It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Videos Join for Free User Blogs Board Index
Search
 
Forgot your username or password?


Pain Management Message Board
Post New Thread   Closed Thread
Share
 
 
LinkBack Thread Tools Search this Thread Display Modes
Old 06-28-2008, 08:47 AM   #1
Inactive
(female)
 
Join Date: May 2007
Posts: 1,362
Hugs: 0
Hugged 4 Times in 4 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
skych HB User
Unhappy Neuro Appt. was not the outcome I expected! More waiting, but in my best interest.

Hello my friends.!!

I went to the Neurologist yesterday. I was disappointed when I left and of course in tears again because I had expectations of how things would go.

First off I finally figured out why my Neuro has said that he does not like to do Fusions on people my age. He was thinking I was in my 20's. I don't fault him for not realizing it is in the chart that I will be 39 in December. I do have others that are shocked when I tell them I am almost 40 years old so I now understand why he thought that. So no surprise he might think that. I often wondered if that might be his train of thought.

Anyway, the Pain Psychologist presented me as a good candidate for surgery. But my neuro was still a bit concerned that I would not get enough pain relief, thus causeing me to be even more upset. He says no mater what gets done I will always have a "Bad Neck". That I already knew, but is discouraging to hear it from your doc. My life and neck as I once knew it ..is forever changed.

So he wnats me to go back to the Orhto surgeon that I went to see for a second and pick this docs brain and see what he thinks about my case. This was dissapointing because you know it is hard to get in to see these docs in a timely mannor. My neuro did say that the Ortho surgeon owes him a favor so he was going to personally call to try and get me seen either next week or the week after. That office is very very busy. They have four office locations and they have surgery schedules so I am not that optimistic for being seen that quickly. We will see.

My Neuro was planing to Fuse C 4-5 and C 5-6. He did open the discussion about whether to Fuse C 3-4 because there was proof of pain stemming from this disc in the discogram. He has made it clear to me that I will eventually need to have future fusions on my neck besides the present one we are discussing.

So He wants me to see the ortho doc and see what his opinion is. Not just for myself but also I think for him(the neuro) because he is undecided as to whether he should also fuse the C 3-4. I was always wondering why he did not want to include this level in the projected surgery since the discogram showed damage and pain coming from this disc. The discogram even showed a small amount of damage and fissuring and very small amount of pain coming from C 6-7. I think he is still trying to decide whether to do a 3 level ACDF or 2 level.

I am happy to see the Ortho surgeon and feel it is in my best interest, but I could have already had this done 3 weeks ago!

My neuro said that he will do his best to see if he can get me into the Ortho Surgeons office as soon as possible and then once seen by the ortho he said he will also do his best to see me again quickly and get the surgery scheduled with in a few weeks of our next visit. This next visit can't be scheduled until I have the appointment set for the Ortho surgeon. Once I have the Orhto appt. I will st the appt. with my Neuro

I asked him if he thought that I would be able to attend my fall college semester and his answer was No he did not for-see this as a possiblity. This was a huge dissapointment to me. School helps me feel productive. But I know how hard it was last semester and I also know my Neuro has my best interest at heart once again. I also know I do not have it in me to struggle through another semester in Pain.

Maybe God is trying to show me that if I have this surgery I need to only focus on recovery from the surgery and of course stay close to my 12 step groups and support system.

SO yesterday I cried all the way home from the neuro's office despite knowing all the things we discussed are in my best interest. I think I was saddened the most by yet more delay and the fact that college is pretty much out of the picture.

Today I feel better and the saddness is not so up front and on the surface. I feel so bad for my Mom. SHe has her own back pain and physical problems and her and my Dad have their things to contend with. This must be really hard for her to wittness. She.. I think feels each disapointment and pain etc that I feel. She and I have no control over any of it. The only control we have is how we deal and react to the information. For me it is really hard at times.

To help myself cope I am calling the Pain Psychologist on Monday and making an appointment despite my money issues. Right now my sanity means more to me then a few dollars. I stilll have options for more financial help out there that I have not yet tapped into. My sisters would always help if needed.

The settlement is also delayed because my attorney needs to have the presentation from my neurologist and the Neuro is not going to send the presentation untill he feels he ahs all the information together. I am sure he is still collecting information and would want to include and things from the ortho surgeon.

Well my friends....another period of waiting. It is all part of the process. I am coming to learn that life is full of many processes...darn it...lol

I have surrendered today and feel myself more into the acceptance of "what is".

I now need to work on myself and the way I carry myself through the Process. I know that God is here and I will not go hungy or unsheltered or unclothed....you all get the jist. He is here for me as long as I seek him out.

Thanks so much for reading and supporting me. Much love to all of you!

Chrissy

 
Sponsors Lightbulb
   
Old 06-28-2008, 10:31 AM   #2
Senior Veteran
(female)
 
Join Date: Dec 2006
Posts: 7,276
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
ms_west HB User
Re: Neuro Appt. was not the outcome I expected! More waiting, but in my best interes

I know this was extremely painful and difficult for you to hear yesterday but Chrissy you are right it is for the best. I think in some cases we are so willing to do anything to obtain pain relief. If you look at your posts, you are beyond ready to schedule this surgery which is 100% understandable.

I think getting a second or third opinion is the way to go. I would hate for you to have this surgery and continue to be in pain or be worse off. I hope that I have not been to blunt -- I just would hate to see you continue with pain like I have after my last surgery.

Good luck and remember that we are here for you.

 
Old 06-28-2008, 10:47 AM   #3
Senior Veteran
(female)
 
Join Date: Feb 2008
Posts: 1,889
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
My Mood: Pensive
cmpgirl HB User
Re: Neuro Appt. was not the outcome I expected! More waiting, but in my best interes

((((Chrissy)))), I'm so sorry hon. I know how excited you were about this appointment and I understand your disappointment. I know you had hoped this would all fall into place as you had hoped, especially where school is concerned. But, as you said, it may just be that God has other plans for you. And I really do agree that your neuro has your best interest at heart. He really sounds like he cares about you as more than just another "patient". It is rare these days to find a doctor like this. So many of them just get you on the table with little regard as to the outcome.

I know you feel like the clock is ticking and time is slipping away from you, but the truth is, that we are never too old to pursue our dreams. Especially when someone is as dedicated as you are. Maybe it's just not time right now. Maybe there is a different job in medical admin or counseling while you are in this process. I believe from just the short time I've "known" you, you are destined to serve and help others. It may just be in a different way. You would excell in any way you chose to do so. You have such a warm and loving heart.

God Bless you sweetie. I am here for you and will continue to keep you in my prayers. I will always, always be in your corner. Hugs, CMP/MM

 
Old 06-28-2008, 10:47 AM   #4
Inactive
(female)
 
Join Date: May 2007
Posts: 716
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
Round1 HB User
Re: Neuro Appt. was not the outcome I expected! More waiting, but in my best interes

Chrissey,

I am sorry that you didnt get the answer you thought you would get, but as you said it is in your own best interests. I know fusions are not entered into lightly and now after having one I sure know why. I am sorry this isnt going to help your pain and I can only imagine how you were yesterday when you got the news. I remember howling in the car after many a consultants visit. I normally had my sister with me and we cried and cried and cried. I kept saying I cant be left this way............. my heart goes out to you and I know what you are going thru. You are in my thoughts

Round1

 
Old 06-28-2008, 11:22 AM   #5
Senior Veteran
(female)
 
Join Date: Jun 2004
Posts: 558
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 2 Times in 2 Posts
zoey1 HB User
Re: Neuro Appt. was not the outcome I expected! More waiting, but in my best interes

be glad you found folks looking out for you and not someone else's bottom line. You can see from back/spinal boards that the fusion wasn't the answer for all. Some docs didn't tell folks honestly either. At least you are getting Both sides to the story. So many folks had failed fusions that the pain and after surgery complications caused were way WORSE then the initial on set of problems.
I am one of those that did double level c3 -c 6 and i am much worse now then before the surgery.
I know it stinks but there are things you can do. When it gets really bad put on soft collar for a while. Take meds rest, ice ,heat positive imagery if you can find a yoga and or ti chi group go very very slowly
You are in our good thoughts prayers and wishes.
I have a question did you like your neuro? Out of all the docs on my team my nuro is my favorite.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Worst neuro appt. ever! skych Chronic Pain 13 08-11-2008 06:53 AM
Friday Neuro Appt. Met a lady with the same Neuro and same Surgey I need. skych Chronic Pain 8 07-10-2008 08:31 AM
Help, first dr. appt in an hour!! yakatchew Foot Problems 15 06-19-2008 09:59 PM
Pain Psychologist appt was good. New Neuro appt in 15 days skych Chronic Pain 5 06-12-2008 08:50 AM
do some neuro drs go by what family members see if all tests come back normal? vickie45 Epilepsy 11 01-10-2008 09:37 PM
I had the dreaded neuro appt....many tears Blessed4Life Multiple Sclerosis 11 08-24-2006 01:25 PM
Neuro Lyme Symptoms-any one else? southernbelle2 Lyme Disease 16 07-21-2006 02:42 AM
saw a neuro...need advice! sickinVT Lyme Disease 10 03-04-2005 03:52 PM
Symptoms? When do I call my Neuro? Divina4 Multiple Sclerosis 1 09-07-2003 11:31 AM
I spoke with yet another neuro today! Arleen TMJ Disorder -TemporoMandibular Joint 4 07-10-2003 09:59 PM




Bookmarks

Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off











Message Boards
  • Open to All Other Health Topics
  • It's Life - Off Topic Discussions
  • Natural Disaster Sympathies and Support
  • Health News
  • HealthBoards Testimonials
  • Suggestions for New Boards
  • Registration/Membership/Site Problems
  • Health Issues
  • General Health
  • Abuse Support
  • Acid Reflux / GERD
  • Acne
  • Share Your Acne Story
  • Acne Tips
  • Acute Respiratory Distress Syndrome (ARDS)
  • ADD / ADHD
  • Addiction & Recovery
  • Addison's Disease
  • Aging Issues
  • Allergies
  • Alternative Medicine
  • Alzheimer's Disease & Dementia
  • Amputation / Prosthetic
  • Amyotrophic Lateral Sclerosis (ALS)
  • Anemia
  • Aneurysm
  • Anger Management
  • Angina
  • Anxiety
  • Share Your Anxiety Story
  • Anxiety Tips
  • Arthritis
  • Asperger's Syndrome
  • Asthma
  • Autism Spectrum
  • Autoimmune Disorders
  • Back Problems
  • Beauty & Cosmetics
  • Bell's Palsy
  • Bipolar Disorder
  • Birth Control
  • Blood and Blood Vessel
  • Bone Disorders
  • Bowel Disorders
  • Brain & Head Injury
  • Brain & Nervous System Disorders
  • Brain Tumors
  • Breastfeeding
  • Burns & Injuries
  • Cancer
  • Cancer: Bladder
  • Cancer: Bone
  • Cancer: Brain
  • Cancer: Breast
  • Cancer: Cervical & Ovarian
  • Cancer: Colon
  • Cancer: Esophageal
  • Cancer: Kidney
  • Cancer: Lung
  • Cancer: Oral
  • Cancer: Pancreatic & Liver
  • Cancer: Prostate
  • Cancer: Rectal & Anal
  • Cancer: Skin
  • Cancer: Stomach
  • Cancer: Testicular
  • Cancer: Throat
  • Cancer: Thyroid
  • Cancer: Uterine
  • Candida
  • Caregivers
  • Carpal Tunnel Syndrome
  • Celiac Disease
  • Cerebral Palsy
  • Chemotherapy
  • Children - Special Needs
  • Children's Health
  • Chronic Fatigue
  • Codependency
  • Colds & Flu
  • Swine Flu (H1N1)
  • Cosmetic / Plastic Surgery
  • Costochondritis
  • Crohn's Disease / Ulcerative Colitis
  • Cystic Fibrosis
  • Death & Dying
  • Degenerative Diseases
  • Dental Health
  • Depression
  • Share Your Depression Story
  • Depression Tips
  • Diabetes
  • Hypoglycemia
  • Diet & Nutrition
  • Digestive Disorders
  • Disabilities
  • Divorce & Separation
  • Dizziness / Vertigo
  • Down Syndrome
  • Drug Interactions
  • Dyslexia
  • Dysphagia
  • Ear, Nose & Throat
  • Eating Disorder Recovery
  • Endocrine Disorders
  • Endometriosis
  • Environmental Disorders
  • Epilepsy
  • Epstein Barr Virus (EBV)
  • Exercise & Fitness
  • Eye & Vision
  • Family & Friends of Cancer Patients
  • Family & Friends of the Mentally Ill
  • Family Planning / Adoption
  • Fibromyalgia
  • Foot Problems
  • Gallbladder
  • Genetic Disorders
  • Grief & Loss
  • Hair Loss / Alopecia
  • Hair Problems
  • Headaches & Migraines
  • Health Insurance Issues
  • Healthcare Professionals
  • Healthy Lifestyle
  • Hearing Disorders
  • Heart Disorders
  • Hepatitis
  • Hernia
  • Herpes
  • High & Low Blood Pressure
  • High Cholesterol
  • HIV Prevention
  • HIV/AIDS Living With
  • Hormone Problems
  • Hospice
  • Human Papillomavirus (HPV)
  • Hypochondria
  • Hysterectomy
  • Immune Disorders
  • Incontinence
  • Infant Care (up to 18 months old)
  • Infectious Diseases
  • Infertility
  • Share Your Infertility Story
  • Inner Ear Disorders
  • Interstitial Cystitis (IC)
  • Irritable Bowel Syndrome (IBS)
  • Kidney Disorders
  • Knee & Hip Problems
  • Lasik Eye Surgery
  • Learning Disorders
  • Leukemia
  • Liver & Pancreas Disorders
  • Lung & Respiratory Disorders / COPD
  • Lupus
  • Lyme Disease
  • Share Your Lyme Disease Story
  • Lymphedema
  • Lymphomas
  • Men's Health
  • Menopause
  • Mental Health
  • Mesothelioma
  • Military Health Issues
  • Miscarriage & Still Birth
  • Mononucleosis
  • Multiple Sclerosis
  • Muscular Dystrophy
  • Myositis
  • Nail Problems
  • Neurofibromatosis
  • Neurology
  • Neuromuscular Diseases
  • Neuropathy
  • Nutritional Disorders
  • Obesity
  • Obsessive Compulsive Disorder (OCD)
  • Occupational Health & Safety
  • Orthopedic
  • Osteoporosis
  • Pain Management
  • Chronic Pain
  • Share Your Pain Management Story
  • Panic Disorders
  • Paralysis
  • Parenting Issues
  • Parkinson's Disease
  • Personality Disorder
  • Phobias
  • Pituitary Disease
  • Polio
  • Polycystic Ovary Syndrome (PCOS)
  • Post-Traumatic Stress Disorder (PTSD)
  • Postpartum Depression (PPD)
  • Pregnancy
  • Share Your Pregnancy Story
  • Pregnancy Tips
  • 2010 Mommies
  • 2011 Mommies
  • Pregnancy-Teen
  • Prostatitis
  • Psoriasis
  • Rape / Sexual Abuse
  • Rare Disorders
  • Raynaud's Syndrome
  • Reflex Sympathetic Dystrophy
  • Relationship Health
  • Restless Leg Syndrome
  • Rosacea
  • Sarcoidosis
  • Schizophrenia
  • Scoliosis
  • Self-injury Recovery
  • Senior Health
  • Sexual Dysfunction Treatment
  • Sexual Health - General
  • Sexual Health - Men
  • Sexual Health - Teens
  • Sexual Health - Women
  • Sexually Transmitted Diseases
  • Shingles
  • Shoulder / Rotator Cuff Problems
  • Shyness
  • Sickle Cell Anemia
  • Sinus Problems
  • Sjögren's Syndrome
  • Skin Problems
  • Sleep Disorders
  • Smoking Cessation
  • Speech & Language Disorders
  • Spinal Cord Disorders
  • Stress
  • Stroke
  • Sudden Infant Death Syndrome (SIDS)
  • Teen Health
  • Thyroid Disorders
  • TMJ Disorder -TemporoMandibular Joint
  • Tourette Syndrome
  • Transplants
  • Trigeminal Neuralgia
  • Trying to Conceive (TTC)
  • Urology
  • Vaccination & Immunization
  • Vitamins & Supplements
  • Weight Loss
  • Weight Loss / Surgical
  • West Nile Virus
  • Women's Health



  • TOP THANKED CONTRIBUTORS

    Pain Management

    katlin09 (38), jonnstar (35), Shoreline (34), BB07 (26), backhurtz (23), feelbad (18), Ilovemycutedog (14), ibake&pray (11), Isotope (11), Fiona_Jo_324 (11)

    Site Wide Totals

    thanbey (581), janewhite1 (528), BlueSkies14 (511), SpineAZ (484), DGabriel10 (465), mscat40 (421), tetonteri66 (419), jennybyc (403), sammy64 (390), jgrangran (362)

    All times are GMT -7. The time now is 05:58 PM.



    Site owned and operated by HealthBoards.com™
    Copyright and Terms of Use © 1998-2012 HealthBoards.com™ All rights reserved.
    Do not copy or redistribute in any form!


    SEO by vBSEO ©2011, Crawlability, Inc.