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Old 06-29-2006, 12:09 AM   #1
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What pain killer cocktail do you take?

Im sure the members of this board go some ways to keeping the pain killing section of the medical industry going so I was wondering what you take.

Particularly im interested in over the counter stuff that anybody can buy but also what prescribed drugs work for you to alleive the pain.

I generally take 2 panadeine fort and 2 neurofen at the same time. It does ease the pain a bit but I dont think it goes far enough in the anti inflamatory side.

Id be interested in hearing what works for you so I can do some research and maybe ask my doctor about them.

Cheers
Jason

 
Old 06-29-2006, 04:42 AM   #2
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Re: What pain killer cocktail do you take?

Each person's medication list will vary of course often by what type of doctor they see and the level of your pain and if it's just limited to the back or other area's of their bodies. What may work for one person will not work for the best.

Overall if you suffer from chronic pain on a dialy basis the best thing to do is see a Pain Management Specialist who is generally an Anethesiologist but sometimes can be a Nuerologist. The reason to seek out a PM is primarily because they fall under a whole different set of laws when it comes to the DEA and controlled medications and this of course varies from state to state.

Many regular doctors and particulary surgeons are not too keen on prescribing anything much stronger than Ultram, which works fine for some folks. But when you start getting involved with scheduled narcotics and long term or life time pain control most doctors will run from that because of the great fear of addiction and lack of education. The truth is, those who suffer from chronic pain rarely to never become addicted to medication. Studies show that number to be from 1 - 3% overall.

Dependancy does occur as our bodies adjust to certain levels of medication and withdrawals can occur if suddenly stopped. One can say the same thing about sleep medication, anti-depressants, anxiety medication etc. Anything you take on a dialy basis (even caffiene) can have a dependance level to it but it doesn't mean addiction.

Addiction is defined by the desire to use medications for purposes other than they were designed to such as getting high, taking more pills than prescribed and can cause altered personalities and lifestyles. When the goal is no longer to stop the pain but instead to find that high, that's considered addiction.

Additionally a good PM will offer a full line of services or suggest them to you such as physical therapy, massage therapy, TENs Units, various creams or Lidoderm Patches, meditation, imagry and the like. It's important to have as many tools in your toolbox when it comes to controlling pain instead of just relying on Pain meds and muscle relaxants. The overall goal of PM is a 50 - 80% reduction.

A 100% reduction is unrealistic, especially for chronic pain because at some point your body will adjust to your medications and you'll need increases, overtime you'll find that you will no longer be able to obtain that 100% relief. The goal is to give the patient the maximum amount of relief with the minimum amount of medication.

With that said, for my back and spine as a whole I take MS Contin for pain, Baclofen for the spasms, Lidoderm patches and Mobic for swelling. I just started on Cymbalta for anxiety/depression and am finding some mild relief from nerve pain that have I have in my c-spine as well. I also do meditation and sometimes will use my TENS unti (it works for some pains but not all pains). I also have other medical conditions that cause severe pain and have been seeing a PM for over 2 years and have been treated for pain since a young child.

You might want to stop by the Pain Management board. A vast majority of the individuals there have back conditions, many have had surgery, and can certainly enlighten you on what may have worked or is working for them. But again, bear in mind, it will vary from person to person.

Barbie

Last edited by Kissa; 06-29-2006 at 04:43 AM.

 
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Old 06-29-2006, 05:08 AM   #3
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Re: What pain killer cocktail do you take?

I realise what works for some wont work for others but I am still wondering what people take for their pain. I dont mind if people on list over the counter stuff but was wondering what other drugs they have tried and succeeded with as I can goolge them and learn, and then mention something to my doc so he can look into it.

 
Old 06-29-2006, 06:37 AM   #4
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Re: What pain killer cocktail do you take?

Hi,

I have tried so many things I cant remember all of them but here are some:

OTC Ibuprofen - helps me for headaches, minor aches & pains but doesn't do too much in relieving my lupus flares, osteoarthritis and spine pains
OTC Tylenol & OTC Aleve - only good for headaches for me
OTC Aspirin - does nothing for me at all
OTC Orudis(ketoprofen) - only helped slightly but I took way over the recommended dosages <slappin self on hand>
Magnets - yes I felt like an idiot with all these magnets all over me but I was soo desperate I tried anything. Needless to say, didnt do anything for me.
OTC Glucosamine & Chondroitin - I took it for a year but didnt feel or see any difference. My father takes it for very mild joint aches and he says it helps him. But then again he can pop one Aleve and be totally fine after that.
OTC Ointments - like Ben Gay & every other brand out there - I might have just as well rubbed some moth balls over myself, what a joke.
Bextra - loved this one, it helped me ALOT but of course then it was taken off the market
Celebrex - ehh, worked a little for me, but not any where near as well as Bextra
Elavil - stil taking a very low dose of this. Its an anti-depressant but in low doses is supposed to help for pain & sleep. It does zonk me out like a light bulb every night, but does nothing for my pain.
SKelaxin - for muscle spasms but did nothing for me
Flexeril - for muscles spasms, not sure if it helped but the direx said it usually takes at least 3 days to build up & start working
Heating Pads - wonderfullllllllllllll for muscles spasms! I think this works better than any drug for spasms. Use moist heat & it feels great. I used a heating pad along with Flexeril & personally the heating pad helped more.
OTC Thermocare Heat Wraps/Pad - these work wonders too, great to keep stuck on or wrapped around your back (or other parts) after you get a spasm more under control. You can wear them up to 8 hours & they have some stuff inside that heats up when it hits the air. I got ones for the back that can wrapped around like a belt & stuck together. Can be worn under the clothing no problem.
Percocet - when my back pain first started and was mild, it helped a wee bit
Darvocet - same thing, didnt help much but my pain was worsening when I took this
Vicodin - was just recently taking. Helped a little bit with my joints and my spine pain, better than the other stuff. But I had to stop taking it because I had tons of bruises all over me from it.
Lumbar Spinal Epidural Steroid Injections - Helped pretty well the first shot but didnt get rid of the pain in my thighs & rear.I had 3 shots over 6 weeks. One month after the last shot, it wore off & i was run over by freight train by a flare. But I know others who did these shots & had no more pain
again.
Medrol Dose Pack - worked great the first 2 days, then I felt everything coming back as the dose tapered each day ( i think this was a 6 day dose). THen I got another horrible flare.
Oral Prednisone - this is a miracle drug for me, but because it can cause so many problems down the road it's not good to stay on this too long if you dont need to. I havent been on this while my back is excruciating, so Im not sure how much it would help my back pain but it made every ache in my body go away (even ones i didnt realize i had)
Acuflex - just tried this one, It has 625mg acetominophen and some other tongue-twisting thing-a-ma-jig in it. Didnt help me much since I get alot of inflammation & tylenol doesnt do anythign for inflammation.
Lidoderm Patches - these worked great for about a month for me, until I did too much and ended up with some horrible disc herniations & tears.

Anyway, that is part of cocktail i've tried over the years. Personally im wondering if a Long Island Iced Tea might be the best working cocktail? <har har>

 
Old 06-29-2006, 12:07 PM   #5
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Re: What pain killer cocktail do you take?

Oral Prednisone - this is a miracle drug for me, but because it can cause so many problems down the road it's not good to stay on this too long if you dont need to. I havent been on this while my back is excruciating, so Im not sure how much it would help my back pain but it made every ache in my body go away (even ones i didnt realize i had)



If you are like me, it will have much less of an effect than a simple subcutaneous injection. The injection makes a HUGE difference.

I guess I'm a "mild example" here, but I take Naproxin pretty religiously, combined with 800mg Ibuprofen. I'll throw in a vicodin as-needed, but rarely, these days.

 
Old 06-29-2006, 12:14 PM   #6
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Re: What pain killer cocktail do you take?

Quote:
Originally Posted by woodworker
Oral Prednisone - this is a miracle drug for me, but because it can cause so many problems down the road it's not good to stay on this too long if you dont need to. I havent been on this while my back is excruciating, so Im not sure how much it would help my back pain but it made every ache in my body go away (even ones i didnt realize i had)



If you are like me, it will have much less of an effect than a simple subcutaneous injection. The injection makes a HUGE difference.

I guess I'm a "mild example" here, but I take Naproxin pretty religiously, combined with 800mg Ibuprofen. I'll throw in a vicodin as-needed, but rarely, these days.
Wood, I have had epidural injections, which did help alot, but now they've worn off after a month. And I already had my 3 shots over 6 weeks.

 
Old 06-29-2006, 12:55 PM   #7
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Re: What pain killer cocktail do you take?

I was first Dx in Sept. 05 with herniated disc Dr prescribed skelaxin.naproxin, and loratab. These helped I also had steriod injections one in Sept. one Oct. and the last one in Dec. As you can see these didn't help for long periods. Dr. scheduled me for Lumbar Disectomy in Feb. 06 Came home with loratab and OTC naproxin. Was working great,very little pain. Then I reherniated the same disc March 06 worse than before. Dr. scheduled a PLIF for May 4 but had to change to June1 due to insurance screw up. During this time I was only taking the left over loratab from surgery and OTC naproxin. So I guess it depends on how much pain you are willing to tolerate to keep from taking pain meds.

 
Old 06-29-2006, 05:45 PM   #8
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Re: What pain killer cocktail do you take?

Thanks for the replies.

The most interesting items to me so far are the heating pads and thermocare heat wraps/pads and naproxin.

Now I know naproxin is used in place of ibuprofen. I had assumed naproxin did about the same job as ibuprofen, is this a correct assumption or has naprxen worked for some where ibuprofen hasnt?

The heat pads are definately interesting. Especially the wrap around one you can walk around with. Heat always seems to help my back spasm best. Once after a bad spasm I could hardly stand up. I hopped in as hot a bath as I could stand. When I got out I fainted but my back was better.

Are the heat pads you mention pads you lay on your bed etc and lay on them? Also, the wrap around ones you can walk around with, where do you get them? Im in Australia so not sure where you guys get them.

Cheers for assistance.
Jason

 
Old 06-29-2006, 11:44 PM   #9
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Re: What pain killer cocktail do you take?

Best bet is to visit the pain management board.

Personally, I use a 100 mcg Fentanyl patch with 30 mg Roxicodone for bt

 
Old 06-30-2006, 06:51 AM   #10
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Re: What pain killer cocktail do you take?

Hi again Knight,

Naproxen and ibuprofen are both anti-inflammatories. But you never know which ones might help you unless you try them. Orudis (Ketoprofen) is another one that's OTC in the U.S. Sorry, I didnt know you are in Australia so Im not sure if they carry some of these things there.

Again, heat just seems to work better than anything for spasms. I have a small (maybe 8" x 12") moist heating pad that I can heat up in the microwave but it only stays warm about an hour, then I have to re-heat it. Though from what I've read any sized moist heating pad works the best. Here you can get some that are the size of a whole chair, but they usually have to be plugged in.

Therma-Care heat wraps come in a red box in any drug store around where I am. Wal-Mart most likely carries them too. Do you have a Wal-Mart in Australia? IF so you might want to check in their pharmacy department. The wraps have some stuff built inside them that get activated by air & actually give off heat. It may not be as hot as some regular heating pads, but it's great to use after you get a spasm under somewhat of control. Then you can just put this on your back (or whereever) and wrap it around your waist, kind of like a belt. It's made out of what likes like a sturdy gauzy material (or maybe thin cotton). The heating elements are inside a larger area in the center. Then on each side are straps which are about 3 inches wide and you just wrap it around your waist and stick one end to the other (it does not have actual velcro on it, but somehow it sticks together anyway). It's VERY thin and fits great under your pants & clothes. No one would really be able to tell you have it on. Here they also make these specifically for over the knee, the elbow, and a few other areas. If you can find these somewhere by you, its a big help!!

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Hope this helps you!

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Old 06-30-2006, 12:31 PM   #11
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Re: What pain killer cocktail do you take?

As the previous posters have stated, what works for some may not work for others. Also as stated before, different doctors take different measures in treating pain.

My pm doctor is also a neurologist which I hope with prove to be beneficial since part of my problems include nerve damage. (Saphenous neuropathy)

The following are things that have worked for me in the past:
1. TENS unit (doesn't always make the pain go away, but does provide a distraction from the pain)
2. Relafen (sp?) is and anti-inflamatory that worked pretty good for me for quite some time
3. Heat/ice/elevation has helped when I get swelling
4. Lidoderm patches actually bring my night time pain levels down to the point where I can sleep without having to take any kind of sleep aid

I've just been referred to a pm doctor and he has started the following regimine for me:
1. Avinza- 30 mgs. once a day (not sure if this works because it's not been delivered to the pharmacy yet)
2. Motrin- 800 mgs. three times a day
3. Lidoderm patches at night
4. Cymbalta- 60 mgs. Once a day. So far, my experience with this has not been so good since it makes me nauseous to the point that I vomit, so we will have to change the dose I think. Once we get the dose worked out, it will take some time for it to build up in my system before we see any results.

At this point, I don't have anything for the BT (which I get pretty much on a daily basis) pain, but that's on my list of questions for my doctor the next time I see him.

These are just a few things that I've tried and/or been prescribed. It's a long proccess, but we all hopefully find what works for us when we are able to work with a good doctor.

Best Wishes-
Lezlee

 
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