Re: Need Help in Ohio
Hi there sorry to hear your struggling on. I can totally relate to you,I'm also a mother I'm 33 and had fibromyalgia and ME for around 8 years (along with a load of other long term conditions).
I got my diagnosis from the Rheumatologist who referred me to the pain management clinic.
By this time I'd already tried the usual pain killers so I began with gabepentin followed by lyrica,none of which helped so I then began a trial period of butrans patches.
These patches last a week and absorb morphine through the skin at a daily rate,unfortunately the lower dose made no difference but a higher one did,don't get me wrong I do still have pain and flare ups but daily life is a lot more tolerable,plus I have oramorph for when it becomes really bad.
I think the key is to keep trying the medications that is suggested until you find the right one,its trial and error.
Keep going back to your own doctor to chase up an appointment or perhaps bring it forward,I can't really advise you anymore than this as I'm in the *UK* and our health care is different here.
As for feeling guilty about you not being active with the children I still do feel that as with the fibromyalgia the amount of sleeping I have is still is a major issue,on top of my mobility disabilities it is a hard obstacle to overcome.
So what I do is think of things we can do at home together such as baking and creative stuff,watching dvds together or playing board games,this suits my ten year old boy fine but my elder son who is 15 plays his football and hangs out with friends and does not want to really do stuff with me anyway.
Please let me know how you get on,I do hope I've helped a little,I just could not ignore your post as we are quite similar in age etc