I just want to run a few things by you, I have my 12 month x-ray and visit to neuro this week. Since I saw him last, I had to query whether I had Anklosing Spondilitis (sp!) since I tested positive for the gene and had nearly all ths symptoms, x-ray of pelvis was clear. I then went to a pain management specialists and have gone down the route of 20mg of Oxycontin in the morning, and 20mg at night. (Have to build the oxycontin up to 30mg) Also 25mg of Amytriptline and now attending the rehab physio which I find very good. Actually the 5 session that I have had so far have been much better than the 9months I have spent with the physio he sent me to.
I am concerned about telling him what meds I am taking as when I was in the hospital after the fusion he didnt want me to go home taking 5mg of Oxycontin. (yes we can get 5mg here!). But then i dont want him to think that yes everything is fine.
What I was thinking of saying is:- Since my last visit with you there hasnt been any great improvement. I still need to lye down during the day due to the pain. Sitting for any lenght of time is a problem. (Did a 2 hour car journey that was pure agony, and I was just so sore after it, needed to lye down when we arrived). Can walk for 25 min max, standing for 5 min, my back feels like a concrete block is in it. I have gone down the Pain Management route as advised by my G.P. and he has sent me to a rehab spine physio, I have gone for 5 sessions and I am happy with what she is doing and showing me, and feel that I will get some relief from this.
(I had been attending a physio that he recommended in the hospital, where i spent the 9months doing pelvic tilts !!!! and she wanted to see me just every 3 weeks). I have got better relief, help and advice from this rehab physio in the 5 sessions than I got from his physio !) I wont be saying that of course !!
The last time I was with him he was more concerned that his work was okay as in scews, nuts and bolts all in the right place. As he said from his point everything was okay, but I was still in pain.......... but that was for me to kind of sort and deal with as he couldnt do anymore, everything was done right. He also said, which I know, that he told me I could be better, or worse, or still be the same. Backs are so complex and if we could be 100% sure where the pain comes from there job would be more successfull for the patients pain.
I am just concerned that he might not agree with the medication, since he was so against it in the hospital. But then this has been recommended by the Pain Management Specialist........ who saw me in pure pain and unable to walk properly and said it was no condition to let me in.
Am i just worrying unnecessary? What do you think? Tell him if he asks what I am taking, and dont say if he doesnt? Here I am after reading over this and thinking why should I worry what he thinks, I am the one in pain,
I suppose he is the one then that can write to my GP and stop the meds !!
Advice please ! Actually it hasnt even entered my head whether I am fused or not, I suppose the fact that I am still in pain, fused or not !