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Old 08-05-2011, 09:49 AM   #1
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phylwill1152 HB Userphylwill1152 HB Userphylwill1152 HB Userphylwill1152 HB Userphylwill1152 HB Userphylwill1152 HB User
Thumbs up DEXA results...

Good morning, i've just come from the dr. and have the DEXA results to share. Over the years they have chanced some of the reference terms and in 2009 no T score given for the lumbar spine. Please keep in mind these are scores with no adjustments made for the strontium, so they may not be as good as they look on paper. I ask the dr. if i should continue the SC and he said since its working don't stop and we'll recheck in 2 years. Not quite out of the negatives but getting closer. I also have the g/cm2 numbers if anyone would like to know them. Its too bad we don't have scores from when our bones were in their prime so we'd know how far we've really come. take care...phyllis

May 2006, the first one

Total left hip T -1.9
left femoral neck T -2.7
Lumbar spine L1-4 T -2.9

Started SC Sept. 2006

June 2007 9 months later

Total Left Hip T -1.7 3.6% gain
Left femoral neck T -2.5
Lumbar spine T -2.6 3.5% gain

June 2009
Left femoral Hip T -1.1 13.6% gain since 2006
Lumbar spine 10% gain since 2007

August 2011

Left proximal femur T -1.0 1.6% gain since 2009 15.9% since 2006
Lumbar spine T -1.8 10.1 % gain since 2009 15.4% gain since 2006
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Old 08-05-2011, 10:34 AM   #2
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Re: DEXA results...

That is so wonderful, Phyllis!! Cause for celebration!!

Forgot to add: Sounds like you've convinced your doctor on Strontium!!

Last edited by ktnap; 08-05-2011 at 10:37 AM.

 
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Old 08-05-2011, 10:45 AM   #3
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Re: DEXA results...

HI kt, my dr. has seen my scores over the years but still won't recommend it to others since its not an FDA approved drug. Plus, not many people are familiar with it and if they don't bring it up he won't tell them. I imagine if someone did mention it to him he would tell him he knows someone whose had good results, but i can't be sure of that either. take care...phyllis
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Old 08-05-2011, 01:26 PM   #4
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Re: DEXA results...

Phyl,
Yay, I found you. Thanks for posting your results. They look great. However, when you first were found to have osteoporosis it wasn';t really bad like me. I forget which area of mine started at -4. Glad that it is doing well, slow and steady wins the race (:!!

Hope mine are doing as well even though I stgarted out much worsethan your first scores. I was called severe osteoporosis - great.

I think when I fly on Wed. I will eliminate the K2 and add an aspirin or two. Not sure if I will eliminate it the day before I fly or not.

Will send this off so you dont have to tell me where to go to find you (:! I promise to come chat with you again even before my dexa scan which will probably be in October or so with all my well person yearly checkup stuff. How come it is caledl well women and I don't feel so well ????

Blessings and hugs,
Granni

 
Old 08-05-2011, 05:33 PM   #5
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Re: DEXA results...

Fantastic!
Good for you!
Good for Strontium!
Good for all of us!
Thanks for making my day!
Blessings -
Carol S

 
Old 08-06-2011, 10:43 AM   #6
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Re: DEXA results...

Nice gains. Good news indeed. Keep up the good work.

 
Old 08-06-2011, 11:54 AM   #7
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Re: DEXA results...

HI everyone, thank you for all your good wishes. I did some more searching about adjustments last night and found this tidbit of info that was put out by the makers of Protelos which states that the readings can be affected by 50%. So with that said, while i've had steady gains with each DEXA my gains aren't nearly as good as the report states. I'm not very good at math, but even 50% taken off, both hip and lumbar spine are in osteopenia. I"m still a happy camper about the report, but looks like i'll be taking SC for another 2 years.

Dexatech, if you see this maybe you could do the math. I also re-found the adjustment figures that a radiologist could use to get a more accurate reading if they were so inclined, which i found they were not. have a good weekend and once again thanks for your good thoughts. take care...phyllis
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I am so much more than a score, I am strong, healthy, active and like to help others.

 
Old 08-08-2011, 08:25 AM   #8
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Re: DEXA results...

Phyl,

I have seen the adjustments from 10% to 50% and have also read from Protelos site that no adjustment is needed. I will look again and see if I can find that. It was buried deep somewhere. This would be based on change in BMD.
Also I believe that the adjustments are made from BMD not T-scores. There is not a 1-1correlation between BMD and T-score. The adjustment would be made from BMD and T-score figured from there.

Example: 2006 BMD .767 T-score -2.5
2011 BMD .881 T-score -1.5 change in BMD =14.9%
change in T-score =66%
This is from an actual patient previously on Boniva, obviously not your normal "happening" and nothing "funny" on scans.

I believe the best routine is to get a DEXA every 2yrs and see which way the numbers are trending. It is up to the patient from there to think or do what they want as far as the numbers and treatment(if any).

 
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