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Old 01-09-2009, 08:56 PM   #1
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First PM Appt - Has Anyone Felt This Way & What Did U Do?

I had my very first pain management appointment this evening and to be honest I'm really not sure how I feel about how it went.
I described all my aches and pains and told him that I went to two primary doctors for a second opinion and both say that I have fibromyalgia. He said to me that "fibromyalgia is not a real thing; it's when there's nothing else to pin the problems to" and the medical world is reconsidering/researching the whole fibromyalgia syndrome that it's not a real thing!! Again, I feel like my problems were being dismissed and NOT taken seriously!
I told him that I have a rhuemotology appt next week to see if any of the problems relate to that. He ordered MRI of my hip/lower back and cervical spine and prescribed me something like Lyrica. I'm in so much pain EVERYDAY; I really thought he would prescribe me real pain meds like the ones I was getting from my Primary doctor.

My PD told me to see a pain mgmnt doctor and gave me enough pain killers until I see him. I wasn't sure if I could even ask for them since it was my first visit and I didn't want to come off looking like that's all I wanted but reality is that I've been on pain killers for years for my pains and I'm afraid that I'm not going to get them with this doctor. I wanted to ask about the long acting meds (oxycontin??) but I didn't feel like I could. Everytime I told him a pain I have he comes back and says something like "oh well the cold bothers me too" or "I have tmj and I don't have that problem", "I don't feel anything in your jaw that would make you feel the sharp throbbing pain". Then he says "I don't mean to sound like your pains aren't real but it could be something else". This is extremely frustrating!! The cold air is excruitiating for me and gives me a massive headache the whole day if I'm exposed to the cold air outside for 10 min.
Has anyone felt this way?? Did your PM dr offer or prescribe pain killers on the first visit or even the 2nd visit.

 
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Old 01-10-2009, 01:58 AM   #2
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Re: First PM Appt - Has Anyone Felt This Way & What Did U Do?

I feel sorry for you having to put up with that kind of doctor! I wonder if he would talk to a man that way???? I too had a pain management doctor that sounded a lot like him. He had a very dry sense of humor and felt that he was always correct on whatever topic was brought up. And these topics didn't even need to be anything concerning my health!!
Well I am not the type of person to take that kind of behavior. I am the one paying for this appointment and if I am not getting any relief or feel like he is not taking me seriously , well I would leave.
And that's just what I did. Of course at first I was afraid that I would be "black-balled" by the doctors because I live in a rather smaller town. Our Population is about 50,000.

The breaking point came at one of my appointments with this guy and of course he was being sarcastic. Even to a point that he may make fun of my shoes or my purse or just about anything. Well this day he came in eating a apple, sat down in a chair. Actually he was almost laying down on this chair and it was straight chair. So I casually mentioned to him that sitting in a chair like that is not very good for your back!!! Well you could have heard a pin drop. He got up and left the room. His nurse was laughing after he left the room. I asked her what was up with that. And she said that no one and I mean NO one has ever had the "balls" to say anything like that to him. I'm thinking, "oh, oh, I'm dead now" but he came back into the room and we finished my appointment.

But I never went back there. I never even tried to schedule a appointment with him. I went back to my primary doctor and told him what happened and he got a good laugh out of it. He then referred me to another Doctor who he thought would work better for me. And he was right. I have seen this doctor now for almost three years. We have a wonderful relationship. I too had told this doctor immediately what transpired with the other doctor and she too laughed. I guess other people in the medical field knew of him.

I just know that I was happy that I didn't allow one doctor to ruin my whole experience in trying to find a doctor that could help me. So don't you give up either OK? If you feel like you are being made fun of or not taken seriously, then it is time to leave his/her practice. There is absolutely no reason for anyone to put up with that kind of behavior.

I hope my experience may have helped you in some way. I think you know in your "gut feeling" if this is not right for you. And usually our "gut feelings" are correct.
Take Care,
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Old 01-10-2009, 05:44 AM   #3
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Re: First PM Appt - Has Anyone Felt This Way & What Did U Do?

Firstly I live in Australia so maybe its different here, but I have now had 2 appointments with my pain Doctor, in my first appointment I told him all of the different medications that I have taken over the years, what has worked and what hasnt and which ones have given me side affects, I told him which ones I preffered (Oxycontin, Panadine Forte) and that I would like to stay on them, he had some other ideas on what would work better so I gave it a shot, well it didnt work out so I just went back and asked to go back on the Oxycontin and he agreed no problem, I think you shoul be able to ask you Dr for the Meds you know work for you, as long as you are willing to try different thing when they are suggested.

If you think that he is not taking your pain seriously or would not be willing to treat you with stronger or longer acting Meds then maybe you could ask your PD for a refferal to another more compassionate Pain Dr.

Finally I think as people who live with pain and have been held to ransom at times by Drs who are reluctant to give out stroger medication, you have to remember that you are intitled to ask for this medication without feeling like you are seeking drugs to get high on, you are seeking drugs to live as pain free as possible and try to have a reasonable comfortable and normal life.

 
Old 01-10-2009, 06:22 AM   #4
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Re: First PM Appt - Has Anyone Felt This Way & What Did U Do?

I think I would be looking for another PM doctor because this one isn't taking you seriously. Especially if he don't think that Fibro is a real disease.
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Old 01-10-2009, 10:56 AM   #5
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Re: First PM Appt - Has Anyone Felt This Way & What Did U Do?

Hello cheryl810,
I'm new here and just registered but felt compelled to respond to your question.
I too suffer from Fibromyalgia as well as many other issues and the PM doc that you went to see is out of his mind. It took me awhile myself to find a Doc that believed in Fibro, but I found a Rhuematologist and was thrilled when I walked into her office and saw not only hundreds of literature about it around her office, but posters on the walls about different medications that are there to help for it. For me, Tramadol was my miracle medication and i've now been taking that for the past 8 yrs. I take the maximum dose of 8 a day.
Dont ever let a doctor tell you that Fibro doesnt exsist, it clearly does and millions of us suffer from it. I have also tried the Lyrica with no results, so I simply stay with the Tramadol.
The next time a doc tells you that it doesnt exsist or its all in your head, I would highly suggest walking out and then placing stop payment on your payment for services NOT rendered or before you even make an appt, all the office up and ask them if they're physicians believe in Fibro and what type of treatments do they offer for it. This way you dont waste your time going to someplace that wont even help you.
I'm sorry your suffering, I know how you feel as do many of us.

 
Old 01-10-2009, 01:30 PM   #6
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Re: First PM Appt - Has Anyone Felt This Way & What Did U Do?

I would totally look for another PM doc. Go back to your GP and ask them if they can help you get to your NEXT appt, and get one scheduled asap. Hopefully they will help you until you get to another PM appt since they know you have fibro. Doctors like that suck. I agree...always take your old bottles with you so the doc can see what you have been on. that way they know youve been scripted for them in the past and you arent just looking for the meds. Just my thought, but thats what I did with my new GP doc and I offerd to try anything else she asked me to, and she said, "if what you are taking works, why try something else?" She just upped my dose and now Im fine.
I was where you are a month ago, and I was just in tears. dont give up, get all of your records that have your meds documented as well, and take them in hand with you. that helped me as well, and I took my husband. Its worth it if you can take another family member such as a spouse, parent, anyone who can also let the doc know how much your life is suffering.
Its never above 15 degrees here all day and I can relate about the cold. The nice thing about it is my doc has to live in this cold too so she can relate.
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Old 01-10-2009, 04:04 PM   #7
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Re: First PM Appt - Has Anyone Felt This Way & What Did U Do?

I agree with the previous posters. He's not taking you seriously, so what's the point of going back to him. You should tell your other Dr. what happened and ask to be recommended to a different pain clinic if possible. Why is a Dr. employed at a pain clinic when they don't believe someone's in pain. Stories like this make my blood boil!! I wish you the best of luck with your next Dr.

 
Old 01-10-2009, 07:43 PM   #8
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Re: First PM Appt - Has Anyone Felt This Way & What Did U Do?

Wow!!! I just want to say THANK YOU ALL for your kind responses!!!! I feel so much better knowing that I'm not the only one that went through this senerio. I feel like these doctors can't comprehend the severity of our pain that we're ALWAYS in and just think we're hypocondriacts (i know sp wrong!)

Today is an extremely bad day for me; it's about 20 degrees and snowing; my neck is excruitiating from my slipped discs, hands and feet hurt bad, my lower back is impossible to walk practically and of course my daily PAINFUL headaches that last all. My general dr gives me vicoden 7.5 or percocets 10 and it's not cutting it, I've been on this dose for years. The pain is so severe for the past 6 months that I've been upping my dose to 2 pills at a time to get some sort of relief which makes me run out way faster than the prescription was intended for.

I can't thank everyone enough for sharing your horror stories with me; I truthfully feel so much more at ease but at the same time feel it's so unfair that we're treated this way!! I'm taking all of your advice and going elsewhere!! The thing is I went out of my way to go to this guy (1 hr drive each way and made me wait an hour to see me after my appt time-mind you it took over a month to even get in). I love my primary doctor and really trusted her when she said this guy is great; she even goes to him! I figured I was in great hands with someone that will "LISTEN" to me since that's how she is.

I'm not sure how many of you have supporting spouses/partners but I told my husband how I felt and what he said and he says "good, someone that agrees with me". Are you kidding me! I was so upset with my husband's response. He understands how much pain I'm in constantly but he feels like fibro is a joke; "it has to be something else"!! I said to my husband that it's real, why do you think there are adds on tv for fibromyalgia and lyrica. I even explained to him about this awesome board with all of you with the same exact thing that I'm going through and that you've been dx with fibro as well.

It's so hard to "convince" people of this problem and that it's real; I feel like I always have to explain my problems further than just saying it's fibro. I would love to bring my husband to an appt so the PM dr will know that I'm not in it for the pills, just relief!!

 
Old 01-13-2009, 04:43 AM   #9
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Re: First PM Appt - Has Anyone Felt This Way & What Did U Do?

I am so sorry Cheryl that you have to go through this. I went through the same. It can be depressing & makes you feel very isolated. This april will be 4yrs & just in the past several months did they find what was wrong.
As far as PMs I ask for several names & when I called the offices I ask if that particular PM treated what they assumed at that time was my problem.
I knew from this board not all doctors believed myofascial disease was real much like you saying with the Fibro, so I was prepared to cross any doctor off the list who did not acknowledge it. Then I chose the doctor that was recommended to me by more then one person.

Dealing with people who do not believe your pain is real is as bad as the pain itself. fibro was one of the conditions mentioned to me while I was in the proecess of trying to discover what was wrong. Because its hard finding the source of the pain & more then one area causing pain doctors can make you think its in your head or what ever. Its possable to have more then one medical problem going on & it blows my mind to think doctors dont consider that. Like you I have the upper & lower pain, thank god I know why know but I know exacly what your up against.
I am hoping something shows in your lateset tests but if not keep on these doctors. Find a PM that does acknowledge & treat Fibro & in the mean time it these cervical issues & hip keep bothering you know that there is more then just MRIs that can be used to help find if there is a problem. Remember as I mentioned on the other board thanks to the doctors relying on my first MRI I was left to suffer & the second one only showed a fraction of what the surgeon found during surgery.
You know your body better then any doctor & you most certainly know your in pain. You have very much the same as I, even down to the jaw. I have discovered very often we clench & grind due to the pain we are in & the end result is more pain such as TMJ. Its like a chain reaction. One thing can cause another. At times taking something to relax the muscles can help with the jaw/headache, sometimes nothing touches it. I just hate to see anyone go through the same nightmare I did & truely hope you can get a good PM who can give you more quality of life & less pain.
Dont feel so bad my husband had his moments & that hurt more then anything. Living with CP daily impacts every part of your life & I am sure the best of marriages can be tested. Please let us know when your test results come in. I am really curious to see if anything (even small) shows up.
Hang in there & know your not alone. God bless, Sammy

 
Old 01-14-2009, 02:51 AM   #10
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Re: First PM Appt - Has Anyone Felt This Way & What Did U Do?

Hi Sammy01,
I had to go to my regular dr last night for pain medication since the PM dr didn't work out. They scheduled me with the wrong doctor within the practice and was kind of upset about it; the one they scheduled me with AGAIN didn't believe fibro is a real thing. The dr I normally see does believe (amazing that 2 different dr's within the same practice think differently). I've never dealt with her with all of this so I had to start from scratch although she had notes. Come to find out that the PM dr that I was referred to many patients came back very unhappy with who my dr recommended; FINALLY I don't feel crazy. I told this dr everything he said and she just couldn't believe it; she knows I'm in pain she could see it last night. I had to bring my kids with me last night and to hold my 1 1/2 yrs old son was torture on my back. I got home and my entire lower back was throbbing pain; I went to bed early and took 2 percocets. I still woke up with the pain but not as bad.

The problem I have with the dr they accidentally scheduled me with is she doesn't believe in giving pain meds like the one I normally see. She gave me lower strengths and said "well, it's not good for your stomach!" Here we go again...Doesn't she get it, I wouldn't be there if it wasn't for the bad pain I'm having; I even told her that I've been taking 2 vicoden at a time!
My MRI and xray are scheduled for this Saturday, I hope they show something. But I remembered what you said about the discogram; I mentioned this to the doctor and she says "oh, well that's down the line. You don't need that now". I even mentioned about how people's problems don't show up on the MRI or xrays but does on the diskogram. Her reply "it'll show what we need". Why are dr's so reistant to listening to us!!

I hate drs right now!! Even the TMJ specialist I went to did literally a 5 minute exam and I was out the door!! He checks everything and says I definitely have TMJ; took xrays but they never called me or had me come in for the results!! What's wrong with people!! I even got a $300 bill from them because they didn't put the claim through the insurance correctly. I called the insurance company to find out why it wasn't covered since I called the insurance company before making the appt to make sure the consult and xrays were covered. Their reply was "the dr's office did not report anything; they just put through that I came in for a visit. Now I have to do all the back end work and call the TMJ guy and tell them you have to report my problem to the insurance co!! It's no wonder they didn't call me for results, seems like they didn't do anything with my case at all!!! I'm so extrememly frustrated with drs!! We rely on them so much to take of us and feel like most of them are incompetent!!! Seems like I could have been a doctor since most of them don't do much!!

I'll keep you posted and let you know what the reports show!! Thanks so much Sammy01; I truthfully feel so much better talking to you!! You have the same problems as me!! Although it's not fair but seems like you've been down the road I'm currently on can relate to my frustration. Can't believe it took 4 years for you to find someone that is taking care of you. Can you remind me what your dx was for your back and what will happen? I was on the boards last night for about 30 min (went to bed due to pain) and was reading someone's story much like mine; she ended up having to go for a 2 level fusion although she seemed to be a little worse off than me but practically the same. Same as you; she didn't get her final dignosis until the discogram. I'm just really curious; since we seem to have the same issues what you were dx for your back?

 
Old 01-14-2009, 10:42 PM   #11
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Wink Re: First PM Appt - Has Anyone Felt This Way & What Did U Do?

Hi-I too have Fibro. and many other spine and nerve problems. As others have said, if my Dr. did not believe in Fibro...I would never return and I would find a new Dr. That is one of my top requirements, esspecially with This specific disorder. Since it is often very difficult to diagnose and many go 3-5 years of seeing Drs. and even taking a time out, doubting my pain, before someone finally takes a Fibro. pt. being diagnosed with the condition. So, when you find a Dr. that believes and understands it, that Dr. is gold and a keeper!

I was also going to tell you to take your med. bottles in, on your next visit after trying the Lyrica. (BTW, I know 3 very close friends, who are on Lyrica for Fibro. and they love it. I personally looked forward to trying it, but unfortunatly, it makes me too tired to take it everyday.) If the Lyrica does not work, explain to the Dr. that you tried it and your pain level was constantly above 5 (or whatever # you feel it's at,) and you were wondering if you could try going back on what you once used...becasue it helped you so much, back during that time. Then show him your old bottles and I would guess that he would consider doing just that. That is exactly what happened on my initial visit with my PM Dr. and he wrote the scripts directly from the lables of the old bottles.

Good luck and keep us posted.
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Old 01-15-2009, 07:06 PM   #12
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Re: First PM Appt - Has Anyone Felt This Way & What Did U Do?

cheryl810...
I too suffer from Fibro and was dx'd 9 yrs ago with it, but even after I was diagnosed ( the doc didnt believe in it, but he dx'd it, then refused to treat it) It still took me about 3 yrs to find a good doc who was willing to treat it and who also actually believed in it. If you are having a hard time finding a PM doc, I would highly suggest seeking out a Rheumatologist, I have found many of them believe 100% in Fibro. When you call to make an appt, ask if the doc believes in Fibro and what types of treatments do they offer to treat the pain, if you can print out a copy of your pharmacy records to show what meds you were on, how they were prescribed ect... any empty bottles or even full bottle of meds that you have that you tried and they didnt work, bag em up and take them all with you. I have alot of problems on top of Fibro now and just started seeing a PM doc last week and I bagged about 20 medicine bottles up, empty and full, what worked and what didnt. I printed out a 2 yr history of my pharmacy records, which depending on which pharmacy you use, you can actually do it online or you should be able to pull up your health insurance online and print out a copy of pharmacy records from them too. Any records that I had on hand I took with me, any xray's, mri's, cat scan disc's or hard copies went with me too. I began keeping a pain diary two yrs ago for my back problems and took that too. It consisted of my daily meds intake, how they worked, what my pain levels were througout the day and night, what activities I could or couldnt do, what made my pain worse or better.

The more your arm yourself with information when you go in the better off you'll be in getting treated with medications that work for you. Make several appts with different docs, so that way if one doesnt work out, you dont have to wait 2-3-4 weeks to find another one and if one works out, then just cancel the other appts.

I'm very new to all the PM stuff too and only just learned what i've told you by reading these boards and without the help and knowledge of the regulars here on the boards I dont know that I would be where I am now. So I owe them much thanks and appreciation. There are some very smart people here that can really give you some great advice.

good luck and keep us posted

 
Old 01-16-2009, 04:03 AM   #13
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Re: First PM Appt - Has Anyone Felt This Way & What Did U Do?

Thanks lfoster21 and lisam1120!!
I actually have 2 rhuemotogist appts with 2 different drs; one today and the other is not for another 2 months. I will take your advice and keep the 2nd appt just in case today's appt doesn't work out. I'm going to do just what you guys said and bring my medication bottles and my history of meds. The only thing that I kept was the bottle of Lyrica and the meds I'm currently using (7.5 percs) which I'll bring with me. I have my xray and MRI tomorrow morning and the dr told me to insist on the reports on the spot since most of time they don't send the reports to the primary doctor as their suppose to.

You guys sound just like me with back and nerve problems. My bones really hurt in many places but especially my lower back, collar bones, shoulders and feet (top and sides). My feet always feel like I've been standing on them for hours and hours; they don't ever feel rested. so when I walk they feel sore/painful the first few minutes and then they're okay but when I sit back down or just have my feet resting on the floor when I'm sitting and they're throbbing and numb.

But right for about a week or so my back is just been unbearable; my lower back hurts so much. My mid back is numb on the left side and tight and painful. The pain is also in my hips and going down my legs, especially the left side and left side of my groin; and as I mentioned my feet.
I've had numbness/pain in my back and legs for years and back then I went to several neurologist and reg drs; I went for physical therapy but it didn't do anything. Now the pains are worse and spread to other areas. I even have a spot on my left thigh that has been a mystery to ALL drs that I talked to. For approx 10 years I get this snapping pain. If I move a certain way; something in my upper left thigh literally snaps and is very painful. The area is hypersensitive and numb; it just has an abnormal sensation in that area. No one can figure that out and still have this problem.

I was told years ago that I have a slight case of scoliosis. I was also told that my right hip is higher than my left and everything is tilted forward. I always felt this was the source of my problems but when I went to drs and chiropractors a couple of years ago they said no it wasn't. But when I put a pair of pants on (sweats, dress pants, etc) the hem line is always higher on the right. My sweatpants drag on the floor on my left leg so much that if I wear them outside on a rainy day the entire left pant leg is soaked up to my ankle and right is just a little wet; to me that's a big difference and a big indication that my hips aren't aligned. Have any of you gone to a neurologist or orthopedic; should I be going to them for my back/leg problems? When I mentioned my back problems to my reg dr and asked if I should go to a neurologist; she said not right now! Why not now?

On top of all of this I have really bad headaches everyday and my arms and hands hurt and are numb/tingling. I've had 3 nerves studies and all came out normal.

I just had some blood work drawn from the reg dr and came back neg for rhuemotoid. When I go to the Rhuemotogist; what should I expect them to do? Will they do more blood work and do an examination? I really really hope that this dr believes in fibro; so far nothing else is coming up.
Did your doctors tell you that it was fibro or did you mention to them or suggest to them that it could be fibro?

 
Old 01-17-2009, 02:05 AM   #14
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Re: First PM Appt - Has Anyone Felt This Way & What Did U Do?

Hi Cheryl,
In answer to some of your question and please excuse any of the mispellings as im on my my meds and i'm a bit fogged out, which is one of the problems i'm having now with being placed on 9 medications in a weeks time.

When I made my appt with my Rheumy, I had asked the receptionist prior to making the appt if that particular doc believed in Fribro and the answer to almost all of the Rheumy's I called was yes. What made me feel much better as well was after I walked into the office and found Fibro information plastered all over the place. I knew I as in the right place then.

When I had injured my back at work back in Nov of 2006 and ended up in the ER on 12/23/2006, they did just a standard xray which showed nothing, however they referred me to see a Neuro or ortho doc. I started out seeing a Neruo doc and he sent me for a CT scan, but when that came back normal, he said that all he could do was try some Physical therapy for about 4 weeks, which I did but it didnt help me at all. The neuro doc basically told me that there was nothing to treat because the xrays showed nothing and he refused to prescribe any pain meds based on my scan coming back normal. I then called my workers comp case worker and told them that because my scan came back normal and PT didnt help the pain, that they refused to treat my pain because of a normal scan. Workers comp then told me to see another doc and sent me to an Ortho surgeon. I had taken in my records and findings from the other doc and the ortho doc said well, lets take another xray, but I want you to bend over frontwards then lean backwards for each picture. Interestingly enough, doing this opened up my spinal disc spaces, which showed that there was a slight stress fracture that the CT scan didnt pick up on, so he sent me for a MRI. Well sure enough, the MRI came back normal as well and did NOT show any fractures. He too said that based on the scans, it appeared there was nothing that would be causing the type of pain I was complaining about, He said that there was one test left that he could do and that he wasnt giving up on me yet. That test was the discograpjy, so I scheduled for that and sure enough that is when the problems where found and the pain recreated. Based on this finding he gave me my options which were to learn to ilive with the pain or schedule to have a spinal fusion. Living with pain was just not an option for me at my age and with 4 children, so I went with the fusion. That was two yrs ago and i'm in worse condition than I was prior to surgery, now im in PM therapy, which i'm not sure is the right doc for me at this point.

I will say that my Rheumy was the the one that treated my fibro pain as well as my back pain, but she suggested that I find a PM doc to manage my pain.

So in answer to your questions about your back, I would suggest seeing either a Neuro or a ortho doc as they will run tests to find out what is going on with your back and hopefully provide you with some answers and options. Spinal fusion surgery works well for alot of people, unfortunaltey it made me worse and although my surgeon wishes to do another fusion, I just dont think I could go through another one without haveing some sort of promise that it wont get worse, but they cant offer that promise to me.

As for what your Rheumy will do, they are all different. I know that mine did blook work to test for RA, tested for lyme disease, tested my thyroid as well as some other tests. Her physical that she did is like a trigger point system. Where she pushed on certain area's of my body to see if they were painful and in order to be diagnosed with Fibro you have to meet a certain amount of points and I had test positive to all but one, which indicated that I did have fibro. We tried many combinations of medications to control the fibro pain and flare ups and in the end it there was only one medication that worked for me and that was the Tramadol. So that is what I had been taking for 8 yrs, until just recently when my PM doc said I coudlnt take it any longer. This is an issue for me and will need to be discussed with her when I see her next week.

I hope that some of my answers have given you alittle insight as to what may or may not happen.

Please let us know how everything went with your appt.

 
Old 01-18-2009, 06:20 AM   #15
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Re: First PM Appt - Has Anyone Felt This Way & What Did U Do?

Hi Lisam1120!!
Well, I went to the Rheumotologist and well, I'll ride it out and see what happens. I don't know what it is with NY doctors but so far all of them say to me that Fibro is just a last resort if everything comes back normal. But I hear so many stories of people being dx with fibro and other conditions together.
I went to this rheumy on Friday and explained EVERYTHING from headaches down to my feet hurting. Of course without blood work and xrays/mri's he can't say for sure but he thinks my back problems are a separate issue from the rest of problems. He too had Fibro stuff all over the place; pamphlets and posters, etc. but he won't label it that until all the tests come back normal; which I can accept. The only thing is, just like all fibro suffers, how do you explain the "fog" or something comes over you for days maybe weeks if it's not fibro!! I get that foggy feeling and then one day all of a sudden I'll be clear as day and feel so good after feeling really crummy for a week or so. I can't explain this feeling good enough to my husband, only all you fibro sufferers know what I'm talking about. I also all of a sudden cannot excercise, I feel like I have the flu afterwards and get that foggy feeling; I use to never get that until approx 6 months ago.
This rheumy is not ruling out fibro but won't label it that until the tests come back. He has an idea what things it can be but not sure yet until all the results come in. I went for an MRI of my neck and xrays of lumbar and other things my rhuemy added. My back is so bad that just taking these tests/xrays, I was completely debilitated the rest of the day yesterday. I had the MRI done which took 25 min but he couldn't get a good reading on the upper part of my neck so he had to redo that part which I was laying on this hard flat surface for about 45 minutes. The whole time my back was killing me; almost got up in the middle of the MRI; couldn't take the pain anymore. Anyway I got home and sat on the sofa; my lower back was throbbing pain uncontrollably for the rest of the day; I broke out into tears. My neck is really painful but not as bad as my back. Even going to the rheumy on Friday killed my back and neck and he touched it lightly.
I asked him if the xrays and MRI don't show anything; what about doing a dicography. He never heard of that test he says!! Come on, are you kidding me?? I also said that if my back is a separate issue and has nothing to do with rheumy problems; shouldn't I go to a ortho and neuro dr? His response was "I treat back problems with physical thereapy right here in the office and there's no need to go to an ortho or neuro". I said "olay fine you do pt; I've been down that road before years ago and it didn't do anything for me" and he said "well, we'll worry about that when we get there" What is it with these drs and asking questions, are they that insecure or something that you can't ask questions without getting these types of answers!! I don't want to be wasting my time with him if all he's going to do for my back is PT; which like I said hasn't worked in the past; I'd rather go to someone that does this solely for a living and not with someone that treats it on the side or add on to their practice!! Twice now I've been told not to go to an ortho or neuro dr (primary dr and this rheumy) But I'm in excruitiating pain!! If I sneeze or cough my back can't handle that!

I think what I'm going to do is get the results from my MRI and xrays and take them to an ortho surgeon on my own. I don't know what it is with these drs but I feel in my heart that I need to go further.
Same as you I have young children and at this point there's no way I can hold them or get down on the floor and play with them. Sometimes I have no choice to hold them and when I do my back is beyond excrutiating. Last night I did go on the floor with my daughter since she was begging me to and for the 5 minutes that I did; I really paid for it.
I have to go for blood work this week that the rheumy ordered so we'll see what that shows as well; but he did order a pretty extensive list so for this reason and the fact that he ordered a few xrays other than the xrays and mri thar I'm getting from the PM dr (which I'm going to a different one this friday) I will stick with him and see what he says. I do have a rheumy appt with another dr in two months so I'll still keep that appt if I'm not satisfied with this one. What I found weird is that I was able to get an appt with this guy immediately and with other one, I have to wait 2 1/2 months. Plus when I went to this rheumy, the place was empty, no patience anywhere, just me. That's an indication to me that maybe he's not so good? I don't know, we'll see what comes of it.
I got the films on the spot from the MRI; I definitely see something on my cervical spine in two spots!! Of course I'm no dr but you can see in the MRI that the spine and discs are shaded all grey (normal) but on two of the vertebre (spelling?) I see white parts on them; right where I get the neck pain. I showed this to my husband; he saw it right away. Now it's killing me, I need to know what that is. I was told years ago that I had slipped discs but what I saw was actually on the vertbrea and not on the discs. I'm wondering if the discs show slippage or wearing out; I'm going to try and see if I see anything. At least I know this will show that finally a pain that I'm having shows up and SOMEONE will FINALLY take me seriously!! I just really hope that my xrays for back will show something to validate my pain. But the rhuemy said that he has to do the xray first then the MRI since the insurance co won't cover the MRI without doing xrays first. So doing xrays if protcol.
What kills me is that he doesn't believe in treating patients with narcotics! So far the only dr that I've gone to that does prescribe narcotics is my primary dr. Even the PM dr that I went to last week didn't give me anything; just neurotin for fibro. But I didn't ask for any either since I didn't want to look like that's all I interested in. The thing is, like you with tramadol is that if you find a drug that works for you; why use something else. Why are drs so afraid to prescribe narcotics; addiction I know. But to me it's no different than someone needing say blood thinners all their life to be stable; they take a pill every single day to keep their levels normal. it's no different to me with pain sufferers; if a pain killer works for us then keep it going. Why treat with something that only gives a slight relef. I know there are many people out there that don't have validated pain that seek these pills but for us sufferers that have ligitament pain; it's nearly impossible sometimes to get relief!!
Although I'm not a fan for surgury, I feel like this would be my only option for relief!! I know I haven't been to an ortho yet but I just feel like if he were to offer surgery I'd take it in a heartbeat! I can't live like this anymore!! But I'm worried also because you're saying that it didn't help you!! I've heard a few cases like this where they had to go for a second one and that did the trick.
I'll let you know what happens with the xrays and MRI results and what the rheumy says about everything.
Thanks for listening and your response!!!
I'm telling you; being on these boards truthfully make me feel a little bit better!! Just spilling my thoughts out feels good and knowing that I'm not alone!! Thanks so much!!!

 
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