Thank you so much for your replies so far, I appreciate the kind words and helpful information!
RSD is Reflex Sympathetic Dystrophy (Also known as CRPS/Complex Regional Pain Syndrome).. It's complicated for my own brain to put into words, so I will take an excerpt from an MD website article:
Complex Regional Pain Syndrome (CRPS) is a chronic progressive disease characterized by severe pain, swelling and changes in the skin
It can be brought on by trauma to an area, which is what happened to me... twice..
I'll explain what happened to me actually. In December 2002 during gym class in my senior year of high school I was injured during a volleyball game. My friend was beside me, and we both went to spike the ball at the same time, however, he pushed me aside while I was jumping midair. I lost my balance and my left foot 'rolled' onto its side, while my right foot came down with all of my weight onto the side of my left foot... breaking my 2nd 3rd and 4th metatarsals.
I went to the ER, had x-rays and was told nothing was broken. I spent the next three days at home, unable to walk at all.. my foot was DEFINITELY broken. On the third day I followed-up with an Orthopedist who looked at the x-rays I had gotten in the ER, and told me he didn't agree with their diagnosis. He took more x-rays and found the broken bones, then put my foot in a cast.
After just a week and a half, problems were arising and he took my cast off. The nerve damage was starting... He put a walking cast on, for some reason, even though I told him I could NOT put pressure on my foot. He didn't believe me, or something... Suffice to say, I did not see him anymore, I found another doctor.
Two months went by and I was still in extreme pain... burning, tingling, aching... every kind of pain I can think of. I went to a Pain Management doctor and he told me he was sure I had RSD and that I should start nerve blocks immediatley. I freaked out (I have a bad phobia of invasive procedures.. and hospitals..) and my father brought me back home so we could think about this more. I ended up not going back to Pain Management...
I was in pain for many more months, but it slowly started to go into remission. By 2005 I was able to walk fine, I still had flare-ups of extreme pain sometimes, especially at night, but I was okay. I got a job doing retail, I was on my feet all day, and the RSD did not affect my job whatsoever.
After only 3 months, I was enjoying my job immensely (My co-workers, my work, my store.. everything!) and I was promoted. Another three months later, I was promoted and given another raise. I was so happy with my job, and the great benefits the store had. Until....
November 21, 2005... I was helping a customer with their purchases up at the contractors desk (I worked in a large hardware store). All of a sudden I feel someone come up beside me and then the most horrible pain I had ever experienced. It felt as if someone had just run my foot over with a truck.
It was one of my co-workers. She was trying to jokingly get my attention by stomping down on my foot (The one with RSD)... She also had on a pair of steel-toed boots while I had on a pair of cheap sneakers. I blacked out, fell forward against the counter and started crying. The only words I could get out was "You...... stupid....... why..... idiot....".
I then hobbled into my supervisors office and took my shoe and sock off. To my surprise, my foot had turned purple/black/blue and was swollen to twice its size. I also couldn't move it, in ANY direction. I called my father and he came to see me. Once he saw my foot, he told me he was taking me to the ER. I filled out an accident report and left for the ER.
They found no broken bones, just tissue damage and a giant contusion. I then followed-up at a Physical Therapy place by me. After seeing no progress for weeks (I even tried to go back to work twice, but I couldn't do it)... the two doctors there both agreed that I may have RSD. They sent me for MRI's, saw no damage there and definitely decided it had to be RSD.
That's when I started seeing an Orthopedist, who after a few months also agreed with the RSD diagnosis.
PT was slowly helping. After 6 months of it (I think the thing they were using was like the TENS unit with a warm compress, along with the Tylenol 4) my pain went from a 10 to an 8.5. Right after the PT my pain was down to a 5.
Unfortunatley, at this time Workers Comp decided that they didn't want to cover my PT anymore because it 'wasn't working' and 'there was nothing wrong with me'. That was June 2006... Since then I've gotten no treatment, no pay, no anything. I've been at court hearings over and over... The judge actually finally made a decision in my favor last month.. but WC appealed and now we have to wait months to a year for another decision...
That's where I am right now. That's the story of my RSD, and what has happened since. I know it's long... but hopefully some of you will read it anyway
Also.. My PT doctor referred me to the Pain Management Clinic and a certain doctor. However, when I called to make an appointment.. the earliest date for THAT doctor was November 5th... But the woman said I could make an appointment on the 1st with a different one... so I did.
Now I'm thinking that maybe I should just change it to the 5th and stick with the doctor I was referred to in the first place. Would that be a better idea?
It's 3AM and I can't sleep... the pain in my foot just started to kick in more (It always does at night)... I even took a Percocet, and it does NOTHING. By the way, the Percocet is for the two wisdom teeth I had pulled this week (Of course one of the roots broke off one of them in my jaw, so yeah... that was an incredibly painful process, hence the Percocet).
It's just weird that Percocet... Vicodin... do not work for my foot pain. Just the Tylenol 4s do. I bet things like Morpheine wouldn't even help! I feel like Codeine is the only thing that helps this pain in my foot! The ironic thing though? The Tylenol 4's didn't help with my oral surgery, only the Vicodin and Percocet does. And the Vicodin and Percocet doesn't work with my foot pain, only my oral surgery pain. Strange, isn't it?