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Old 09-05-2011, 10:09 AM   #1
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Long Acting Osteo meds and muscle spasms

I'm wondering whether anyone is getting muscle spasms either from infused bisphosphonates or Prolia (which I took in end of July). Many of you have mentioned having muscle pain but do you get spasms?

 
Old 09-07-2011, 08:32 PM   #2
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Re: Long Acting Osteo meds and muscle spasms

I wish I had an answer for you. Proila has just been approved in Canada and since I've been scolded to get on osteoporosis drugs I was going to bring this one up to my doctor. You mention muscle spasms, do you mean charlie horses? I've been getting those and they are so bad they make me cry in pain? Feels like the cramp is going to break something. I've noticed that proila is not to be taken by anyone with low calcium and vit D levels. That's what concerns me about going on this drug, my doctor won't bother to check, just like he didn't bother when I was on actonel. He took tests once and I had low calcium and he continued me on actonel and never bothered to check my levels anymore? The whole 3 years that I was on actonel I was in so much pain with my joints and muscles and he told me repeatedly that it wasn't from the actonel. Doctors???

 
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Old 09-07-2011, 09:15 PM   #3
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Re: Long Acting Osteo meds and muscle spasms

Hi Dorri,
Yes I mean muscle spasms that knot up like charlie horses but in places like my hip, shoulder blades, rib cage, and neck. The ones in my rib cage/neck felt like all of my ribs were going to pop off. It's very painful as you know.

I wouldn't go on this or any other osteo medication without getting the tests for calcium level, Vit D level recommended by the drug compay etc., It's too dangerous. Do you see a specialist or go to a primary care doctor? The specialists should know better. Can you change doctors?

Today I got a message from my specialist that so far no patients were reporting muscle spasms and it's not a reported side effect. There's no other explanation for me getting so many of these and since I got the injection of Prolia. Everyone reacts differently to medications. Let us know what you decide to do.

 
Old 09-07-2011, 09:44 PM   #4
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Re: Long Acting Osteo meds and muscle spasms

My doctor is a General Practitioner who gets offended easily. After having several muscle spasms or charlie horses in my feet, calves and hips and know the pain, I shutter to ever have another. Last year I literally passed out from the pain when I tried to get up and walk it off. I woke up on the floor in a pool of blood with a swollen nose, so when I feel one coming on now I get on my bed, grit my teeth and wait till it passes and hope I don't pass out. The pain is horrible. Your problem sounds like your calcium or something is out, so I would demand a test and hope it shows up so it can be treated. Has it been hot where you are, are you dehydrated? You should also get your sodium levels tested. Tight hamstrings can sometimes cause muscle cramps in the legs but you say you are getting cramps elsewhere, so I would think it's one of the minerals in your body that is out of balance? And most certainly the medication you take can cause imbalances in these areas, so I'm surprised your doctor is taking your complaint lightly without checking first? Afterall it is a relatively new medication.

Maybe I should call the makers of proila (denosumab) Amgen and ask how often my doctor should monitor my calcium levels?. Then I can go to him and tell him that I won't go on the drug unless he keeps an eye on my calcium levels. Yah right, think I told him the same with actonel. Like he cares.

 
Old 09-07-2011, 09:54 PM   #5
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Re: Long Acting Osteo meds and muscle spasms

The muscle spasms I get don't pass like you mentioned.I get these knots and I have to go to physical Therapy to get them out unless it's in my feet or leg where I can reach and put pressure on myself. I have had a few like you described in my hip and I walk around to get it to relax. Sorry to hear these are making you pass out, that's awful.

I will call back and ask for tests if these keep up. It is really hot where I live and I'm trying to keep up with drinking enough liquids. My calcium/Vit D were all checked in July and ok. Reporting symptoms to Amgen is a good idea, I think I'll do that.

 
Old 09-08-2011, 05:45 AM   #6
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Re: Long Acting Osteo meds and muscle spasms

Might help to add magnesium supplements to the calcium. Muscles tense and relax through the interaction of calcium channels and magnesium channels, so any imbalance in those two minerals can lead to muscle dysfunction. About 500 mg per day is usually the right amount of magnesium.

 
Old 09-08-2011, 07:21 AM   #7
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Re: Long Acting Osteo meds and muscle spasms

Quote:
Originally Posted by janewhite1 View Post
Might help to add magnesium supplements to the calcium. Muscles tense and relax through the interaction of calcium channels and magnesium channels, so any imbalance in those two minerals can lead to muscle dysfunction. About 500 mg per day is usually the right amount of magnesium.
Thank you for this information. I'll go buy magnesium supplements.

 
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