I'm sorry to hear about your pain. It sounds to me as if narcotics is the only med that may work. Your choices are very limited....It's either OTC meds such as Tylenol, Motrin and etc., or narcotics.
As far as the narcotics go, Codeine is the weakest available. It is a very old med and was once a heavily used agent. As a result of many having allergies and etc., as well as other side effects (hangover can be really bad with codeine), a narcotic called "hydrocodone" was developed. It is the main ingredient in meds like Lortab, Vicodin, Lorcet and others. Refills are available because it's CIII med.
As an example, Percocets would be the next step up from hydro. No refills are available on Percs because it's a CII med. The active base ingredient is an agent called "oxycodone."
I guess what it comes down to is finding a Doc who is willing to support you on some type of adequate pain mgt plan. If you Rhuemy is unwilling, how about your GP? If neither, then I would ask for a referral to a PM Doc. I respect the fact that the Rhuemy Doc isn't a narcotics prescriber, but you deserve adequate PM care. I would talk to either Doc and see what they say. I would stress how uncomfortable you are and that you suffer at times.
The biggest mistake prospective CPers make is not being their own best advocate....You have to stress how you feel at times in order to get the meds you need. Sometimes, it can be very helpful to take a spouse or someone very close to you, with you to the appointment....To tell the Doc how they see you....From their perspective. Sometimes, hearing it from another person can often seal the deal. Additionally, in adding a little bit of human psych to the situation, it's often harder to say "no" to two people sitting together than one. Just a thought. I've heard others say that this recommendation worked well for them, so that's why I pass it along here.
Best of luck to you.