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Old 05-12-2008, 02:36 PM   #1
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Join Date: May 2007
Location: Ireland
Posts: 716
Round1 HB User
Going for my 12month check-up - question for you re meds.

Hi there,

I just want to run a few things by you, I have my 12 month x-ray and visit to neuro this week. Since I saw him last, I had to query whether I had Anklosing Spondilitis (sp!) since I tested positive for the gene and had nearly all ths symptoms, x-ray of pelvis was clear. I then went to a pain management specialists and have gone down the route of 20mg of Oxycontin in the morning, and 20mg at night. (Have to build the oxycontin up to 30mg) Also 25mg of Amytriptline and now attending the rehab physio which I find very good. Actually the 5 session that I have had so far have been much better than the 9months I have spent with the physio he sent me to.

I am concerned about telling him what meds I am taking as when I was in the hospital after the fusion he didnt want me to go home taking 5mg of Oxycontin. (yes we can get 5mg here!). But then i dont want him to think that yes everything is fine.

What I was thinking of saying is:- Since my last visit with you there hasnt been any great improvement. I still need to lye down during the day due to the pain. Sitting for any lenght of time is a problem. (Did a 2 hour car journey that was pure agony, and I was just so sore after it, needed to lye down when we arrived). Can walk for 25 min max, standing for 5 min, my back feels like a concrete block is in it. I have gone down the Pain Management route as advised by my G.P. and he has sent me to a rehab spine physio, I have gone for 5 sessions and I am happy with what she is doing and showing me, and feel that I will get some relief from this.
(I had been attending a physio that he recommended in the hospital, where i spent the 9months doing pelvic tilts !!!! and she wanted to see me just every 3 weeks). I have got better relief, help and advice from this rehab physio in the 5 sessions than I got from his physio !) I wont be saying that of course !!

The last time I was with him he was more concerned that his work was okay as in scews, nuts and bolts all in the right place. As he said from his point everything was okay, but I was still in pain.......... but that was for me to kind of sort and deal with as he couldnt do anymore, everything was done right. He also said, which I know, that he told me I could be better, or worse, or still be the same. Backs are so complex and if we could be 100% sure where the pain comes from there job would be more successfull for the patients pain.


I am just concerned that he might not agree with the medication, since he was so against it in the hospital. But then this has been recommended by the Pain Management Specialist........ who saw me in pure pain and unable to walk properly and said it was no condition to let me in.

Am i just worrying unnecessary? What do you think? Tell him if he asks what I am taking, and dont say if he doesnt? Here I am after reading over this and thinking why should I worry what he thinks, I am the one in pain,
I suppose he is the one then that can write to my GP and stop the meds !!


Advice please ! Actually it hasnt even entered my head whether I am fused or not, I suppose the fact that I am still in pain, fused or not !

Round1

 
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Old 05-12-2008, 03:52 PM   #2
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Join Date: Feb 2008
Location: NY
Posts: 1,884
cmpgirl HB User
Re: Going for my 12month check-up - question for you re meds.

Round1, In my opinion, he or his nurse will ask when doing history and vitals. But, in the grand scheme of things, he really shouldn't have anything to say about what you are now taking. He didn't prescribe it, and it's between you and your PM doc. If he were to write a letter to PM saying he didn't agree with the meds, I'm sure your Pm would ignore it. I doubt he would care what the neuro has to say, in that regard. I'm sure the main reason the neuro wouldn't give you meds, post-op, is that he was trying to cover his you know what.

Don't fret too much. What your PM does, is none of his business. At least it shouldn't be. After this 12 month checkup, you may not have to see him again anyway. At least not for a while, I would think.

I'm really glad to hear that your new meds and physio are finally giving you some much needed relief. It is so frustrating when nothing seems to make a difference and really encouraging when something finally does.

Take care and don't worry about the neuro. I'm sure it will be just fine. cmpgirl

 
Old 05-12-2008, 07:56 PM   #3
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Join Date: Dec 2006
Location: CA
Posts: 1,569
forginon HB User
Re: Going for my 12month check-up - question for you re meds.

So this is a one year follow up with either a neurologist or a neurosurgeon?

And you also have a PM doc and a GP? The PM doc prescribes the OxyC?

As far as I see it, the issue w/the 'neuro' is following up on something he did for you a year ago. What your PM and GP docs do for you are really none of this guy's business unless he feels their treatment puts his work at risk. If you are concerned his opinion re>drugs forces you to defend them, just tell him that the meds allow you to do the physio and have any quality of life. Other than that, I wouldn't discuss other docs treatment with the neuro.

In my case, my GP writes my scripts. However, he does this with the guidance and oversight of the PM doc, whom I see every 6 months. So if my PM didn't like something my GP was doing for my PM treatment, she would tell him and he would follow her lead.

However, in your case your PM recommends the OxyC and prescribes it, right. Being the PM authority in this 3 doc team no one else really should be voicing a contrary opinion. If so, it should be of no import to the PM.

If I were you I'd try to relax.

steve

I sure hope I don't have this all screwed up.

 
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