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Old 10-17-2010, 08:21 PM   #1
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Osteoperosis/Osteopenia

I started having severe back pain that came on while cooking dinner 2 weeks ago and the pain still has not gone away. I can't stand for long or walk w/o severe pain.

My doctor did an x-ray and told me I have osteoperosis and osteopenia. Can you have both? She said that I need a bone density test.

I'm in my early 30's is this possible?

 
Old 10-19-2010, 01:27 AM   #2
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Re: Osteoperosis/Osteopenia

It is possible to have bone loss (osteopenia) in some bones and osteoporosis (more significant bone loss) in other bones. It is also possible to get these when your in your 30's but I'd ask to see an orthopedic specialist because osteoporosis usually doesn't cause severe pain that just starts like you describe. An orthopedic specialist can evaluate why you are having back pain whether from a disc problem, osteoporosis, or muscle spasms, etc.,

I'd go get the bone density test also to see how much bone loss there is. You may also want to ask for an MRI of your spine to see what is going on. I didn't know I had spinal fractures caused by osteoporosis until I had an MRI because these didn't cause pain. Let us know what you find out and I hope you start feeling better.

 
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Old 10-24-2010, 03:22 PM   #3
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Re: Osteoperosis/Osteopenia

A colleage of mine who just turned 30 was just told that she has osteoporosis and I was diagnosed with it at age 42. SO, yes, age doesn't matter.

I had no idea that osteoporosis could be detected via x-ray. Definitely get the DEXA scan done.The quicker it is treated, the better.

 
Old 12-16-2010, 02:58 AM   #4
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Re: Osteoperosis/Osteopenia

Hi Tappe, I was just reading your post re: spinal fractures. Have these altered your posture in anyway? I have just had an MRI which has shown 5 fractures, 3, I think, maybe older ones but I have 2 recents. I am really struggling with these fractures and I am beggining to wonder if I will ever stand up straight again. I have been diagnosed with severe OP and I am currently awaiting treatment, which is either going to be the annual infusion or the daily injectins. I am quite terrified at the thought of either!! but probably not a lot of choices. Since my diagnosis I have really just sat in the chair all day (although my back is very painful at the moment to do anything else) as I am terrified to perhaps induce another fracture. (I am 58yrs of age) I was working 30hrs a week and very fit prior to this. Any advice would be appreciated.

Lydia

 
Old 12-16-2010, 11:47 AM   #5
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Re: Osteoperosis/Osteopenia

Hi- My situation was quite similar, only I was a year older. Multiple spontaneous vertebral fractures at this age are pretty unusual. Have they been looking for a cause? Are you a candidate for kyphoplasty for the newer fractures? The daily Forteo shots are really not as bad as they sound and are the most effective treatment we've got. Worked wonders for me. Problem is what to do to maintain the ground you've gained once the two years are over.
I wish you the very best of luck! - Carol

 
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Old 12-16-2010, 01:00 PM   #6
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Re: Osteoperosis/Osteopenia

hi Carol, yes they have done tests for a cause and they have put it down to a postmenopausal BD loss. Did you have any side effects from the Forteo, I am really
scared of medication and would rather suffer, although I know I have no choice in this matter. Have you now completed the 2yrs of Forteo?

Lydia x

 
Old 12-16-2010, 01:18 PM   #7
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Re: Osteoperosis/Osteopenia

Hi Carol, have you completed your forteo treatment, and if so which meds have you continued with? I mentioned kyphoplasty to my doctor but he had never heard of it!!!!
Hope you dont mind me asking questions Carol. Did you recover well from your fractures,
I am really worried that I will not ever be able to stand up straight again. Last question did you have any side effecs from forteo.

Many thanks for the info, there isn't reallly any support locally for me, there are no support groups or anything.


Lydia

 
Old 12-16-2010, 01:26 PM   #8
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Re: Osteoperosis/Osteopenia

thank you Carol for the info. Hope you dont mind the questions.
Did you recover from your fractures ok, I'm worried that I will not be able to stand up straight again. Are you still taking your Forteo at present, or did you have your fractures some time ago, if so since starting the treatment have you had any further spinal fractures?


Lydia

 
Old 12-16-2010, 01:47 PM   #9
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Re: Osteoperosis/Osteopenia

I healed well and completely, thanks to Forteo and surgery. I lost 5" in height, but I am relatively straight and the pain is trivial. (I was on heavy-duty pain meds for a couple of years.) Kyphoplasty is a procedure in common use on our side of the Atlantic.
Cement is injected into the vertebra to stabilize/prop it up. Said to relieve pain somewhat, also. They were very concerned in my case about the cause. One tactless orthopedist told me I most likely had multiple myeloma (very nasty cancer) since I was too young for that many spontaneous fractures. Scanned/biopsied every part of me. Turns out I had been put on a ridiculously high dosage of Synthroid by a careless (incompetent) physician and that was sufficient to dissolve my bones! (Why we must always look out for ourselves - research EVERYTHING!) I am in much better shape these days, but I could tell you some real horror stories. I never had any adverse reaction to the Forteo and it completely turned my osteoporosis situation around.
The injection is not an ordeal and you just focus on the benefits. I'm doing Strontium mostly now.
It's got to be tough to have no support system (where in the UK are you?), but I've learned far more from the experience of some pretty wise folk on this board than from any physician I've visited. I have learned to look stuff up online and take literature with me for the docs to read. We don't mind questions here (that is why we are here). Those of us who have benefited from the answers of our predecessors feel obligated to give back what we can. Think of us as your friendly neighbourhood support group.
All the best. Keep us posted - Carol

 
Old 12-17-2010, 12:38 AM   #10
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Post Re: Osteoperosis/Osteopenia

I had a Fractured T-12 because of Osteoporosis in November of 2009. for two months after that I was in severe pain all the time. Couldn't be on my feet more than 20 minutes at a time. Finally in January of 2010 they did Kyphoplasty on the T12. By then I had lost 1 1/2 inches off my height. This past August I had the Osteoporosis drug called, "Reclast". Had bad side affects at first, but they went away slowly. So, yes you can have severe pain from a fractured Vertebrae from Osteoporosis. Mine was discovered during a MRI, and that sounds like your next step.

 
Old 12-17-2010, 01:50 AM   #11
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Re: Osteoperosis/Osteopenia

my alkaline phosphotase was raised so my GP did another blood test to check for myeloma, but I've not had any other tests, they just told me that this test was okay and my diagnosis was post menopausal BD loss, but there is always that niggling doubt. I did read that Forteo must never be used if your alk phos was raised so I will be discusing this with the consultant.
I live in a small village in the North West of England.
It is very encouraging that you are leading a normal life. I have just sat in the chair since diagnosis due to the fear of more fractures.


Lydia

 
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Old 12-17-2010, 09:06 PM   #12
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Re: Osteoperosis/Osteopenia

This is my second round of 2 years on Forteo. I haven't noticed any side effects except for alittle red or irritated skin where I do the injections. The medication works but the problem is what to do after finished it.

I found out that I have 3 fractures but I doubt if the Forteo will heal those, the fractures are supposedly minimal. My posture is not altered due to these. I would consider surgery if I was in pain or the fractures were very bad. I also have chronic pain from disc problems but I don't think the fractures cause me pain.

I walk and exercise and work and try to do all the normal activties but my disc problem limits me more than the osteoporosis. I'm just careful not to fall or get in an accident. Weight bearing activity such as walking is good for us with osteoporosis if your not in too much pain.

 
Old 12-17-2010, 10:28 PM   #13
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Wink Re: Osteoperosis/Osteopenia

Lydia, walking is one of the best forms of exercise, especially for someone with Osteoporosis. In my earlier post I said that I had allot of pain in my T-12, and that it happened at work about 13 months ago.I wanted to add a couple of things. I'm the type of person who cannot sit still for very long, so I tried to go back to work last January, and couldn't make it more than 2 days, so I was put on work comp. During this time I was tested for Osteoporosis, and that showed up positive in my hips, wrists, and back. From that crack in my vertebrae, I couldn't stand up straight, nor walk but just for about 20 minutes, and even my pain meds (Lortab), wouldn't even dull the pain, so the Work Comp. Dr. pushed for me to get an MRI, and then he did Kyphoplasty. I would have been fine, had I not developed 2 ruptured discs in my lower L 3/4 & L 4/5 Discs, so, this past July I had a double fusion at those levels, plus a cage and rods, screws and a bone stimulator was put in. I was 59 at the time, and had Osteoporosis, and had been on Evista, Actonal, Boniva, and the last one I took was "Reclast" which is a once a year infusion. Currently, I go for physical therapy which is helping me to gain back some of the inches I lost. Do, research everything. What works for one person, might not be right for you. I hope everything works out well for you. By the way, because of the fracture and where it's located, my work comp Dr. put me on permanent restrictions of not lifting over 20 lbs, so I had to give up my government job of 10 years. That's the other thing, be sure you have a "good" support team. Come back to this board often, as there are good, caring people here. wave:

 
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