Calling all Topamax Users (topiramate) - Pain Management Message Board

Blasterboy · 03-06-2006, 11:25 AM

Hi there, I've been on this med now for 4 weeks to treat my post surgery nerve damage to my Intercostal Nerve along the Diaphragm. I adapted to it so well that I skipped the slow titration and was on the 100mg a day dose within 2 weeks. Anyhow it seems to have helped my pain the best out of the spread of this type of meds I've tried, which include Neurotin, Lyrica, Tegrotol and Sodium Valpoarate. I'm even losing weight on the Topamax; it seems too good to be true. The only bad side effect if the inability to do sums in my head.

I've cut my dose of Klonpin from 3.5mg a day to 2mg also and hope to start reducing the Oxy. I'm also wondering if it's possible to go on a higher dose that 100mg of Tomopax. Have many others been on much more?

I'm seeing my PM doc on Wednesday and would like to request a higher dose, so I'm really interested in everyone’s stories and experiences of Topomax. Please post them.

curiousforever · 03-06-2006, 01:42 PM

Interesting.

I'm glad it is working for you. I have peripheral neuropathy and was put on that. It actually made the nerve pain worse - and it made my feet feel like bees were stinging them (pins and needles - but very painful).

The 2nd neuro said that it makes nerve pain worse.

friendly_one · 03-06-2006, 01:57 PM

Hi Blaster...I was only on it for 2 weeks a few years ago. I'm one of those patients that needs to know everything about a med when I start one. So, I looked it up on the Internet, good thing I did. It can cause kidney stones, which is my problem!! I don't need any help in that department, thank you! So, I went off of it ASAP. My experience was only brief. Sorry I wasn't much help.

Blasterboy · 03-06-2006, 03:26 PM

Anyone been on a dose over 100mg?

April414 · 03-06-2006, 08:55 PM

I can't remember what my dose was, with hpw long ago it's been plus my fibro fog plus the way my poor brain has had to deal with pain meds. I was on it for about 2 years. I took it for migraine prevention and it helped a lot. I devoloped the pins and needles in my hands and feet and in/on the top of my head, also the way my mind was acting/reacting I thought maybe I had had a small stroke. My dr. told me that Topamax can affect some peoples minds that way. The pain from the pins and needles made me stop taking it and now take Gabitril instead, for about a year and so far no problems.