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Old 04-13-2008, 12:28 PM   #1
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Need your advice - severe pain in arms/hands

Hello to all of you
I hope you had a nice weekend!

I still have the same question and no answers...
I am a CP patient due to 2 spinal fusions with complications. But the new symptoms started after my second fusion, about 2 month ago.

I developed severe pain in shoulders/arms/hands/elbows. Not much of a neck pain. I suffer 24/7 from it, but when I lay down the worse pain comes. During the night I get up and walk in a room to come it down a bit.

My right hand is pretty weak, I don't feel much tingling or numbing, but pain is inberable. Now i started to have problem to hold things in my right hand and break a lot of dishes...
Recently I had Cervical MRI and it does show arthritis, bone spurs, C-6 T-1 herniation, but my Neurologist doesn't think it can cause such a severe pain in my arms and hands. He performed an EMG test and it didn't show any nerve
damages.
I take pretty strong PK (LA and BT) for my spinal issues and believe or not, helps some of of my back-leg pain, but doesn't help even a bit my upper extremidies pain.
I am really lost and have no idea what can cause it. I did a lot of research on Internet, but still can't find answers.
Anybody, Please......

Thank you in advance for your support and God Bless

 
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Old 04-13-2008, 12:45 PM   #2
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Re: Need your advice - severe pain in arms/hands

Hey Moldova: Sorry you have been going through this. The only things that come to my mind are fibromyalgia and chronic myofascial pain. (I have CMP)

I know with me, it causes major stiffness and pain in my shoulders, arms and hands. And I also have lost a lot of arm and hand strength. Have any of your docs suggested these? There is quite a bit of info on the web, about both fibro and CMP. They share some symptoms, but not all.

I don't know if this is what is going on with you, but thought it might be an idea. God Bless and keep us posted. cmpgirl

 
Old 04-13-2008, 12:59 PM   #3
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Re: Need your advice - severe pain in arms/hands

Thank you, girl for your respond.
I do have Fibromoylga, osteo and RA, but i have this for so many years and on meds for it for many years too.
Why all of sudden I got this couple month ago and why my PK don't help the pain? Why do I loose strenght in them?
My Neurologist mentioned something about pain meds. He said that sometimes some medication can cause severe muscle damage and he wonders if this can be my case?
But nothing is confirmed so far. Meanwhile I can't sleep and even typing on computer gives me problems. I don't like not knowing; i would rather know and deal with it.
Thank you so much and feel better, please!

 
Old 04-13-2008, 01:13 PM   #4
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Re: Need your advice - severe pain in arms/hands

Moldova, I sure wish I had some answers for you, I feel so bad for you with the whole not be able to lay comfortably at night. Gosh, you have got to be awfully tired at times if not all the time. I know I don't sleep well yet with the surgery deal & I really feel it.
I did want to say I have heard conflicting opinions with the cervical area you mentioned. I myself have issues in that area, but my daughters friends mom called a few weeks ago with a diagnosis of problems such as DDD in the same cervical area & she said her one shoulder hurt like heck & the other was starting to act up. She could not believe how much it hurt, now she was told that was due to the problems with in the cervical area. Now whether it would go into the arms & hand I am not sure. I swear sometimes I think there are compound problems & that is why these doctors can't seem to always find what is wrong. I am learning that they can run test after test & not everything shows. My pt just told me that about the MRI's.
You keep asking & hopefully someone will come along with a clue at least.
To me it is the absolute worse when you do not know what is wrong, it is the hardest thing to sit & wonder. I have had the same where the pain meds just don't touch a certain pain, makes you wonder why & feel alittle desperate. There has to be a reason why. I will keep my ears open for you. Good luck & hand in there. Sammy

 
Old 04-14-2008, 10:19 AM   #5
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Re: Need your advice - severe pain in arms/hands

hi moldova, just had a couple of questions for ya. what exact areas have you had fused? did you have any hardware placement done at all? this really does sound like radiculopathy to some degree meaning it IS stemming from your c spine area in some way. the EMG results really don;t have a whole lot of impact if your pain and symptoms are not actually stemming from direct impingemnt or some other issue that is actually impeding nerve flow. there are just ALOT of possible issues that you could have going on up there that would give you the types of symptoms you are having and show a perfectly normal EMG.

just what were your 'complications' all about and where were they? are these more intermittant symptoms or a more constant? do you have any types of symptoms that actually go down to your fingers in any way? if so,which ones are affected? do you know if your fusion is actually taking up there yet? have they done a flexion and extention x ray on you at this point just to check fusion status?

this particular type of x ray really IS the very best possible way to actually check whether or not you have fused,in both surgeries actually. i had a huge non fusion issue but the MRI said 'inconclusive' recommended a CT,and the CT stated i was defintiely fused when i knew without a doubt,and so did my primary,that i was not,not with the ongoing symptoms i was having along with horrid pain. it took that simple type of x ray to finally proove to my surgeon what i had been telling him and his so called 'nurse' for over nine months,i was NOT fused at both endplates,only one. this was despite that stupid CT saying otherwise.

there just has to be some real reason for what you are experiencing,unfortunetly it is a matter of testing and ruling out to find the culprit. tracking it back from where your issues start to the direct nerve root and dermatome really is the best way to get to that source.

do you actually 'hear" anything when you move your neck? any noises like grinding or popping? just how recent was that MRI? why are you only seeing a neurologist when the surgeon should be handling this and finding out why HIS surgery 'did' or is doing something to you? your surgeon just has a certain level of responsibility here in making certain HIS surgery did not actually cause you problems or even further damage during your surgery. he just should be the one trying to find this all out for you,thats all. he has an obligation to you after you get any surgery from any suregon to make certain you are okay and not worse post op ya know?

sorry for all the questions tho.believe me,if they were not important,i wouldn't have slammed you with so may. but they DO matter just knowing the answers to the questions in helping to find whats causing your symptoms.

just wondering if YOU actually read your own MRI report or have actual copies of all reports from all testing that has been done on you? if not,you really DO need to obtain all of this and also the hospital medical records with the "op notes" from both your surgeries. getting all of your medical records from your surgeon will help too. but YOU personally really need to see that MRI and read thru it for yourself if you have not yet done that. you would be shocked at just how much,mostly specialists,will leave out or not tell you about. its really sick,but it happens everyday. and it happened to me with very crucial Dx info and other important things i just had a right to know was going on inside my own body.

hang in there moldova,i know this has not been an easy time for you recently. but hopefully we can help get to the culprit here soon. marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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