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Old 09-01-2004, 02:42 PM   #1
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Migraine/cluster headaches

Are there others on the board who have migraine or cluster headaches as their chronic pain? I would like to find out how different people deal with this problem. Thank you for any replies. Star

 
Old 09-01-2004, 08:47 PM   #2
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Re: Migraine/cluster headaches

Quite a few of us do suffer from them myself included.
Mine wax and wane, fortunately for the last few years they are no where near as bad as they were years ago. At one time I'd have them daily for months on end. I was on maintenance drugs, ie blood pressure medications, they didn't help a whole lot overall so I went off them and instead learned to avoid the things that set off the migraines such as MSG, cheap cologne (though you can't avoid it when someone else wears it that you can't get away from), anything that has fermentation in it such as strong cheese, red wine (white wine is ok), sausage and a few other things.

At the onset of a migraine or cluster I will drink a cup of strong black coffee and take to Excedrine Migraine, the combination of the caffiene and aspirin help to open the blood vessels and therefor sometimes alleviate the problem. I will generally lay down in a cold quiet room and make sure everyone in the house keeps their voices and the tv down. On a rare occasion if the migraine is started by an allergy I will take an allergy pill instead then go through the aspirin/coffee combo before moving on.

When that combo fails I will take prescription medication (name escapes me atm but it's a quick dissolve pill and one of the newer ones). If the med isn't working within 2 hours I take another, if it has failed after that I will take a break through medication, generally by then it is gone.

Sometimes all the above methods fail and I have to go to the ER, usually once a year where they first use a siezure medication then benadryl to combat the goofy side effects such as feeling like my skin is inside out, then a shot of demmoral. For the most part that kills it, if that still doesn't work another demmoral shot usually does the trick.

One of the gals here did talk about a medication that you spray through the nose that seemed to help her migraines but the name escapes me, I am sure if you search this particular forum you will find out what it is called and what it does. I do think she said it was not a long term solution.

Overall preventing a migraine really is the best be it preventative medications or knowing what triggers the migraine or a combo of both.

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Old 09-02-2004, 05:35 AM   #3
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Re: Migraine/cluster headaches

Migrainal is a nose spray migraine medication. I have used it and I didn't find it any better than Imitrex, Relpan or all of the numerous other meds. The one positive is that you won't throw it up!

 
Old 09-02-2004, 06:59 AM   #4
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Re: Migraine/cluster headaches

That is a good thing, not throwing up. I can't take Imatrex at all it slows if not stops my heart and I black out. I used to do the self injections some many years ago and had to stop totally which is why when mine are at their worst that I have to go to an ER.
I've never tried the Migrainal, I'll have to check into it. The one that Sherry posted (I think that's who it was) was actually a different medication I believe to be used for something other than a migraine, I'll have to search for it

 
Old 09-02-2004, 02:27 PM   #5
 
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Re: Migraine/cluster headaches

I feel for you. I used to have migraine/cluster headaches that were being induced from a severe hormone imbalance. When my hormone levels came back to normal the migraines disappeared.

Good luck.

 
Old 09-02-2004, 04:49 PM   #6
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Re: Migraine/cluster headaches

Thank you all for replying. I have had migraine/cluster headaches since I was 14. I am 48. I have suffered with them for so many, many yearsbefore there were any treatments. I have tried about every preventitive there is and I am careful with the food triggers. Zomig helps me sometimes, but then, sometimes it just does not have any effect on my headache at all. I have been to neurologists, headache specialists, you name it. All kinds of tests done over the years and still there is no real answer. I have a headache almost all the time with pain spiking up several times a week for hours or days. Right now I am on Verapamil daily as well as Zoloft for the depression that the pain brings with it. I also take 4 10 mg. Lortab per day to dull the ache. It is the only thing that lets me live a fairly normal life. I am aware of the rebound effect, but have tried not taking meds for months at a time and the only difference is that I am in daily pain. I have liver tests every 6 months to make sure it is not hurting me in that way. Do any of you have advice on pain medication that might be more effective and not as many potential side effects? I have tried oxycontin and it worked wonderfully for me, but trying to quit was horrible. I would appreciate any thoughts. Thanks for listening. Star

 
Old 09-02-2004, 05:07 PM   #7
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Re: Migraine/cluster headaches

I suffer from migraines also. I'll get one every 2 or 3 months. The only thing that works on mine is a shot of demerol with gravol. If I don't go and get a shot the headache will last for days and days. I've tried daily maintenace meds and none worked. I can't remember the names but one dissolved on your tongue and it was orange. The nasal spray Kissa mentioned is Stadol NS. I'm going to check into that one if I ever get off the opiates. You can't take the stadol if you are one opiates though. I can't imagine having a migraine every day all day long!! Maybe check into the stadol and see if that could possibly help you.
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Crohn's disease, scoliosis, chronic myofascial pain, migraines, Osteoporosis, Trigeminal Neuralgia.

 
Old 09-02-2004, 08:17 PM   #8
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Re: Migraine/cluster headaches

I suffer from migraines like 8 a month and 8 cluster headaches a day, year round. I have been chronic for the last 6 years. The last year I was on duragesic patch and have found relief with that. I know of several others who have found relief with this method as well. I basically tried over 35 different meds to prevent my ha and let the dr/neuros use me as a lab rat to try to prevent them. Finally due to feeling so suicidal over the whole thing and not being able to work due to them and having a nervous breakdown because of them I was put on pain management to give me a quality of life back. That it did!!!!

 
Old 09-02-2004, 08:19 PM   #9
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Re: Migraine/cluster headaches

Have you tried oxygen to abort a cluster headache? Or maybe a lithium/verapamil combo and seperate. Predisone is great for breaking up cycles for eposodic sufferers. Imitrix and zomig nasal sprays are now almost as fast acting as imitrix injection and can abort a ha in 6-15 min. They are wonderful for killing the intense pain of clusters.

 
Old 09-06-2004, 06:04 PM   #10
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Re: Migraine/cluster headaches

Hi, Over the last 25 years I too have tried, unsuccessfully, all of the preventative meds. I also can't use Imatrix because of the side effects (heart type). For about 4 years I used the Stadol nasal spray for the daily migraines and monthly cluster headaches, and that was great until the headaches became so severe that it wan't strong enough. Since 1995, I have been taking extended release morphine sulfate for baseline pain and dilaudid for breakthrough pain. I have gotten my life back ( for joy). Although I am still permanently disabled I am no longer an invalid. Anyone who suffers from unrelenting severe intractable pain should consider opiate treatment for palliative care.
Regards
Granny D

 
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