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Old 01-23-2005, 09:36 PM   #1
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beckyf HB User
Tired of the pain

Hi to everyone on this board. I have been reading the posts daily and finally decided to reply. I was a RN who loved my job. I am now 49 years old and went to nursing school when I was 35 and finishing when I was 39. It was my dream of becoming a nurse since I was a little girl. When my oldest daughter, who is now a dentist, was a freshmen in high school and my baby daughter was starting first grade(she is now 20), my husband felt it was my time. I was only able to nurse for 8 short years when a nightmare happened to me.

I had fallen over my dog and hurt my shoulder. I had cortizone injections, did some home PT, took pain pills and muscle relaxers and after 3 months it was much better. I had an MRI/ARTHOGRAM that was completely normal except for a very small bone spur on the acromion. I was doctoring with an ortho doc and his PA. After going to see them during those 3 months, I was doing fine and had full range of motion in my shoulder.

Two months later I ran into the ortho doc and he asked me how my shoulder was in the hallway where I worked. I said 90% better and really no problems. He said We'll we really had better take that bone spur off because it can cause problems and if you lost the use of your arm you won't be able to nurse again. At first I was like no way. I'm not having problems anymore. Then I would lay in bed and think Oh My God!! I worked so hard to be a nurse and loved it so much I felt I had better do it.

Big, Big, Big mistake!!! The day before I called and said I thought I would have to cancel but his assistant talked me back into it. She said you will be out of the hospital by noon and back to work on Monday. The surgery was for Friday. My youngest daughter had surgery 6 days before and I knew I needed the use of my arms. I told the doctor 3 times that under no circumstances could he cut me open if he found something else. I was only having a scope. He promised he would just take the scope and remove the bone spur.

I woke up to a very large bandage on and a 6 inch incision on my shoulder. I won'[t go into all the rest of the details but the nightmare is that I have lost all use of my left arm/shoulder. I am 100% disability and I will never work as a nurse again. It has been three long and trying years.

I go to my ortho doc, regular GP and a pain specialist. I was going to have an ablation done to the damaged nerves in the shoulder but my ortho didn't like that idea. I am looking into a spinal stimulator but not real happy about that. I take 5 oxycodone four times a day and get about 50-60% pain relief from it. I was on a Duragesic patch also but went off it 5 months ago. I was just too tired and lethargic on it. I have tried all kinds of pain meds and this is the best so far.

My shoulder dislocates frequently and that requires a trip to the ER to have it put back into place. Then its demerol and versed for conscious sedation. The nurse in me hates taking these drugs and the situation I'm in but I learned to accept that a year ago thanks to my wonderful doctors and my adoring family.

Anyone with thoughts on the spinal stimulator would be wonderful. I also take Zanaflex. Elavil and Ambien to sleep sometimes. I have slept in the recliner since the surgery. I have had a total of 4 surgeries on it but it is unrepairable. I do physical therapy as needed. I have 3 great therapists who help me with pain.

Thanks for letting me blow off steam. I welcome any suggestions.

 
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Old 01-30-2005, 11:43 PM   #2
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fibrolady HB User
Re: Tired of the pain

Did you sue that Doctor? I hope so. What kind of surgery did he do on you? I am so sorry for you. Seems like you did and said all the right things. This was done to you, you didn't cause the problem, so take anything and everything on the market that might provide you with pain relief or motion. You will have to experiment and there's something new available to us chronic pain sufferers every year. By the way, I sleep in a recliner, too. It just seems more comfortable.

 
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Old 01-31-2005, 04:37 AM   #3
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Re: Tired of the pain

beckyf that is a horrible story and I feel so bad for you. Being denied what you love to do because of the obstanance of a DR. is really sad.

I am in the same boat as you in terms of you surgery. In diagnosing my upper back and shoulder pain I had a MRI and xrays that showed a small bone spur on my Acromion. My Ortho Surgeon was somewhat confident that having an Acromioplasty would help me so I went ahead with it. I was really hoping they would find something bigger and gave him the option to go after it if he saw fit.

When he got into my shoulder (scope) he really saw nothing wrong other than a "tiny" bone spure so he went ahead and did the Acromioplasty. I was fine with that. It was only after a post op appointment that I became enraged. This Dr. had that audacity to tell me that he felt the surgery was a "long shot" and that he "didnt think it would help me" and "it gave him a chance to practice his technique". Keep in mind that before the surgery he was confident it would help me. I am now suffering from the trauma of the surgery and feel that my situation is only worse.

His comments caught me so off gaurd I didnt know what to say at the time. I plan to write him a letter expressing my concerns. Im not sure what good it will do other that to act as some therapy for myself.

In your situation I would look at two paths. One, I would get a new doctor to see if there is something they can do to help. There has to be at least some way to stabilize your shoulder so that it doesnt dislocate so easily. I would also look at doing some pain intervention techniques like injections to help curb the pain. Two, I would think about getting a lawyer. If you expressly told this Dr. the limitations to this surgery and he didnt object or express a counter opinion at the time then he is in the wrong. After he was in your shoulder did he discuss the need to completely cut you open with your significant other or whom ever would have the authority to make such a decision? I would seriously look at this since this Dr. overstepped his authority and caused you further damage and harm.

Good luck to you and I pray that you can find the answers you need.
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2 Lumbar Lamies 93 (age 22); Cervical Fusion C4-C6 2004. Lumbar Fusion w/ hardware S1-L4 2007, DDD & stenosis entire spine. super low T. 30mg Methadone BID 10-20mg Norco 4 BT. 2mg Xanax PRN.

 
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Old 01-31-2005, 08:24 AM   #4
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Thanks For The Replies

Thank you to those that replied to my post. I do have a medical malpractice lawsuit against the doctor who did this to me. I have a trial date in July. Med mal lawsuits are extremely emotional and exhausting. Plus very expensive. It cost over 50,000 to 100,000 dollars to fight this doctor. One of the problems is he has over 15 medical malpractice lawsuits at this time. I don't know how the medical system lets him practice.

I was only to have a bone spur removed and be back to work in 3 days. I told him at least 3-4 times before the scope that if he indeed found something else I was only there for a scope and not under any circumstances could he cut me open. He promised he wouldn't. I only signed the permit for a scope. He did go out and talk to my husband but said I am in there and found a tear and should go ahead and fix it. Since he said he was already in there my husband thought he meant with the scope. He didn't say he had to cut me open or any other risks. My husband to this day is so angry at him that he was lied to. Plus when we got the medical records during the scope he took 4 pictures and they are of normal rotator cuff. No one else in surgery with him saw the tear on the screen. Most of the expert witnesses are pretty sure that he caused the tear when using the scope. That is why he couldn't take pictures because it wouldn't have shown unhealthy tissue around where the tear was suppose to be.

The funny thing about the whole deal was that my shoulder was just fine before I had the surgery. The only reason I agreed to it was I saw him one day at the hospital where I worked and he asked me how my shoulder was. I told him 90% better and that I had full range of motion in it. I could fix my hair(LOL) and change lightbulbs or do anything I wanted. He said we'll we really need to take that bone spur off because it could cause you problems and if something happened you would never work as a nurse again.

The other problem I had was his assistant took my staples out 6 days later. We told her the wound looked pretty red and she said it was fine. Nurses make the worst patients because they know too much. On the way home my incision leaks for hours. I called back when I got home and they said it was fine. It was just the fluid leaking out that they put in during surgery. The next day it was very red and looked like it was going to split open. I called again and they put my on Keflex. Two days later after many phone calls to them my incison split open. They told me to come down the next day and the doctor would look at it. They did an I and D and said it was just a hematoma. Even though I was ruuning a temp they didn't get cultures or any lab work to see if I had an infection. I found out later that this doctors infection rate is sky high.

Then he didn't order physical theraphy for 7 weeks. I had four sessions with PT and of course my shoulder was frozen. He said I had to have an manipulation under anesthesia. He charted that I was very tight and it was a very difficult procedure. I think that is when the whole thing just shredded. I have found out later that PT should be ordered immediately after surgery and a manipulation should never be done to at least 3-6 months after a RTC repair. By the time I got a second opinion the 2nd doctor tried to do a repair but he said it looked like shredded pork and it would be like sewing jello to jello.

I have had many nerve blocks, e-stimulation(which caused my shoulder to spasm) to many, many medications. Right now I take 6 oxycodones four times a day. This has been so far the best relief I've had. I kinow short acting meds aren't the best but after being on so many it really is the one that works. I also take motrin four times a day, Zanaflex prn, Elavil at bedtime, and Ambien to get at least 3-4 hours of sleep. I still after 3 years sleep in the recliner.

I feel so bad for some of people on this board as there pain seems to be unbearable. Esp. those of you with back problems. I never had a back problem in my life until this shoulder situation. My left shoulder droops so bad that it causes pain in my neck and upper back.. I still take PT to help with that and wear a sully brace to keep the shoulder in place.

I can't have a shoulder replacement because you have to have at least one rotator cuff and the deltoid stable to do it. He didn't reattach my deltoid so it is dead muscle. I was going to have a lattisamus dorsi transplant but it was ruled out because I need to have a least a little bit of RTC to do it. I have exhausted all my options. I have been to many, many specalists and no one can help me. They all tell me the same thing that it is unrepairable and I just need pain management and continues physical therapy that is pallative only.

Thanks for those of you who read my post. I know it is way too long.. It does make me feel better to release my anger against this doctor that ruined my life. I didn't go to nursing school till I was 35 and didn't practice till I was 39. It makes me so mad that I drove 120 miles every day for four years and left my family to fend for themselves while I followed my dream and in one hour of time this doctor took it all away from me. It just isn't fair!

 
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Old 02-03-2005, 07:02 PM   #5
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hinjibub HB User
Re: Tired of the pain

Im sorry. I have a simliar story, but myne revolves around my brain and my eyes.. Its hard isnt it. I know nothing I can say will change your situation. However, unlike, i am positive, nearly ALL doctors and most people, I do have an insight into your pain and how it effects you every second of the day. its something we can only understand by experiencing it, and even then, after experiencing it, I still dont understand it.
All i am trying to say is..... hello, i hear you.

 
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