It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Pain Management Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 06-22-2008, 06:51 PM   #1
Inactive
(female)
 
Join Date: Jun 2008
Location: EDINBURG, TX. USA
Posts: 0
Takotah HB User
Duragesic - Robber of life - How I quit - What I take for pain.

This is my first post ever in this forum!
I want to help others dealing with withdrawing from Duragesic.

I retired to a town in the RGV of Tx. but lived most of my life in Seattle.
The medical practices in Seattle are much more enlightened and reflect a level of higher trust and education on the part of the p.m. physicians.

During the last 3 years I've gone through breast cancer, subsequent lumpectomy and 6 1/2 weeks of radiation. I tried interferon/ribavirin for my Hep C.
Failed but would have passed with proper blood building of w and r blood cell shots. I also moved 4x.

In Seattle oxycodone/oxycontin were easily RX'd. I appreciated that medication as it doesn't make one sleepy nor cause an unpredictable need for sleep as does Duragesic. Still I had not had done MRI's nor x-rays of the spine. I was still allowed 35 mg. oxycodone a day for pain due to kind physicians.

In Tx. we discovered that I have bulging disks, bone overgrowths, etc. in my back according to x-rays or mri's...I can't remember which one showed the truth about my spine. My hands and arms can go numb. I cannot walk too long w/o p.m. Lower back pain in the morning and mid back pain in the afternoon spreading on the left side.

I was first put on .25mcg. of Duragesic and used the Mylan brand as it was available from both Walgreen's and Walmart.

I also received anti-inflammatory shots in my back. Same dr. rx'd me hydrocodone +APAP. APAP for someone at stage 3 liver fibrosis?



The second p.m. dr. did give an ineffective IV of versed (sp?) instead of rendering his patients unconscious
This may work for others but not on me. They tried three doses on one occasion and all I did was continue to talk.
It did not relax nor prevent the pain of the shots. I finally refused any IV drugs although they kept an IV inserted in case of trouble.

For a spell I tried 50 mcg. as the pain would not diminish, but I'd fall asleep and was unable to even do minimal self maintenance. I'd bathe less frequently and need more shopping help and ignored the state of my home.

I couldn't do common errands as I wouldn't know when I'd feel the need to crash asleep at this increased dosage.
We tried application of ea. 72 hrs. but discovered that 48 was best.
The need for 48 hr. applications may be due to the high temps in the RG Valley.

With the second p.m. dr. I returned to the 25 mcg. patch.

Walmart and Walgreens switched to the Watson (liquid Fentanyl patches) which do NOT deliver a predictable, constant dose. No!
One finds that the need to sleep can have a quick onset worse than the Mylan brand or .50 mcg. dosage.

I found another local druggist which carried Mylan as I prefer a regular, predictable dosage. I switched to that pharmacy.

My dead life on Duragesic on .25mcg. ea. 48 hrs.:

Uncontrolled morning crying
Sleeping too much and too late
No energy to get up early, shower, go shopping, etc.
Much break-through pain
Could not feel joy, etc.
Hired others to help me keep my home clean.

Quitting the patches:
I quit the drug using 20 mg. oxycontin for about 4 days and teensy amounts of oxycodone for break-through pain.

I would take teensy amounts of oxycodone, nibbling on a pill, trying to avoid large doses, during the following days when needed for pain or w/d symptoms.

I commenced a 2 a day Aleve regimen. (But I worry about the OTC NSAID'S.
I always take Aleve with a Cal/Mag supplement to prevent stomach pain, I hope.)


Using drugs to taper off is worthwhile.
I had some sweats and low back ache.
I suffered no nausea which I avoid at all costs. (Try eating an orange for such nausea.)

Oddly, Duragesic helped diminish my hot flashes. and now the frequency of my hot flashes are back. Ugh!

Withdrawal in this manner took about 6+ days

I was using the patches to avoid liver damage and because my back is a mess.

W/O the help of p.m. or things like nasty NSAID's, I will cry when I reach my car after trying to do maintenance grocery shopping due to pain.

You all probably know that concept: "I am unable to complete common, life maintenance tasks, like food shopping, cleaning my residence, driving for more than 10 mins., etc. w/o pain."

I was on Fentanyl for 1 1/2 years.
I would cry several hours on many days.
In retro, IT WAS THE DRUG!
I had assumed that I was sad due to moving
or it was Hep C related depression.

NOPE! Itís the drug and it robbed me of many awake hours, caused depression, and the second p.m. dr. didn't rx. any break-through meds.

Now, everyone thinks oxycontin/oxycodone are terrible, addictive, blah, blah,
but the oxy's don't rob one of energy, do not cause unpredictable episodes of sleep, actually deal with my type of pain in a better manner, and do not contribute to HUGE depression, etc. (at smaller doses, I suppose. I do not know about doses in the 40 mg. range.)



deleted

The oxy's have their place as, used properly, offer a life that is awake.
The last 1 1/2 years were stolen from me by Duragesic.
The shots in the back did help.

I also bought an inversion table on which to stretch and relax my spine. That helps also.

I also take Lyrica when I can afford it for hot flashes, fibro, etc.
(There is research on Neurontin for hot flashes. Lyrica is an anolog to Neurontin and I believe helps to ward off hot flashes much better than Neurontin.)
Lyrica can make one tired but I don't notice it at all.



deleted


My life is majorly back! I am getting things done! I have more needed energy to shop rather than do fast grocery shopping.




<Edited: removed reference to doctor complaints and illegal drug acquisition.>




*

 
Sponsors Lightbulb
   
Old 06-24-2008, 08:01 AM   #2
Inactive
(female)
 
Join Date: Mar 2008
Posts: 5,070
katlin09 HB Userkatlin09 HB Userkatlin09 HB Userkatlin09 HB Userkatlin09 HB Userkatlin09 HB Userkatlin09 HB Userkatlin09 HB Userkatlin09 HB Userkatlin09 HB Userkatlin09 HB User
Re: Duragesic - Robber of life - How I quit - What I take for pain.

I'm sorry to hear that you had such a bad experience with the Fentanyl patch, but alot of these drugs are "user specific". I've been on the 50 mcg. patch for almost a year and never had a problem with it, so the meds work in different ways for different people. I'm glad you've found something that works for you.

 
Old 06-26-2008, 06:15 AM   #3
Newbie
(male)
 
Join Date: Jun 2008
Location: Big Lake, AK, USA
Posts: 2
geoffinak HB User
Re: Duragesic - Robber of life - How I quit - What I take for pain.

Every drug affects someone differently. To say Duragesic robbed you of life, is not a very good way to discuss your reaction from the drug. It puts a very negative tone, that unless they read your letter, may just think it's a bad drug.

You can look on the web and find people will say Oxycontin robbed them of their life and that it is causing all the bad symptoms and should be taken off the market. Imagine if they were not available to you because to many people wrote they robbed me of my life.

You are lucky that you found Pain Management Specialists willing to prescribe to relieve your pain. You must have presented and related to be in severe pain for the Doctors to prescribe such strong meds. The MRIs may have found the cause of the pain, but the important thing here is the Doctors believed you that you were in pain. They trusted you. Many people have pain problems that do not show up so easily on MRI's and if they do not. The Doctor's may disregard their claims of pain. The Doctors in Seattle believed you. Now that they found the back problem, I doubt there is a surgical approach to fix it. So it's good to know what causes the pain but better to know that Doctors take your word for being in pain.

Try to be objective in your reviews of medications, realize that while Duragesic was not the cure for you, oxycontin was, they both have the same basic base, opium. Try to be objective in stating your side effects from medicines. You do not want to lose the medicines that work for you. So you should not want to make statements that may cause other people to lose medications that work for them.

You said
Quote:
Now, everyone thinks oxycontin/oxycodone are terrible, addictive, blah, blah,
Well basically that's what you said about Duragesic and they are in the same class of drugs.

Side effects are a legitimate concern and should be reported, but in a less inflammatory way. It sounds as if you blame the Doctors and the medicine they prescribed, when it's really how one person reacts to a drug. If these things started happening when you started the Duragesic, you should have reported this immediately to the treating Physician.

Doctors are very cautious about prescribing pain medications. You said they may have overdosed you, at the very minute that you thought the medicine was an overdose amount, you should have again told the Doctors of your symptoms. Not waited for a 1.5 years.

It's very hard to find good Doctors willing to treat chronic pain, you are very lucky to have such committed Doctors, I am glad they found something that works for you, sometimes it is a matter of trial and error.
I hope you continue to get relief and your health continues to improve.
All the best
Geoff

 
Old 02-16-2009, 09:08 PM   #4
Inactive
(male)
 
Join Date: Feb 2009
Location: highlands
Posts: 68
REMZY HB User
Re: Duragesic - Robber of life - How I quit - What I take for pain.

you sound kinda freaky. you know your not supposed to nibble on your pills. and your not supposed to see more than one pain dr. and that other guy was right you should be more greatful tha they treated you for pain, some people have a hard time gettin treatment. i would be greatful for fentanyl thats about the strongest pain killer i know of , legal schedulke 2 anyway. get a grip. and i hope ya feel better by the way.
i never heard of someone using narcotics for hot flashes like you metioned you should mention that to your dr. and the fact that you chew your pills.

 
Old 02-19-2009, 11:01 PM   #5
Newbie
(female)
 
Join Date: Feb 2009
Location: buffalo, ny
Posts: 2
zazu024 HB User
Re: Duragesic - Robber of life - How I quit - What I take for pain.

most pills are not to be chewed. Espically if they are time released. I would check with your pharmacy to see what pills are okay to chew. Oxycontin can cause hot flashes, or it can be hormones. Have you seen a GYN for your hot flashes. Well good luck.

Last edited by zazu024; 02-19-2009 at 11:01 PM.

 
Old 06-12-2009, 07:39 PM   #6
Newbie
(male)
 
Join Date: May 2009
Location: Milfor CT. 06460
Posts: 1
wtss HB User
Re: Duragesic - Robber of life - How I quit - What I take for pain.

I have been on fentanyl for 3 years 100 mcg every 48 hours and 15 oxycodone 4 times a day or as needed. The fentanyl is the best and I find that I get a boost in my energy from it. So to say that it is no good for life is not fair. Your body does not except or like it that is all and it likes other things. Dont scare any new people with a complete down response when they are just trying it for the fist time. It could work for them as good as it did for me. Your body prefers oxy I am glad your doctors found this out. But something should have been said before a 1.5 year treatment regimen.

 
Old 06-19-2009, 10:18 AM   #7
Senior Member
(female)
 
Join Date: Dec 2008
Location: NC/USA
Posts: 243
katlovesdogs HB User
Re: Duragesic - Robber of life - How I quit - What I take for pain.

This started over a YEAR ago...

 
Old 07-08-2009, 06:33 PM   #8
Senior Member
(male)
 
Join Date: Jun 2009
Location: Rochester MN USA
Posts: 291
dave490 HB Userdave490 HB Userdave490 HB Userdave490 HB Userdave490 HB Userdave490 HB Userdave490 HB User
Re: Duragesic - Robber of life - How I quit - What I take for pain.

Quote:
Originally Posted by Takotah View Post
This is my first post ever in this forum!
I want to help others dealing with withdrawing from Duragesic.

I retired to a town in the RGV of Tx. but lived most of my life in Seattle.
The medical practices in Seattle are much more enlightened and reflect a level of higher trust and education on the part of the p.m. physicians.

During the last 3 years I've gone through breast cancer, subsequent lumpectomy and 6 1/2 weeks of radiation. I tried interferon/ribavirin for my Hep C.
Failed but would have passed with proper blood building of w and r blood cell shots. I also moved 4x.

In Seattle oxycodone/oxycontin were easily RX'd. I appreciated that medication as it doesn't make one sleepy nor cause an unpredictable need for sleep as does Duragesic. Still I had not had done MRI's nor x-rays of the spine. I was still allowed 35 mg. oxycodone a day for pain due to kind physicians.

In Tx. we discovered that I have bulging disks, bone overgrowths, etc. in my back according to x-rays or mri's...I can't remember which one showed the truth about my spine. My hands and arms can go numb. I cannot walk too long w/o p.m. Lower back pain in the morning and mid back pain in the afternoon spreading on the left side.

I was first put on .25mcg. of Duragesic and used the Mylan brand as it was available from both Walgreen's and Walmart.

I also received anti-inflammatory shots in my back. Same dr. rx'd me hydrocodone +APAP. APAP for someone at stage 3 liver fibrosis?



The second p.m. dr. did give an ineffective IV of versed (sp?) instead of rendering his patients unconscious
This may work for others but not on me. They tried three doses on one occasion and all I did was continue to talk.
It did not relax nor prevent the pain of the shots. I finally refused any IV drugs although they kept an IV inserted in case of trouble.

For a spell I tried 50 mcg. as the pain would not diminish, but I'd fall asleep and was unable to even do minimal self maintenance. I'd bathe less frequently and need more shopping help and ignored the state of my home.

I couldn't do common errands as I wouldn't know when I'd feel the need to crash asleep at this increased dosage.
We tried application of ea. 72 hrs. but discovered that 48 was best.
The need for 48 hr. applications may be due to the high temps in the RG Valley.

With the second p.m. dr. I returned to the 25 mcg. patch.

Walmart and Walgreens switched to the Watson (liquid Fentanyl patches) which do NOT deliver a predictable, constant dose. No!
One finds that the need to sleep can have a quick onset worse than the Mylan brand or .50 mcg. dosage.

I found another local druggist which carried Mylan as I prefer a regular, predictable dosage. I switched to that pharmacy.

My dead life on Duragesic on .25mcg. ea. 48 hrs.:

Uncontrolled morning crying
Sleeping too much and too late
No energy to get up early, shower, go shopping, etc.
Much break-through pain
Could not feel joy, etc.
Hired others to help me keep my home clean.

Quitting the patches:
I quit the drug using 20 mg. oxycontin for about 4 days and teensy amounts of oxycodone for break-through pain.

I would take teensy amounts of oxycodone, nibbling on a pill, trying to avoid large doses, during the following days when needed for pain or w/d symptoms.

I commenced a 2 a day Aleve regimen. (But I worry about the OTC NSAID'S.
I always take Aleve with a Cal/Mag supplement to prevent stomach pain, I hope.)


Using drugs to taper off is worthwhile.
I had some sweats and low back ache.
I suffered no nausea which I avoid at all costs. (Try eating an orange for such nausea.)

Oddly, Duragesic helped diminish my hot flashes. and now the frequency of my hot flashes are back. Ugh!

Withdrawal in this manner took about 6+ days

I was using the patches to avoid liver damage and because my back is a mess.

W/O the help of p.m. or things like nasty NSAID's, I will cry when I reach my car after trying to do maintenance grocery shopping due to pain.

You all probably know that concept: "I am unable to complete common, life maintenance tasks, like food shopping, cleaning my residence, driving for more than 10 mins., etc. w/o pain."

I was on Fentanyl for 1 1/2 years.
I would cry several hours on many days.
In retro, IT WAS THE DRUG!
I had assumed that I was sad due to moving
or it was Hep C related depression.

NOPE! Itís the drug and it robbed me of many awake hours, caused depression, and the second p.m. dr. didn't rx. any break-through meds.

Now, everyone thinks oxycontin/oxycodone are terrible, addictive, blah, blah,
but the oxy's don't rob one of energy, do not cause unpredictable episodes of sleep, actually deal with my type of pain in a better manner, and do not contribute to HUGE depression, etc. (at smaller doses, I suppose. I do not know about doses in the 40 mg. range.)



deleted

The oxy's have their place as, used properly, offer a life that is awake.
The last 1 1/2 years were stolen from me by Duragesic.
The shots in the back did help.

I also bought an inversion table on which to stretch and relax my spine. That helps also.

I also take Lyrica when I can afford it for hot flashes, fibro, etc.
(There is research on Neurontin for hot flashes. Lyrica is an anolog to Neurontin and I believe helps to ward off hot flashes much better than Neurontin.)
Lyrica can make one tired but I don't notice it at all.



deleted


My life is majorly back! I am getting things done! I have more needed energy to shop rather than do fast grocery shopping.




<Edited: removed reference to doctor complaints and illegal drug acquisition.>




*
While I respect your opinion of the fentanyl patch - based on your own experience, I would hope that you gave up the habit of nibbling on other pain meds. You're playing with loaded dice when you alter the way in which you take your prescribed meds.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
New Duragesic Patch Design Executor Pain Management 67 06-18-2010 05:52 AM
Scared to start duragesic patch scaredandnpain Pain Management 32 01-01-2007 10:58 PM
Duragesic A Killer? erfan Pain Management 16 07-28-2005 06:05 AM
Duragesic and nausea mkmb75 Pain Management 6 05-31-2005 09:44 AM
Duragesic patch - opinions please :) mainecoon66 Fibromyalgia 8 01-12-2005 04:58 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



gmak (155), tortoisegirl (154), Shoreline (148), BB07 (91), backhurtz (84), katlin09 (69), Ilovemycutedog (53), galalena (50), jonnstar (35), Isotope (34)

Site Wide Totals

teteri66 (1166), MSJayhawk (999), Apollo123 (898), Titchou (833), janewhite1 (823), Gabriel (758), ladybud (747), sammy64 (667), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 01:01 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!