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Old 10-11-2007, 08:44 AM   #1
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started methadone for back pain

After several years of taking vicodin, Motrin, and Neurontin for chronic back pain and nerve damage, my Dr has started me on methdadone 5mg 3x a day. I have only been on it for one week but I can really tell a difference. My problem is after doing much research on methadone I really worried about taking it. Everything I read is about the horrible withdrawals and how quickly your body becomes addicted to methadone. Has anyone else taken methadone for pain? Any probems when you tried to quit taking it? Any information would be greatly appreciated.

 
Old 10-11-2007, 09:48 AM   #2
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Re: started methadone for back pain

Lucy,
I never took Methadone, but I take and took Percocet 10/325 (in a bad days double this), Oxicodone, Morphine, Deudiul (sp?). Now I take just Percocet since i developed severe reaction to Morphine. If you read side effects on this med you will read same side effects as for others narco meds. I am on it for 3 years now and I am not addicted. I take only when I can't take the pain anymore. I don't over use it and doing well with it, have no problem.

When My Dr mentioned to take all the time every 4-6 hours (I did it after the surgery) I told him that I don't do this. Sometimes I take one and it lasts me for a good 6 hours, sometimes for 2 only; I usualy see how I am doing. But I don't take if I can stand the pain or if the pain is not severe.

But again, I am not a Dr and everybody has their own pain tolerance.
But i think if you are careful, you will be OK
Good luck to you.

 
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Old 10-11-2007, 03:19 PM   #3
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Re: started methadone for back pain

I found methadone to be the best pain med ever. Unfortunately I had to switch to MS Contin, but the switch was easy. Because I didn't actually stop the narcotic pain meds altogether I can't really say how hard a withdrawal might be, but I have heard it's very prolonged because of how much methadone is stored in your body's tissues.

 
Old 10-11-2007, 03:41 PM   #4
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Re: started methadone for back pain

I was given methadone as an adjunct to my other meds and I was only supposed to take it at night. When I switched pain docs, my new doc was not a fan of methadone at all and had me stop. I really hadn't taken any as I was a little nervous about it so I didn't have to worry about stopping it. I know some people swear by it though, I guess it just depends.

Melissa

 
Old 10-14-2007, 04:41 PM   #5
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Re: started methadone for back pain

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Originally Posted by lucy777 View Post
After several years of taking vicodin, Motrin, and Neurontin for chronic back pain and nerve damage, my Dr has started me on methdadone 5mg 3x a day. I have only been on it for one week but I can really tell a difference. My problem is after doing much research on methadone I really worried about taking it. Everything I read is about the horrible withdrawals and how quickly your body becomes addicted to methadone. Has anyone else taken methadone for pain? Any probems when you tried to quit taking it? Any information would be greatly appreciated.
Dear Lucy,
I am the self-proclaimed queen of withdrawal, after having to wean myself off of so many different meds over the years. I wound up on 300mcg/hr for 36 hours and 10mg of methadone up to eight times a day for breakthroiugh pain. After about a year, because of an increase in pain due to a deterioration in my condition, I opted to let my pain doctor implant a neurostimulator in my back. It took three surgeries to get everything working correctly, but it really has helped. It is like little shocks in the areas where my pain is and I can adjust the strength of the "shock" to each lead implanted. I chose to become my own version of the bionic woman b/c I did not want to be the girl on 400mcg of Fentanyl (you should have seen the looks I got turning in a script for 300mcg to a pharmacist other than the one I usually see). Not only that, but in the time my dose of Fentanyl was 300mcg, I not only could not lose weight, I actually gained weight while strictly dieting. I gained 56 pounds in eight months while following Jenny Craig to the letter! I even forced myself to eat all the stuff I was supposed to in a day, even if I wasn't hungry. I even drank all the water and wrote down everything I put in my mouth, even if it was a tic-tac. None of my man physicians could explain what was going on and pretty much just figured I was lying about how strictly I was dieting. There came a point where b/c I had gained so much weight, I developed metabolic syndrome (pre-diabetes) which was directly caused by my obesity. But no one could tell me how to stop the obesity or lose the weight. Anyway, after I had my implant, I weaned myself off of the fentanyl as fast as I could (PS-if any of you have to do a drug wean, don't let your provider let you suffer needlessly! They can prescribe you a benzodiazapene, like xanax or valium or even an alpha 2 adrenergic agonist called clonidine or as it it better known, Catapres, which is an older type high blood pressure medication that has been shown to help with withdrawal symptoms and even stage fright!)
Anyway, after I was all the way off of the fentanyl, my pain doctor left me on methadone for the pain not covered by my implant b/c I can only turn it up so high before I feel like I am being electricuted. But it wound up that I would have a really active day (for me, anyway) and then wind up having to take a methadone or maybe 2 (20mg) but then for the next few days, my pain was covered by the implant, so I wouldn't take any methadone for a few days and then I would wake up in the middle of the night in withdrawal. I spoke to my pain doctor and he downgraded me to Norco, which is a drug I can take when I need it and if I don't take it I don't have any withdrawal. However, if my pain is bad enough that the implant won't cover it and I have to take more than 6 Norco in a day, then I have to go back to the methadone. But because once I stop the methadone, I am still using the Norco, I don't get the withdrawal anymore. Oh, and FYI, once I weaned off the fentanyl, the weight just started coming off. I didn't even have to try. Turns out that long term use of certain opiod medications can cause weight gain. Who knew?

The thing with Mehtadone isn't that it is so "addictive" but rather it has an extremely long half life, meaning that it stays in your system a long time. Not only that, but the half life differs per person. So, even though you are taking it as directed, you are building up a concentration in your system. And how fast your body metabolizes and excretes the drug is different than how fast someone else would. But it sounds as though your provider has put you on this to control your pain and it sounds as though it is working. Therefore, I wouldn't worry about withdrawal because you shouldn't be experiencing any of that as long as you continue to take your 5mg three times a day.
I would also like to mention something about addiction. Your body does not become addicted to a medication, your mind does! Your body can become dependent to the drug, which means when you stop taking it suddenly, you can experience symptoms of withdrawal. It is lke if you drink a lot of caffiene, all day, every day and then stop. You get a "caffiene headache" from withdrawal. Your body was used to getting that caffiene and when the supply stopped, your body got a bit irritated because it was used to having it-that is dependence, not addiction. And dependence is an expected occurance when one is on certain types of medications for long periods of time. Just like tolerance is expected; it takes different people different periods of time to become tolerant to a dose of medication. In my case, I was on 200mcg of Fentanyl for a year and a half before I became dose tolerant and had to have my dose increased to continue to receive the same amount of pain relief from the same agent. But addiction is a mental thing; it usually develops from abusing the medication in question. For instance, some people, who haven't been on opiod medications for years, will get a feeling of euphoria; a feeling like they love everything and everyone. And perhaps when things get stressful or they have a bad day, they will take their pain medication, for example, even though they are not having pain. They just like that feeling of euphoria, so they take their meds not as directed and not for the reason they were prescribed. That is the definition of abuse of prescription medication. Next, they will find out that they are running out of their pain meds early because they have been using them not only for pain, but to feel good. So now their brain starts thinking, "How can I get more?" Naturally after a while, tolerance will occur, but this time it is tolerance for the amount of medication it takes to get that happy feeling, not necessarily the amount needed to control their pain. By now, this person is constantly thinking about how to get their hands on the amount of medication they need to make them feel good and cover their pain. And maybe their doctor is starting to suspect something is amiss, or not, but all this person is thinking about is the drug and how to get it. This person is addicted when they contemplate stealing prescription pads, or ordering drugs from overseas, or calling up their doctor with stories like "I lost my prescription or someone stole it" and they do it more than once. When all someone can think about is how to get their hands on more of their drug of choice, no matter the damage it could do to their personal/professional lives; that person is addicted! There are nurses who have stolen meds from patients; they are addicted! They are putting their nursing license, job, livelihood, and everything they have worked for at risk just to get the drug because it is all they can think about! That is addiction!

I say all of this because when so many healthcare professionals can't keep the terminology straight, it is important for all people who suffer from chronic pain to know what is what. If you haven't been accused of drug seeking yet, you are lucky! There is even a term called pseudoaddiction, which describes a state in which the patient's pain is under-treated or untreated and all they are doing is trying to get some relief for their never ending pain. And they are frustrated and upset because they hurt and no one is helping them, so sometimes their behavior is considered to be "drug-seeking" when it is the normal behavior of a person who justs wants a break from the pain.
As a nurse, I have been made to suffer through 45 days of greater than 10 out of 10 pain, prior to my spinal fusion, by providers I worked with in the same hospital. That has an affect on you, when you are walking around in uniform, a leader, crying because your pain is so unbearable you can't sleep, think, or do anything other than hurt. And there is no good reason for it, plus as a nurse, you know what is happening to you is wrong! And two years later, I was left in 12 out of 10 pain for 21 days, because an NP had made up her mind that I must be drug seeking because all of the anti-seizure meds I had been tried on over and over again didn't work.
I don't know about any of you, but once you have suffered through any extended period of unrelieved pain, you never want to go through it again. And it is because of uninformed and unfortunately, burnt-out and jaded health care providers, that so many chronic pain patients have to suffer needlessly. The only way to protect ourselves from being undertreated, humiliated, and falsely labeled is to educate ourselves and know that taking a pain medicine that relieves our pain, as directed by our providers, whether or not our body becomes used to it (dependence) or eventually needs more to get the same pain relief as before (tolerance) is normal, not addiction!
Sorry for the soapbox, but if it can happen to someone who has worked in so many areas of medicine and knows how things are supposed to be, I really worry about all the people out there who don't know they are being mistreated. It is in the Patient's Bill of Rights that a patient has the RIGHT to be as pain free as they are safely able to be. And by safely, I mean not given so much of a medication as to cause respiratory distress or other complications. It was only in 2001 that JCAHO, the organization that says whether every health care facility in the country can stay open, issued their Pain Managenent regulations. There are a lot of providers and support staff that have either not taken the mandatory pain manangement training or have forgotten what they have learned. If the people who are supposed to take care of us aren't, we have to educate ourselves on what they should be doing and also that by suffering from chronic pain and requiring medications that make certain providers nervous to prescribe does not make us bad people, criminals, junkies, etc. We are patients who deserve compassion, empathy and respect. And I just hope that by spreading the word, more chronic pain patients can get the treatment that they need.
Anyway, Lucy, you are not going to get "addicted" to methadone, it is helping your pain, and you are taking it regularly, not as needed, so there shouldn't be any gaps in your intake and you shouldn't experience any withdrawal from it. At some point if your doctor decides to switch you off of it, he or she should wean you off it slowly and prescribe something to help with the withdrawal symptoms and if done like that, you shouldn't feel a thing. I have gone throught withdrawal of oxycontin, fentanyl and methadone, and methadone was by far the easiest. So don't worry about that, just enjoy the pain relief And as long as you take your meds as prescribed, you will not become addicted. Good luck and Take care!
C-otter

 
Old 10-14-2007, 07:09 PM   #6
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Re: started methadone for back pain

There is some really useful info in this thread!

You can rely on what the others said about becoming addicted to it......as long as you take it as prescribed you wont become addicted. Your body may become physically dependent on the drug but that is TOTALLY different than addiction. Physical dependence is a part of pain management and will most likey occur but addiction is where you start using way more than RX'ed and seek to get "high" from it or use it when you are not in pain just to feel the effects it gives. As an addict you will run out of your meds early every month because of abuse, freak out when you dont have them, and start looking to find more doctors to give you more meds to abuse. You def dont sound like any of this is happening. dependence is where your body depends on that drug to provide proper pain relief and is used to having that drug in its system so depends on its existance in the system. It is normal in PM therapy and when coming off of a pain medication your doctor knows this and will wheen you off of it safely so you dont have any discomfort, or withdrawls. just always remember that addiction and dependence or completely different and dependence is completely fine and a part of being in pain management and taking narcotic medications.

I have heard alot of good things about methadone for pain management and how it provides alot better relief than other pain meds. I think it has alot to do with it's long half life and resistance to tolerance being built up to it. My doctor too has suggested taking methadone for pain but i have been reluctant to try it. I am on percocet 10mg for BT and a total dose of Oxycontin of 30mg 2 times a day. It seems to work out just fine for me right now but I am eager to hear everyone who goes on methadone and how it works for them just in case I have to make the switch as well. So please keep us updated as you get further into using it about side effects and how it works for you like how long it lasts and how well it takes away the pain and such. I am very interested to hear how it works for you! I wish you luck and a pain free day.


whosit

 
Old 10-14-2007, 07:22 PM   #7
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Re: started methadone for back pain

Hello all,

20mg oxyconting 3x a day currently and Also another PM PT that is thinking per my DR's request about switching to methadone..I am glad that it works for you and also would love to hear more stories about it as well, good or bad ofcourse. god bless and good luck.

Question: Is tolerance to methadone more difficult to build up, If so that would be wonderful. I too am KING of tolerance...damn i hate that.

god bless you all

 
Old 10-14-2007, 08:50 PM   #8
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Re: started methadone for back pain

Hello All,

thank you Otter for all of your helpful info! I can relate to many of your stories in my early visits to the Dr.'s offices. I have NEVER taken more meds than prescribed to me or have I been tempted to. There are times when the pain is unbearable and unmanagable. Luckily, I did find a Dr. who "listened" to me and did his very best to help me with my pain. I have had several back procedures since then, but still have chronic pain. I only took the methadone for a few weeks but I can tell you it did help tremendously with the pain. There is no euphoria from this drug and I personally had no trouble with it making me sleepy. For me, methadone worked great. I only had to take motrin for bt pain. Unfortunatly I spent the last week reading all of the horror stories of withdrawal etc and I got paranoid about taking it any longer. I quit taking it 2 days ago. I wish I had read your post earlier I think when so many Dr's along the way have treated us like drug seekers and junkies we tend to start looking at ourselves maybe a little too harshly as well. I was so afraid of being "hooked" on anything that I must admit it didn't take much for me to jump right off of it after reading many of the posts about methadone and how horrible it is to come off of it. I know when I return to my Dr and tell him that the new RX worked GREAT but I quit taking it....he is bound to feel slightly annoyed with me. I wish there was something that worked just like methadone,(No euphoiria, long pain management) but did not cause withdrawals. My husband and I would like to get pregnant this year so I figure I might as well stay off of the methadone for now until after we have a a baby. Maybe in the future I can take it again. I liked this medication the best. I felt "normal" while taking it. Never tired, not high, and my pain level was a nice even"5" or sometimes a level 4 which is rare! Hopefully I will have good results when I return from my first pain managment class and hopefully my Dr will not feel to irritated with me when I tell him I would like 'the impossible"....Thanks again to all who replied.

Lucy

 
Old 10-15-2007, 01:51 PM   #9
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Re: started methadone for back pain

Quote:
Originally Posted by videogamecrazed View Post
Hello all,

20mg oxyconting 3x a day currently and Also another PM PT that is thinking per my DR's request about switching to methadone..I am glad that it works for you and also would love to hear more stories about it as well, good or bad ofcourse. god bless and good luck.

Question: Is tolerance to methadone more difficult to build up, If so that would be wonderful. I too am KING of tolerance...damn i hate that.

god bless you all
I do believe it's harder to develop tolerance to methadone than many other opioids. You can look for info regarding why on the web. I worked up to 20mg every 6 hours and stayed there for a few years, before switching to another med - never had to escalate the dose and needed no breakthrough medicine.

steve

 
Old 09-19-2010, 10:38 AM   #10
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Re: started methadone for back pain

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Originally Posted by forginon View Post
I do believe it's harder to develop tolerance to methadone than many other opioids. You can look for info regarding why on the web. I worked up to 20mg every 6 hours and stayed there for a few years, before switching to another med - never had to escalate the dose and needed no breakthrough medicine.

steve
Thanks for this, I am on an extremely high dose of oxycontin 80mg 4x per day, and still need breakthrough meds I keep building up tolerance (for nerve damage to my spine and fibro), my doc is going to switch me to methadone for pain management. I have been nervous, however this post has given me some hope for the future it would be so nice just to take a few pills and feel human again. God bless.
Zoey

 
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