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Old 10-16-2012, 07:49 PM   #1
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Osteoporosis - search for secondary cause

I am in my thirties and have been diagnosed with osteoporosis. B/c I have other health-related problems (infertility, fibro, etc.), I am convinced that I must have a nutritional deficiency, malabsorption issues, etc. that have not been diagnosed. I have seen multiple specialists and no one has been able to determine the cause. They want me to take Forteo but I am not interested because of potential side effects.

Has anyone else who is pre-menopausal established the reason for their osteoporosis is? If so, what was it and what type of specialist was able to determine the cause?

 
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Old 10-16-2012, 08:48 PM   #2
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Re: Osteoporosis - search for secondary cause

well due to the infertility did you take any hormone meds? what are meds have you taken? I take Prolia for osteo its a twice a year inj supposed to have the least side effects, no problems so far knock on wood! Cathy

 
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Old 10-16-2012, 08:52 PM   #3
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Re: Osteoporosis - search for secondary cause

It is good you are questioning what is causing the osteo at your age. Some illnesses related to early osteoporosis are gluten intolerance, Vit D deficiency, lupus, alcoholism, estrogen deficiency and hyperparathyroidism. I would see an osteoporosis specialist first to see what might be uncovered. Anemia, if present, is common in gluten intolerance and celiac disease and lupus. Lactose intolerance is indirectly related because many people just stop drinking milk and get calcium deficient. Hyperthyroidism can also cause osteo. So there are lots of possibilities to consider but perhaps one or two of these stand out to you as making sense in your situation, and I would get thosed checked out first.

 
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Old 10-18-2012, 10:33 AM   #4
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Re: Osteoporosis - search for secondary cause

Ladybud, who do you consider to be an "osteo-specialist"? I am having a lot of trouble finding one! I have seen endocrinologists, GI docs, infectious disease specialists, and immunologists to try to put the pieces together but no one seems to specialize in uncovering the cause of osteoporosis in someone my age.

I am hypothyroid and take thyroid replacement (just a small amount) but am supposedly not deficient in anything else. About a year ago, I switched to a gluten/dairy free diet even though I do not have celiac in the hopes that the change in diet might help. I recently tested slightly low in Vitamin D but the endocrinologist who tested me says that it's not low enough to cause the osteo. My calcium level is actually high. I am trying to have children naturally so the meds are not an option for me even though I have experienced several compression fractures. Doctors tell me that Forteo is the only one I should consider, and only as a last resort

 
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Old 10-18-2012, 01:02 PM   #5
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Re: Osteoporosis - search for secondary cause

If your blood calcium levels are high, you could very well have hyperparathyroidism. Parathyroid hormone in excess "steals" calcium from the bones and makes it high in the blood. Your endocrinologist could run a parathyroid hormone level on you. A bone specialist is sometimes hard to find. Often they are Drs active in research. You may be able to track one down thru your University Hospital system. They are not orthopedists, they deal with bone metabolic disorders. If you do have hyperparathyroidism, it can cause kidney stones as well, so good to find out to prevent that as well.

 
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Old 10-23-2012, 02:16 PM   #6
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Re: Osteoporosis - search for secondary cause

Great suggestion. Made an appointment w/the Director of an Osteoporosis & Metabolic Bone Disorder Clinic at a local university. Really hoping that it might lead to an answer. I was actually already evaluated at the same university by a genetics expert for Osteogenesis Imperfecta but never referred to the osteoporosis clinic. Good thing I discovered this Board!

 
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Old 10-23-2012, 04:38 PM   #7
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Re: Osteoporosis - search for secondary cause

I am so glad you found the type of Dr you need. This will be fruitful, I have no doubt. Please follow up with us when you get some test results and answers. I hope the cause turns out to be something easily treatable!

 
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Old 12-19-2012, 08:09 AM   #8
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Re: Osteoporosis - search for secondary cause

can anyone explain what is Osteoporosis and how it is caused?

 
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Old 01-07-2013, 04:59 PM   #9
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Re: Osteoporosis - search for secondary cause

Hi -Do you have siblings or any other relatives who have Osteoporosis? I also have Osteoporosis and learned this accidentally when I had a CT scan for another reason. Both my mother and Aunt had hip fractures at an early age.When I researched this disease, I learned that it is prevalent in some families. Taking Fosamax has helped me maintain the bone density, but now "they" recommend taking it only for 3 years.(I took it for 15 years before I learned that!!!) I have not had a fracture, and I exercise regularly to try to keep my bones strong. I think the Fosamax helped my bone density, but I have no way of knowing for sure.
In my opinion exercise is your best option. Good luck! Mabent

 
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Old 01-09-2013, 01:22 PM   #10
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Re: Osteoporosis - search for secondary cause

Quote:
Originally Posted by no34evr View Post
well due to the infertility did you take any hormone meds? what are meds have you taken? I take Prolia for osteo its a twice a year inj supposed to have the least side effects, no problems so far knock on wood! Cathy

 
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