It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Pain Management Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 08-02-2006, 12:27 AM   #1
Senior Veteran
(male)
 
Join Date: Jun 2004
Posts: 858
madhatter HB User
Angry anyone,my friend needs help bad!!!

Hi group! This is concerning a very good friend of mine.He has had disc replacement in his neck,and he also has D.D.D very bad in 9 other discs.He is currently taking lortab 7.5 for over a yr.Just the other day,he went to lay on his bed,he flopped down pretty hard,and all of a sudden,he couldn't move for a good 20 min. When he was finally able to stand,you could actually see the disc in his neck buldging,and swelled up like a softball! First off,why would he be on lortab[only] for so long,the doc. knowing the tylonol in them,2cd,the poor guy has no insurance! He's on temp. disability,wich he gets under $300 a month.He tried in the past to get medicaid,but they said he makes over the monthly limit[$290] This is discouraging him to find a doc.[no insurance] He has an appointment today with his surgeon,but i told him theres nothing his surgeon can do as far as treating his pain,but he would be able to refere him to pain management,but again,no insurance,he has talked in a jokingly manner about just ending it.Most of us has been in his shoes one time or another,and i'm asking for any advise i can give my friend.The thing that burns my dupa ,is our goverment can spend millions and millions of dollars on these surveys on how much chewing gum,or how much potatoes the average american family consumes a year,or how a state run facility will spend $250 dollars for a hammer,or $300 for a waste paper basket[i know,i worked for the state of NY.] but can't help someone who can't afford insurance,let alone eat and pay rent! Please,any advise would be very helpful.Thanks for listen! Madhatter.

 
Sponsors Lightbulb
   
Old 08-02-2006, 02:30 AM   #2
Senior Veteran
(female)
 
Join Date: Jun 2004
Posts: 558
zoey1 HB User
Re: Very very desperate for your help!

There are many programs designed for those on very restrcited incomes if you look at some of the sticky threads you may see some of the organzations that provide links helps and aid.
If you can you make the calls around to United Way to see if there are any sliding scale clinics in your area. Contact your county health care centers to see if a social worker can be assigned to him to help assit get the on going care he may need. Contact the drug compaines themsevles letter writing does work.
While we do not meet min standards for these programs there are compaines that will work with the doctor on getting meds and or rebate programs too.
Contact one of the big churches in your area ask to speak with a counsoler there and see if there is a agency they can refer you to for more guidelines on getting him the help he needs. There are resources out there and start trying to see which doors may open up for you and your friend.
Sometimes we all need someone to be our hands our voice our advocate especaily when we cannot do it for ourselves. He is very lucky to have you even if at this time he may not be able to express that for himself.
Number one find out what hospitial his surgon did the surgery at and see if they have a patient advocate and if they can assit providing information.

 
Old 08-02-2006, 04:45 AM   #3
Senior Veteran
(male)
 
Join Date: Jun 2004
Posts: 858
madhatter HB User
Re: Very very desperate for your help!

Out of the 23 peaple who read this post,zoey,you are the only one who replied,and i thank you very much! I have chronic back pain,but i'm covered by comp.[thank god,just one of my med. is $ 1600!] We live in such a small town,that the resources aren't available as so in a bigger town or city.Plus,the county we live in is so economically depressed,still,i will pass on the information you suggested.Thanks again-mad.

 
Old 08-02-2006, 06:52 AM   #4
Veteran
(female)
 
Join Date: Jun 2006
Location: GA
Posts: 312
don'tlikecold HB User
Re: Very very desperate for your help!

Hi,

I live in a very small rural town that is also economically depressed. But we have so many agencies that help those in need. If you look in the phone book under Social Service Organizations, you may find one that can help.

Also check your little town's newspaper. We only have a small weekly paper but I noticed that some resources are listed there that aren't in the phone book except under white pages. They probably save money by not being in the yellow pages. Anyhow, one organization we have here is run by volunteers only and they help with medications and medical bills. They work off donations only so they have several fundraisers during the year. Anything is worth a try to help your friend.

Susan

 
Old 08-02-2006, 06:56 AM   #5
Senior Veteran
(male)
 
Join Date: Jun 2003
Posts: 3,483
Shoreline HB UserShoreline HB UserShoreline HB UserShoreline HB UserShoreline HB UserShoreline HB UserShoreline HB UserShoreline HB UserShoreline HB UserShoreline HB UserShoreline HB User
Re: shoreline\anyone,my friend needs help bad!!!

Hey MH, Sorry to hear about your friend, When did they do a disc replacement in his neck? The reason I ask Is because the only aproved disc is about 3 times the size of a cervcile disc and aproved for l4/5 and l5/S1. IF they played guinea pig on him and the disc has slipped out of the plates that hold it in place, he probably has a major law suite if the surgeonis still around and he's still insured.

AS far as being able to see a slipped disc from the back side, it just isn't possible unless they first surrgeon did a total hemi laminectomy removing all the facets including the posterior spinous process. If there is a large bulge, it's more likley muscular or spondyliosis or spondyliothesis because a healthy disc is only about the size of 2 quaters stacked ontop of another wouldn't cause a softball size bulge even if it some how managed to shoot out of the spinal canal past all the vertabrea and present as a large lump. More than likely if a disc is going to move completely out of it's space it's going to take the path of least resistance and move forward impinging his spinal cord.

Vertabrea shifting forward or backwards or completely slipping off one another is called spondyliotopsis would cause a large lump similar to the hump back you see in theelderly right at the thoracic cervie junction or lumbar thoracic junction. IF this happens again, call an ambulance so that a an ER doc can see the malformation and do at least do an Xray. But in the absence of gross malformation or nerve envolvement like loss of muscle, loss of strenght,reflexes or paralysis, an ER doc is going to treat a cash customer very poorly. The medical model for first presentation of pain in your back or neck suggest anti inflamatories, muscle relaxers and rest or imobolizing the area.

Advanced diagnostics aren't step one when symptoms are presented to a doc for the first time unless there has been a major trauma, falling off the roof, MVA etc.. IF he could get back to the surgeon that cut him the first time, he's more likely at least going to get an Xray which will tell them if his vertabrea are out of whack.

I dwas watching one of those medical miracle or super surgeies on discovery one night and a guy went to bed with neck pain and woke up paralyzed from severe spinal stenosis. They decompresed the area dna after aboty 6 weeks he was able to wlak again.

Those shows get a bit depressing when your wondering where your miracle is, but if your friend applied for Medicaid on his own, wasn't prepared or didn't do the follow up , he may have been able to qualify through a medical spend down aloowance. If he had enough medical bills that would absorb his entoire income for months, that is taken into consideration.Having an advocate go with him and work on the follow up is more than likely what he needs.

It's really a catch 22 thoyugh, Had I been able to aford the 3K in meds and actually paid them out of pocket for the 3 months prior to applying for SSD that would have been taken into acount, I would have been aproved and they would have gone back 3 months and paid the unpaid medical. Unfortunately without insurance and without the eans to spend 9 K on prescriptions I gave up every med I couldn't aford and switched to methadone, So by adjusting my meds to what I could afford and paying the bills I did have, I wasn't eligable. Medicicaid and social programs =rward iresposnabilty, If I knocked my wife up 4 more time with chikldren we couldn't aford, If I stifferd every medical bill I ever had and if I had gotten a divorce to take my wifes income out of the equation, I would be lioving fgat. Folks on a full ride with medical, housing,food stamps, income benefits, live better than I do, But I don't qualify for that. My wife is supposed to spend 1/3 of her net income to provide insiurance which would make us homeless. . So untill I won my SSD case which took 2 years. and hit the 2 year point to recieve medicare, I had nothing but what I could aford to pay cash for.

The inequity and hypocricy of social services is far more than I care to go into. But I would say, if he went alone, without an advocate to help him follow up and round up everything they ask for, it's likely he would be denied. You also have to know the secret handshake.

As far as why would a doc use lortab for over a year, that's easy. Prior to 96 and the invention and and opiate explosion OxyCiontin created. There was nothing else and this is what docs provided. It worked back then and not every doc is on board with the idea that if they make it, I should prescribe it.Creating opiate dependent patients for life is on few docs agenda ond few docs see the risk benefit value or jave the training to prescibe doses that only oncologist once used on terminally illpatients in Hopsice. Now we have folks driving to work on what was once only used on someones death bed. It's a concept most GP's and surgeons whos patient do fine with 5 mg percocet for post op pain , have a hard time swallowing that someone needs 10 times the dose that a hip replacement patient needs 5 days post op.

If He wants the help needs hand doesn't have an advocate or the time to put into it, He can work the sytem like many do. Simply create enough medical bills for the spend down at the ER or through psych expenses with failed atempts at suicide due to his pain.This will crate the spend down amount in bills to make him eligable. They will have to keep hime a few days for observation, consult with a shrink and bring a social worker into the case to help him obtain medicaid so that he can seek PM and psych treatment treatment by someone familiar with the meds, tolerance and PM.

Sorry if I seem glib about the nedicaid but when you watch your neighbor spend 100 bucks worth of food stamps on 4 lobsters for their aniversary dinner, and you can't aford to put food on the table for your daughter or pay for needed meds , it does make you a bit synical.

There isn't an easy answer other than incur the bills he nees fto meet mediciad spend down amount to quaklify.

I took nothing but apap and motrin for years and nobody gave a hoot about thepain, the damage OTC meds could cause and simply went without care someone stupid enough to pump out kid after kid in their teen years is living better than I am because they were irresposnsable, it's hard not to be glib. I would have loved to have another child, but we made the decsion not to bring a child into this world we can't aford. I would love to see us make changes to the medicare and medicad system so that the govt will jelp with 2 kids you can't aford, but if you continue to have them, your on your own. Birth control is vaialbale to everyne, but when the goalis to have as many kids as possible to increase your benfits, with the lack of any moral compass, folks that continue to make a mess out of their life actually benefit more than those that do everything in eir power to live on what they do make and not make a bigger mess out of things by getting knocked up again. We aren't talking farmers that need extra hands to help out her,e were talking single moms with 6 kids at the age of 25 that live better than the working class by working the sytem.

The more kids you have that you can't aford,not getting maried to the babies daddy or identifying them to the court system, the bigger the check and more benfits your eligable for . Something is teribly wrong with a sytem that rewards being irresposnsable and penalizes those trying to live within their means that simply go without. When my wife was the manager of Rite aid, she had a P/T employee that made more money from the state in cash payments alone than she did, and that didn't count the section * hoiusing for 35 bucks a mionth and the 1600 in food stamps and free ride on medicaid for evry child and herself. If this woman married a man that made 30K a year, she would nd up in a worse financial position than she was as a single mom with 8 kids. So where is the incentive to do the right thing when it's a pattern of fraud passed down from generation to generation..

I don't mean to imply everyone on mdicaid is working the sytem, but when you have 3 kids by the time you graduate high school and plan on keep pumping them out, the goal is to never have to work a day in their life and have the state provide all their needs just sickens me.

Good luck and if your able, try and be his advocate,find out what his spend down amount is to receive medicad. He should defintely call the ambulance if he wakes up and can't move. That is an actual emergency beyond chronic pain and that visit to the ER he can't aford will aplied towards his spendown amount so he will qualify for benefits.

Good luck, Dave

 
Old 08-02-2006, 04:41 PM   #6
Senior Member
(female)
 
Join Date: Apr 2006
Location: Pa. USA
Posts: 299
countrykid HB User
Re: Very very desperate for your help!

I don't want to sound sarcastic but where in the world do guys live that $290.00 a month is the income limit??? My God how does a person live??? Your post has just taken me out....And I just cannot believe that we live in a country that spends millions of dollars for useless programs and your freind doesn't even get enough money to survive on temp disability...My first thought was move to someplace else...but that is too drastic...okay second is like others have said reach out to the community and find what is available in your area...if you live in area that has so low an income limit there has to be resources because no one can survive without some help...maybe if we knew of the state of residency we might be able to shed more light on what might be out there for your freind. Third I really think your freind and you may need to help them to reapply for Medicaid through your state something just doesnt sound right about the income limit.

 
Old 08-03-2006, 02:58 AM   #7
Senior Veteran
(male)
 
Join Date: Jun 2004
Posts: 858
madhatter HB User
Re: Very very desperate for your help!

We live in N.Y. state. He went to DSS, to apply for medicaid,they told him he makes to much money.I too went to apply a while back for medicaid,and they told me the same thing.[I'm on comp,and get roughly $400 monthly] But at least my meds. are covered by comp. as long as it has something to do with my back. But what i don't understand is i know peaple who are on SSI,and make around $600 monthly,but get medicaid!

 
Old 08-03-2006, 07:52 AM   #8
Senior Member
(female)
 
Join Date: Apr 2006
Location: Pa. USA
Posts: 299
countrykid HB User
Re: Very very desperate for your help!

The only thing I can think of why neither of you are eligible is because of maybe the income of the people that live in the same household. Ny state has a income limit for 1 of $692.00 a month and resources of $4150.00. But they count the income and resources of all the members of the household. Your state of residency is very strict. Your freind may be better off if there is no chance of returning to fulltime work to apply for SSDI...at least after 2 years Medicare would kick in. Sorry can't be of more help.

 
Old 08-03-2006, 08:43 PM   #9
Newbie
(male)
 
Join Date: Aug 2006
Location: Jackson TN
Posts: 5
neuropathypain1 HB User
Re: anyone,my friend needs help bad!!!

sorry about all this. wish i could help. Dave seames to know the loop's haven't read on down 1ST timer will after posting i have a diff. pain but
it's still pain moring night day i only have a family prac. take 3 loratabs750,
3 lyrica 100mg. as needed take all in morning to get to work. then deal
with the pain till next day as u i wake up to a day of terror. this is killing
me need help as all of u i'v thought of ending it.. but I must endure to the
end. been on med's for over a year. going to start with neuroligest on
some addodin treatments no good. thinking of giving everything up
moving to mexico and treating myself. sike and tird of beeing sike and tird
rule tn. area hard to find any help and who really care's? thay don't know my
pain. i need someone to point me toward a good pain specelist in tn./ky area
please eveyone stick in there must be HELP.

 
Old 08-03-2006, 10:26 PM   #10
Member
(female)
 
Join Date: Apr 2006
Location: OK
Posts: 72
daldridge HB User
Re: anyone,my friend needs help bad!!!

My heart goes out to you and your friend. Good luck in finding some help.

 
Closed Thread




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 09:19 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!