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Old 07-19-2010, 10:56 AM   #1
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Angry Dying in pain!!

I'm a 34 yo man with severe lower back problems, lumbar spinal stenosis, deg. disc disease, annul tears(L1-L5), and sciatica, not to mention constant pain throughout my legs due to this.
I have tried everything! Back surgery, made it worse. Epidural and pinpoint injections, total crapshoots, constant P.T.,yoga, swimming, pain meds, acupuncture, massage etc. I am really starting to lose hope. The only thing that provides any relief are the pain meds and exercise. Unfortunately, I am unable to keep a continuous exercise regimen because I will run out of pain meds, so needless to say I spend 30-40% of many months in excruciating pain. I'm even at same dosages of meds for far too long because 1. I'm afraid to talk to dr. because every time I do he says my meds are for cancer patients( if developing it gives me more relief,at this point I'm that desperate!) and 2. the meds I take have been subject of abuse, which in turn hurts the people that really need them like myself, so I do understand my dr's reluctance? But I feel it is far from ethical, when relief is at the tip of his pen and society dictates what is appropriate!
I am at the point where I have little concern for addiction/tolerance(2 are so often confused!) if that's what it takes to provide me some reasonable quality of life, it should be my choice! It's as if they would rather let you suffer in agony than increase your dosage as recommended! I am on disability because of my back and have done every thing asked of me to battle this problem, and as I said pain meds and exercise are what works for me, so I really wish I had a say in my treatment, it's my body and my life, and feeling twice my age at 34 is absolutely depressing!
If anyone out there has gone through similar, or can offer advice, it would be most appreciated!

Last edited by Alwysnpain; 07-19-2010 at 12:17 PM. Reason: validate point without abbreviations

 
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Old 07-20-2010, 05:02 AM   #2
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Re: Dying in pain!!

Can you possibly get into a pain management center? Or could you find another doctor that would prescribe for you so that you don't have to suffer? I am sorry you are always in pain. I understand and it really IS hard.
Madison

 
Old 07-20-2010, 08:50 AM   #3
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Re: Dying in pain!!

I would find another doctor. Are you seeing your GP? If so, I would find a pain management doctor--an anesthesiologist, physiatrist, etc. If you decide to change doctors, try to find one through a trusted friend, or through a reputable online site. I would make sure that the new doctor does believe in using medications to treat pain and is not a shot jockey. You have the right to live your life. There are so many things that I do to help my pain levels, and they ALL matter--including the medication! Find a new doctor if you can. I know that it's easier said than done though.

R

 
Old 08-07-2010, 05:46 PM   #4
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Re: Dying in pain!!

Sorry to hear about your pain! I know what its like,not personally but i watch my husband suffer everyday with lower disc problems! He want see a Dr. because he is scared they will mess him up worse. I dont know of any solutions,but Ill pray for you.hang in there!

 
Old 08-07-2010, 08:42 PM   #5
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Re: Dying in pain!!

I recently have become a patient of pain specialist/anesthesiologist. It has not only brought me pain relief, but also the piece of mind that it creates.

Suddenly you have enough of the proper medications to keep you free of pain. It is a great relief, and worth the effort.

 
Old 08-08-2010, 06:21 AM   #6
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Re: Dying in pain!!

try physical therapy with water therapy also and if that doesnt work get a referal to a pain clinic.

 
Old 08-08-2010, 06:23 AM   #7
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Re: Dying in pain!!

try water physical therapy but have u tried a nerve block?

 
Old 08-09-2010, 07:37 AM   #8
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Re: Dying in pain!!

Change doctors. No doctor has the right to refuse you meds to control your pain. Ask youorpharmacist for the names of pm docs. You deserve to be medicated enough that you can function. Ask your current doc if you want. IF he is that against meds, he should be willing to help you with a doc that will prescribe meds.

 
Old 08-09-2010, 05:09 PM   #9
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Re: Dying in pain!!

Sorry to hear you're suffering so much. I am too but it's not my back, it's fibromyalgia and interstitial cystitis which both cause a central pain syndrome. But I can relate being in constant pain, horrific at times. Regarding your pain control, I would definitely see a pain managment physician. Also, would a spinal cord stimulator be an option?

There is some hope on the horizon. iI read in the latest interstitial cystitis association research news, Columbia scientists discovered the pathway that neurons use to inform the brain of an injury. Long story short, they developed a non-narcotic, non-addictive medication called N60 that can treat chronic pain. Go to www.techventures.columbia.edu. I'm sure it will have to go through extensive clinical trials and FDA approval and I wonder how long it will take to get to market but I'm hopeful they are going to have better non-narcotic medicines to treat chronic pain in the near future. Hang in there.

 
Old 08-13-2010, 04:19 PM   #10
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Re: Dying in pain!!

I agree 100% that you need to see a management doctor as soon as possible. Doctors not in pain management are reluctant to prescribe narcotics that are needed for pain relief. Good luck to you and I am so sorry for your pain. I don't know what I would do without my PM!

Deb

 
Old 08-29-2010, 02:12 AM   #11
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Re: Dying in pain!!

[QUOTE=Alwysnpain;4289538
to talk to dr. because every time I do he says my meds are for cancer patients( if developing it gives me more relief,at this point I'm that desperate!) and 2. the meds I take have been subject of abuse, which in turn hurts the people that really need them like myself, so I do understand my dr's reluctance? But I feel it is far from ethical, when relief is at the tip of his pen and society dictates what is appropriate!
I am at the point where I have little concern for addiction/tolerance(2 are so often confused!) if that's what it takes to provide me some reasonable quality of life, it should be my choice! It's as if they would rather let you suffer in agony than increase your dosage as recommended! I am on disability because of my back and have done every thing asked of me to battle this problem,
If anyone out there has gone through similar, or can offer advice, it would be most appreciated![/QUOTE]

hello, sory to hear you're suffering so much. What meds are you taking? Nowdays doctors do not say narcotic pain meds are for cancer patients.

Where are you living?.Are you located in india?, south america? russia? I know they don't rx narcotic pain meds there. That's the law there.

sory your'e hurting so much.

so let me know.

 
Old 08-29-2010, 06:20 PM   #12
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Re: Dying in pain!!

I've found a fantastic Pain Management practice and they've made it easy to discuss pain, medication options, etc. I am on disability for spine and knee problems and the doctors know this. They also know that I'm okay with some medications that cause some tiredness as I don't need to be alert for work, etc.
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