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Old 10-05-2007, 01:47 PM   #1
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imforty HB User
Best meds for nerve pain

I have neurofibromatosis which causes tumors to grow on nerves. At this time of year the pain intensifies.

I am 42 and last year I finally gave in and decided to see a Dr. about it. I was given Tylenol 3 2x a day and neurotin.
the neurotin was way to intense for me. Felt like a zombie all day.
Now I am finding that the tylenol no longer does the trick. Because of so many medical issues I have had in the past 4 years I just hate going to the dr. for this kind of stuff. I feel like I have to prove I've tried to "get along" an Im just not looking for drugs.

Just went on prozac for anxiety. Help what do I do?

 
Old 10-05-2007, 02:23 PM   #2
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butrfligirl28 HB Userbutrfligirl28 HB User
Re: Best meds for nerve pain

I would switch from Prozac to Cymbalta. It has been proven to be the only anti-depressant that also helps many people significantly with nerve pain. Also, tylenol 3 is a very weak med for pain. I would see a pain specialist and be pro-active regarding your pain control.

I personally have seen a great improvement in my nerve pain since taking Cymbalta. There are also other nerve pain meds, such as Lyrica and Topomax. Find a pain specialist that will work with you to reduce your chronic pain, and increase your quality of life. I hope this helps!

Good Luck!

Amanda

 
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Old 10-05-2007, 02:30 PM   #3
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Re: Best meds for nerve pain

I have chronic nerve pain as well. I know what you mean about changes in the weather affecting your pain. I have been through a whole bunch of medications and I am currently on the fentanyl patch, Lyrica, Ultram and acetaminopehn. I would recommend you trying the Ultram. It tends to be fairly effective for nerve pain plus it also has anti-depressant qualities. The other good thing is that it is non-narcotic and not a controlled substance.You might not even need an anti-depressant then. It is better to start with the non-narcotic medications to see if they will help. Unfortunately all of the non-narcotic medications were not enough and I started on the fentanyl patch 6 weeks ago.I hope this helps

Brian

 
Old 10-05-2007, 06:40 PM   #4
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Re: Best meds for nerve pain

Brian,

We were on simliar meds prior to going on the patch.. Im curious, Did you puke at all when starting the patch? I switched from 400mgs ultram plus 3 perc 7.5 over to the 25mcg patch with vicodin HP. I too just got on the patch about 5 weeks ago.

jon

 
Old 10-05-2007, 08:00 PM   #5
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Re: Best meds for nerve pain

Quote:
Originally Posted by jodom1979 View Post
Brian,

We were on simliar meds prior to going on the patch.. Im curious, Did you puke at all when starting the patch? I switched from 400mgs ultram plus 3 perc 7.5 over to the 25mcg patch with vicodin HP. I too just got on the patch about 5 weeks ago.

jon
Yes John, I did throw up after starting the patch. It happened on the 3rd day but hasn't happened since then except when I tried to go up to 50mcg which turned out to be way too much. Did you just go cold turkey with the ultram because I am still trying to get off of those. It has been difficult especially with the depression.

Brian

 
Old 10-06-2007, 10:50 AM   #6
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Re: Best meds for nerve pain

Yes, I went cold turkey.. I was on Ultram max dose for a little over 8 months. The switch fogged me for a few days.. I was the "Mad Puker" for a week or so.. Would get violently ill for about a minute.. Vomit and then feel completely fine right after.

About the Ultram, I stopped cold turkey not knowing I was too taper. She did write it down I guess it slipped my mind or didnt register.. But she freaked when she asked how my taper with it was going and I told her I just stopped. I guess that was not a good idea.. but no harm came to me from doing it so I guess im lucky. But I did get scolded/"Im proud of you" speech.

I have depression too and she would like me to take Cymbalta to keep my spirits up. She handed me a bunch of samples so i took one yesterday evening and havent noticed anything. Im not sure if this is a can of worms I wanna open or not.

Jon

 
Old 10-06-2007, 12:46 PM   #7
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Re: Best meds for nerve pain

Jon,
That was definitely a bad idea to go cold turkey on the Ultram. The biggest problem is the possibility of seizures when doing that plus the terrible depression that usually hits. I took the Cymbalta for awhile and it did not work well for me, but I am bipolar too. It sent my bipolar out of control, I was actually way more depressed and having suicidal thoughts, plus I was going off into rages. I am so glad that I got off of that but of course I had to taper that as well. I had a question about what is Vicodin HP. I have taken Vicodin before but not sure what the HP stands for. My doc probably would never give it to me anyway considering I am a recovering addict as well. I just have a whole host of problems to deal with. ;-)

 
Old 10-06-2007, 05:36 PM   #8
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Re: Best meds for nerve pain

its the 10/500.. The HP stands for High Power.. As much as they help I try to really avoid eating them as I dont want to build a tolerance. I would like to keep my intake of this stuff low so I dont end up like house MD popping pills every minute. I hate nerve pain... Its almost impossible to kill off.. Its like with the patch I still feel it but dont care... Then throw the muscle atrophy/pain into the mix.. The patch does kill that.

As for the ultram it was my doc's idea to go off that.. I assume its just her standard protocal for the patch. Im still holding hope I get the pump with "prialt".. but its not lookin too good getting it approved with W/C. I should know in the next week or so I hope. My PM was angry the IME doc said its used only as a last resort. She's appealing the process.

Jon

 
Old 10-06-2007, 06:05 PM   #9
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Re: Best meds for nerve pain

Jon,
It definitely sounds like you could go up on the patch. If you read the information that comes with the patch it shows the drug equivalencies. The 25mcg is the same as taking 15 (5mg) vicodin or 10 (5mg) percoent. for every 25mcg just double those numbers. The goal is to get up enough on the patch where you don't hardly need break through meds. I know that I want to get up a little higher on the patch, defnintely not up to the 50mcg since I got so sick. I want to add on the 12.5mcg so I can get myself off of the Ultram. I hit the wall at 3 ultram/day. If I try to go any lower the pain gets much worse. I know if the pain was under control a little better, I could get off the ultram for good. Sorry for rambling just stating what I am dealing with right now.

brian

 
Old 10-06-2007, 06:14 PM   #10
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Re: Best meds for nerve pain

I have been taking Cymbalta 60mg for a few years. I also have Fentanyl patch 50mcg, plus 2 Vicodin 5mg a day. I take Lunesta at night to sleep, plus naproxin sodium.

I juts added Lyrica 50mg 2x a day. Seems to help the nerve pain quite a bit. I asked my Dr to increase Cymbalta, but he preferred the Lyrica.

Don't under-medicate yourself because of concerns about the doc, etc. Get your quality of life back where it should be! (except for drug side effects. )

I spent *way* too many years trying to tough out every minute without appropraite meds. Life is short - take care of your pain!

Best.

 
Old 10-06-2007, 06:37 PM   #11
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Re: Best meds for nerve pain

Quote:
Originally Posted by unabear View Post
I have been taking Cymbalta 60mg for a few years. I also have Fentanyl patch 50mcg, plus 2 Vicodin 5mg a day. I take Lunesta at night to sleep, plus naproxin sodium.

I juts added Lyrica 50mg 2x a day. Seems to help the nerve pain quite a bit. I asked my Dr to increase Cymbalta, but he preferred the Lyrica.
Does the naproxin sodium (Aleve) do anything for the nerve pain? I know that I tried that years ago for some muscle pain/injury in my back but it made me feel really weird/lightheaded and did not take it anymore. I should try it again to see if it has any affect on my nerve pain.

I would agree with your doc that you should up the lyrica since 100mg is a relatively low does. I take 600mg (yeah that is pretty much the max). I know how debilitating and frustrating it can get to control nerve pain. I am finally getting the help that I deserve. Hope you continue to get help with the Lyrica.

Brian

 
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