Pelvic Pain. - Pain Management Message Board

ruko4 · 10-26-2004, 10:42 AM

Hi everyone it is me again, ruko. And I have had alot of tests done including cat scans , mri's, ultrasounds, cystoscopy, numerous blood and urine samples, semen samples, and many mores tests. Also we tried all sorts of other drugs before starting the opoid pain killers in an attempt to help me live a some what normal life. I have seen 5 different Urologists all saying that they can't find anything and that I do not have cancer. Most just call my condition Chronic Pelvic Pain which basically means they are not sure. I have also seen a Gastrointestinal doc who does not know either. So now I see a pain specialist so it is nto like I have not been through all of the tests first before being referred to a pain specialist. And I do understand that I am on Narcotics and that they are addictive but at this point I have no choice if I want to live SOME WHAT normal again. I do hope that some day I won't have to take meds and the doc's can find a diagnosis and be able to cure it but until then I will pick the med's and the masking of the pain over the pain any day!! Thanks you guys for your input I do apreciate it, and I hope to hear back from you guys again, have a good day.

twisten · 10-26-2004, 10:53 AM

Hi Ruko. Sorry to hear you're having so much trouble getting a diagnosis. The only suggestion I have is to ask if you've had any abdominal surgeries? I'm thinking if you have that it may be scar tissue causing the pain. Again only a theory. I sure hope you find something out soon but I'm glad they are at least treating your pain.

LOVEQ · 10-26-2004, 01:03 PM

Ruko:

Have the tested you for Interstital Cystitis????

If not look it up and see if this is you???

Pikkaso1980 · 10-26-2004, 01:44 PM

Ruk,
I feel ya! i feel ya all to well. I have some gret info for you, but i don't know if we can add websites to this? I have had the same thing, and have tried everything just as you. But remember this my dear friend, Always Always remember we are here for you, and there is always hope.

LouiseM · 11-13-2004, 08:20 PM

Endometriosis? You will need surgery to find out for sure if you have it. Have you had a lap done?