Hi Everyone: Starting a new thread, because the old one was about how soon to call for test results. I finally got the call. The rheumy's secretary called about 3:00 and said he told her to tell me that "a couple of things were elevated, one being thyroid, maybe a couple more, but nothing he was concerned about".
I then asked if he mentioned if he wanted to see me again, since we didn't really get a chance to go over all of my symptoms and because my BP was so off the charts, it was like he couldn't wait to get me out of there. She paused, looking at his notes, I guess, and said "nope, no mention of that".
I then asked her if it would be possible to fax the results to my primary today as I was seeing him tomorrow a.m. and she said she would. Then she said "Is that all Mrs *******?" So I said "yep" and goodbye.
I'm probably going to start rambling now, so anyone who wants to stop at this point, please feel free.........
Is it just me? Or was that call as useless as I think it was? I know I'm on edge today, have been for about a week now, but I guess I thought he'd want to at least go over whatever was elevated and give me the opportunity to inform him of the rest of my symptoms.
As I said in my last post on my other thread, I'm really at the end of my rope right now. I've been crying for the past 2 days, I am starting to feel like I did years ago, before I was Dx'd with the myofascial pain. It's not that I don't agree that I have it, it's just that it is common for people with CMP to be at a higher risk of developing other conditions or diseases, and I have had new and different symptoms for the past two years. That's why my PM wanted me to see the Rheumy in the first place!
I guess that I at the very least, have the appointment with my PA tomorrow morning. I just hope I can get through it without having a total meltdown.
Any thoughts, prayers, good vibes....whatever, would be so very much appreciated right now! Thanks for letting me vent, cmpgirl
This was your first visit with this doc, correct? And all he really did was order tests, correct? If so, then it definitely was not correct, unless you were referred and this is all the referring doc wanted. But then, the referring doc could have just ordered the tests and had the specialist review and notate for him/her.
You're correct, this was a complete waste of time. So, no, you are not over reacting. Maybe others who see this a little differently can contribute more?
I'm so sorry for this. This was the last thing you needed. I hope you know how much of an inspiration you are. Your struggles and how you are handling them sets a fine example for all. And your posts are so compassionate to others who are hurting badly. You deserved much better than this.
If I were you, I'd report this incident to your PM doc whenever the time is right. I think that's important since this doc was the one that wanted you to see the rheumy, correct?
Well......I think it's one of those "good news / bad news" situations.......
The good news.....You're levels seem to be fine...Maybe slightly elevated, but nothing that has the Doc concerned. This eliminates some of the things you were really worried about.
The bad news.....They treated you like you weren't of any concern or important. Because your levels were Ok, this is probably why you didn't hear anything and had to call them. I'm sure if you had a bad test result, you'd hear something right away.
I guess at this point, you'll need to circle back and see what the PM Doc thinks of the results. Try to put this past you and look at the glass as half full....Your results are in decent shape. At least you can enjoy your holiday weekend knowing that your results are ok.
Thanks Steve and Ex: Yes, you are correct Steve. The PM referred me, due to all the new/different symptoms I've been having the last year or two. I guess part of the reason I'm so upset, is that, at the beginning of the appt., the rheumy said that the labs he was ordering were not necessarily the only factor in Dx'ing some diseases, like Lupus, MS, RA, etc. Only about 30% of his patients ever test positive. That was why I expected we would at least sit down and discuss symptoms. I will definitely let my PM know when I see him next. And thank you for your very kind words. I'm such a mess today, I started crying when I read them. .......and again right now.
Ex, I know I should be looking at it as a glass half full sort of thing, but I guess this has been building up for a while and hopefully tomorrow, I can. Thank you also, for your always kind and very informative replies. I have learned quite a bit from your posts. I know I can always count on well researched and experienced info.
Anyway, thanks again, I think I'm going to log off till later, having trouble seeing the screen and the keys right now. God Bless, cmpgirl
cmpgirl, Glass Half Full Pet. Look at it this way........ there was some tests slightly elevated...... but that can just be normal for some..... they made no big deal out of it and if there was a problem they wouldnt be long shipping you off to the nearest hospital Relax, pet, you have your appointment tomorrow now and I will be praying for you............ 5 hours ahead of time while you are still asleep with the time difference here. Take care pet and will keep an eye on the board to see your post .
Thanks, Round1: I'm a little less weepy right now (Xanax is a wonderful thing) I plan to go over the results with my Primary tomorrow a.m. and also speak to my PM (who referred me to the rheumy) and see what they both think.
Thanks again for the prayers and kind thoughts and if you are in a coastal area, please go out to the cliffs and take a deep breath of that beautiful sea air and let it out across the pond for me. The coast was my favorite place, when I visited in October. Something about it gives me comfort.
I hope you are doing better yourself and please let me know how it's going, now that you've stopped the physio. God Bless, cmpgirl
CMP, I'm sorry I didn't see this thread before I tried to answer your questions in the other one.
The tests my rheumy did show some things elevated some not. So based on the blood tests he doesn't know that anything is wrong. But! When he was checking my fingers he found several swollen joints. Since then he has found a few more so based on that he knows something is going on. He just doesn't know what. He is sure it isn't rheumatoid arthritis. But again he doesn't know what it is. So for now it's wait and see what developes.
As for that quack you went to..... That is not the way anybody should be treated! I shouldn't call him a quack it was his office staff you talked to.
I have dealt with rude, inconciderate office staff. They don't like me much when they do that stuff.
Please don't take this as anything but a sincere effort to help. When I get all down and depressed I go to the best selling book of all time and check out Philippians 4:6-7. Try it you'll like it!
Fred: It's been a little while...I'll probably have to blow a little dust off the cover, but I do go there from time to time and it does help...always. I won't be going back to that rheumy, you can bet on that. I'll just have to put my faith in my Primary, my PM and of course, that best seller.
Bless your heart (and all the other parts too), cmpgirl
My first rhymy appointment was 2 hours waiting then 1 more hour waiting on the table she then spent about 30 minutes with me doing touch/physical then labs then full xrays. By 5 i was back in her office with the xray results and got the news.
I ended up staying with her about 1 year but got so sick of the
very very full doc office over book appointments rush rush and no improvment and her pushing designer drugs.
Found another rhuymy that is treating me now.
As far as thryiod it can cause much of what you are going through you are not currently on thryiod meds and thryiod levels off, wonder if they tested for diabetes as well?
Also if you have one auto imune disease it is not uncomon to develop several more over time if it is not treated .
You didn't mention xrays and did she do pyshical to check knees feet fingers elbows, Movement and or a chart to tell where the pain/pressure was?
If not it sounds like you went to a doc mill that curnches numbers, files insurance and sends you on.
The best doc experaince i ever had was with my nurologist . He also treats my pain. I hope you can find someone that listens helps and see if you can get them to mail you a copy of labs. keep your bible with you for next appointments ( bible would be lab work)
My frustration stems mainly from the fact that he led me to believe that we would be having another appointment, regardless of the lab results to discuss my symptoms in more detail. This is apparently not going to happen.
My PM is great and I intend to find out what his take on this whole sordid mess is.
I'm going to get a copy of my labs tomorrow a.m. when I see my Primary, as I asked for them to be faxed there today.
I am normally a very patient person and don't usually let things like this get to me, but I have been having mini-meltdowns for 2 days now. I guess I'm just sick and tired of being sick and tired, as they say. I haven't cried this much, since I lost my youngest daughter in 2000.
Thank you so very much for your input and advice. It really helps, just to know there are people here who understand and care. God Bless, cmpgirl
Hi Fred: Thanks for both respnses. (The other thread too) I forgot to mention, during the very short physical exam the rheumy did, he noted, in his words, significant swelling in the joints in both of my hands, both of my feet, and heavy adema in my feet and ankles. He actually said that sometimes symptoms speak louder than labs.
Hence, my frustration after the phone call from his secretary, who by the way, was reading from the note he gave her re: my callback. So I think you're forgiven for calling him a quack. I've called him much worse today.
Do you see the rheumy regularly? Is he treating you or monitoring you?
Sorry about all of the questions, but my brain seems to be on spin cycle right now. I'll try to post back tomorrow after I see my Primary, with an update.