Hi, all!! My name is Diane and I usually post on the fibromyalgia message board. I have decided to pop over here and learn a little about chronic pain in general. I am 40 years old and was diagnosed with fibromyalgia over a year ago. When the pain started, I had just finished a round of levaquin for pneumonia, and to this day am convince that I also have permanent tendon damage as a result. I used to be very active, working 2 jobs and running all of the time. I am still as active as possible, working full time as a microbiology technologist in a hospital. I also have arthritis in my lower back, mild scoliosis, bone spurs in my neck, and endometriosis. I have tried many things for pain including acupuncture, massage, otc meds, rx anti inflammatories, diet, exercise, supplements, etc. My pain is still severe. Right now I am taking cymbalta (it does help), robaxin before bed, and Lortab 7.5 mg four times a day (it helps, as well). I am getting ready to try Lyrica. My symptoms have worsened since I had strep throat and influenza a few months ago. I have been on the same dose of hydrocodone for almost a year. It was helping a lot until I got sick. I am praying that Lyrica will work for me as I am running out of non opiate options. My pain clinic keeps saying that they do not treat fibromyalgia pain with opiates. The only reason I am allowed to take the lortab is that I was already taking them when I started going there. (My GP felt I needed a specialist if I was going to continue taking those types of meds). What I am worried about is what I am to do if the Lyrica does not work?? I have educated myself extensively on opiate pain meds so I am not blind to the risks, etc and really do not want to keep increasing my dose. However, I really feel like I need to try the 10 mg Lortab. I know that I will never be 100% pain free, but I do want to live my life. Oh, I ended up in the ER with a horrible flare of endometriosis and was treated horribly!! Guys, my question is....Is it always going to be like this?? Is is always going to be a fight to get pain relief or treated with respect?? If the Lyrica does not work, should I try another pain clinic?? I have done everything that they have asked and gone broke in the process!! Thanks in advance for any insight! Diane
i am happy to have someone who works in the medical field see what a cp pt goes thru. i am sorry you are suffering, but now you see the ignorance 1st hand, you are not trying to "trick" or 'manipulate" a dr for opiates. you have done everything they have asked, jumped thru every hoop, its rediculouss. it's about the quality of your life-i would drop them and find someone else. they arent all like that but you will finally find one that actually helps instead of continue the torture. you will find the rite dr and you will know relief. i once had a dr tell you need to just learn to live with the pain, women have been doing it since the stone ages=so why cant you////LOL-i kid you not. good luck on your journey-we are here to support you
did you know, 30 years ago doctors were not allowed to prescribe narcotic pain medications in the United States. Slowly they started prescribing them to cancer patients during the 80's and then to people like us - miserable people, chronic pain patients.
It is sad to be a chronic pain patient. It is chronic and never ending. It can make a person crazy.
I really appreciate your replies, guys!! BB07, I never ever knew how hard it was to be a chronic pain patient until now. It is very sad. I am on the edge of my sanity right now. I will be changing docs if the lyrica does not work. At least a new doc will see that I have tried other things. I only want to try 10mg Lortab right now. I am currently taking 7.5 mg. They actually do help (just not enough any more). I guess it is a mix of tolerance and worsening symptoms. I do many other things for my pain. I stretch daily, I take a slew of supplements, I eat pretty healthy, and my hubby is going try an aqua therapy program with me. I have tried massage (wish I could afford that), chiropractor, and accupuncture. I am determined to stay as active as possible, including working full time. I must have the pain meds right now to do so. To lay down for me would be to give up and I think with fibro, it would make me all that much worse. I hate it when docs think we should all fit into neat little boxes. I am aware that there are other fibro patients that find relief with opiates. Time will tell if I do not go insane first!!
nochange, I had no idea that docs could not prescribe opiates before!! And think, they used to be OTC (loooooong ago!!)
say bio- i was wondering since you work as a biotech-you probably interact with other medical people, ie doctors, nurses, etc-what is your take(or theirs)on why so many people are not treated/undertreated for intractable pain- i am not talking about people who make it so obvious they are trying to score-like tthis young girl who came into the waiting rm while was waiting to be seen(must have been her 1st apt that day)she aske me "does this doc give good drugs?" i thought to myself,what a thing to say to a complete stranger!!!like we were at bakery or something,i was so disgusted. she was in for a BIG suprise though, my doctor doesnt play that game all CP pt's must follow strict regime. any how getting back to my question have you ever heard the topic of "chronic pain" being discussed and the use of nacotics for cp? i am saddened that i live with some pretty tough pain-if i didnt have my narcotic med-i would be bedridden, my ability to function daily increased so dramatically, it was like a miracle. all a cp pt asks for is to get some pain relief and be able to sit thru a movie-to load and unload the dishwasher, before my accident 7/2007 these things i mentioned wouldd never be an issue-until i physically couldnt do them, i took alot for granite-and now my life has changed forever,i really hate takings these pills daily but i want to live and enjoy my family.so i will gladly take them and not foccus on all the negative stigma, i am grateful and lucky to have a very good doctor-i am never rushed in and out like some doctors office who collect your co-pay and rush you along like cattle-lol. hope to hear what you may have"witnessed" from your professional side of the coin
nochange, Thirty years ago and even before, doctors were allowed and did prescribe narcotics to cancer patients, and other patients that were in severe and acute pain. In my experience, they even prescribed opiates to people in chronic pain, however not in the large scale that P.M. physicians do now....janiee
janniee08, I really do not like to argue with you or with anyone here. But please, don't you understand that doctors only started prescrcribing narcotic pain medications to cancer patients during the 80's, I know that as a fact. and later on during the 1985 and so on slowly started prescribing narcotic pain medications to miserable people like us called chronic pain patients. I know what I read, believe me.
What? do you think during the civil war doctors used to rx narcotic pain medications?
If we lived back then I do not know what we could do, I cannot take ibuprofen, wha'ts been left for me. shouting I guess.
1700-1800-1900 never. Only started prescribing in Canada and United States during the 1990.
There are many countries called third world countries like Asia, Africa, South America that doctors over there do not prescribe any narcotic, oh, also Russia. I cannot imagine living there. I feel so sorry for anyone living there
Actually Russia isn't a third world country. Anyways just posted to say that in the Civil War Era and before they had Laudnum, which was an opium derivitive. This was one of the first used narcotics, although back then they just called it pain medicine. Just thought you might like that lil historical tidbit.
The Following User Says Thank You to katlin09 For This Useful Post: janiee08 (06-16-2011)
Hi again, guys!! Don't worry, I won't bore anyone with the details of my profession LOL!! hehe Though I will tell you this, I do not have patient contact, I am a microbiology tech so I am hangin' with the buggies all day!! What I will say is that from my personal experience as a patient and information that I have come across researching, I believe that it is so difficult for some to provide adequate relief for a combination of reasons. First of all, I feel that the restrictions/rules put into place by the DEA plays a large part in this. I also feel that physicians are concerned about the rebound pain phenomena. My GP was great but was dead set against opiates for non cancer pain for just that reason. And it makes sense. Also, there is addiction, abuse, and diversion. It is my understanding that this is a very real and HUGE problem. The area in which I live is HORRIBLE for that. I actually asked my NP about that and she said it was pretty bad. And, I agree that all of these elements are quite valid. However, I have learned that is no healing if one is in constant pain. I believe that there is a middle ground for everything and this is no different. I am grateful for the replies here, guys. Pain is mean and ugly and there is no way possible anyone can understand until they are there. Hugs to all, Diane