It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Pain Management Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 04-21-2010, 07:29 PM   #1
Newbie
(female)
 
Join Date: Jul 2008
Location: Atlanta
Posts: 7
bear1972 HB User
Unhappy I am in real pain - doc seems to doubt me

I have had the same Internal Medicine doc for 10 years now and have never been a patient that had any pain problems or needed pain meds. Then in March of last year, I started having abdominal pain, vomiting and bloating. My Internist referred me to a Gastroenterologist and after all kinds of tests, he sent me on my way with a dx of IBS. Over the next year, I dealt with bouts of trouble that would always pass. Sometimes I was given something like Lortab but nothing too strong and never long-term.

Since this past March, all of the original symptoms have returned but they are so much worse. I am vomiting everyday, my stomach is constantly distended and the pain is absolutely unbearable now. This time my doc sent me to a GI doc that specializes in gastroparesis. This is what they suspected I had. This specialist gave me a few pain meds but when the test came back negative for gastroparesis, he pretty much blew me off. Now I am onto the third GI - none of them want to treat my pain and now my Internist is acting weird about giving me anything for pain as well. I do not understand.

I feel so alone and I think these doctors think I am a drug seeker. I used to work for doctors and I know how it goes if one of them gets it their head that you are not in any real pain. I used to wonder about those patients - hoping the docs were not making a mistake about them.

So here I am, in horrible pain and with nowhere to turn. Pain clinics have been suggested to me. I do not know anything about them. Does anyone have any ideas or advice?

 
The following user gives a hug of support to bear1972:
mgm55 (02-19-2011)
Sponsors Lightbulb
   
Old 04-22-2010, 04:00 PM   #2
Veteran
(female)
 
bullymom's Avatar
 
Join Date: Feb 2009
Posts: 343
bullymom HB Userbullymom HB User
Re: I am in real pain - doc seems to doubt me

Bear1972,

Welcome to the boards. You are in a very difficult position. Abdominal pain can be awful for sure. For the most part, abdominal pain is not treated with narcotic pain medication for a number of different reasons. Narcotics traditionally make abdominal discomfort much worse, not better. Also, they tend to cause constipation big time. They all do. If you are having bloating and vomiting, a narcotic pain pill would not be a wise choice IMO.

Abdominal pain needs to be diagnosed and until it is they are not going to give you something that is likely to make your symptoms worse. In order to see a pm specialist, you usually have to be referred by your pcp. I know this isn't what you want to hear, but I am really not surprised at all that they are reluctant to prescribe pain meds. Diet changes and diagnostic testing is about all you can expect until this is diagnosed.

I'm so sorry and best of luck

Bullymom

 
Old 04-23-2010, 08:52 PM   #3
Newbie
(female)
 
Join Date: Jul 2008
Location: Atlanta
Posts: 7
bear1972 HB User
Re: I am in real pain - doc seems to doubt me

Quote:
Originally Posted by bullymom View Post
Bear1972,

Welcome to the boards. You are in a very difficult position. Abdominal pain can be awful for sure. For the most part, abdominal pain is not treated with narcotic pain medication for a number of different reasons. Narcotics traditionally make abdominal discomfort much worse, not better. Also, they tend to cause constipation big time. They all do. If you are having bloating and vomiting, a narcotic pain pill would not be a wise choice IMO.

Abdominal pain needs to be diagnosed and until it is they are not going to give you something that is likely to make your symptoms worse. In order to see a pm specialist, you usually have to be referred by your pcp. I know this isn't what you want to hear, but I am really not surprised at all that they are reluctant to prescribe pain meds. Diet changes and diagnostic testing is about all you can expect until this is diagnosed.

I'm so sorry and best of luck

Bullymom
Thanks so much for your reply, Bullymom. I have done some research and you are right. I know they can cause constipation and a number of other difficulties with the digestive system. Unfortunately, they are the only things that make this tolerable. When I was able to take something before I ate, it made all the difference. Really, it was the difference between crying in pain in a ball on the floor to being ok and functional. So,I am just so disheartened at the idea of having to deal with this excruciating pain. It has been weeks now - which feels like a lifetime - and it is really becoming more than I can stand. I avoid eating, I am anxious all the time about the possibility of pain and the meds that they have given me just knock me out. The only drug that has worked at all (aside from the narcotics) is Zofran. With all of the vomiting I have endured, that drug has proven to be worth it's weight in gold. Does nothing for pain but it will stop vomiting in its tracks. Otherwise, I am just worn the heck out from all of it now.

I am sure you know how it is when you absolutely have to deal with pain or anything else that is so hard to face - you just do it. I have to take it day by day and sometimes hour by hour. It only dawns on me every once in a while just how very long I have been "just dealing with it." It makes me sad. I am missing out on life and I cannot get away from it.

I am not giving up though - how can I? I will just keep making these doctors pay attention to me until someone can find out what is wrong. Ugh. I pray they find out what is wrong.

Thanks again for taking the time to respond and for your support. It was nice to see your message even if it did not contain the answer I want!

Smiles to you,
bear1972

 
Old 04-23-2010, 10:20 PM   #4
Facilitator
(female)
 
SpineAZ's Avatar
 
Join Date: Oct 2005
Location: Wisconsin
Posts: 5,097
SpineAZ HB UserSpineAZ HB UserSpineAZ HB UserSpineAZ HB UserSpineAZ HB UserSpineAZ HB UserSpineAZ HB UserSpineAZ HB UserSpineAZ HB UserSpineAZ HB UserSpineAZ HB User
Re: I am in real pain - doc seems to doubt me

Have you seen your ob/gyn?
__________________
Rt&Lt thumb arthroplasty 2012 ; RT TKR & Bilat CTS 2011
Fusions: L5-S1 (87), L4-S1 (93), C5-C7 ('06), L3-S1 ('10)
C5-C7 foraminotomy 08

 
Old 04-24-2010, 09:51 AM   #5
Veteran
(female)
 
bullymom's Avatar
 
Join Date: Feb 2009
Posts: 343
bullymom HB Userbullymom HB User
Re: I am in real pain - doc seems to doubt me

Quote:
Originally Posted by SpineAZ View Post
Have you seen your ob/gyn?
SpineAZ brings up a good point. Something to think about.

I can relate to what your going through. It's so much worse when you don't know what is causing the problem and makes it hard to feel there is a light at the end of the tunnel. You keep on them bear!! Get as many opinions as you can until someone gives you an answer.

Please keep us posted and I will keep you in my prayers my friend.

Bullymom

 
Old 04-26-2010, 12:14 AM   #6
Newbie
(female)
 
Join Date: Jul 2008
Location: Atlanta
Posts: 7
bear1972 HB User
Re: I am in real pain - doc seems to doubt me

Quote:
Originally Posted by bullymom View Post
SpineAZ brings up a good point. Something to think about.

I can relate to what your going through. It's so much worse when you don't know what is causing the problem and makes it hard to feel there is a light at the end of the tunnel. You keep on them bear!! Get as many opinions as you can until someone gives you an answer.

Please keep us posted and I will keep you in my prayers my friend.

Bullymom
SpineAZ HAS brought up a great point. One my sister asked me just the other day. No, I have not seen my OB/GYN but I am going to. I have to say right now I am so sick of seeing doctors and being poked and prodded that I could just scream. However, it is an area that has not been checked yet and I would be really remiss if I did not follow through.

Thanks so much again for your responses and Bullymom, you could not be any sweeter to me if you tried. Thank you. These kinds of things can truly make you feel very alone and knowing you are thinking of me helps. It really does!

And you are right - not knowing is horrible. It is scary and you cannot make the test results come back any faster, you cannot make an answer appear where there is none and it will discourage even the most faithful to the medical community. It is a weird feeling to be disappointed when things come back negative or "normal" and goodness knows I don't want to be dx with something terrible. However, it is important for anyone in pain to have that validated and as long as things come up normal, you get no validation at all.

I will keep you posted and I will keep plugging away. My CT scan is set up for tomorrow. Probably won't know anything for a couple of days but I will be happy to have it out of the way. Of course, that is the easiest test in my near future. I have an endoscopy and sigmoidoscopy set up on the 5th of May. There was a time when the notion of having any type of scope in my colon would have made me very anxious and embarrassed. At this point, I could not care less what they stick where - I just want the pain to stop ASAP.

Hugs and thanks,
bear

 
The following user gives a hug of support to bear1972:
mgm55 (02-19-2011)
Old 04-26-2010, 09:18 AM   #7
Facilitator
(female)
 
SpineAZ's Avatar
 
Join Date: Oct 2005
Location: Wisconsin
Posts: 5,097
SpineAZ HB UserSpineAZ HB UserSpineAZ HB UserSpineAZ HB UserSpineAZ HB UserSpineAZ HB UserSpineAZ HB UserSpineAZ HB UserSpineAZ HB UserSpineAZ HB UserSpineAZ HB User
Re: I am in real pain - doc seems to doubt me

I didn't want to scare you but some of the symptoms you mentioned can be indicative of ovary or uterine problems (including things like ovarian cancer). Again, not to scare you but get a full ob/gyn evaluation as soon as possible. Maybe talk them into exploratory laproscopic surgery to check for ovary problems, endometriosis, etc. I have a friend who looked as if she was 6 months pregnant. Turned out to be severe endometriosis. She's 45 and they offered to try medications but the gynecologist said a hysterectomy was the definitive solution so she went forward with that but kept one ovary for hormone purposes.
__________________
Rt&Lt thumb arthroplasty 2012 ; RT TKR & Bilat CTS 2011
Fusions: L5-S1 (87), L4-S1 (93), C5-C7 ('06), L3-S1 ('10)
C5-C7 foraminotomy 08

Last edited by SpineAZ; 04-26-2010 at 09:20 AM.

 
Old 04-26-2010, 11:01 AM   #8
Veteran
(female)
 
bullymom's Avatar
 
Join Date: Feb 2009
Posts: 343
bullymom HB Userbullymom HB User
Re: I am in real pain - doc seems to doubt me

I have seen ovarian cysts so large that they would NOT fit in the kitchen sink. I am not kidding. I can only imagine the kind of pain and pressure one would experience when having something like that. Endometriosis is also something to consider. On one of those mystery diagnosis shows, they had a woman who had endometriosis that migrated down into her leg and set up shop She could not walk!! Can you imagine?

You hang in there kiddo. So far you have not received any bad news regarding what is going on with you and that is a blessing. Keep us posted.

Hugs,

Bullymom

 
Old 04-28-2010, 09:03 AM   #9
Veteran
(female)
 
Join Date: Nov 2009
Location: New England
Posts: 499
Madison104 HB UserMadison104 HB UserMadison104 HB User
Re: I am in real pain - doc seems to doubt me

I think they should treat your pain. I know my stomach ulcer can bring me to my knees when it acts up. Thank GOD it is not that often now since I have changed my diet and take my tagamet on a regular basis......

There must be something for you. I say treat the patient while figuring out what is going on. They could do something low dose, and keep dispensing low as well....maybe am and pm.

I am so sorry to see you suffer and I hope you get an answer soon. I was left untreated for YEARS before I got my Lupus diagnoses so I know what it is like to suffer.
My thoughts are with you..
Madison

 
The Following User Says Thank You to Madison104 For This Useful Post:
mgm55 (02-19-2011)
Old 04-28-2010, 02:45 PM   #10
Senior Veteran
(female)
 
Join Date: Jun 2006
Location: USA
Posts: 1,628
ozzybug HB Userozzybug HB Userozzybug HB Userozzybug HB User
Re: I am in real pain - doc seems to doubt me

Bear- Hey there, and welcome to the boards!

As a fellow abdominal pain sufferer, I literally feel your pain. I've had issues for my entire life that went undiagnosed until I was in my thirties! It's horrible, and when I have a flare-up, it can put me on the bahtroom floor shaking & crying in pain. I mean, not to get graphic, but when I am pooping blood, it's not a good thing. Losing 37 pounds in a month's time? Also not a good thing. I was diagnosed with IBS and have also already had several pre-cancerous polyps removed from my intestines.

This leads me to ask if either of the GI doctors you saw did a colonoscopy? I may have missed it in your posts, and if so I'm really sorry. If they did not do a colonoscopy, or an endoscopy, I'd highly recommend you get one if things turn out ok with the OB/GYN.

There are numerous GI issues that can cause the symptoms you are having. Things like Chron's, spastic colon, IBS, H-pylori, mega-colon....the list goes on and on, but these things are usually diagnosed not only by symptoms exhibited, but also through having a scope performed.

I'm so sorry you are having these issues, and really even more sorry you can't get a diagnosis. Having a diagnosis would at least give you a starting point and let you know what you are dealing with. Knowing what is causing this gives you the opportunity to do some research on your own so you will know how to help yourself, and which specialist to see for treatment.

I hope you are able to get to the root of this horrible pain and get the treatment you need!

Keep us posted. We are here for you!

Last edited by ozzybug; 04-28-2010 at 02:45 PM.

 
Old 04-30-2010, 12:46 PM   #11
Veteran
(male)
 
Join Date: Jun 2009
Posts: 407
Leo123 HB UserLeo123 HB User
Re: I am in real pain - doc seems to doubt me

Whoever wrote abdominal pain is not treated with Narcotics this is simply not true.

Depending on the severity of the IBS or chronic abdominal problem it is actuall a common treatment to give a patient narcotics to deal with the abdominal pain.

ALso if part of the problem is loose stools (or Diar..) then actually getting a little consitpated from the narcotics is a good thing and would help with the loose stools.

So whoever said that to you Bear1972, this is completely wrong and if narcotics is what you need to help alleviate the relentless abdominal pain, than that is a perfectly acceptable and quite commonly used treatment for many gastro intestinal conditions.

I have not looked on-line but I bet if you looked up IBS, I'm sure you would see that one of the forms of treatment would be perscribing narcotic meds to help alleviate the symptoms of IBS or many other similar gastro intestinal issues.

I have had Gastro issues my whole life and nothing helped alleviate my symptoms (which included severe stomach cramping and loose stools) better than narcotic meds.

Good Luck!

Last edited by Leo123; 04-30-2010 at 12:48 PM.

 
Old 04-30-2010, 03:07 PM   #12
Newbie
(female)
 
Join Date: Jul 2008
Location: Atlanta
Posts: 7
bear1972 HB User
Re: I am in real pain - doc seems to doubt me

I cannot tell you how much it means to me that all of you have responded so kindly. It makes me feel like I am not alone and I have somewhere to go to get validation, to vent and to update all of you that care about suffering.

I finally had my CT (IV contrast) done today. I had to cancel the one from earlier this week because I was in too much pain to go. Not to mention the vomiting has started again and thanks to a screw up at my docs office, I could not get my rx for Zofran until late yesterday. I have been absolutely miserable all week.

I completely agree that they should be treating me for the pain until they can come up with a dx. It is not fair that I should have to suffer this way. In the absence of any pain meds earlier this week, I did not sleep more than an hour or two a night, I literally had to stay in bed ALL DAY LONG. Any kind of moving around or god forbid I ate, would send me into horrific pain. The vomiting was just the icing on the cake, I suppose. I don't mean to be a smart a**, I am just completely worn out from this now.

Yes! I am having a colonoscopy and an endocscopy next week. So I am praying that something will come of these tests. Lying in that CT machine I was thinking "God, please let them find something" and then I considered that it could be something really bad. You don't know what to wish for with pain and suffering like this. I want it to end but I am frightened too.

I have been so lucky up until now in that I have never had anything like this happen before. Yes, I am diabetic (type 1) and it sucks to have that but it is what it is. There is no real mystery to it. The combination of the pain, my new found avoidance of food (it hurts SO badly after I eat) and the way I am being blown-off regarding the severity of my pain is just unbearable.

I am so sorry that any of you are or have suffered like this and again, I can't tell you how happy I am that I decided to post here. I really am NOT alone!

I should know the results of the scan Monday and I will let you all know. I am praying the pain does not get worse over the weekend. I do not want to sit in the ER all day.

hugs to all of you,
Shay (aka Bear1972)

 
Old 04-30-2010, 07:38 PM   #13
Veteran
(female)
 
bullymom's Avatar
 
Join Date: Feb 2009
Posts: 343
bullymom HB Userbullymom HB User
Re: I am in real pain - doc seems to doubt me

In the interest of clarity I'd like to respond to Leo's post. I did not say that abdominal pain cannot be treated with narcotic medication. What I said was "for the most part" In my experience when a physician is trying to diagnose the cause of abdominal pain they do not make narcotics the treatment of choice. I do agree with Leo's suggestion to do a search. A simple one like "use of narcotics in abdominal pain". I didn't come across anything that suggested narcotics as a first line of treatment. I am not saying that I agree with this. I do believe that pain should be treated. I was trying to say that most physicians are not very comfortable in rx them especially when other medications are preferable. Anti inflammatories, anti spasmotics, and anti depressants are more commonly used. I think bear is living proof of that theory. Patients with abdominal pain are often under treated. With disorders like narcotic bowel syndrome that suggests that abdominal pain only gets worse and more progressive when using narcotics. Physicians are more reluctant to use them. That doesn't make them right, but IMHO that seems to be the way it often is. In your earlier post Bear you said you had done some research so I'm quite sure you have seen both trains of thought presented on line.

I do hope you find some relief as soon as possible. I do not do well when I am nauseated and vomiting and I can handle back pain so much better.
I don't know what part of the country your in but perhaps there is a university hospital near you. When a diagnosis in not easy to come by, I feel more comfortable in a big teaching hospital environment.

The most important thing sweetie is to NOT give up. I can't remember if you have had a gastroscopy yet and don't forget about the ob/gyn work up as well.

If I hurt your feelings iin any way with my post, I am truly sorry, that was not my intention. And I hope you know that.If I can help you in any way please feel free to send me a private message.

Kind regards,

Bullymom

 
Old 04-30-2010, 08:57 PM   #14
Newbie
(female)
 
Join Date: Jul 2008
Location: Atlanta
Posts: 7
bear1972 HB User
Re: I am in real pain - doc seems to doubt me

Quote:
Originally Posted by bullymom View Post
In the interest of clarity I'd like to respond to Leo's post. I did not say that abdominal pain cannot be treated with narcotic medication. What I said was "for the most part" In my experience when a physician is trying to diagnose the cause of abdominal pain they do not make narcotics the treatment of choice. I do agree with Leo's suggestion to do a search. A simple one like "use of narcotics in abdominal pain". I didn't come across anything that suggested narcotics as a first line of treatment. I am not saying that I agree with this. I do believe that pain should be treated. I was trying to say that most physicians are not very comfortable in rx them especially when other medications are preferable. Anti inflammatories, anti spasmotics, and anti depressants are more commonly used. I think bear is living proof of that theory. Patients with abdominal pain are often under treated. With disorders like narcotic bowel syndrome that suggests that abdominal pain only gets worse and more progressive when using narcotics. Physicians are more reluctant to use them. That doesn't make them right, but IMHO that seems to be the way it often is. In your earlier post Bear you said you had done some research so I'm quite sure you have seen both trains of thought presented on line.

I do hope you find some relief as soon as possible. I do not do well when I am nauseated and vomiting and I can handle back pain so much better.
I don't know what part of the country your in but perhaps there is a university hospital near you. When a diagnosis in not easy to come by, I feel more comfortable in a big teaching hospital environment.

The most important thing sweetie is to NOT give up. I can't remember if you have had a gastroscopy yet and don't forget about the ob/gyn work up as well.

If I hurt your feelings iin any way with my post, I am truly sorry, that was not my intention. And I hope you know that.If I can help you in any way please feel free to send me a private message.

Kind regards,

Bullymom
Oh no! You did not hurt my feelings at all! I am very familiar with the school of thought you are referring to and just like you, I may not agree with it but it does seem to be the way things are within the GI medical community.

Unfortunately, it is not just me. Tonight I contacted a friend of mine that has suffered with chronic pancreatitis for the last several years (she just recently had to give up her teaching career to go on permanent disability.) It is known to be one of the most painful GI conditions any of us can have and even she has trouble getting doctors to properly treat her pain. That, to me, is just unimaginable and it is also a sobering thought. Given her health history (surgeries, stints, etc.) she should be able to expect the best pain control available. If someone like her cannot get it, who can?

I am further disappointed by my Internist since I have been a patient of his for so very long and while he seems to understand and even agree in theory, he still hands me the same lines that the GI docs do. All I want is relief until a diagnosis is made. Then whatever I am taking can be revisited based on what we know then. To ignore it now seems... cruel. To boot, all the other drugs that they have put me on (anti-spasmotics, anti-depressants and proton pump inhibitors) are not relieving the symptoms as expected. So my bathroom looks like a pharmacy, it is breaking my bank account (I have insurance but geez - I am taking a LOT of meds now) and I don't feel any better. Even the one drug that I felt rescued me from vomiting - Zofran - is not working as well as it did before. I have told my BF that I am very afraid an ER visit is in my near future. Sorry - I am just venting now...

Again, Bullymom, you have NOT hurt my feelings at all and your insight is dead-on. It is just not the answer I would want!

 
Old 04-30-2010, 10:11 PM   #15
Senior Veteran
(female)
 
Join Date: Jun 2008
Location: Cleveland, Ohio
Posts: 506
janiee08 HB Userjaniee08 HB Userjaniee08 HB Userjaniee08 HB Userjaniee08 HB Userjaniee08 HB Userjaniee08 HB User
Re: I am in real pain - doc seems to doubt me

I strongly recommend that you look up Celiac Disease if you haven't already. Some of your symptoms match up.Good Luck!!....janiee

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Ugh they don't know why I'm in pain LayedBack Pain Management 49 03-08-2010 08:29 PM
24/7 Nausea, Dizziness, Pain in Upper Right Abdomen... IBS, Liver, Gallstones?? abeautifulash Gallbladder 6 12-21-2009 06:05 PM
A real, first-time dilemma for me ... canscribe Sexual Health - General 7 03-31-2008 02:16 PM
Dealing with chronic abdominal pain brianpain33 Chronic Pain 10 02-14-2008 03:30 PM
shoe lift to treat back pain? plb68 Back Problems 20 06-16-2007 05:16 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



tortoisegirl (159), gmak (155), Shoreline (149), BB07 (91), backhurtz (84), katlin09 (69), Ilovemycutedog (53), galalena (50), jonnstar (35), Isotope (34)

Site Wide Totals

teteri66 (1180), MSJayhawk (1006), Apollo123 (906), Titchou (851), janewhite1 (823), Gabriel (759), ladybud (755), midwest1 (669), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 03:45 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!