Old 01-03-2005, 12:02 PM   #5
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Re: rib pain with Osteoporosis

Quote:
Originally Posted by lulu227
Hi holly,
I have also been diagnosed with osteopinia in 2000, but it became worse, and just was put on fortero injections in Octorber of 2004. The doctor said I should feel some difference in 3 months, and I have. My main complaint was rib pain, back and hip pain. My rib pain is just about gone! My mother also had rib pain, but unfortunetly she passed before fortero was used. Maybe you could speak to your doctor about this injections.
Hope I helped!

Lulu
I SUEZZ13 AM ABOUT TO START FORTEO AM A LITTLE AFRAID HAVE TERRIBLE RIB AND UPPER BACK PAIN.NOT FAMILIAR WITH THIS MESSAGE BOARD, HAVE TRIED EVERYTHING HOPE RECEIVE THIS, WAS HAPPY TO HEAR U STARTED FEELING A DIFFERENCE IN OUR RIBSS SUEZZ13

 
Old 01-04-2005, 01:27 AM   #6
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Oldbones HB User
Re: rib pain with Osteoporosis

Quote:
Originally Posted by suezz13
I SUEZZ13 AM ABOUT TO START FORTEO AM A LITTLE AFRAID HAVE TERRIBLE RIB AND UPPER BACK PAIN.NOT FAMILIAR WITH THIS MESSAGE BOARD, HAVE TRIED EVERYTHING HOPE RECEIVE THIS, WAS HAPPY TO HEAR U STARTED FEELING A DIFFERENCE IN OUR RIBSS SUEZZ13
suezz.....
I've been on Forteo injections for over 10 months now so if you have any questions, I will try to answer them. I too had rib pain but as I said in another post, I think mine is from fibromyalgia because it comes and goes. I have lower back pain too but my MRI showed all kinds of troubles with my spine. I don't think Forteo will stop my back or rib pain but a lot depends on the reason for the pain. Did you doctor try Actonel or Fosamax before suggesting Forteo? I couldn't tolerate Actonel and my osteoporosis was so bad I had to have something so Forteo was my best option. I'm just thankful that there is something that is helping my bones.

Oldbones

 
Old 01-04-2005, 11:16 AM   #7
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Re: rib pain from old bones

have no idea what i am doing but did see your message and assume you wil see this? i have very severe osteoporosis did try actonel a couple of years ago but couldnt take,,understand forteo is for patients that have severe problems,,my concern is because the consumers watch group started by ralph nader does not reccomend this ,, and has asked fda not to approve,,the other meds they asked not to approve but did the celebrex,neurotin,vioxx and there was another one well i have used all 3 of these in the past 5 years and had terrible heart palpatations so bad the dr. had me stop .i guess this is my fear every thing i have tried has had bad side effects for me .you say you have taken for 10 months and did not feel any freedom from pain in your ribs...being you do have bad osteoporosisand have used 10 months i think i will wait a month or so before i try

 
Old 01-04-2005, 11:05 PM   #8
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Oldbones HB User
Arrow Re: rib pain from old bones

Quote:
Originally Posted by suezz13
have no idea what i am doing but did see your message and assume you wil see this? i have very severe osteoporosis did try actonel a couple of years ago but couldnt take,,understand forteo is for patients that have severe problems,,my concern is because the consumers watch group started by ralph nader does not reccomend this ,, and has asked fda not to approve,,the other meds they asked not to approve but did the celebrex,neurotin,vioxx and there was another one well i have used all 3 of these in the past 5 years and had terrible heart palpatations so bad the dr. had me stop .i guess this is my fear every thing i have tried has had bad side effects for me .you say you have taken for 10 months and did not feel any freedom from pain in your ribs...being you do have bad osteoporosisand have used 10 months i think i will wait a month or so before i try

suezz.....
Most people say that osteoporosis does not cause pain. However, the damage that it causes, such as bone and vertebral fractures, do cause severe pain. I never had any knowledge that my bones were in the sad shape they are in until I had my 1st foot fracture for no reason. I was just walking. I had no pain until the fractures started.

I am aware that Ralph Nader and his citizen's group would like to see Forteo and many other drugs taken off the market. He has a list a mile long of "bad" medications. You are right........he and his group were correct on some of the drugs on his list. I consider my use of Forteo as medically necessary just as a cancer patient would, in most cases, take chemotherapy although it *might* do more harm than good.

I don't question your decision in any way concerning postponing your use of Forteo. You may go throughout your life without a fracture. Not everyone with osteo has fractures. I sure hope that is the case. None of use have a choice of our diseases but we sure have a choice as to our treatment. It's everyone's individual decision. I sincerely hope that you can have pain free days in the future.

Blessings,
Oldbones

 
Old 01-05-2005, 10:57 AM   #9
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Re: rib pain with Osteoporosis

to old bones, i did rely to youe last message but dont think it went thru, i just wrote and then when ready to send dont think i did it right went back in and saw to the left quick reply and pushed that and your message came up again just was telling you that after much searching and my niece works for the govt. and she did some also and advised me to wait awhile i do have many many fractures and am in constant pain because of them there were so many bad things we found so will wait awhile just curious if u did get the message i sent a few minutes ago wed. the 5th ,just thought id try tis way and see what happens,thanks for writing suezz13

 
Old 01-05-2005, 06:50 PM   #10
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Re: rib pain with Osteoporosis

Oldbones - Just wanted to say that, you said it so well. All drugs have the potential to induce side effects, the the high dosage rats were given by the drug Forteo actually makes me less nervous about it. It depends on each persons situation. I also think all drugs have a risk. I am currently pre-menopausal, my spine is not good although I have only had 3 rib fractures in the past several years. Wait, or not to wait, I am afraid that once my hormones change, it will be steadily downhill for me. I can wait to see what new drugs come out, which may offer even more hope.(I just read about one)... I certainly respect your decision and if I were a few years older, I would be on Forteo now (I am 48). I watched my Mom who had severe osteo. with severe pain, deteoriate and that did more to persuade me to do anything to prevent the pain and heartache in my future. Thank God there are drugs out like Forteo, it is up to the patient to decide if it is worth the risk. I have my next endo. appt. in Feb. so we will see.... Best of luck, let us know about the results of your next scan..... Beth

 
Old 01-06-2005, 06:17 PM   #11
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Re: rib pain with Osteoporosis

hi new bones and old bones.this is suezz13, i guess i can call myself no bones fits the description of me. i still dont quite understand the message board but guess i must be hitting the right button,,as i said i am 71 and as my dr. said my bones are shot i am in constant pain in my ribs and upper back and housebound i was interested in forteo and after much consideration ave decided to wait awhile before i start it , i have researched it to quite a lenght and my sister daughter,who works for the govt. did too and i dont feel comfortable with it perhaps i am making a mistake but my gut feeling tells me i am not , i have more faith in ralph naders group than the fda,,and feel very strongly that within a short time they are going to find many problems..they arentsure if it can cause nerve damage andmany other things. i have enjoyed talking to you very much and the best of luck to you both you are still very young. i was diagnosed in 1990 with this,they call it the silent disease because you dont know that you have it until its too late ,,that was in my case..in 1990 the bone doctors said they never realized it was such a problem i had an early hystercomy ,the age of 35,had 5 children,was lactose intolerance so therefor no dairy products and if my gyn dr. had put me on estrogen at that time i wouldnt be this bad he said but looking back at different situations i realize i had it in the 70s and never knew it ,it was picked up in an ordinary chest x-ray in 1990 and by that time i had lost over 65% of my bone mass, the best to you old bones (suezz13)

 
Old 01-08-2005, 01:23 AM   #12
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Oldbones HB User
Arrow Re: rib pain with Osteoporosis

suezz.....

The best to you also. I'm 55 and my fractures all happened within a three month period. I never had any indication that anything was wrong except some hip pan which now that I look back, was probably a hairline fracture at that point. Too bad I didn't get something done then..... before the complete fracture. Ahhhh hindsight! I also had an early hysterectomy (Age 29) but I've taken my estrogen pills and shots on a consistent basis since then. I had to take steroids because I have Lupus so the doctors think that the steroids damaged my bones also. We will never know because I had never had a bone density test until the fractures started.

So far, I've had no side effects with Forteo and I can't risk another hip fracture and possible avascular necrosis where the bones die. I'll just do my daily injections for the prescribed two years and be thankful that I'm human and not a laboratory rat.

I've enjoyed talking to you too and I hope that you will find something that will heal your bones.


Oldbones

 
Old 01-11-2005, 05:27 PM   #13
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Re: rib pain with Osteoporosis

hi old bones.still arent sure how to answer your posts but here goes i had told you i was leary of using the new drug, am 71 and my bone density is so far gone i really dont think anything will help now i had done some more reding in different sites nd news letters,,lilly even took forteo off the market once already and was so pressured they put it back on,,t is not known if it will build up calcium in your arteries,brain or other digestive organs ,showed no reduction in men, and some more rapid bone less, hopefully i am wrong nd sure hope it helps you but i have finally decided not to try it,,some one has already called me to track how i am doing so i still feel they are using the public for try outs good luck and let me know in a few months how you make out suezz13

 
Old 01-12-2005, 12:05 AM   #14
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Oldbones HB User
Arrow Re: rib pain with Osteoporosis

Hi suezz.....

You are doing fine answering the posts. I think you are getting the hang of it. I haven't heard or read that Eli Lilly took Forteo off the market at first (at least I don't remember reading it). I've read sooo much about the drug that I may have forgotten. I read some very positive results and one post on this board from a man who had tremendous results. I'm really glad for everyone that it helps and hope that it is not harmful to any of us. I'm not one to ever be a guinea pig but like I said in my other posts.......My bones are in such bad shape that I think of it as chemo for my bones and yes, it may have some risks. Eli Lilly didn't call me. I called them when I was talking to my doctors about it and researching the good vs the bad. The representative wanted to make sure that I knew how to give the injections, sent more information and a reusable ice pack and case for traveling with the injection pen and supplies. It's been 10 months and they haven't contacted me. They may have been in contact with my doctors but they haven't mentioned it to me. I know that they want each patient starting on Forteo to either meet with a representative to go through the injection process or they will send packets out to the doctors to discuss with the patients and then they do a follow-up.

I've started riding my recumbent stationary bike so I can build some bone strength. I also have two tapes of chair exercises with 2 pound weights. I'm trying my best to beat this disease. My rheumatologist is keeping a close watch on all my blood tests to make sure everything is in the normal range. If something comes up abnormal, such as blood calcium levels, that would definitely be a red flag but mine have remained in the mid normal ranges.

I'm going to do some further research about the build up of calcium in the arteries, brain and digestive organs and talk to my doctor about it. I haven't ran across that information but I haven't researched any new findings in the last few months.

I don't think any doctor would want a patient to take Forteo if they are the least bit uncomfortable about taking it. I think you are doing the right thing by following your gut feeling that it's not for you. Maybe vitamins and supplements will help you........just don't give up on rebuilding your bone density.

Take care and I will let you know of any new developments. I have enjoyed reading your posts. You sound like a very sweet lady.

Oldbones

 
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