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TaoZen108 · 05-23-2012, 02:50 PM

I read something Desert Bloom said in 2006

about in a thread called :endstage osteoporosis.
I am beyond stunned about how little help people get.
Desert Bloom wrote about
" Look into Kyphoplasty and Vertebroplasty"
which I will look into.
i am only 67 and had no idea that I had a severe case of osteoporosis until I
fell over like a tree last July 6th 2011 in the garage. yes I had complained about backaches to my doc for years, and he just brushed it aside.
I had hiked into July 2011.
when I fell over like a felled tree I had cleaned the garage for hours.
I was in hospital for 7 days, rehab for 3 weeks and then "nothing". No one me. No doctor makes ANY suggestions.
I just had 3 MRIs of lower, upper back and neck and a multitude of broken vertebra and compressed, collapsed vertebra, as well as bulging disks. I live in endless pain,as well as inactivity, and all I get from docs is painkillers.
I cannot believe there is NO HELP.
Yes I have lost 35 pound because I can't eat well, and I was always slender.
I am just beyond stunned that I am in a medically progressive state and
every time I seek help, they shrug it of with words like "ohhh osteoporosis" ( with a sinking voice).
They finally gave me reclast last January which made me very ill for a week.
AGAIN i like to thank Desert Bloom for mentioning this:
"Kyphoplasty and Vertebroplasty",
and I will try to find a doc to will talk about it to me.
All I have now is pain killers, a back brace and continuous painwith more and more physical problems adding. I am mostly flat on my back and inactivity drives me nuts.

turtlelady · 05-23-2012, 05:25 PM

The plasty procedures are usually done when the damage is fairly recent. You may or may not be a candidate. I was in similar shape (before I turned 60) and was helped enormously by two years on Forteo and pretty extensive spine surgery. I am 5 inches shorter than I was but relatively pain-free. I maintain with strontium as do many folk on this board. There is definitely hope, but you have to pursue help. I am not far from NYC so I am able to take advantage of the amazing Hospital for Special Surgery which really gave me my life back. Good luck to you. Keep us posted.
Carol

TaoZen108 · 05-23-2012, 06:29 PM

wow thaanks for your reply. Of course since I am breaking , collapsing, compressing one vertebra after an other and it started last July, it was spoken if in hospital when I first got there in July, then after a week they sent me to rehab, saying "not possible, too cumbely". sigh.
I think the older one gets the less docs care.
I am seeing a spine specialist on the 6th of June and he is sort of my last straw.
I do wear my brace often, but the pain and the narcotics is not an alternative for me.
It's grinding me down.
thank you very much for your response. much appreciated.

turtlelady · 05-24-2012, 07:13 AM

Do not give up. There is no reason to go through life like that. Do you live anywhere near a large urban area where they would have the ability and resources to deal with such problems? If not, would you consider traveling? It is well worth pursuing. You are my before picture and I can't imagine staying the way I was. Best of luck!
Carol

TaoZen108 · 05-24-2012, 11:13 AM

Thank you soooo much for your caring dear, you are an > .

we have a huge medical center a few miles from here. they brought me there when I "fell over".
They had considered doing the surgery as you had it, but came to me after 7days and said no. I don't know why. I was heavily drugged and can't remember. I am seeing a spine and back specialist who was recommended to me by someone else on the 6th of June.
So I have the hope he can recommend me to someone who " cares".
I was afraid of forteo, because it has caused some bone cancer in some people.
They have an othepedic hospital a few miles away, too, and several spine centers. what I am "assuming" reading my MIR (3) reports from a week ago, I have a lot of "old damages..."
even 2 edema in the spine, and deformations... unbelievable that my doc always brushed my complaining about back aches aside as " oh ye gettin old".
Here I was hiking 4-7 miles til I fell down.... several times in high elevations eveyr year, and walking daily ( under pain) 1-3 miles... and yet it all did nto help to stop the osteoporosis.
Amazing the success you have had. High 5^.
Now that I see how much damage there is all over my spine, I will not allow docs to brush me off and give up on me any more.
Imagine when the nurse of the new doc who I have not seen yet
asked me so why do you have several vertebra broken? and I answered, osteoporosis, she said with this voice ( sinking at the end) "ohh osteoporosis, well I don't think the doctor can help you ". I started crying and said " someone got to help me". she said, ok I will ask him. she called back and gave me an appointment. maybe he looked me up in the computer,
because there is an inter mountain medical system here in the west, where dics can get to your records at a fingertip.
maybe he can just send me to an other specialist.
I told my friend in europe all about it, he was the surgeon general in germany. he said " has no one sent you to a endrochronologist?" I said :"hm?" he said :" an endochronologist can do a lot for osteoporosis patients" I did not know this. so I am making an appointment there ,too.
I am glad you are sooooooooooooooo much better. congratulations.

sigh I just looked up prolia as well as strontium citrate.
why the dickesn didn't the doc I been going to tell me this...
wow.
I am goign to go to him " informed" this time.
I think I will try prolia and definitely go to the healthfood store and get "strontium citrate".
I think I need to send you some flowers in gratitude.

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