Anyone have the pain pump, and how high is it?
I have a Medtronic Pain Pump that gives me morphine right into my spinal fluid. I am at level 8.2mg/day and my pain levels are beginning to go off the chart. I had some relief over 2005-2006, about 5-6 on the pain scale, but the last 6-8 months my pain levels have jumped to 8-9. I canít function day to day and I am in bed 16-18hrs each day.
My pain management doctor wonít give me anything on top of the pump(for breakthrough pain) and wonít turn it up to a higher level. He says "itís at his limit" and that "taking other meds will only make the pump work less", great.
Does anyone have a pain pump? If so what are the meds., how much meds., are you taking other meds with the pump too and have you been told a top level that you would have to stop at?
Iím very upset at this point, the whole reason I got the pump was due to the high amounts of patches and oral meds I was taking daily, however I felt better then Iím feeling now. I had a good first year and a half but now I feel I should go back to oral meds. My doctor even said to go to another pain doctor(second opinion) and see if they would turn it up higher or give me more meds or oral meds. Is he just washing his hands of me, he really wants me to go somewhere else? He has said many times that he can only turn it off and let me go without any meds for 3-6 months. He says to have my body reset. What, no meds at all, no no, I cant do that.
I canít imagine having no meds at all, after 9 years on meds. That just sounds crazy! I have to function at some level, I have 4 kids and I canít be curled into a ball on the bed 24/7 for 6 months. Iím almost close to that now but man would that throw me over the edge. I donít know what others are being told by there doctors but Medtronic, the makers of my pump, wont comment on medication amounts.
I am awaiting SSD to kick in after 5 years of fighting. I finally won my hearing on 4/11/07 and the ALJ (Judge) said I will get it, but it could be another 3-6 months before I see any insurance or money from it (SSI is soooooo slow). Therefore I canít be going to any new doctor, I have no insurance or money to pay. I pay my doctor now, out of pocket and he has lowered the cost to me, but what doctor, not knowing me, will do that? Iím really stuck here; I donít know what to do? I tried talking with my family doctor to see if I get the pump out or off, if he would write my scripts for patches and oral meds again, like he did prior to my pain doctor, till I get SSD. I told him why I want to leave my pain doctor, but he wonít do that. He thinks Iím better off waiting, doing what I am, compared to starting on oral and patches again.
So Iím just stuck in the mud for another 6 months waiting for some sort of pain relief, if I can even find a pain doctor that will help me out? Iím just sick with anger and pain! Iíve been dealing with pain for 9+ years and have never had much relief, well more then no relief!
I think he's a little anal about the meds in my pump, its not like I can give myself more or that I've given him any reason to not to increase my levels or to trust me. I alway do what he says and never have done anything to upset him.
Any info that you pump owners have would be great, Im trying to find out if my doctor is just very conservitive or if he's in line with other doctors.
Nice forum here! I wish I would've found this place years ago!