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Old 10-07-2007, 11:38 AM   #1
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Join Date: Oct 2007
Location: CT.USA
Posts: 23
shelby3195 HB User
Hello to all, I'm new and need help with pain management treatment

Top of the day to you all,

I'm so glad I finally joined this board, but please bear with me as I'm still new to what I can do or if I'm doing it right. I did post to Sammy about her cortisone injections, but thats as far as I got. hehehe..

So, here goes..
I have an appt with a pain specialist on this Tuesday and I'm scared to go for many reasons. First because I've seen him before and didn't care for his bedside manners or the way he talked down to me. But other than this Dr., I have my own pcp Dr who has been prescribing my Mscontin for me for my many chronic health issues. Now after he collapsed my lung about 2 months ago, I feel he is trying to pass me onto someone else who will take over my narcotic scripts because he's being questioned from the hospital administration for his part of my mistreatment of the lung from a cortisone injection in the shoulder which in turn caused the lung collapse.

I don't know how to approuch this pain Dr now, seeing he thinks he's only seeing me for a follow up for my fibromyalgia and nothing more. Whch is not the case at all. I have listed all my chronic pain issues for him, now I need to know what else should I tell him and should I even bring up the fact that my Dr is the one that did the lung failure procedure to me. My own Dr didn't tell me exactly why he was sending me to the pain management, just said something about how he's wondering why I'm on all these narcotics in the first place. Like all of a sudden he doesn't know?? He's the one who prescribed them, not me, nor anyone else. So, he's playing dumb and I feel brushing me off as a patient now also!!!

I have made up a new list of all my complaints that I don't think the pm Dr has, and added reason's for why I need my mscontin and having a good quality of life while on them, and how I'm willing to follow any of his recommendations for any other treatments he's willing to try. I added what I do to help myself with my daily regimen and how I treat my flare up's and what I do for them to try to bring the level of pain down. But to this day, the mscontin is not helping that much and I need some type of breakthrough meds to help in times of need. Which my pcp Dr doesn't believe in at all!

We had tried other pain methods, like the patch, which I had terrible reactions to, oxycontin, which made me feel too high on, and not an option any longer with my pcp. I have to admit my pcp did try everything to help me and was a wonderful Dr up until now that is with the lung failure. That is why I feel he's turning it over to someone else to do his dirty work, and the next step will be to get rid of me altogether!! Mostly because I think the hospital is looking into a malpractice suit against him, which I had nothing to do with, but he might feel it best if we just not be a patient, Dr. relationship any longer.

I'm sorry this is so long, but I now just need some input on how to approach this pain management Dr and what to say to him without involving my pcp Dr and for him to continue my treatment of narcotics in my daily schedule which I can't do without any longer these days because of my many chronic pain issues! I could list them all, but it might take me awhile..hehehe..but if it will help you, I will.

Is there anyone who can give me some feedback as to what I should do or not do when I see my new pain management Dr this Tuesday? I would be forever grateful for any help you can give me and then some!! I'm totally lost as to what to do or how to go about it with this Dr.
Thank you for letting me vent and ramble on~
Gentle hugs and keep sparkling,
Shelby

 
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Old 10-07-2007, 01:09 PM   #2
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Join Date: Nov 2006
Location: Michigan, USA
Posts: 472
Arthr Itis HB User
Re: Hello to all, I'm new and need help with pain management treatment

It sounds like you have it all together. If you could take someone with you to the pm it might help. But otherwize just be honest and tell him like it is. If you still don't like him find another. Good luck. Fred

 
Old 10-07-2007, 05:47 PM   #3
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Join Date: Sep 2006
Location: US
Posts: 863
butrfligirl28 HB Userbutrfligirl28 HB User
Re: Hello to all, I'm new and need help with pain management treatment

Shelby,

First of all, please make peace with the fact that this pain doctor may not be for you. Doctors are like anything else. Some work for some people, some don't. I was lucky and found a good one on my second try. There is still alot to be desired though, and eventually will look for someone better. I am concerned about your previous experience with this guy. I hope I am wrong, but if you didn't like him before, you may not like him now.

Just realize that this is okay. There are other doctors and your are not closing the door on pain management, just this MD. Talk to him about how the pain effects your life, your ability to function on a daily basis. Talk about what you have lost, and what you could gain by having your pain controlled better. I read your post about the punctured lung, and could have screamed! I also had a terrible experience with my first "procedure." I developed a spinal headache, then chemical meningitis. I thought I would die for two solid weeks. They will NEVER try that with me again, and my pain doc understands this. It is not about compliance, it is simply OFF the table.

Don't do anything you don't want to. Be open, but you should not be forced into anything so that you are a "good" patient. I am a "good" patient, but they are not coming anywhere near me with needles again. Good luck and keep us posted!

Amanda

 
Old 10-08-2007, 02:57 PM   #4
Junior Member
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Join Date: Oct 2007
Location: CT.USA
Posts: 23
shelby3195 HB User
Smile Re: Hello to all, I'm new and need help with pain management treatment

Thank you so much Amanda~~
Everything you said is right on the mark and exactly what I was thinking! Although actually doing it is another thing!!!! I really appreciate all your help with this, as you know only too well, what we do have to go through in order to get the right treatment for our many chronic pain issues.

Until this last time with the lung and what I have endured since it happened, has taken a toll on my body so badly and brought on so much stress and added pain, I'm beyond knowing any longer what to do. I'm just so mad about it all and now to be sent to this pain management Dr., feels like I'm being hung out to dry from my own Dr. It hurts emotionally and physically!!!

I didn't want to bring up what my own Dr had done to me with the lung, but there is no way around it really, seeing I'm in more pain now with that shoulder and the chest wall right now than ever before the injection. No other Dr wants to hear you talk badly about your Dr., but I see there isn't away around it and will just bring it up and say how much I do like my Dr., and things like this happen, Dr's are only human afterall, even though they think differently. But if this comes back to my Dr., this is what is concerning me as he will want to know why it was brought up to this pain specialist. I have no choice I don't feel but to tell him, as it changed my quality of life right now. So I shouldn't worry about what my Dr thinks! And this is what my dilemma is now!!! I may loose both Dr's, but I feel it has to be done!!

I've made a list of my chronic pain areas and how it effects my quality of life with a level of pain daily next to each one. So, that should help I would think. I've listed all new medications that I didn't have on there last time, done other lists and so on. But then I wonder why I'm really doing this, seeing I did it the last time, and he wasn't even interested in looking at it, nor even examining me physically. But I hope to go in there tomorrow with a positive attitude and just ask him right out if he is the right Dr for me, and if he isn't able or willing to keep me on my current pain medications, then he isn't the Dr for me!! It should be that plain and simple, but in all reality, it isn't the case at hand. We have very few pain specialists in my area as it is.

I am though going to take your advice and not let it make it as much about me with feeling sorry for myself and just keep it simple and to the point. I can't afford to let the stress tear me up over this and let the pain control me, I have to control my pain no matter what. I will do as you have said, and I thank you for taking the time out of your daily schedule to help me understand all this and then some!!! You are a God send to me for your very helpful and right to the point of view! I appreciate that more than anything!!

Thank you again Amanda for everything, and I'll give you an update after my appt. tomorrow, good or bad.
Gentle hugs,
Shelby

 
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