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Old 07-06-2008, 05:47 AM   #1
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Dr Said No More Refills On Hydrocodone Yikes

Hi everybody sorry to bother you with this but i have been on hydrocodone for years now and when i called for refill i was informed this would be my last refill,i just said okay,what else could i say,iam trying to remain positive but iam scared to death even on the hydro i was always still in pain,iam trying to convince myself that this is for the best but iam scared to death,maybe their worried about too much tylenol,they didnt even sugest how to taper off,i dont know how i got myself into this mess,i use to be a vitamin freak drank fresh juices and exercised 3 times a week,i really cant exercise anymore i was told to do water exercises and since i dont have apool or accsess to one i havent done that.any sugestions on the hydro would be greatly appreciated Iam so scared iam sitting here with an icepack tyed to my neck and thats on the hydro LOL.I just dont think my body could go through anymore withdrawls last year i threw out my paxil instead of weaning off and that was a nightmare.sorry to bother you i know you all have your own problems.hope you all have a great day. marywoo

 
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Old 07-06-2008, 07:25 AM   #2
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Re: Dr Said No More Refills On Hydrocodone Yikes

There must be a reason as to why your Dr has decided to stop refilling your meds. were you being seen by a GP Dr or a Pain Dr. Did you sign a pain contract at all? Did you ever call in early for refills or say you lost your meds? Normally a Dr just does not do this for no reason so I am wondering if something happened in the past? If nothing has happened and you have been compliant than you need to make an apt with your Dr and find out why he has chosen to do this, and what he reccomends for your pain. Don't just except this, without finding out why your Dr is doing this, often times nurses communicate the wrong info to paitents and this could be the case with you, it also might mean this is the last refill for you until you are seen again by the Dr. normally if your getting pain pills you need to see your Dr at least every 3 months to even every month, so make an apt and find out what is going on and why your Dr decided to stop refilling meds. It could be he is being watched by the DEA and can no longer treat with pain meds, or he is worried about addiction, or your calling for early refills and he is getting worried. so please look into this further. Did you ask the nurse why your Dr has made this decision or did you just say Okay and hang up, if so make that apt and find out why he made this decision.

good luck to you, SS

Last edited by slipperyslope; 07-06-2008 at 07:27 AM.

 
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Old 07-06-2008, 07:30 AM   #3
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Re: Dr Said No More Refills On Hydrocodone Yikes

Hi Mary,

When is the last time you saw your doctor face to face? I have had this happen years ago, and it turned out it was just that the doctor would not refill my meds untill she had seen and examined me.

For most doctors, they want to see you at least once every 3 months and if they dont, they get your attention by cutting off all your prescriptions.

If that is the case, call for an appointment, then call and ask to speak to that doctors nurse, and explain that you have an appointment and ask if that is why your refill request was denied. That may be all it takes, if not, a face to face appointment should still put everything right, if you are still in pain and have been compliant, there would be no reason to take you off without at least offering you something else.

Do you have a diagnosis? sometimes that will place a time limit on how long they are willing to keep treating the symptoms, but they still should be looking at more tests and/or referrals to specialists, again, a face to face appointment will resolve this.

Good luck and please let us know what happens. oh, and when you do see the doctor, be sure and let him know the hydros were not covering your pain anymore, maybe you can try something new or a higher dose, were you on the 5 mg ones? if so, the 7.5s or the 10's might be all you need to put you right.

Take care,
Fabby

LOL Hi Slippery, looks like our posts crossed in cyberspace, and that we gave almost the exact same advice. GMTA!

Last edited by Fabrashamx; 07-06-2008 at 07:36 AM.

 
Old 07-06-2008, 08:59 AM   #4
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Re: Dr Said No More Refills On Hydrocodone Yikes

Honey,
you don't bother anyone here, we are happy to help when we can. So always feel free to come and chat, share your pain and we are here 24/7 for each other - you are definetely at the right place.

I agree with others regarding your app; when did you see him last time? I must travel to NYC to see my PM every month otherwise I don't get my prescription and pharmacy doesn't accept it by phone.
To some DRs is very important to see you, to talk to you and watch your progress or if meds don't work well - change them or adjust them. My PM is exactly like this. I am pretty sure if I wouldn't show up for my monthly app - I wouldn't get my prescription.
And it's not that he doesn't trust me, he does. I am with him for more than 3 years by now and never had a problem. But he doesn't believe in just prescribing especially meds and doses I am on without seeing and talking to his patients.

So maybe would be a good idea to make an app and talk to him what is his reason to take you off your meds; maybe he has another idea for you? Tell him how much pain you leave in - I want to believe that he will not leave you cold turkey without any meds... At least try.

I wish I could help you more...

Best wishes to you, dear heart.

 
Old 07-06-2008, 09:26 AM   #5
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Re: Dr Said No More Refills On Hydrocodone Yikes

Quote:
Originally Posted by Fabrashamx View Post
When is the last time you saw your doctor face to face? I have had this happen years ago, and it turned out it was just that the doctor would not refill my meds untill she had seen and examined me.

For most doctors, they want to see you at least once every 3 months and if they dont, they get your attention by cutting off all your prescriptions.
Great point! And, as SS says, nurses often communicate the wrong information, or only communicate part of it. There has to be some reason for cutting you off....I'd get an appt made first thing Monday AM and find out what's going on. At the very least, the Doc can educate you on a reasonable taper schedule per your length of time on the med, condition, & etc.

Good luck.

Ex

 
Old 07-06-2008, 09:49 AM   #6
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Re: Dr Said No More Refills On Hydrocodone Yikes

yep,make an appt and ask some questions,he does owe you that much here. i know with certain meds like my valium,which is rxed by my primary and not my PM,i will be told when i get one particular fill that my doc will not Rx anymore til i make an appt with him to just discuss the med. its called a 'med check' appt. its just that they DO need to be seeing you and checking the med intake and how things are working for you. they HAVE to do this in order to satisfy the powers that be that they are accontable to. but being suddenly cut off from a pain med like hydro without even giving any real reason for it really was a crappy thing to do to you.

but you do have some options here. do you have some sort of actual Dx for why you are having this level of pain? have you been given any types of possible surgical options that could help? you could also ask,since this sounds like it is your primary doc we are dealing with,to be referred to a pain management facility where they can just do a much better job in actually allowing you a life and getting your pain manageable or at least tolerable which it sounds like it was not even with the hydro?

as the others have asked here,did you do anything at all that would have prompted this doc to just decide to cut you off like this? any early refill calls or something else that may have made him think something that isn't? knowing this would just really help in offering you the best possible advice,thats all. you just do not deserve to have to suffer and there are ways to help with that. a bit more info on your conditon and the other questions people have asked here would just be helpful.Marcia
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Old 07-06-2008, 07:04 PM   #7
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Re: Dr Said No More Refills On Hydrocodone Yikes

Mary, what did I tell you some great people here. Funny many of us started on another board. I have to say I would definantly make that call & at least let him know your fear of being left in pain & withdrawl. As I said perhaps he can recommend a PM doc to you. Who is the doctor treating you for your neck? Perhaps they can take over some type of pain med. for you.

It is wrong to be just left or abandon. It has happened to alot of us & its to scary to even think about. At least he should have warned you. Since it sounds from your post on the Spinal board as if he has been your doctor for awhile now he should know you somewhat. I would want to know the reason why he has suddenly said no more refills. You deserve to know & make sure there was no miscommunications.
Feelbad (Marcia) gave me some of the best advice I have received, get a copy of your medical records & any tests. I was amazed at some of the things in mine & there was definantly some miscommunication that I did not even know about. Make that call, dont wait, you dont need to suffer. you will feel much better with the security of a pain medication if you need it, & remember to let the doctor know how this pain effects your quality of life.
Good luck & please let us know what happens. Sammy

 
Old 07-07-2008, 03:55 AM   #8
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Re: Dr Said No More Refills On Hydrocodone Yikes

Hi ,everybody and thankyou so much for all your help,iam afraid my first post was a little misleading,the nurse said she would refill this time but that would be the last.iam sorry i miscommunicated that,the whole thing is probaby MY fault,i was getting heavy handed with those,but fact is they werent covering the pain,i had gone for facet shots and went down like a ship,the firsr day wasnt to bad i had them june 3 on the 4th i got my monthly and i was walking around with ice tied to neck with my mouth opened,after those facets i was suppose to see my pm dr in 10 days which unless someone carried me i just could not make it,when i told my pm dr about how bad i felt after the shots he said thats when you need to come in,i guess he didnt hear me when i said i couldnt i wasnt even getting showered or dressed.well he couldnt schedule the burning of the nerves fast enough when i said my system needs a rest,and it did,i have 5 dogs to feed twice a day i know thats not his problem but it is mine,so thats why i got so heavy handed with those pills,i will try to get off of them because i did get heavy handed wiyh them and i know thats not good.heres some of my problems i have a bulge at c6 and c7,disc pressing on spinal cord, severe spinal stenosis,osteoporosis,nerve root damage,the reumy said my spine is a mess.possible blood clot or stroke,there may be more but i cant remember,do you think this warrents pain?maybe it is in my head,but i honestly dont think so,the drs keep telling me i need exercise and every time i try i hurt myself worse hence no more exercise for me.sorry for ranting like this but i dont know what to do.please feel free to ask anything?iam sure i left some important stuff out.i am not the sharpest tool in the shed.LOL thank you all for anwering iam scared.hope you all have a pain free day marywoo

 
Old 07-07-2008, 04:09 AM   #9
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Re: Dr Said No More Refills On Hydrocodone Yikes

Mary when you say you were heavy handed with the pills does this mean you were taking more than prescribed and calling in for early refills? If so this is why your Dr did this to you. Also the fact that you did not go in and see him is another reason he did this. You can't do these things and any Dr is going to dismiss you from his practice. It is very important you communicate EVERYTHING to your pain Dr b/c they can loose there license for doing things like this and you have to follow the rules. It sounds to me that the vicadin was NOT covering your pain, and what you should have done was told the Dr the meds weren't working and ask for something different to see if it could cover your pain better. Since you were taking more meds than you were supposed to and he knows this, your going to have a very hard time getting any Dr to prescribe narcotics for you since its in your chart now. It sounds as if your not really sure your pain is as bad as you say it is based on your post not being sure if your really in pain or not? do you think you could have an addiction to the pills? How many pills per day were you supposed to be taking VS how many you took on your own by self medicating yourself. this is something that any Dr will excuse you from his practice for. Thanks for clarifying things, it all makes better sense now and I now understand why your Dr cut you off, he did not abandon you like we all thought from your original post, and that is reasons for dismissal. I am sorry your in this situation now..

SS
If you think you might have an addiction issue to the pills than you can visit the addiction and recovery board for help in detoxing and get some support. Do you think you were taking the pills for a buzz or were you clearly seeeking better pain control by being so heavy handed with your meds???? If you were taking more to get yourself out of pain than this should have been communicated to your Pain Dr...

Last edited by slipperyslope; 07-07-2008 at 04:13 AM.

 
Old 07-07-2008, 04:51 AM   #10
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Re: Dr Said No More Refills On Hydrocodone Yikes

Slipperyslopes,thanxs for your reply i actually seen this dr in may to tell him the vicoden was not covering my pain he upped it and told me i needed exercise,i asked what kind he said what ever doesnt hurt you worse,well in my shed my daufgter has an epileptical,i thought about what the dr said and proceeded to try it.thats when i got worse.made an appt with pm dr.to get epidural and he said i should not have been on an epiletical,and decided to try the facets,by this time i was in He$$,i think iam miscommunicating because iam confused,what i was asking was do you think disc pressing on spinal cord and other issues warrents this kind of pain,i was told i am not aloud to go to chiro because that could cause me to be paralized,iam just confused,why they didnt put me in ptinstead of throwing me out there to keep hurting myself.I know iam in pain and my mother-in-law says she can see it in my facei will wean myself off of those pills as i did the paxil and if i had my way i would be done with drs.the only exercise i will pursue from this day on will be walking.i am scared to go off the vic but i think it is for the best.the thing iam upset about is how vague these drs are.do you understand?i am so sorry to mislead anyone iam scared and have no trust for drs anymore.iam also on lexapro xanx and lyrica all which i swore i would never take.thanks for your imput and please forgive me,i did not mean to mislead anyone iam scared,my biggest fear is throwing up because my back cant take that.sorry to keep venting marywoo

 
Old 07-07-2008, 05:50 AM   #11
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Re: Dr Said No More Refills On Hydrocodone Yikes

Mary I think what slipperslope is asking is did you take the meds as prescribed? For example I am only allowed four aday, if I took more then I would be in trouble & not given a refill. Did you go by the instructions?

I feel so darn bad for you, I think the doctors have you confused.
You need to kind of start over with a good PM in my opinion.
I went through the same as you, the doctors had me going in circles & I honestly think I was ready to loose it before I finally found help. I questoned myself, & I know as bad as the pain is a doctor can make you do that.
It sounds like you are afraid of addiction & I believe we all are.
I know when I was on vicodin & all that I could not get any relief, it was my fear of meds that kept me from taking more. Even the pharmacist told my husbund to tell me I could take abit more & still I was fearful. Had that fear not have been there I could see myself doing it. All because I did not have pain control no matter what. There are times you dont think clearly when your in that kind of pain. Yes you have plently going on to cause that kind of pain. If you were with a good doctor & had adequete meds then you would not have to take so many doses or pills.
Listen to your body if its screaming not to do exercise, dont do it. I can see discomfort with some exercises but not right out making the pain worse.
If you really feel you must ween yourself off then do so carefully but if the pain is bad or to much to handle get into your PM or find one that can understand. I know its hard but dont let misunderstanding go with doctors, it will follow you in your charts. I am abit worried about you, you sound like you are going through something simulair to what I went through & it created such a fear & mistrust of doctors that its unreal, but I need someone to treat me & you may to. Be careful & if your pain increases get into a good PM, let them find a good pain regimen for you. I am wondering if you should call this PM explain what happened, how you physically could not come in & see if he will help you find a solution to your problem. I am also wondering why if you have been seeing a PM why was your GP prescribing your meds & not the PM doctor, did you ask the PM to take over you pain meds? PLease be careful Mary & let me know how your doing. Sammy

 
Old 07-07-2008, 06:43 AM   #12
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Re: Dr Said No More Refills On Hydrocodone Yikes

Hi Sammy,dont worry i did not argue with the nurse i just said okay,i am starting today by just taking one hydro and then in a week try taken a half i did not realize how bad these things were for you,i didnt know they depleted your body of nutrients know wonder my pain is so bad,and i have already been sweating but i thought it was menapause,i told you i wasnt the sharpest tool in the shed.LOL.iam always walking around holding my back,and massaging it.the reason my gp was giving me the pills is he is the one that was treating me for years,never refering me to anyone he told me to go to chiro who told me my back and neck were a chiropractic trainwreck and said i should go to the drs.in phila.i live in n.j. so the next best thing was a reumy from philly but was located down here.he put me right into pain management because he seen i had disc pressing on spinal cord,its a long story but iam wondering if my gp is just covering his own but.i dont want the pills if their making me worse,but iam scared to death of what might happen going off of them.i read the advice on the addiction and recovery board and how to detox but dont really understand it.but i will give it my best try.i cant do it fast i know my body cant take that,the thing that worries me is i still have pain even on the pills.did you ever go through this sammy?this cant be good for osteoporosis.denile is very powerful and thats probably why i thought it was fine to take those pills,i understand the gp but think he should have told me to come in and he could help me wean,i think i do need help with this.thank you sammy you are an angel and i think thats what i need.any advice would be greatly appreciated. marywoo

 
Old 07-07-2008, 08:59 AM   #13
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Re: Dr Said No More Refills On Hydrocodone Yikes

Hi Mary,

I am so sorry you are going through this. It makes me so angry that doctors do not have a standard of care for pain patients.

With every other medical problem, doctors take the time to sit down and explain the meds used, what they do, and how to take them. What to do incase of a med reaction, or if the symptoms worsen.

Not so with pain. they hand out a prescription with no more instruction than whats on the lable. Whats worse, sometimes the lable says something like take 1-2 every 4 hours as needed, but if the person sticks to that, and takes the maximum allowed, they take them off the meds. That doesnt seem fair.

Why can't they take a few minutes to explain, if these dont work, call for a new appointment, if you are needing to take them every 4 hours around the clock, call for an appointment, you may need to be on these meds for however long, expect it to be trial and error to find the right dose of the right med for you, but never ever increase or decrease without a face to face appointment and agreement. And they need to put on the lable the date of the next fill so you know upfront, they will not refill before then, you have to make them last until then, or come in to see them.

If they took the time to say these things, people would go in knowing what was expected and would not have to be blindsided and thrown into withdrawal. Whats worse, when this happens, it can follow you from doctor to doctor for years, and there are a lot of legitimate pain patients out there in your shoes.

If I were you, I would make an appointment asap with this doctor and tell him or her everything you have told us, it can only help at this point.

Good luck and please keep posting, we are here to support you.

~Fabby

 
Old 07-07-2008, 09:15 AM   #14
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Re: Dr Said No More Refills On Hydrocodone Yikes

honey,you NEED to seek out a really good neurosurgeon for a possible surgical intervention here or things WILL become much worse,not better. believe me,what you have going on will cause pain and other insane symptoms. you just really need to have that compression lifted or it can become a paralyzing situation even with just a sudden jarring movement of your neck kind of thing? when was your last MRI done that actually revealed this? this is just not a good situation for your cord to be in,espescially that far up. i live with spinal cord damage caused by a surgery that had to go into my cord back in 03,and i can tell you,just from that,i have suffered with really insane levels of pain and off the wall symptoms ever since. your cord compression will just continue on its path without getting it fixed. spinal issues are mostly progressive in nature,not static by any means.

honestly,i would really get to a good neurosurgeon for a consult and eval with an MRI that has been done at least within the past six months. this really needs some attention hon,and soon since some damage can become permanent if it just stays compressed for too long. was there any sign of whats called myelomalacia present on your last MRI? right now,you are kind of a walking incomplete spinal cord injury hon. that really needs to be alleviated asap before things become worse for you. you also need a much better PM who knows what the right methods of treatment are for your level of pain since he has had you on a very inadequate narcotic that has casued you to start self medicating in order to try and get relief. i really cannot see how,given what pain levels could be there with what you have,that hydro realistcally was even the best choice here.

there are usually one of two reasons that a person would start to even take more med than Rxed,one would be a developed addiction and the other would be that your pain was just not being adequately treated. only you really know for certain which one of those is what started this and continued it. if this was not hitting your pain,did you speak to your PM about it? i am kind of suprised that an actual PM would even be using any tylenol based meds as your "main' pain med as well. most realize the inherent issues with having to rely daily on a tylenol based med,ya know?

but you really honestly NEED to see a neurosurgeon and get another updated MRI if the last one was more than six months ago. believe me, alot can change with what you have going on even within a matter of months. if this was over a year,you REALLy need to check the overall progression of that compression at this point. a comparative study just really needs to be done. and stay the heck away from any chiro or anyone who wants to do PT on you while your cord is just this vulnerable,it could be a disaster for you at this point. you just don't have to live like this hon. you DO have an option here. you just need the right type of help with this. please let us know how you are doing.Marcia
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Old 07-07-2008, 10:02 AM   #15
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Re: Dr Said No More Refills On Hydrocodone Yikes

Sounds to me that you've bounced between a couple different Drs. and they all have their own view point on how to treat your pain.

I would make an appt with whatever Doc cut you off the other day....Go see him and tell him about your pain and ask to not be cut off and referred to a PM Doc....One that you can see on a REGULAR basis who will assume your care moving forward. Start with that Doc so you can continue your meds....This will somewhat treat the pain, AND prevent WDs. Then, hopefully, a good PM Doc can take over from there.

If it takes a while to be seen by a PM Doc, ask the family Doc to keep prescribing you pills until you can actually be seen. It sounds as if you have a very legitimate condition and just need to get things coordinated.

Good luck,

Ex

 
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