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Old 03-12-2006, 11:41 PM   #1
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Severe Pain-getting worse

I am getting worse. My hips are very painful, especially on the right side, making it more and more difficult to walk. My whole back is just a mess of pain with sciatica thrown in for good measure.

The 30mg Roxi's work great, but the 100 mcg patch is ineffective. I have ordered the actual brand name patch for my new script. I know that the Sandoz patches that I use are mfg by the same company that makes Duragesic, but I have to grasp at straws at this point.

Problem is, once the Roxi's wear off, I go back to anywhere from 8 to 10 from the 4-6 I get from them.

And my left hand is so stiff and painful. I've got to be able to play lead guitar by Memorial Day!

Alan

 
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Old 03-14-2006, 12:54 PM   #2
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Shoreline HB UserShoreline HB UserShoreline HB UserShoreline HB UserShoreline HB UserShoreline HB UserShoreline HB UserShoreline HB User
Re: Severe Pain-getting worse

Hey Alan, I can't recall te othe meds and doses you have tried, But yu ask about a ump and if this doc is offering a pump, I wouldn't have any reason t believe he would manage a pump any better than he's managing oral meds. You certainly have room with Duragesic if if the side effects aren't lmiting you. I know we have talked about this, befoe but if a doc won't agressively manage your pain with oral meds, I doubt he's going to be more agressive with intrathecal meds. I think it's time to get that list from medtronics and consult with some pump docs that practice PM. They may be more than willing to work wit the oral meds before doing a pump if they think the orals haven't been given a fair shot. I wouldn't let someone that's uncomfortable with my oral meds manage my intrathecal meds. Opiates are opiates. Your going toget a speach about how IT meds are 100 times more potent so the 1 microgram per hour he has the pump set on is equivelent to the 100ugh patch. You have more receptors In your spine so you should be getting even better relief. IF YOU CAN MAGIN YOUR PRESENT DOC SAYING THAT, FIND A NEW DOC.
A doc can be a jerk about adjusting a pump too. I know one lady that took 5 different docs to finally get to a level that managed her pain and she's doing very well now. If Doc 1 will only go to 2 mgs of morphine a day and Doc 2 won't go above 5, Doc 3 won't go above 8, etc etc. why put a pump in and leave you in pain? Getting another doc to take over your pump is even harder than changing PM docs when all you needed was oral meds. Her dose isn't outragous, it's actually within a couple mgs of mine.

Sorry to hear things are still so bad.
Take care, Dave

Last edited by Shoreline; 03-14-2006 at 01:02 PM.

 
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Old 03-14-2006, 11:48 PM   #3
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Re: Severe Pain-getting worse

Dave, you make perfect sense. If he can't handle oral meds to my satisfaction, why should I expect him to do the right thing with the pump.

I really feel bummed out because my pain is getting worse and it is wearing me down.

Thanks for the reply!

Alan

 
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