I need help can someone please help me? "mipphm' stands for mom in pain please help me. I do not know what to do now. My doctors will no longer help me and I am unable to get out of bed most days. I have a disability hearing in April. I need someone to help me figure out what to do. I need a patient advocate or a lawyer. Ive been unjustly abused by the medical community, I have to be able to function for my son's sake, can anyone help me? I do not know how to use this site. I havent slept in so long do to my pain Im confused and can barely function, If I did not have a son I would not chose to live any longer, I have unbearable pain and no one will help me because of an error my DOCTOR made Im so lost right now, I have to stop typing because I do not want my son to see me cry
The following user gives a hug of support to mipphm: lifeaftr40 (03-25-2011)
dont know this site well enough to manuver around it, I lost my last post. I havent slept in so long because of my pain. I need to find a patient advocate, I am being abused by the medical community over a mistake my Dr. made, I need to be able to function to take care of my son and I can barely get out of bed now please if you can help me please give me direction (thats the same thing I just said to god go figure)
I see no one has posted a reply and possibly it's because they need more info to know what to say to you. I know I do! Please explain your situation better and I'll do what I can to help you. I promise!
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Just remember, it could always be worse!
1st of all WLCOME and I am sorry for your pain.
What error did Doctor make if you don't mind me asking ?
Do you have a Primary Care Doctor ?
Ok to make a long story long, I was working, had neck pain, then neck surgery where they put a metal plate in and cadaver bone that was to fuse together, went to PT and they put me in traction 4 times and pulled apart my fusion, I kept working through the pain, then came down with fibro, was put on pain meds monthly for almost 2 years, with no problems, I held down my job even tho I wasnt sleeping and still had alot of pain. Then my job put me on manditory overtime, my doc wrote the wrong date on my RX and shorted me by several days, I had never been on pain meds before and didnt realize it woudl be a big deal to correct the date, I have copies of these RX's showing the dr's error. Since then I got fired from that clinic and labeled a drug seeker. I lost my job and my car and have filed for disability. Now Im in so much pain I cant leave my house. My neck has arthritis so bad all the bones have fused together in a straight line, when I lay down to sleep there is no natural curve, my neck feels like its ganna snap. I have bone spurs, 2 bulged discs and cervical stenosis, along with fibromyalgia. I feel like Im dying the pain is so bad. I never leave my house. Went to the 'clinic' ive been going to since october and have been crying and BEGGING for pain relief. That dr is a nazi from hell! Anyone that could let another suffer as bad as I am and still sleep at night is the anti christ if you ask me. She just went before the "Board" of her clinic to get permission to NOT treat my pain. OMFG!!!!!!!! evil. So now I dont know what to do. I wrote a ltter to the previous dr that had me on the meds asking him to write a letter for me, I never failed a UA and I wasnt abusing these meds, this all happened becuase of HIS error, my letter went ignored no suprise there, I have come to the conclusion all doctors are evil sorry for the rant, its just the way I feel
I went back and looked thru your previous posts. If I understand this correctly, you had cervical surgery, went to pt where they put you in traction and may have caused the fusion to break. Is that right? Then, on a script the doctor gave you, he put the wrong date....and am I correct in deciphering that you changed the date on the script??
First of all, if you did change the date on the script, much as I hate to be the bearer of bad news, you are fortunate not to have been turned in to the police for it. That is why you have been "blackballed" and labeled a drug seeker. You can never, ever, under any circumstances, change a prescription in any way, shape or form. I am not berating you as I do understand you did it in all innocence, but in the future if the prescription has an error, call the doctor and let him fix it. Okay, enough on that subject.
You are right that you need help, and I think there are a couple of things you need to do. First of all, you need to find a good spine specialist. There are 2 kinds, both have fellowship training in spinal surgery; there are Orthopedic Spine Specialists and there are Neurosurgeons. Both limit their practices to matters of the spine only and do no other kind of surgery. They would be the best at knowing how to treat your problem. Personally, I prefer the Ortho spine specialist as I have found them less likely to be judgemental and to be more understanding. That's just my opinion, as there are many others who prefer their neurosurgeons.
Next, you should probably speak to an attorney about a possible lawsuit against the Physical Therapist and the department they work in.
After conferring with at least 2 spine specialists, you could possibly qualify for SSI or SSD if they say you cannot work in this condition. You may be referred to a pain management clinic for injections or other procedures that might give temporary relief.
I am really sorry you have gone through so much and hope that others here can give you further advise as to how to correct your record....that, I do not know how to address.
Please stay in contact and let us know how you are doing. I wish you the best.
Carol
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Lumbar surgery x 7 over the last 30 years.
cervical fusion...2 levels
medtronic pain pump implanted
Last surgery Oct, 2010, 3 levels
I went back and looked thru your previous posts. If I understand this correctly, you had cervical surgery, went to pt where they put you in traction and may have caused the fusion to break. Is that right? Then, on a script the doctor gave you, he put the wrong date....and am I correct in deciphering that you changed the date on the script??
First of all, if you did change the date on the script, much as I hate to be the bearer of bad news, you are fortunate not to have been turned in to the police for it. That is why you have been "blackballed" and labeled a drug seeker. You can never, ever, under any circumstances, change a prescription in any way, shape or form. I am not berating you as I do understand you did it in all innocence, but in the future if the prescription has an error, call the doctor and let him fix it. Okay, enough on that subject.
You are right that you need help, and I think there are a couple of things you need to do. First of all, you need to find a good spine specialist. There are 2 kinds, both have fellowship training in spinal surgery; there are Orthopedic Spine Specialists and there are Neurosurgeons. Both limit their practices to matters of the spine only and do no other kind of surgery. They would be the best at knowing how to treat your problem. Personally, I prefer the Ortho spine specialist as I have found them less likely to be judgemental and to be more understanding. That's just my opinion, as there are many others who prefer their neurosurgeons.
Next, you should probably speak to an attorney about a possible lawsuit against the Physical Therapist and the department they work in.
After conferring with at least 2 spine specialists, you could possibly qualify for SSI or SSD if they say you cannot work in this condition. You may be referred to a pain management clinic for injections or other procedures that might give temporary relief.
I am really sorry you have gone through so much and hope that others here can give you further advise as to how to correct your record....that, I do not know how to address.
Please stay in contact and let us know how you are doing. I wish you the best.
Carol
Thank you for that info, I agree especially with the spine specialist idea. And as far as my error in judgement on the RX believe me, Ive lost everything becuase of that mistake. Had I ever been on pain meds before I probably would have known better, I just assumed if I wasnt trying to put a 'sooner' date on it that it would be ok. Apparently not. And I have applied for disability, my hearing is in mid April. I have past the statue of limitations for suing the PT over that traction, believe me Ive talked to a few attorneys. I guess now I need to find out how to repair my bad drug seeking name so that I dont have to live in agony the rest of my life. I am truly in enough pain that if I didnt have my son I wouldnt chose to continue living...I honeslty think God would understand. Plus the humiliation of being treated like a drug abuser when Ive never done drugs and dont even drink. I use to teach sunday school before my health went bad. I probably dont sound like it tho, Im very irritable, I havent slept a full night since 2007. Luckily I have a wonderful son, he is my world, and he is a very good kid, in that aspect I am blessed. Thank you for your insight
hi-first i wanna tell you i feel for you suffering this way. i a little puzzled as to why your pm practice is being so harsh-you've told us your side of what happened-what is your doctor exactly saying you did-was it the pharmacist who called, an if so did he/she ask you any questions about your prescription? what medication was involved, because if you have been taking the same med from the same pharmacy what made them get suspicious? i just dont see why they would abandond you if you have been there patient over 2 yrs with no problems rt? so, again what the heck are they accusing you of doing to the rx? you said you get your meds every 30 days, did they leave off the date or what-did you tell the pharmacist something was wrong with the date on it? what was done to the date or was it something other than the date? i hope you can get this resolved.
hi-first i wanna tell you i feel for you suffering this way. i a little puzzled as to why your pm practice is being so harsh-you've told us your side of what happened-what is your doctor exactly saying you did-was it the pharmacist who called, an if so did he/she ask you any questions about your prescription? what medication was involved, because if you have been taking the same med from the same pharmacy what made them get suspicious? i just dont see why they would abandond you if you have been there patient over 2 yrs with no problems rt? so, again what the heck are they accusing you of doing to the rx? you said you get your meds every 30 days, did they leave off the date or what-did you tell the pharmacist something was wrong with the date on it? what was done to the date or was it something other than the date? i hope you can get this resolved.
Yes, the pharmacist called the doctor about the RX...because I ASKED HER TO. I put the correct date on the rx then handed it to the pharmacist and said could you please call the doctor they had the wrong date on the RX, she called the doctor and said "your patient tampered withthe RX" and I was fired. I have copies of the exact rx and the rx prior to it, I just re counted the dates again. I was shorted by 5 days by the doctor's error. And yes I was shocked, I had a very good repore with these doctors and I didnt think for 2 seconds they would fire me. And yes it was the same med from the same pharmacy for the entire time. I never doctor shop or pharmacy shop. I dont abuse medications. I showed my 'current' doctor the copy showing how I was shorted, I explained the entire truth to her and she had a meeting with the board of her clinic to get approval to NEVER treat my pain!! HORRIBLE.
I just wrote a long letter to the prescribing dr that shorted me, he is aware he wrote the wrong date, I explained my suffering to him and how my condition has gotten worse, I begged him to help me. Nothing. I even attached a picture of my back, it has turned DARK purple, the skin is burning because Im constantly on a heating pad. I cant continue in this kind of pain, its unbearable. I want to die most days. I have to get better for my son's sake. Do you have any suggestions for me? Im on state funded insurance for poor people, until I get my disability in May, not many doctors will take my insurance. But Im afraid this is going to follow me for the rest of my life. When it all happened I returned to the pain clinic that had origanllly suggested the pain meds for me, I was totally honest and told them what happened, after that they have on file that I am a high risk and the dont recommend narcotics for me. Now any doctor that I see goes by that. Im totally screwed...because of one error in judgement, and I was just trying to keep my job, if I didnt have the meds I wouldnt have been able to get through the day at work, I didnt want to lose my job, I have a son to support, I was afraid of losing it, that is why I corrected the date. I wish I would have just called the dr. That mistake ruined my entire life
i still dont get what the"date" had to do with anything-you didnt say you had the wrong number of tablets-so what did the date your dr put on it matter as long as the amount of medication was the same as previous month's? are you saying you didnt get a full 30 day supply because of the date? if so you simply would have gotten your next rx early by going to the office an showing them the date on the bottle of when they were dispensed, right?
Re: "mipphm' stands for mom in pain please help me.
If your back is turning purple, you need to NOT use that heating pad any further. It sounds like you are burning the flesh and tissue of your back and to lay on a heating pad is not a good idea. They should only be used for a short period of time each time you use them. 15 minutes on and then at least 15 off, with a towel or something wrapped around the pad to try to prevent burns.
Laying in bed all day isn't going to help you either. Once you start getting moving around again, you may find that your pain lessens a bit. The longer you lay in bed, the more muscle tone you loose and then it becomes harder and harder to get moving again.
I understand that you are in pain, but it is not a good idea to keep doing what you are doing.
As far as getting your pain treated, you could try methadone. It is one of the best pain medications for both neuropathic and mechanical pain , it's cheap and it has the added benefit of being very difficult to abuse. It may make your doctors feel a bit better about treating your pain , after the altering of the prescription.
As someone else said, altering the prescription, in any way, shape or form is going to get you dismissed from any pm practice. Someone else said that you were lucky in that the pharmacy and the doctors office didn't persue charges and they are right. It is both a state and federal offense.
You can try physical therapy again, injections, massage, accupuncture, stretching and ice as well as using heat. In fact, alternating those things would make it easier for you. There are also many other medications that aren't pain medications that might help to reduce the pain that you are in. Neuropathic medications might work, something like Lyrica, cymbalta, and the old tri-cyclic anti depressants work wonders for pain that is caused by nerves.
I would suggest that since you didn't get a reply from your original doctor, that you try to find a new pain management doctor and then once you have established yourself as a patient who is willing to try other methods to manage your pain, maybe the new doctor might be willing to consider using a medication like methadone for pain.
i still dont get what the"date" had to do with anything-you didnt say you had the wrong number of tablets-so what did the date your dr put on it matter as long as the amount of medication was the same as previous month's? are you saying you didnt get a full 30 day supply because of the date? if so you simply would have gotten your next rx early by going to the office an showing them the date on the bottle of when they were dispensed, right?
He was writing my RX's every thirty days. The last one he wrote put me out to 35 days. I would have had to go 5 days without meds, and work overtime. Thats why I corrected the date.
Is there some review mechanism where you can get mistakes expunged from your medical records, some panel of doctors or whatever that you can appeal to?
It might be worth getting a patient advocate involved, to try and lobby dispationaly on your behalf.
Referal to a university hospital pain center would be a good option of you can somehow manage it.
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The desire to take medicines is what seperates man from the lower animals - William Ostler
Re: "mipphm' stands for mom in pain please help me.
Quote:
Originally Posted by backhurtz
If your back is turning purple, you need to NOT use that heating pad any further. It sounds like you are burning the flesh and tissue of your back and to lay on a heating pad is not a good idea. They should only be used for a short period of time each time you use them. 15 minutes on and then at least 15 off, with a towel or something wrapped around the pad to try to prevent burns.
Laying in bed all day isn't going to help you either. Once you start getting moving around again, you may find that your pain lessens a bit. The longer you lay in bed, the more muscle tone you loose and then it becomes harder and harder to get moving again.
I understand that you are in pain, but it is not a good idea to keep doing what you are doing.
As far as getting your pain treated, you could try methadone. It is one of the best pain medications for both neuropathic and mechanical pain , it's cheap and it has the added benefit of being very difficult to abuse. It may make your doctors feel a bit better about treating your pain , after the altering of the prescription.
As someone else said, altering the prescription, in any way, shape or form is going to get you dismissed from any pm practice. Someone else said that you were lucky in that the pharmacy and the doctors office didn't persue charges and they are right. It is both a state and federal offense.
You can try physical therapy again, injections, massage, accupuncture, stretching and ice as well as using heat. In fact, alternating those things would make it easier for you. There are also many other medications that aren't pain medications that might help to reduce the pain that you are in. Neuropathic medications might work, something like Lyrica, cymbalta, and the old tri-cyclic anti depressants work wonders for pain that is caused by nerves.
I would suggest that since you didn't get a reply from your original doctor, that you try to find a new pain management doctor and then once you have established yourself as a patient who is willing to try other methods to manage your pain, maybe the new doctor might be willing to consider using a medication like methadone for pain.
Thanks for the info. I have tried cymbalta and lyrica for my fibro and several other antidepresants, I am unable to tolorate them because of awful side effects. As far as the heating pad use, I have been in this pain since 2007 I know for a fact I will not sleep if I dont use it. The pain is just too entense.I have to be able to get some sleep, I have to take care of my son. Even when I was on pain meds I wasnt able to sleep through the neck pain. I might try for the methadone, I dont think Ive ever had it, but I cant even look at another doctor right now, I despise them for making me suffer like this. Had I actually abused the medication I might be able to accept this, but I didnt, and I cant. Im starting PT next week, if I can physically make it down there. No amount of PT is going to help my fibro tho. Maybe I will get lucky and be hit by a large truck Thanks again for the info
Re: "mipphm' stands for mom in pain please help me.
Quote:
Originally Posted by mipphm
Thanks for the info. I have tried cymbalta and lyrica for my fibro and several other antidepresants, I am unable to tolorate them because of awful side effects. As far as the heating pad use, I have been in this pain since 2007 I know for a fact I will not sleep if I dont use it. The pain is just too entense.I have to be able to get some sleep, I have to take care of my son. Even when I was on pain meds I wasnt able to sleep through the neck pain. I might try for the methadone, I dont think Ive ever had it, but I cant even look at another doctor right now, I despise them for making me suffer like this. Had I actually abused the medication I might be able to accept this, but I didnt, and I cant. Im starting PT next week, if I can physically make it down there. No amount of PT is going to help my fibro tho. Maybe I will get lucky and be hit by a large truck Thanks again for the info
And thank you very much Im quiet sure I screwed up I dont need to be lectured any further about it. If I want to be treated like I druggy I will just make another dr appt
how in the world did you figure you would have to go w/o meds for 5 days? whether you got 25 or 35 when you were nearing being out of your prescription you would simply contact their office not change the rx to suite your convenience! i am sorry but what you are saying just doesnt make good sense-do you get my point-no matter if in your opinion the date should be different-why didnt you just at least go back to the office with your concerns about the date on your rx? prescription
Re: "mipphm' stands for mom in pain please help me.
Mom,
The side effects of most medications will ease given some time. Usually by the end of the 2nd week, most of the most life encroaching ones will slowly resolve for the most part.
There are many over the counter, type of medications you can try while you are waiting to find a new pain medication doctor.
It sounds like you are discounting everything suggested to you as no good, won't help or because of side effects.
If you do that when you do see a new pain management doctor, they aren't going to prescribe anything for you.
You have to be willing to give anything ( within reason) that they suggest at least the old college try, and that includes medications you may have tried before. New doctor, new game plan.
Now, I'm also a bit confused, if this doctor wrote your previous script for 30 days and then the one that is the cause of your dismissal for 35 days, how on earth would you be short 5 days worth of medication? It make no sense.
All you would have had to do was make another appointment to see him again in 25 days, rather than 30 and you would have been back on track.
You should have had a 5 day surplus of medications, not a 5 day loss.
Anyway, as far as the heating pad thing goes, if your skin is as you described, you have probably burnt the nerves in your skin, which is most probably why you aren't feeling the burning. You really do need to find another way to provide the heat. What about using a warm shower? Or one of the over the counter balms like Icy Hot or Tiger Balm or even a heat wrap?
Something that isn't going to be left to burn the skin further. Ice would be a better solution temporarily and maybe one of the over the counter arthritis type medications might work some. Some is better than none.
You might want to see your GP and see if they can help get you a new referral and while you are there, get that back checked.
You also might want to not take your frustration out on the very people you are looking to to help you. Even when you don't like hearing what we have to say, we are trying to give you some guidance so that you don't find yourself in a similar position again.
Back
how in the world did you figure you would have to go w/o meds for 5 days? whether you got 25 or 35 when you were nearing being out of your prescription you would simply contact their office not change the rx to suite your convenience! i am sorry but what you are saying just doesnt make good sense-do you get my point-no matter if in your opinion the date should be different-why didnt you just at least go back to the office with your concerns about the date on your rx? prescription
Well it happened on a friday, I didnt notice the date was wrong until I got to the pharmacy when I filled the RX after work the dr office was closed and I was being forced to work manditory overtime with no pain relief. It was impossible. If I had went with the incorrect date I would have not been able to fill it for 5 days. Therefore I would have missed the sat mandatory overtime day AND monday. Im telling you my pain is and was severe. I wouldnt have been able to work that Sat. and probably would have been fired they were writing me up for not being able to concentrate and pay attention to detail. I couldnt sleep so concentrating was out of the question. It truly was a desperate act to save my job
Re: "mipphm' stands for mom in pain please help me.
OK Mom, I finally read the entire thread and here's what I personally think you should do. Unfortunately, no matter what innocence is attached to the Rx act you did, you'll have to find a way to cope and work "through" it. The best way I think it can be accomplished is to search the web for a patient advocacy group and get them involved. There are groups out there that live to help folks like you, now your job is to use the energy you have to find them. Once you do, you can "pass the baton" so to speak and let them fight for you and you use what energy you have for your son. With their help, they may be able to approach a doctor on your behalf and get someone to help you, despite what you've done in the past.
Yes, it's going to be a hard road to tow but it sounds like you have a very important reason to make it happen. Please find someone to help take this burden from a you, at least a little. They may have other helpful ideas as well to help you carry on.
So, I promised you early in this thread I'd do what I could to help and these are my suggestions. Please take the next step for you and your son!
__________________
Just remember, it could always be worse!
Re: "mipphm' stands for mom in pain please help me.
Quote:
Originally Posted by mju58
OK Mom, I finally read the entire thread and here's what I personally think you should do. Unfortunately, no matter what innocence is attached to the Rx act you did, you'll have to find a way to cope and work "through" it. The best way I think it can be accomplished is to search the web for a patient advocacy group and get them involved. There are groups out there that live to help folks like you, now your job is to use the energy you have to find them. Once you do, you can "pass the baton" so to speak and let them fight for you and you use what energy you have for your son. With their help, they may be able to approach a doctor on your behalf and get someone to help you, despite what you've done in the past.
Yes, it's going to be a hard road to tow but it sounds like you have a very important reason to make it happen. Please find someone to help take this burden from a you, at least a little. They may have other helpful ideas as well to help you carry on.
So, I promised you early in this thread I'd do what I could to help and these are my suggestions. Please take the next step for you and your son!
Thanks. Ive been trying to find a patient advocate online, I guess I dont know where to look cause I havent found anyone. I have a counciling appt set up Im hoping they can help me find someone. I was so desperate for pain relief last night I took a cymbalta hoping it would help, I didnt sleep at all, and now Im nausious and have an insaine headache. That stuf is like rat poison to me, does more harm than good. I have to keep trying and not give up. And btw, I agree with your quote, Ive said it for years, it could always be worse, and I prove that to myself alot. Thanks for your insite
