It's been a rough couple weeks here & I have not had alot of good days.
Alot of pain. My sister in law encouraged me to see a naturalistic doctor, I thought well with the pain I am having what do I have to loose.
Well he pretty much said expressed the same concern as the pt, he said there is way to much inflammation & it is pretty much consuming the whole left side. In fact he was stunned at how much inflammation there is.
I am not getting alot of pain control at all, & he did say this has got to be effecting me internally, he stated where he felt it was causing me problems due to the diagonstic testing he performed. I will say I did not tell him I was having pain in certain areas or any past test results & he hit some of it right on the head after a test he performed. .
This is really worrying me & getting me down.
Between this doc. & the pt I really feel I have to get one of these doctors to seriously look into this. I have so much throbbing in the ribs & chest pain its driving me crazy.
After the pt wrote my pcp about her concerns I feel he was alittle peeved, she pretty much told him he better make sure that there was not a problem in the abdominal aorta. I cannot believe after suffering for over two years he wants to say its simply inflammation of the chest wall, well what the heck is causing it.
I just know that none of these doctors want to fight the insurance company for an MRI. I can't go on like this. Not only is there all the pain but the breathing issue. I will go to the surgeons tommorrow & really lay it on the line, I need to have this looked into & get into PM. I am totally stressed at this point & can't believe that after the steroids, pain med, muscle relaxer, motrin I am still in pain.
Any suggestions on how to try to get one of these doctors to order the testing needed? The pt said I really need to get on them & get an MRI done & get some pain control. At this rate I will not even get to do pt without it, & for once I firmly believe I need it. Once again I was foolish & did not let her call the surgeon when she wanted to. I was so afraid he would stop the pt & hand me off to the next doctor.
At this point I can barely use the shoulder that the surgery was done because it pulls the chest & ribs.
So I am welcoming any recommendations on how to approach this or any opinions before my appointment tommorrow. Sammy
I have been so worried and I know your surgeon is probably at the point where he is going to cut you loose. Even if he does not refer you to a PM doc, you really need to take it upon yourself to get one. If you need a referral then get one from your PCP doc. You think that you are in alot of pain now, if your surgeon let's you go or dramatically cuts your meds, the pain is going to be excruciating. I don't know if it's the surgeons responsibility to get you to a PM doc. Either way you should have an appt with one so that the PM doc can take over your care, your meds, any treatments, MRI, CTs they can handle it. Even if you get the referral tomorrow it could take months to get into see a PM doc. If you keep waiting, things are going to continue to get worse.
I'm not trying to be mean just trying to really nudge you into finding out which PM docs your insurance covers and start calling, see if they require a referral and get one even if the referral is from your PCP. I'll pray for you and let us know what the surgeon says or does.
Sammy: I would let the PT call this surgeon. She could probably be more convincing over the phone than in a letter or office notes. I know you are afraid he'll hand you off to another doc, but that sounds like it might just be a better option for you anyway. This guy is doing nothing for you. A new surgeon might actually listen to you and the PT and get this looked into further.
Even if he stops the PT order, you said your PT won't touch you until something further is done anyway. You can't go on like this Sammy. It is too much for anyone to take. You do not deserve this. Too bad this guy is peeved. If he had taken responsibility for your care in the first place, this wouldn't be happening. He's probably just mad that someone called him out.
Like Brian said, get on the phone and start calling. It can't hurt to try and find out what you need to do to get in to see a PM. I am praying for you and I hope you can get some answers and some much needed relief. Try to hang in there, my friend. God Bless, cmpgirl
Sweetie I am so sorry that your going through this!! (((((((HUGS)))))))
I agree with what has already been said. If the surgeon does let you go most of them that I have had would prescribe some pain meds to last a little while so that I had time to get in to see a PM doc. I think if he does not do that at least then he is really on another planet. With all the surgeries I have had it seemed as though the surgeon was only willing to take care of me for a certain amount of time and then wether I was feeling good or bad they cut me loose. I think that is somewhat standard that they will only care for you so long after the do surgery.
I certainly hope that it will not take to long to get yourself into a PM doc. Correct me if I am wrong, but your not on any long acting meds are you?
I also think that given the pain that your in a LA med would be better for you.
At this point I totally can imagine how scared and frustrated you must feel. I from my own experiences can certainly understand about the fear and uncertainty.
We are at their mercy sometimes.....urrrgggghhhhhh!!!!!
Sammy when you see the doc tomorrow and if he decides to cut you loose be sure to ask if he can prescribe enough to last you for a while. Not to say that he may not do it, but it does not hurt to ask him while your there.
I am not sure that this will help or if it is a good idea, but I am wondering what your insurance would suggest to do if they knew that you were still having this pain and unresolved issues. I am wondering if you could talk to anyone at your health insurance company and see what if any they could suggest for you to do.
I will be saying some prayers for you sweetie and I really hope that these things come together and you recieve the care and pain relief that you need and deserve.
The last thing I want to say it WHAT is the matter with the docs when they will not give you adequate pain relief and they do NOT LISTEN when you tell them about the issues your having and then try to investigate to find the source. So very frustrating for us. The pain and emotional suffering that is coused from it is just dis heartening and saddening.
My pt is sending a report to the surgeon. She would like him to give a script so she can try to work on the ribs over the shoulder for now. The shoulder is not going to heal like it should until the ribcage is addressed. I am so tired of pain. I'm requesting the ortho. surgeon look into pm for me. I have no problem seeing another specialist at this point but until I can get into one this has to be dealt with. I am informing him of what I experianced having the echocardio testing done, having that tech pusing on the chest & ribs was excruciating, cried all the way through the test, that is not normal at all.
My concern is the ribs & chest being let go, just as the shoulder was for so long.
I am going to have to get one of these docs to try to get an MRI done. I will be spending this week resting to see if it makes a difference. At this point I just don't think it will. I can't see the surgeon cutting my meds & not referrring me to a PM, especially with the PT's report.
I feel I got lucky by ending up with this PT she has really shown her concern & encouraged me to give these these doctors a push to start looking into this.
We all know she could have just stopped pt & sent the surgeon a report.
I feel I need someone on my side here & who better then someone working hands on.
She wanted to call shortly after starting pt, so if I continue with her & she brings up calling the surgeon I will encourage her to do so.
I am tired of the insurance companies dictating our medical care. I am sure at times it ends up costing more in the long run with all the other tests & treatment combined.
If I can get the surgeon or the pcp to request an MRI of that area, that will be the second request made by a doctor to get that area looked at.
i like to watch "Mystery diagnoses" on TLC channel.
I can't believe how many people suffer for years (even with cancer) and nobody can diagnose them until they finally find a DR who is knowlegable enough to let them know what is going on.
Don't give up. Just because many of DRs don't know what is wrong with you, doesn't mean you should agree with them if you feel something is wrong.
I learned on my experience how some Drs just gessing what is wrong, but don't know for sure what is the problem.
You do your homework, search for good institutions, good DR and hopefuly you find some answers for yourself.
Thanks for your support & advice.
Home from surgeons appointment, thank god my husband went, could not remember much of what he said.
The surgeons assistant had to wait for the pt to fax her note over, she said it was a must for him to see.
What ever was in that note got the assitants attention, she came back into the room to let my husband & myself know that she received the fax & that the surgeon was definantly going to want to see it. He was suppose to go over it with me but got to sidetracked expaining other things. I know the pt was very concerned over the inflammation & could not get it to stay down.
So that note was enough for him to say time for an MRI with & with out contrast, have to rule out tumors, he feels the left lung needs to be looked at, I am alittle concerned because the left lung was brought up after a test with another doctor, but I have decided to try my best not to worry.
The surgeon will treat me while attempting osteo treatment for now, if at the end of six months I still have all this pain he will refer to pain management. Thus far that is what he said, of course I was so upset I had ask my husband exactly what he said.
The myofascial area in the ribs he believes will have to be worked on, & have to try to get the ribcage back in place. Sounds like fun, huh!
I am going to take my pain meds as he said & try not to worry about it so much. Thank you all for everything. Sammy
I haven't replied before now, and for that I'm sorry. BUT you have been in my prayers, and you will continue to be.
Lord above, please guide the doctors to a definite diagnosis for our prescious Sammy, and Lord, please let whatever the diagnosis might be turn out to be minor, or Lord as you see fit, nothing more than a minor setback. Give her the strength and courage as she goes into these tests to face whatever it is that you put before her Lord, because as we know, YOU already know the outcome. You have given her the wonderment of life, and we know that we can do all things though Christ which strengthens us. Allow Sammy that strength during this time Lord, and give her doctors the wisdom to treat her, and the tools and medications to help ease her pain. In Your Sons name I pray! Amen!! Amen! Alleuia! Amen!
Sammy you holler if you need us!
\lm/ = "I Love You" in Sign Language
12/10/04 MicroD & Hemi Lami 100% Success
09/05 Re-injured post Katrina
06-07 In Pain Mgmt. trying to deal
3/9/07 2 Level PLIF due to CES
You have given her the wonderment of life, and we know that we can do all things though Christ which strengthens us. Allow Sammy that strength during this time Lord, In Your Sons name I pray! Amen!! Amen! Alleuia! Amen! you holler if you need us!
can you pray this for me please, I am really suffering mentally
Sammy, I'm sorry I haven't jumped into this before now. I don't think I even checked into the board yesterday. I too pray for your healing. GOD is in charge and there is a reason behind all of this. Unfortunately we, most of the time , just can't see it. Just hang in there and trust the LORD. Give HIM your troubles and concerns, He can handle them much better than we can.
Your friend in CHRIST, Fred
Sammy: Just wanted to let you know that I am relieved that this appointment is finally over and that your surgeon's eyes were opened up to your concerns. Your persistance and the compassion of this PT have surely set in motion, the path to the answers that you need.
I wish you peace of mind, comfort and strength. I am praying for God to guide the surgeon and all who will be performing your tests and treating you. I am also praying for comfort from your pain and the easing of any fears.
Take care of yourself. Get your rest and pamper yourself a little. Let your family and all of us, carry your pain and your worry. God Bless, cmpgirl
Sammy.....So glad that this appt is over and that your surgeon has agreed to treat you for 6 months....And then refer you to PM in necessary. I think at the end of the day, we as patients all want to know what the long term "plan" is for us. Taking your husband was very prudent.