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Old 12-01-2008, 05:37 PM   #1
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doobie830 HB User
Living with Pain need help

My friend has had severe pain for the past 6 months. The pain is only on the left side of his body. From constant headaches to fatigue, not one doctor can figure out what he has. They say it might be something with the nerves. They have ruled out ms, yet he has most if not all symptoms.

The pain is about an 8 on a daily basis, with pain management its about a constant 4-7.. depending on the day.

now his left testicle is in pain. The pain has traveled through his body. he has pain when he is just sitting or moving.

They have suggested rls (restless leg syndrome) yet the meds are not working.

He has been to a urolgist (he is awaiting the ultrasound results), neurologist, primary and many many other doctors.

Does anyone have any suggestions what this might be? it is very frustating and to see him in pain and continuing to travel from dr. to dr. is painful for me to watch.

please help!

Thanks,
Dm

 
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Old 12-02-2008, 07:13 AM   #2
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sammyo1 HB Usersammyo1 HB Usersammyo1 HB Usersammyo1 HB Usersammyo1 HB Usersammyo1 HB User
Re: Living with Pain need help

I am not sure I can help you out here but I commend you for being such a caring friend.

I have had left sided pain for a few years, just recently moved to the right also, but stayed on the left all that time. To cut along story short it turned out to be in the Cervical. Although the first MRIs & all the other tests did not pick it up right away I was in pain 24/7. The first MRI picked up what the doctors considered minor problems, 1yr later another MRI was done & indeed same area had some major problems. I dont trust all these tests anymore & if I could go back I would have insisted that it be looked into more closely.

MS was mentioned right before the Cervical problems were found. So tell your friend to hang in there & push those doctors. Not sure if he is in pain managment but if not he may want to look into that also. Good luck Sammy

 
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Old 02-18-2009, 09:54 AM   #3
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Re: Living with Pain need help

Hi

You are truely a great friend, living with pain is not easy. I had severe pain on the left side for more than 10 years. I had every test imaginable and because it went on for so long the symptoms differed but the pain in the left side was always there. I agree with sammyo1 don't give up and don't trust what the docs tell you always question it, they don't know everything about human physiology. When they can't find a reason the they give it a fancy name or say its ME/CFS, which covers everything. I will not go into my whole history but I can tell you that for the first few years I hid the pain. I did however end up in accident & emrgency many times because the pain was so severe. I always felt my doctor and specialist didn't believe me because blood test scans etc showed nothing.

Symptoms I had over the years were similar to heart attack, chest problems, kidney problems bowel problems and many more. There were pains in the groin head legs chest stomach.

It was only when I went private and had them remove my appendix which was not the problem did we disover the cause of my pain. I had what was called a Richters Hernia with abcess. I had a small hole in my pelvic bone which my intetine had grown into (imagine blowing up a balloon against a wall with a hole in it, the balloon fills the hole) and behind it grew an abcess. When they took my appendix out using key hole surgery they dislodged it and the abcess burst. They didn't know at the time so sent me home the next day. I almost perished the next day because of the poisoning. They rushed me back split me open and saw what happened. I was lucky someone saw me deteriate or I wouldn't be hear.

Cutting it short a Richters Hernia affect women usually and is very rare at that, for it to affect a man is virtually unheard of. The sad thing is doctors still don't believe it happens and there are no test for it. You cannot see it on scans or xrays, the only way is by Laparoscopy and doctors don't order these unless there is a real need to do so.

Your friend may not have exactly what I had but it is worth checking out Hernias and cysts. Don't let him give up and accept the pain, for me behind the pain there is aways cause. I did give up at one time but the pain was so bad I could not ignor it, pain management didn't help even the spinal lumbar something another where they block certain nerves.

The symptoms your friend had I have had, so no one suspected a hernia.

If you want to know more send me an email I am happy to talk, I understand how people feel when the suffer severe pain for years.

 
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