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Old 05-04-2008, 04:03 PM   #1
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Have Any Of You Told Your Docs About Healthboards?

Im curious...
I have mentioned to my doc in the past, about Healthboards. I have told him about the PM board, and that I have found great support here, ect. The thing I like about him is he doesnt get threatened or take offense that I go somewhere to get advice or support from other PM persons.

Sometimes, Ill tell him that "I read such and such on the board..." and he never says a peep, just tells me what he thinks.

I wouldnt feel odd if he ever lurked and saw my posts, I highly, highly, DOUBT that he has the time or does. So that doesnt bother me in the least.

I told my sister about HB and she works for an ortho, and she said shes VERY familiar about it. Also she said that a lot of docs dont like the fact that their patients are researching things online, for fear they think ppl get excited about nothing.

I think we should ALL be involved in our care. I wouldnt have a doc who dismissed something I researched online, and acted like he was the Holy Grail. Somtimes Ive shared things that hes disagreed with but he has never ever put down anything Ive found online.


Im just wondering if any of you have shared anything that youve learned here, or trial and error by others with your docs~..
xoxoxox,
IZZY'SMOM

Last edited by IZZY'SMOM; 05-04-2008 at 04:10 PM.

 
Old 05-04-2008, 04:10 PM   #2
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Re: Have Any Of You Told Your Docs About Healthboards?

Actually I have shared it with my psychologist and he thinks it is fantastic that I go to a board for support.

 
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Old 05-04-2008, 04:19 PM   #3
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Re: Have Any Of You Told Your Docs About Healthboards?

Nope. I have never told any of my Dr's I read a message board like this. I wouldn't want them to go and find it and than get idea's in there head about all of the negative things that can happen being a CP patient.

SS

 
Old 05-04-2008, 05:13 PM   #4
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Re: Have Any Of You Told Your Docs About Healthboards?

I told my pm about the great friends I have made here and he looked at me like i was crazy!! Why would you want friends who are in daily pain??? I say he's the crazy one....also because he told me that the next time I needed to up my meds he would just take them away..hyperalgesia!
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undiagnosed lung and back pain after pneumonia in '03, tmj, migraines,(two failed surgeries for) Kienbock's disease

 
Old 05-04-2008, 05:17 PM   #5
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Re: Have Any Of You Told Your Docs About Healthboards?

Quote:
Originally Posted by trowftd3 View Post
I told my pm about the great friends I have made here and he looked at me like i was crazy!! Why would you want friends who are in daily pain??? I say he's the crazy one....also because he told me that the next time I needed to up my meds he would just take them away..hyperalgesia!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

You ARE kidding correct???? about your meds being taken away?? God. My doc told me that its great to have support, and he hoped I could find some useful support here.
xoxoxox,
IZZY'SMOM

Last edited by IZZY'SMOM; 05-04-2008 at 05:21 PM.

 
Old 05-04-2008, 05:57 PM   #6
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Re: Have Any Of You Told Your Docs About Healthboards?

I have told my doctor about the boards, I have even wondered if he ever looked here and figured out who I was.,..lesse....how many bad names did I call him last month? <eg>

I dont know why, But I got the feeling he approved, but wouldnt come here himself. He did write it in my chart, though! I told my old doctor about you all, as well, I wanted them to know how great it is that there is an online community of pain patients, and that we can share our courage, fears, ideas, and constipation cures on line!

Hugs, Fabby

 
Old 05-04-2008, 06:09 PM   #7
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Re: Have Any Of You Told Your Docs About Healthboards?

Yes, I've told my doc.

As a matter of fact, I printed out a few posts from the Men's Health board when I wanted testing done to see if I had a tumor. I wanted to learn the cause of my low T level before just launching into treatment. He showed keen interest in the prints. He didn't agree with all the suggestions, but still didn't put them down. Then, when I saw him last week, he had to admit they were right, having seen the MRI results of a tumor.

My doc is very respectful and very kind. He's always been open to whatever I share.

steve

 
Old 05-04-2008, 07:54 PM   #8
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Re: Have Any Of You Told Your Docs About Healthboards?

My PM doc knows as well. He has no problem with it, and he is also supportive of my choice to be an informed patient. Now my Neuro-Surgeon, he was a whole different ball of wax. He flat out told me to "get off the internet". He was one of those that had the "god complex"!!
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Old 05-04-2008, 08:39 PM   #9
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Re: Have Any Of You Told Your Docs About Healthboards?

I've told my doc, but can't remember if I told him which site. He was absolutely fine with it. He thinks it's a great resource. I know I'm lucky to have a doc, who is open to working with me, not just dictating my care.

My psychiatrist also knows. He is fine with it too. He thinks that support is important, regardless of where it comes from. cmpgirl

 
Old 05-04-2008, 10:45 PM   #10
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Re: Have Any Of You Told Your Docs About Healthboards?

I think I told my doctor about this site as well. I know that I told him about several patients on a message board that used the cortisone nose spray to help with the reaction of the patch. He said that he has never heard of using the spray for that before but didn't have a problem with giving me a sample. He is a really great doctor and is always respectful of things that I mention and even admitted he was wrong once when I respectfully told him of a med interaction, he went to check it out for sure and said "yes you were right". Go me, go me, go me Can you tell that I like to play doctor

brian

 
Old 05-05-2008, 06:09 AM   #11
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Re: Have Any Of You Told Your Docs About Healthboards?

I told them and they just told me not to read to much before the surgery for fear i would see something that would make me back down. But he told me he thought it was a great thing to be doing and hear the experiences from others.

 
Old 05-05-2008, 09:52 AM   #12
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Re: Have Any Of You Told Your Docs About Healthboards?

Izzy,
you are so right about patients have to be involved in our own health issues. Information we have available on Internet, information we can learn from each other on boards I think a good idea to discuss it with your Dr. And if he/she does not want to listen about it, means something is wrong.

I read once on board that someone mentioned to her Dr about this board, his answer was: "Not healthy for you, people are looking for pity on those boards and it can make your depressed".

I personally think this is healty. When communication with nice people who understand each other due to similar health issues can be unhealthy? Sharing, learning, listening, feeling for others - I think this is healty and a great thing to do.

I told my surgeon's PA about me being on this board, she said that this can be better than goiong to physicologist sometimes because you are talking to people who don't need explanation: you say A, they already know what you are talking about. I told here about board because I learned about Stim right here from Shawley; I never knew about it before.
My Dr is a wonderful one, but only after I mentioned about reading that Stim helps some people with pain, he told me all about it. So thank God for Boards and for all of you being so helpful, so kind and understanding. I think this is so beautiful that people who leave in CP, who don't have it easy but yet have time and desire to help others... We all take each other by hand through tough times in our lives without even realizing it.

Blessings and Love
Moldova

 
Old 05-05-2008, 10:35 AM   #13
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Re: Have Any Of You Told Your Docs About Healthboards?

Quote:
Originally Posted by IZZY'SMOM View Post
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

You ARE kidding correct???? about your meds being taken away?? God. My doc told me that its great to have support, and he hoped I could find some useful support here.
xoxoxox,
IZZY'SMOM
Unfortunately, not kidding. I'm hoping that when the time comes(I'm on Oxycontin so it probably will come) I can talk my gp into switching me to methadone without seeing my pm.
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Old 05-06-2008, 03:59 AM   #14
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Re: Have Any Of You Told Your Docs About Healthboards?

I went to a new neurosugeon last fall...he was new to our area..he thought that I had SI joint problems.. Where he used to practice he had a Dr. he would refer patients to for this kind of problem, but, he didn't know anyone in our area...especially as those DRs. are specialists..very few of them who can treat the SI joint. I mentioned this on the boards..and low and behold..one of the board memebers (thank you Lisa!!!) suggested I go and see a specialist about 60 miles from my house...I told my neurosurgeon about this Dr...he checked him out, spoke with him and began referring patients to him.. When I finally got to see the specialist..he mentioned that my neuro. was sending him a lot of patients...and I explained why...that I was the one who had found out about him from a member of the board. He asked what site I was on!!! Told him...he said, maybe he should come and visit!!!! Amazing..no disapproval from either of them...they were both amazed about what info. was on here. I have suffered with this back problem for over 5 years...and only because of these boards do I have an answer as to what is wrong...all because of a wonderful person who referred me to the correct Dr. I will be having surgery at the end of June...and look forward to a much better life!!

Sage

 
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