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Old 10-22-2007, 11:20 AM   #1
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Join Date: Jan 2007
Location: whitehaven
Posts: 30
kaydenxo HB User
In need of SERIOUS advice please help1!!!

hello,
i just had a recent visit to my pm doc, i was supposed to be only seeing her for a short time due to me living in the mountains taking care of a sick family member, well we have been here a lot longer than expected, and she is not happy about that. I have fibro, and well as a prev 2 compression fractures, that feel like they have not healed the pain in the discs are severe, however she got recent xray reports and says the fracture is gone, now i have been diagnosed with fibro for about 7 years, and started out with therapy , injections , non narcotics you name it , ive done it. nothing worked, however both my prev primary docs gave me narcotics for the fibro pain, now this doc, is saying she does not use narcotics for fibro, my pain is debilitating, right now im on oxycodone 30 mg (short acting) 2 tabs 4 x a day, she is basically saying if my mri im getting shows nothing wrong with my discs , she is taking the pain meds away, im so scared, ive been on these meds for 7 years and rely on them to get out of bed and even function, as well as take care of my toddler, i don't know what to do, anyone have advice im so scared .....

 
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Old 10-22-2007, 11:37 AM   #2
Senior Member
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Join Date: Mar 2007
Location: florida
Posts: 140
morgyporgy HB User
Re: In need of SERIOUS advice please help1!!!

Even if your pain is not from fibro it could still be chronic pain from the fracture. My doctor explained to me that chronic pain can also be defined as pain that continues even after the source is gone. I wish i had something to say to make you feel better. I do know how the waiting game can be. Please keep in touch and let us know how things go. I will pray for you and God bless, morgy porgy

 
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Old 10-22-2007, 12:09 PM   #3
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Join Date: Aug 2005
Location: USA
Posts: 462
conductor HB User
Re: In need of SERIOUS advice please help1!!!

Dear Kaydenxo,

Are there other doctors in the area? My current Internal Medicine doctor that sees me for Systemic Lupus and my pain was keenly aware of the ineffective Pain Management doctors in our area. SO, SHE PRESCRIBES MY PAIN MEDICATIONS. If your PM doctor has a reputation of not being all that helpful, other physicians will be aware of this--and might be willing to follow your situation.

This is simply a suggestion. On the other hand, another doctor may look at you as a drug seeker because that seems to be part of their profession! I certainly don't think you are, but doctors seem to function on a different level--please notice I didn't use the words "higher level".

Please keep us up-to-date!

Sincerely,
Jon (Conductor)

Last edited by conductor; 10-22-2007 at 12:11 PM. Reason: To make clearer

 
Old 10-22-2007, 04:03 PM   #4
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Join Date: Dec 2004
Location: The Sunshine State
Posts: 165
cpapp31 HB User
Re: In need of SERIOUS advice please help1!!!

Hi Kay!

It's a shame so many doctors are behaving this way. This is why many pain sufferers don't get the help they so despartly need. Can you see if she can recommend another doctor for treatment? Maybe a rheumy or a pain specialists? I will be praying that you get help soon.

Hi Jon!

Quick question, are you in the great (LOL) state of Florida? Something you said in your post reminded me of what my PCP talked to me about. She Rx's all my pain meds because a lot of pain doctors in Florida don't want to Rx pain meds, instead they are having the PCP do the Rx'ing and then following up with patients every couple of months. It is happening all the time in Florida. It's really a shame.

Take care,
Cpapp31

 
Old 10-22-2007, 11:02 PM   #5
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(female)
 
Join Date: Oct 2007
Location: Denver
Posts: 72
wheninrome1313 HB User
Re: In need of SERIOUS advice please help1!!!

Wow, 7 years and you are only on 240 mgs a day! That is really good. I was on twice that in 2 years because my tolerance kept going up. They eventually stopped working for me and I am tapering now.

I would talk to her about tapering you off first, and not just taking them. A slow taper. I am on one now and 10% cut back a week, I have very little WDs symptoms. Meanwhile you can look around for another doc. (some docs think Fibro is a BS diagnosis and one that a lot of drug seekers use because you can't prove it, so you are always going to have trouble with that)

I have a friend who was on Oxicontin for fibromyalgia pain for 5 years and her doc took her meds and she was forced to come off. She found that her pain went away because her body was actually creating pain to get the drugs and once she was past that, it went away. Plus, the drugs actually caused her joint pain when she was on them, she found out later which docs often misdiagnose for fibro. I am just saying, maybe try life without them for a short time and see if your body "works itself out". Oxicodone can be a God send but it is also evil. It is very hard to control and very hard to come off, so if you can do without it, really TRY. Especially with kids.

Good luck!!

 
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