Thank you so much Jenny for your reply. So far we went to see the endo dr two weeks ago after running many test. It only showed that he don't have any malabsorption problems. His growth hormone was normal, his testosterone levels tho are that of a grown man. His bone age is 17 and he is only 14 right now. They said he is not passing any calcium out through his urine. His TSH levels are normal, Parathyroid is normal. Blood calcium was normal. Also the other test she said came back normal. He has to go see a geneticist in Aug to see what he can come up with. I did read about OI but he don't fit a lot of the criteria for it. I am praying that is not what he has. At first they thought that he didn't fit it either, but now with his results they think it might be. They do know he has a connective tissue disorder they just aren't sure what. As he has had many dislocations of his elbow and shoulder. He pretty much out grew the elbow dislocations but the shoulder continues to be a problem. Some days he can dislocate it by just reaching out for something. It is very loose and sloppy joint. We are working to improve the muscles to help stabilize the joint a bit more. The good news is that when it does happen he don't have much if any pain. Its just that loose. They are also concerned that he may not be feeling pain like most people. He has in the past broken bones and never knew it. Until later discovered on xrays. He has suffered several stress fractures in his hips and lower back that he seems to feel pain from tho. Now he has to see a ped cardiologist also as he has been having bouts with tachycardia.
After wearing a monitor for several weeks he had an episode where his heart rate was up to 150 bpm while sitting and eating supper. He is so tired out lately and has had most his activities restricted due to the fact we don't want any more fractures. I just hope and pray that what ever this is...He will be able to live a normal active lifestyle at some point in his life. It just kills me to think his best years were as a child and will only slide down hill from here. I will keep you posted if I hear any other news or they find out any ting else. Thanks again. Anyone with a child going through similar issues I would love to hear from you.