liquid morphine doea nothing at all for me. I also am on frntynal patch. No pain relief in my mouth. Now, I just switched from onehundredtwenty mg methadone and onehundred mg oxycodone daily. that didnt stop excrutiating mouth pain. what to do? this follows surgery last year, radiation twice same area. it is killing me. increase fentynal or morphine?
could i have bone pain or torn muscle from radiation. I had had a vertical muscle made vertical for four months to allow a wound to heal and keep salivary gland open, four years ago. could recent radiation have undone attachment?
doctor says it could be tumor causing problems, or pressing on nerver, or maybe radiation(had 30 in early 08 and ten in 10/08, same area.
Pain is ever present burnig ache; new pain, after radiation is stabbing, exploding pain that hits suddenly and slowly subsides. terrible.
surgery in a month. bad, disfiguring surgery, losing pary of tongue and lips, face sunk in, already have pectoral shoved up there. so depressed. should i ahve surgery? no one gives me life expectancy or anything.
Hi mush, Your going to have to give more info about why you had radiation treatments, why you had surgery, are you woried about survival from surgery or whateveer the reason for rad and previous surgery was. Not enough clear info to really coment. If surgery would corect deformity that would allow youto feel more comfy in public, than there can be great gains as far as quality of life, what other risks are you worried about aside from general anesthesia. Yes there is a risk for everyone that goes under the knife. Some people don't wake up, some people aren't happy with surgery, some end up with more problems after surgery, these are all questions you have to ask your docs and get second and third opinions. Reconstrictionis always going to be up to you. If you don't want it, nobody is going to make you have it. If you need it to function, that's another component and if you need it to feel better about your appearance that's an entirely different component. Often reconstruction surgeons use psych eval to determine if patients would benefit or if they are looking for more than can be achieved.
As far as speculating whether you have a new tumor, that seems like it would be pretty easy to determine with the right diagnostics, CT scans for tumors, Bone scans to check for things like infectin or destroyed bone from radiation. There is nothing wrong with asking your doc why he thinks what he does. If he says maybe a tumor, you ask what makes you believe that , show me, prove it, etc. They certainly have the means to do so.
As far as meds, because everyone is different, we can't tell you what would work better, we don't even know what was wrong that brought about the changes in your facial anatomy you mentioned. If you have pain, more than likely there is some nerve involvment that again, is only going to be found through specific testing like Facial EMGs, neuro testing, etc etc.
Good luck, but I think most memebers here, incuding myslef would defintiely need more info to understand what your talking about. If you had major facial and jaw surgery, of course there is the potential for nerve damage, if it was cancer there is the chance of relapse. Bottom line is to be clear about any info your doc gives you so that you can make an informed decsion and for you to be clear about your pain so your docs can make an informed decsion about your treatment plan. .
Take care, Dave