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Old 06-17-2012, 10:05 AM   #1
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Unhappy chronic pain with no hope

I am a 19 year old female and have been experiencing chronic knee and ankle pain for about seven years. I have been on crutches on and off for every year since that. The first time I was injured was due to playing sports. However I was not diagnosed with breaks or sprains. Now that I am 19 I cannot stand for more than twenty minutes. The pain is on my right side pertaining to the back, knee, ankle, and foot. I have had an EMG, MRI, CT, X- Ray, and a cortisone shot. All of them with no diagnosis....I have also worn multiple braces and a boot but nothing seems to help. I really would like some advice because I want to give up hope on finding a cure. I don't want to take anti-depressent medication or anti- seizure medication if the doctors don't know the problem. Please help!

 
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Old 06-17-2012, 10:55 AM   #2
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Re: chronic pain with no hope

How many specialists have you seen? Often the first doctor or few aren't helpful...you have to find that right one who won't stop at the first thing when figuring out the problem. I hope you can find a more helpful doctor, probably an orthapedic?

I do have one odd suggestion--I'd recommend trying some good insoles, like Superfeet. I have had knee problems on and off, sometimes my hips too, and have been told I have flat feet which contributes to the pain in my knees from cartilage wear (chondromalacia patella). I needed some physical therapy as well, but the insoles are definitely helpful. They are something cheap and easy to try while waiting on the doctors, and I don't see how they could harm anything. Not to say this is your problem, but they can help various things.

Someday I should get slippers I can wear insoles with though, as around the house my knees will bug me some. Although since your pain is only on one side that does seem to point to an injury. I got mine at REI, where they had all the types (different arch heights and shoe sizes) to try. Hope you find some answers soon. Best wishes.
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Old 06-17-2012, 12:35 PM   #3
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Re: chronic pain with no hope

Thanks for the advice but I have seen five doctors so far and four of them were orthopedics. I was told about trying some inserts because I have flat feet as well. However, when I was younger I tried wearing sketchers with the arch supports and they made me hurt even more on both legs. I also have a small case of tendinitis in my right knee and I have done physical therapy for it and it didn't work very well.But thanks for your input.

 
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Old 06-17-2012, 01:04 PM   #4
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Re: chronic pain with no hope

I'm sorry that you are going through this. I know you feel very helpless but please do me a favor, DONT GIVE UP! I notice you didn't say anything about blood test being done. Sometimes doctors are so arrogant when it comes to diagnosing things or not believing the severity of your pain that they don't look at other options. I will be the first to tell you that you may go through 7-8 doctors before you find one that will do the work in finding out what is wrong. I am not sure if you are a religious person but having faith also help me. When you think that you will never have a day where your not doubled over in pain. Or you just want to enjoy a day with friends or family. When you are young and going through chronic pain, it can get you down. I will keep you in my prayers and remember do not give up. Go to another doctor or even try a research hospital. That is what they do.
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Old 06-17-2012, 02:35 PM   #5
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Re: chronic pain with no hope

I wish I had some insightful or excellent advice to offer, but after what you have mentioned and everyone else has suggested, I am at a blank as to further options in all honesty. It usually does take several docs before progress is made, but usually at that point there *is* some sort of progression in the treatment, which doesn't seem to be the case with your situation. If orthopedics hasn't elucidated what's wrong, I can only guess as to some possible other specialists to consider - notably rheumatology, hematology (sometimes blood disorders can result in pain), nephrology (possible kidney disorder resulting in uric acid crystals in your leg? or similar?), or possibly immunology (an autoimmune condition is highly capable of producing the symptoms you describe). If it were me I would start with an immunologist to rule out an autoimmune disorder that might have been precipitated by previous injury. Sometimes injured tissue heals in a way that can elicit an abnormal immune response causing the immune system to attack your own tissues.

The only other thing (aside from what others have mentioned) is to ask if you've considered long term pain management therapy in the absence of a clearly identifiable pathology. Sometimes unfortunately an underlying cause can't be completely affirmed, and management of symptoms becomes the best course of action. Of course this is the last resort, but it may be an eventuality to prepare for....

All my sympathy and best wishes!
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Old 06-17-2012, 02:56 PM   #6
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Re: chronic pain with no hope

I have had a CBC blood test and a Thyroid test and so far everything has come back negative but I am thinking of a research hospital. Thank you everyone for all your advice it means a lot. I'm not sure if I can go to a research hospital with my insurance because I need a referral for every doctor I see. Its also very expensive. I feel like I need to ignore the pain because the doctors can't find anything.... and I rather not take Anti- depressants or anti- seizure meds only because my body is highly sensitive to medication. I was also given the option to get a lidocain shot into my back into the sympathetic nerves for a block. (sorry for my spelling errors). But I am trying to look into other options as well.

 
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Old 06-17-2012, 09:29 PM   #7
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Re: chronic pain with no hope

Quote:
Originally Posted by Jakki8992 View Post
I have had a CBC blood test and a Thyroid test and so far everything has come back negative but I am thinking of a research hospital. Thank you everyone for all your advice it means a lot. I'm not sure if I can go to a research hospital with my insurance because I need a referral for every doctor I see. Its also very expensive. I feel like I need to ignore the pain because the doctors can't find anything.... and I rather not take Anti- depressants or anti- seizure meds only because my body is highly sensitive to medication. I was also given the option to get a lidocain shot into my back into the sympathetic nerves for a block. (sorry for my spelling errors). But I am trying to look into other options as well.
Like I suggested in a previous post please try to go to a research hospital. But I do understand the insurance issues. I am not sure what area you live in but try calling around and seeing if you can get in. That is something I don't understand, If your doctor can't find out what is wrong or find out why you are having this pain, then why not refer you to someone who may can help. That is what a GOOD physician would do if they care. I am 30 years old and I still talk to and about my pediatrician who saved my life when I was 14. One day I woke up and couldn't move. Pain was unreal. I was hospitalized and all kinds of test was done. Blood work came back horrible. So my pediatrician started me on some different treatments thinking she knew what was wrong. After about 2 weeks and no change in blood test. She did some more extensive test. They did some of everything in about a 4-6 month span and I was just suffering not knowing if they would ever find out whats wrong with me. Don't know how many times she would tell me that she called different physicians in different states for advise. Then she thought she knew what it was Sickle Cell, or Lupus. After she ruled out Sickle Cell Anemia and she thought it was Lupus, she told my parents flat out that Lupus was wayyy out of here league and she referred me to the city's children hospital. They sent me there and I had a physician there who knew all about Lupus, and had alot of children patients with lupus. Well she did some more test. I was diagnosed within a week of being there. I started seeing her for my lupus but I still continued to see my pediatrician for general health issues. She was really an angel to me. She cared, and she did not give up just because she didn't know what the hell was wrong with me.
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Old 06-18-2012, 09:12 AM   #8
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Re: chronic pain with no hope

Jakki,


Joints can have all kinds of problems, and they can be very hard to find. Once the primary disease or conditon tends to do it's damage then arthritis or osteoarthritis tends to set it. One thing it takes a great sense of resolve and the ability to fight, be strong, and not give up.

There are many things in this day and age that can be done to find the answers to problems that seem to have not answers.

Last edited by katlin09; 06-22-2012 at 01:58 PM. Reason: aparantly I was wrong

 
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Old 06-18-2012, 08:30 PM   #9
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Re: chronic pain with no hope

I think the suggestion to see a rheumatologist is a very good next step since you have already seen four orthopedics. Hope you find some relief soon. Try to stay positive! If you work at this enough, some progress has got to be made. The more you rule out the less conditions it could be. Best wishes.
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Old 06-19-2012, 07:45 AM   #10
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Re: chronic pain with no hope

May i suggest one other thing? I know it may sound silly, but its worth a shot right? Have your feet measured. I had a close friend who had pain in his feet, he discovered that one foot was larger than the other and actually needed one work boot a size larger than the other. It may not help, but it couldn't hurt and all it would take would be going to a shoe store. Good Luck to you!

Last edited by Administrator; 06-22-2012 at 09:20 AM.

 
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Old 06-19-2012, 11:19 PM   #11
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Re: chronic pain with no hope

I have had a CBC blood test and a Thyroid test and so far everything has come back negative but I am thinking of a research hospital. Thank you everyone for all your advice it means a lot. I'm not sure if I can go to a research hospital with my insurance because I need a referral for every doctor I see. Its also very expensive. I feel like I need to ignore the pain because the doctors can't find anything.... and I rather not take Anti- depressants or anti- seizure meds only because my body is highly sensitive to medication. I was also given the option to get a lidocain shot into my back into the sympathetic nerves for a block. (sorry for my spelling errors). But I am trying to look into other options as well.

 
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Old 06-20-2012, 08:08 AM   #12
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Re: chronic pain with no hope

When you say "Research Hospital" do you mean like a University Hospital? Actually those are usually less expensive than most private hospitals and the procedures are more advanced and getting newer and better every day.

Kat

 
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Old 06-20-2012, 10:54 PM   #13
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Smile Re: chronic pain with no hope

Yep katlin09 I told Jakki that she need to go to a research hospital. And It don't worry about the cost as long as you get referred to a research hospital. But I know that it saved my life. They will not give up. So please if possible go to the research hospital. Please keep in touch and let me know how it went. I hope you will have some answers when we meet again.
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Old 06-21-2012, 02:02 AM   #14
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Re: chronic pain with no hope

First - please take the anti-depressant.

Even if you don't want to. Even if you can't see a reason. Being angry/annoyed with the doctors, not wanting to jump their hoops and feeling hopeless IS depression. Sometimes we need something more than positive thinking, faith, hugs, sympathy, etc. It takes anti-depressants so long to work you might give up on them before they do. So you have to just pop them anyway. For at least a month, some even take six weeks.

I understand being young and looking at a future with chronic pain and no real solution is really hard. (I've gone through it myself.) Hopefully you'll find a doctor that makes a world of difference for you soon. While you're waiting, and the word "hopefully" is irritating, take the anti-depressant. ;-)

Also, as so many have pointed out in various ways, you really have to be your own advocate when dealing with the medical field. That's the best advice I can give you. Also - the Internet is your friend, and not all doctors are created equal.

 
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Old 06-21-2012, 06:36 PM   #15
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Re: chronic pain with no hope

Jakki First off when you finally get to a pain management doctor you will know it because he or she will first off get you out of pain. If he offers Methadone take it. Methadone is not just for drug addiction. It is the best pain reliever out there. You may find that 2 10 mg tabs in the morning and two more 10 mg tabs in late afternoon will get you totally out of pain. I have seen it many times. I doubt if it really takes more than four 10mg tabs in the morning and 4 in the evening a total of 80 mgs. After that the two of you can look to see what your real problem is. My bet it stress fractures that are not healing at all. that is a hormonial problem. Just dont give up the ship. dray

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