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Old 05-06-2012, 01:23 PM   #1
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Rapid onset of Osteoarthritis

I have been told I have rapid onset of osteoarthritis but they do no know what is causing it. I can barely walk because my right hip is in so much pain all the way down my leg. My joints in my knees, ankles, wrist and elbows are attacked with severe pain in the middle of the night and I feel like I am getting shocked down the back of my legs every time I take a step unless I take the prednisone. Does anyone else have these symtoms?

 
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Old 05-06-2012, 03:05 PM   #2
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Re: Rapid onset of Osteoarthritis

Hi there yes I get everything you've just mentioned plus pain in the feet too,even with oramorph it still hurts.
The pain in the hips is also truly horrific!
I know its osteoarthritis and I have ME also but I'm now using the use of my legs and its destroying me as I'm a 34yr old mum.
I hate living this way its so frustrating to all the family not just me,plus the hubby has COPD and can't push me far in the  and our local services won't provide me with an electric one?
Do they think I'm going joyriding or something?
Take care
Jacq

 
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Old 05-06-2012, 05:51 PM   #3
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Re: Rapid onset of Osteoarthritis

If you have rapid onset OA, they need to check on your spine...it gets it too and those shock symptoms sound like pinched nerves in your back. Pred would help with the shocks even if it's your back.

I got early onset OA in my teens and have had some 23 ortho surgeries for joint problems since then(I'm now 60). Just had my 3rd spine surgery 6 weeks ago. Makes me feel like I'm crumbling....or at least my skeleton is. And just to add insult to injury, I got Ra 7 years ago to destroy any joints the OA wasn't.

You need to get under the care of a good rheumatologist. They manage OA not just diseases like Ra. You need meds for pain, PT to stabilize your joints, and someone to guide you as to when it's time to look at joint replacement surgery or other forms of surgical intervention. I not only have a rheumy, I also work with a physiatrist...a rehabilitation specialist who makes sure I get tons of PT, splints as I need them, pain meds and other therapies.

I know you'd just like to make it all go away but facing it and finding a good medical team to help you will be the biggest help in the long run. It's never held me back from doing anything I wanted to.

hugs..........Jenny

 
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Old 05-07-2012, 12:38 AM   #4
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Smile Re: Rapid onset of Osteoarthritis

Quote:
Originally Posted by jennybyc View Post
If you have rapid onset OA, they need to check on your spine...it gets it too and those shock symptoms sound like pinched nerves in your back. Pred would help with the shocks even if it's your back.

I got early onset OA in my teens and have had some 23 ortho surgeries for joint problems since then(I'm now 60). Just had my 3rd spine surgery 6 weeks ago. Makes me feel like I'm crumbling....or at least my skeleton is. And just to add insult to injury, I got Ra 7 years ago to destroy any joints the OA wasn't.

You need to get under the care of a good rheumatologist. They manage OA not just diseases like Ra. You need meds for pain, PT to stabilize your joints, and someone to guide you as to when it's time to look at joint replacement surgery or other forms of surgical intervention. I not only have a rheumy, I also work with a physiatrist...a rehabilitation specialist who makes sure I get tons of PT, splints as I need them, pain meds and other therapies.

I know you'd just like to make it all go away but facing it and finding a good medical team to help you will be the biggest help in the long run. It's never held me back from doing anything I wanted to.

hugs..........Jenny
Hi Jenny it wasn't a sudden onset of arthritis,my apologies I should of said,it began around the age of 14 with it in the knee where I'd had a patella realignment at the age of 7.
There's nothing more psyhio can do as we've tried everything over the years on numerous occasions,although I do still see the neurologist and pain management doctor.
I've also tried many medications for arthritis,noine which have helped hence wearing slow release morphiene patches and oramorph medicine.
I was tested for MS as my symptoms are so similar however thankfully it wasn't that but limited sensations were found in the left foot and leg and hyper mobility.
Its so nice to hear that this horrid condition is not stopping you doing anything,I was told I would be permanently in a chair 5 years ago but I proved them wrong,I still use my sticks as often as I can and I have had the house adapted including a stair lift.
Thanks for your response
Take care
Jacq

 
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Old 05-07-2012, 10:32 AM   #5
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Re: Rapid onset of Osteoarthritis

Sorry Jacq....I should have listed my response as being to the original poster....Jonestownmom....she has the rapid onset OA.

I'm sorry you are having so much pain and so many problems. Once you get to the point of getting replacement joints, it actually gets much better. Hope maybe that might help you too...did for me.

hugs............Jenny

 
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