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Old 06-10-2011, 05:09 PM   #1
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Angry My Ongoing Pain Story

Greetings and Hello!!! I live in NE Wisconsin. I am 45 yrs old and have been a back pain and neck pain sufferer for over twenty years now. I had started out with a bulged disk in my neck at C-3 and had a cervical laminectomy in 1991. They also removed bone spurs as well. I had up until 2007 had a decent job, decent insurance, and life was relatively liveable. I then started having severe lumbar problems. From slipped disks to constant numbing, and burning back pain.
Since May of 07 I have had to struggle to find a doctor who would work with me. Mainly because I did not have adequate insurance and to be able to afford expensive epidural injections. I first was working with a psychiatrist who was able to write my meds, however the state eventually had issues with his prescribing practices.(I can understand thier thinking in the long term, and that dr. tried very hard to not leave his opiate patients hanging and looking forward to a long and hard withdrawl issue.)
At the begining of 2011 I was very fortunate to find another doctor who is a DO and he has been very considerate of my situation. I was told today that I would have a very short time to get another doctor in place before he would no longer be able to perscribe anything further.

I do not know how it is in other parts of the United States, however in Wisconsin it has come down to (at least in my case anyways) if you are not willing to find a pain management doctor who is able to charge for injections, and other expensive tests. Then they just don't want anything to do with you. So it appears in my case if I cannot lock down someone who is willing to understand that I am unemployed, in school, and has basically very little money coming in. That I cannot afford to have an epidural injection performed every 8 weeks at $2,000.00 a pop, and MRI's and so on. I will likely be hoarding what meds I am still going to be getting, and then go through cutting myself off. At least it will be somewhat on my terms I guess. What I mean is that I will be able to at least try to stretch out my meds maybe double what time I still have left with my current doctor.
Is it just me or am I completelly wrong here? I am very curious what others out there in different parts of the country are doing to deal with this issue? Or from what I have seen lately on television that I could board a plane on the Oxycontin Express (anywhere USA to anywhere in the State of Florida) and pay cash for my appoinments and meds.

I also wanted to rant about one other thing. It also seems to me that the more negatrive press opiates get on tv and in the media the more these doctors run. I am finding that if the doctors get one bad apple it's alll over for the by the book patients. (Again I guess I can understand this as well) Even with Purdue the maker of Oxycontin perscribing the new tamper proof oxycontin (which I have seen very little or nothing published in the media about) it still leaves a stigma on the good patients. I guess maybe I should of been hoarding up reefer instead. Thanks for taking the time to read my story, and please feel free to post your thoughts.

 
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Old 07-20-2011, 05:49 PM   #2
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Re: My Ongoing Pain Story

hi, mr. ozzfest! i am new here too. i really hear you about the stigma attached to pain patients. i don't know why the addictive personality people get all the love in the media. i also read about the new meds that gum up when you crush them; i hope that helps get the abusers off them. i guess i just wish the addicts would move on to other medicines and leave us alone.

right now i'm getting epidurals, had surgery in may, and take oxycodone. and have a PT. if i hadn't gone on disability (which gave me Medicare), i don't know what i'd do. it would be really really bad. maybe you could try getting on permanent disability. i know it's depressing, but Medicare is a godsend. and maybe after a few years of treatments, you might be able to get off of it. if not, you are still allowed to work p-t without losing your benefits. anyway, good luck...

Last edited by pattycupcake; 07-20-2011 at 05:51 PM. Reason: to clarify

 
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Old 07-25-2011, 08:21 AM   #3
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Re: My Ongoing Pain Story

Hi,
I'm so sorry that you are in so much pain and that you have to deal with medication issues on top of it.
My advice would be to look into a university physicians group, not to someone with a free standing clinic.
I had a similar experience, most of those "anesthesiologists" that have free standing clinics, or form groups of "pain management specialists" do injections, and consider injections to be the standard in pain medicine.
However if you research injections do not work for everyone, and should be used in conjunction with other therapy.
I now go to someone who does not injections, only pharmacological, I too had multiple epidurals and nerve blocks,none worked, and yet when I switched physicians the next one wanted to do exactly the same thing.. or they would say they have nothing for me anymore because the 1 epidural didn't work.

In my opinion those are not physicians.

I now go to a large hospital and see someone who understands pain and when injections are appropriate!

Wishing you pain free days

 
Old 07-25-2011, 08:26 AM   #4
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Re: My Ongoing Pain Story

I forgot to add, if you do get into a University or hospital they may have more assistance for you since you are uninsured.

You are probably have issues with these doctors because they know once they see you they will start the injections and they are costly. When I didn't have insurance I called 10 practices (all promising to inject away your pain) and none would take me! When I had insurance I was charged $2500 for 1 nerve block! No wonder injections and blocks are so popular!

 
Old 01-13-2012, 10:47 PM   #5
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Re: My Ongoing Pain Story

oh boy to put it in a nut shell- i'm tired of being treated like i'm a junkie!! like you said just because others or even if a person before had a problem with drugs or alcohol doesn't mean that they're not in pain and need to be treated with RESPECT!! i always say i wouldn't wish the head ache of trying to get relief of ones pain on my worse enemy but the years that i have dealt with doctors[have m.s,hepc,cirrhosis and rheumotoid arthritis PLUS POOR!] i now take that back and would like some of these supposivaly care givers walk[or try to walk!] in my shoes...they need to know we are not all junkies and just need some comfort!! thanks for letting me vent!

 
Old 01-17-2012, 01:26 PM   #6
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Re: My Ongoing Pain Story

hi there!

boy i have to thank the good Lord for my specialist. I was telling him how the last time my back was injected-later that nite i was in the most wicked pain and could not get out of my bed, luckily a friend came over who has a key an let herself in to ck on me an thank goodness she did cuz i thought i was going to die-she called 911 and was taken to hosp, i could hear them communicating with er doctor who intructed them to give me dilauid and valiun in my IV. i spent the the next 4 days in the hospital on a morphine pump because of that idiot dr who gave me the steroid inj's in my back.

anyways this new dr-pain/rehab specialist told me; after reviewing my xrays,ct scan, mri's, and etc,etc,etc other testing an records-told me that he would never have given me steroid injections or epidurals -he went on to explain that with the type of injuries you have to your spine they(injections) would hurt you not help you. An then he said i am not in the practice of making patients who are already in pain suffer more. i was floored!! he said next iwill be honest with you, and this the same thing i would recommend to my own family member-i dont think you are a good candidate for surgery either-i think at best, we could try to control the pain. he then said i should feel free to get other opinoins, and in the mean time he said he would be happy to try and relieve some of your pain.

this doctor was sooooo nice-i couldnt believe it-i just broke down in tears-he asked why i am crying- i said i am not sure. i guess because i have never had a doctor be so nice and so honest before/plus i'm in alot of pain I laughed.
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