Hi Mom of 4:
Sounds to me as though you have had a couple bad experiences with PMD's. Tolerence does build, especially after two years of use. I would think that out of all people, pain management specialits would understand this. Also, I would be leery to take the maximum dose of APAP on a daily basis as if it were a LA med-- it's just not healthy.
Also, keep in mind, most MD's will NEED a dx in order to get you the relief you need for your pain. I was going to say to go with the suggestion of fibro, however, it sounds as though the guy was such an idiot, I wouldn't go back to him either!! I can understand you wanting to find out what the Real Cause of your pain is. What have other doctors diagnosed you with?
I think you have every right to participate in your care, and if you don't have a PMD that you see eye to eye with, find another one. In the mean time, maybe you can get some medication from your GP to tide you over, while you consult with other PMD's to see if you can work with them. You shouldn't have to suffer. BTW-- how is the pain since you weaned yourself off the oxy? Are you currently on the methatdone, or the hydros, or nothing?
God Bless. We look forward to hearing from you.
Regards,
CDad